Quality of life of former premature infants during adolescence and beyond.

Abstract:

:Interest in determining the quality of life of children and adults is now considered a priority. This is a result of a shift in thinking with greater transparency in finding out not only the health outcomes, but also the personal burden of illness and life satisfaction for the individual. However, there is still no consensus on the definition of quality of life or the appropriate tools to measure the same. In the last three decades there has been an exponential increase in the number of publications measuring quality of life, particularly in former premature infants. Most studies show that despite disabilities, children rate their quality of life almost equivalent to that of children born at term, and higher than that predicted by health professionals. This review will focus on the conceptual framework and measurement of self-reported quality of life in the context of former premature infants at adolescence and young adulthood.

journal_name

Early Hum Dev

journal_title

Early human development

authors

Saigal S

doi

10.1016/j.earlhumdev.2013.01.012

subject

Has Abstract

pub_date

2013-04-01 00:00:00

pages

209-13

issue

4

eissn

0378-3782

issn

1872-6232

pii

S0378-3782(13)00021-2

journal_volume

89

pub_type

杂志文章,评审
  • SGA subtypes and mortality risk among singleton births.

    abstract:OBJECTIVES:To determine whether early mortality (first year of life) risks among small for gestational age (SGA) neonates were similar regardless of SGA subtype based on three chronological classifications (term, preterm and post-term). STUDY DESIGN:Retrospective cohort study on all singleton live births in the United...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/j.earlhumdev.2006.05.008

    authors: Kristensen S,Salihu HM,Keith LG,Kirby RS,Fowler KB,Pass MA

    更新日期:2007-02-01 00:00:00

  • Postural development in very low birth weight and normal birth weight infants.

    abstract::In this study the seven postural responses selected by Vojta to evaluate neuromotor development were applied to 68 very low birth weight (VLBW) (greater than 1500 g) infants and to 28 healthy infants of normal birth weight (less than 2500 g). Of the 68 VLBW infants, 41 were small for gestational age and 27 appropriate...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/0378-3782(90)90140-e

    authors: Molteno C,Magasiner V,Sayed R,Karplus M

    更新日期:1990-11-01 00:00:00

  • Doctors in Star Trek: Drs. Boyce and Piper, the early years.

    abstract::Doctors are frequently depicted as important protagonists in science fiction, including in the science fiction franchise Star Trek. This paper will profile Drs. Philip Boyce and Mark Piper from the first two Star Trek pilot episodes. These doctors are interdisciplinarians with a variety of skills that permit them to c...

    journal_title:Early human development

    pub_type: 杂志文章,实务指引

    doi:10.1016/j.earlhumdev.2020.104988

    authors: Grech V

    更新日期:2020-05-01 00:00:00

  • Motor-function and exercise capacity in children with major anatomical congenital anomalies: an evaluation at 5 years of age.

    abstract:BACKGROUND:Children with major anatomical congenital anomalies (CA) often need prolonged hospitalization with surgical interventions in the neonatal period and thereafter. Better intensive care treatment has reduced mortality rates, but at the cost of more morbidity. AIM:To study motor-function and exercise capacity i...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/j.earlhumdev.2010.06.014

    authors: van der Cammen-van Zijp MH,Gischler SJ,Mazer P,van Dijk M,Tibboel D,Ijsselstijn H

    更新日期:2010-08-01 00:00:00

  • Anti-müllerian hormone in early human development.

    abstract::Anti-müllerian hormone (AMH) is a glycoprotein produced by immature Sertoli cells and responsible for the regression of müllerian ducts in male fetuses. The ontogeny of the hormone in early human development was investigated. While no detectable AMH could be found in female fetal serum, in males, the mean +/- S.E.M. A...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/0378-3782(93)90204-8

    authors: Josso N,Lamarre I,Picard JY,Berta P,Davies N,Morichon N,Peschanski M,Jeny R

    更新日期:1993-06-01 00:00:00

  • Withholding treatment, withdrawing treatment, and palliative care in the neonatal intensive care unit.

    abstract::Advances in pharmacology and technology have sharply reduced mortality of extremely preterm infants at the expense of an increasing number of survivors with handicaps and disabilities. The EURONIC study among neonatal intensive care units across Europe demonstrates that treatment of infants born at the limits of viabi...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/j.earlhumdev.2005.10.004

    authors: Walther FJ

    更新日期:2005-12-01 00:00:00

  • The contributions of fetal growth restriction and gestational age to developmental outcomes at 12 months of age: A cohort study.

    abstract:BACKGROUND:Preterm birth is a known risk factor for infant development but it is less clear whether fetal growth restriction (FGR) and early term birth between 37 and 39 weeks gestation are associated with risks for infant development. AIMS:This study investigated risk factors for adverse developmental outcomes at 12 ...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/j.earlhumdev.2020.104951

    authors: Baumgartel K,Jensen L,White SW,Wong K,Straker L,Leonard H,Finlay-Jones A,Downs J

    更新日期:2020-03-01 00:00:00

  • Development of sucking rhythm in preterm infants.

    abstract::We studied the ontogeny and temporal organization of non-nutritive sucking during active sleep in 6 healthy preterm infants (mean birthweight 1.1 kg (range 0.8-1.3 kg) gestational age 28.6 weeks (range 26-30 w] from 30 to 35 weeks of post-menstrual (PM) age. Recognizable rhythmical sucking bursts were recorded at 28 w...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/0378-3782(85)90100-8

    authors: Hack M,Estabrook MM,Robertson SS

    更新日期:1985-07-01 00:00:00

  • WASP (Write a Scientific Paper): Optimisation of PowerPoint presentations and skills.

    abstract::Slide show presentations have become integral to the workplace, and PowerPoint is ubiquitous since it ships with the Microsoft Office Suite. However, the increasing sophistication of such software may encourage presenters to privilege form over content. It is possible to apply scientific research from Educational Psyc...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/j.earlhumdev.2018.06.006

    authors: Grech V

    更新日期:2018-10-01 00:00:00

  • Influence of caesarean delivery and maternal factors on fat-soluble vitamins in blood from cord and neonates.

    abstract::We measured plasma and erythrocyte vitamin E (VE) and plasma vitamin A (VA) profiles in 48 full-term and 8 preterm pairs of neonates and their mothers at birth and we determined whether there is any relationship between maternal and umbilical cord for the nutrients measured. At the same time, we assessed the influence...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/s0378-3782(98)00070-x

    authors: González-Corbella MJ,López-Sabater MC,Castellote-Bargalló AI,Campoy-Folgoso C,Rivero-Urgell M

    更新日期:1998-12-01 00:00:00

  • Thrombopoietin (Tpo) in the fetus and neonate: Tpo concentrations in preterm and term neonates, and organ distribution of Tpo and its receptor (c-mpl) during human fetal development.

    abstract::Little is known about thrombopoietin (Tpo) production in human fetuses and neonates. As a step toward determining whether Tpo is relevant to platelet production in the fetus and neonate, we hypothesized that: (1) like other cytokines, Tpo is present in the cord blood in higher concentrations than in adult plasma; (2) ...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/s0378-3782(98)00077-2

    authors: Sola MC,Juul SE,Meng YG,Garg S,Sims P,Calhoun DA,Dame JB,Christensen D

    更新日期:1999-01-01 00:00:00

  • Work/non-workday differences in mother, child, and mother-child morning cortisol in a sample of working mothers and their children.

    abstract:BACKGROUND:Mothers have been shown to have higher morning cortisol on days they go to work compared to non-workdays; however, it is unknown how maternal workday associates with child morning cortisol or the attunement of mother-child morning cortisol. AIMS:This study examined the presence and stability of morning cort...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/j.earlhumdev.2013.11.007

    authors: Hibel LC,Trumbell JM,Mercado E

    更新日期:2014-01-01 00:00:00

  • Lyso-phosphatidylcholine and outcome of preterm babies with respiratory distress syndrome treated with surfactant.

    abstract::Phosphatidylcholine (PC) is the predominant phospholipid in natural surfactant preparations. A metabolic intermediate, lyso-PC, is potentially injurious to the lungs. In the present study, tracheal aspirates from preterm babies with respiratory distress syndrome treated with surfactant were examined for the presence o...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/s0378-3782(97)01885-9

    authors: O'Hare MM,Bingham AM,McMaster C,Halahakoon WL,Corcoran JD,Halliday HL

    更新日期:1997-09-19 00:00:00

  • Hyperbilirubinemia in healthy neonates with glucose-6-phosphate dehydrogenase deficiency.

    abstract::A cohort study was carried out to assess the association between glucose-6-phosphate dehydrogenase (G6PD) deficiency, diagnosed by quantitative enzyme assay, and neonatal hyperbilirubinemia, defined as serum total bilirubin >/=15 mg/dl, in the well-baby nursery of Chang Gung Children's Hospital. Among 42,110 inborn in...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/s0378-3782(03)00002-1

    authors: Weng YH,Chou YH,Lien RI

    更新日期:2003-04-01 00:00:00

  • The energy content of infant formulas.

    abstract::The reported energy content of infant formulas will vary, depending upon the method used to calculate or measure the caloric value. Manufacturers' specifications regarding the energy content of milk formulas reflects the 'metabolizable' energy. i.e., the amount of energy which is digested and absorbed by the infant. H...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/0378-3782(82)90124-4

    authors: Lemons JA,Moorehead H,Jansen RD,Schreiner RL

    更新日期:1982-07-01 00:00:00

  • Effects of selective head cooling on cerebral blood flow and metabolism in newborn piglets after hypoxia-ischemia.

    abstract:AIM:the effect of selective head cooling on cerebral blood flow (CBF) and cerebral metabolism rate (CMR) was investigated in newborn piglets. METHODS:seven days old newborn piglets were randomly assigned to one of the following three groups: Selective head cooling in normal piglets (n=4), selective head cooling after ...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/j.earlhumdev.2010.11.007

    authors: Cheng G,Sun J,Wang L,Shao X,Zhou W

    更新日期:2011-02-01 00:00:00

  • Assessment of renal maturity by assisted morphometry in autopsied fetuses.

    abstract:BACKGROUND:The kidney is one organ which presents distinct morphology depending on GA; the classic references for kidney measurements were established several years ago and it is not certain if they are still accurate. AIM:To evaluate the renal maturity using a computer-assisted morphometry in autopsied fetuses within...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/j.earlhumdev.2006.01.013

    authors: dos Santos AM,Fonseca Ferraz ML,Pinto Rodriguez ML,Dos Reis MA,Miranda Corrêa RR,de Paula Antunes Teixeira V,da Cunha Castro EC

    更新日期:2006-11-01 00:00:00

  • Audiovisual speech perception and language acquisition in preterm infants: A longitudinal study.

    abstract:BACKGROUND:Preterm infants have a higher risk of language delay throughout childhood. The ability to integrate audiovisual speech information is associated with language acquisition in term infants; however, the relation is still unclear in preterm infant. AIM AND METHODS:This study longitudinally investigated visual ...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/j.earlhumdev.2018.11.001

    authors: Imafuku M,Kawai M,Niwa F,Shinya Y,Myowa M

    更新日期:2019-01-01 00:00:00

  • Healthy Late-preterm infants born 33-36+6 weeks gestational age have higher risk for respiratory syncytial virus hospitalization.

    abstract:BACKGROUND:Respiratory syncytial virus (RSV) is a leading cause of hospitalization for children <1year old and is more severe in premature infants. OBJECTIVE:To assess whether late preterm (LPT) birth is an independent risk factor for RSV hospitalization and more severe RSV disease in children less than 24months old. ...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/j.earlhumdev.2015.06.009

    authors: Helfrich AM,Nylund CM,Eberly MD,Eide MB,Stagliano DR

    更新日期:2015-09-01 00:00:00

  • Breast milk retinol concentration in mothers of preterm newborns.

    abstract:BACKGROUND:Preterm newborns have low vitamin A reserves at birth, which increases their risk of morbidity and mortality. In the absence of supplementation, breast milk is the only source of this nutrient for exclusively breastfed infants. AIMS:To assess retinol concentration in preterm milk and the relationship betwee...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/j.earlhumdev.2017.01.006

    authors: Lima MS,da Silva Ribeiro KD,Pires JF,Bezerra DF,Bellot PE,de Oliveira Weigert LP,Dimenstein R

    更新日期:2017-01-01 00:00:00

  • Erythrocyte acid phosphatase polymorphism: relationship with birth weight, duration of gestation, and congenital abnormalities.

    abstract::No statistically significant relationships were observed between the red blood cell acid phosphatase polymorphism (ACP-1) and birth weight, duration of gestation and proportion of preterm infants in a large series of newborn infants (greater than 8000) in Cardiff. These results are contrasted with those of a similar, ...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:

    authors: Ward RD

    更新日期:1988-08-01 00:00:00

  • Effect of fetal growth restriction on ultrasonographically measured cardiac size.

    abstract::The effect of fetal growth restriction on cardiac size is controversial. It has not been established whether cardiac size of small for gestational age (SGA) fetuses is smaller or larger than appropriate for gestational age (AGA) fetuses. Such controversy may stem from heterogeneity in study population in previous repo...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/s0378-3782(96)01840-3

    authors: Miyague NI,Ghidini A

    更新日期:1997-04-25 00:00:00

  • Sports and sportsmen as role models - or otherwise - in the COVID-19 era.

    abstract::As major sport events have been cancelled and postponed in response to COVID-19, the necessity to protect and provide a holistic approach to the professional athlete has never been greater. To do so one must understand the negative consequences for athletes in relation to the cancellation and postponement of such even...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/j.earlhumdev.2020.105254

    authors: Scerri M,Grech V

    更新日期:2020-11-12 00:00:00

  • Cognitive ability in adolescents born small for gestational age: Associations with fetal growth velocity, head circumference and postnatal growth.

    abstract:BACKGROUND:Small size at birth may be associated with impaired cognitive ability later in life. The aim of this study was to examine the effect of being born small for gestational age (SGA), with or without intrauterine growth restriction (IUGR) on cognitive ability in late adolescence. STUDY DESIGN:A follow-up study ...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/j.earlhumdev.2015.08.014

    authors: Jensen RB,Juul A,Larsen T,Mortensen EL,Greisen G

    更新日期:2015-12-01 00:00:00

  • Placental pathology is associated with illness severity in preterm infants in the first twenty-four hours after birth.

    abstract:BACKGROUND:Placental pathology is associated with long-term neurological morbidity. Little is known about the association of placental pathology and illness severity directly after birth in preterm infants. OBJECTIVE:To determine the association between placental pathology and illness severity in preterm infants durin...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/j.earlhumdev.2011.01.040

    authors: Roescher AM,Hitzert MM,Timmer A,Verhagen EA,Erwich JJ,Bos AF

    更新日期:2011-04-01 00:00:00

  • International child care practices study: methods and study population.

    abstract::The study set out to document child care practices in as many different countries and cultures as possible with the aim of providing baseline child care data and stimulating new hypotheses to explain persisting differences in sudden infant death syndrome (SIDS) rates between countries. The protocol, piloted in four co...

    journal_title:Early human development

    pub_type: 杂志文章,多中心研究

    doi:10.1016/s0378-3782(99)00021-3

    authors: Nelson EA,Taylor BJ

    更新日期:1999-06-01 00:00:00

  • Bi-directional activation of inflammation and coagulation in septic neonates.

    abstract::Neonatal sepsis is frequently accompanied by significant and sometimes life-threatening coagulopathy. More complete understanding is needed of the molecular and cellular mechanisms underlying the interaction of the inflammatory and hemostatic systems. Such information may help focus future studies toward novel ways to...

    journal_title:Early human development

    pub_type: 杂志文章,评审

    doi:10.1016/S0378-3782(14)70008-8

    authors: Del Vecchio A,Stronati M,Franco C,Christensen RD

    更新日期:2014-03-01 00:00:00

  • Neonatal cerebral ultrasound, neonatal neurology and perinatal conditions as predictors of neurodevelopmental outcome in very low birthweight infants.

    abstract::To determine the assessments before discharge from the intensive care unit, that will predict outcome most accurately, a prospective longitudinal study in a cohort of 79 high risk VLBW children was conducted from birth to 3.6 years of age. Birthweight, gestational age, obstetrical and neonatal optimality, neonatal neu...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/0378-3782(92)90040-n

    authors: Weisglas-Kuperus N,Baerts W,Fetter WP,Sauer PJ

    更新日期:1992-12-01 00:00:00

  • Detection of 'rare event' fetal erythroblasts in maternal blood using automated microscopy.

    abstract::This paper describes the use of automated microscopy to detect fetal erythroblasts in maternal blood. The technology is based on the following approach: (1) the use of centrifugal cytology for the preparation of monolayers; (2) simultaneous staining of fetal hemoglobin (immunoalkaline phosphatase) and chromosome seque...

    journal_title:Early human development

    pub_type: 杂志文章

    doi:10.1016/s0378-3782(96)01829-4

    authors: Tanke HJ,Oosterwijk JC,Mesker WE,Ouwerkerk van-Velzen MC,Knepflé CF,Wiesmeyer CC,van Ommen GJ,Kanhai HH,Vrolijk J

    更新日期:1996-12-30 00:00:00

  • Management of infants with bronchopulmonary dysplasia in Germany.

    abstract::Although official guidelines for diagnosis and treatment of bronchopulmonary dysplasia (BPD) exist in Germany the practice in tertiary care neonatology centres differs considerably. There is no consensus about the appropriate level of oxygen saturation for infants at risk for BPD or infants with established BPD. Targe...

    journal_title:Early human development

    pub_type: 杂志文章,评审

    doi:10.1016/j.earlhumdev.2004.12.004

    authors: Thomas W,Speer CP

    更新日期:2005-02-01 00:00:00