Transparency and tuning of rehabilitation care for children with cerebral palsy: a multiple case study in five children with complex needs.

Abstract:

PURPOSE:Generally, there is a lack of knowledge whether and how parent-identified problems, treatment goals and treatment activities are tuned in the treatment of children with cerebral palsy. This study aimed to observe whether parent-identified problems and treatment goals were documented ('transparency' of the rehabilitation process), and to examine the relationship ('tuning') of parent-identified problems to treatment goals and to treatment activities of children with cerebral palsy in pediatric rehabilitation in the Netherlands. METHOD:Five school-aged subjects with cerebral palsy were observed in detail during physical, occupational, and speech therapy, and their written reports were studied. Parent-identified problems, treatment goals, and treatment activities were linked to the ICF components, domains and categories and the amount of agreement was determined by code comparison. RESULTS:Only two children with a total of six parent-identified problems could be documented. Forty-five treatment goals were identified and 72 treatment activities were observed. The analyses indicated some tuning of parent-identified problems, goals and activities in all subjects, but only four of the treatment activities were perfectly tuned to treatment goals as well as to parent-identified problems. CONCLUSIONS:We conclude that transparency and tuning of the pediatric treatment process described in the present study could be improved substantially. Several suggestions for improving the transparency and tuning of the treatment process are discussed.

journal_name

Dev Neurorehabil

authors

Siebes RC,Ketelaar M,Gorter JW,Wijnroks L,De Blécourt AC,Reinders-Messelink HA,Van Schie PE,Vermeer A

doi

10.1080/13638490601104405

subject

Has Abstract

pub_date

2007-07-01 00:00:00

pages

193-204

issue

3

eissn

1751-8423

issn

1751-8431

pii

779500838

journal_volume

10

pub_type

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