Abstract:
PURPOSE:We evaluated family satisfaction following spinal fusion in girls with Rett syndrome. METHODS:Families participating in the population-based and longitudinal Australian Rett Syndrome Database whose daughter had undergone spinal fusion provided data on satisfaction overall, care processes and expected changes in health and function. Content analysis of responses to open-ended questions was conducted. RESULTS:Families reported high levels of overall satisfaction and consistently high ratings in relation to surgical and ICU care. Outstanding clinical care and the development of strong partnerships with clinical staff were much appreciated by families, whereas poor information exchange and inconsistent care caused concerns. CONCLUSIONS:Family satisfaction is an important outcome within a patient-centred quality of care framework. Our findings suggest strategies to inform the delivery of care in relation to spinal fusion for Rett syndrome and could also inform the hospital care of other children with disability and a high risk of hospitalization.
journal_name
Dev Neurorehabiljournal_title
Developmental neurorehabilitationauthors
Downs J,Torode I,Ellaway C,Jacoby P,Bunting C,Wong K,Christodoulou J,Leonard Hdoi
10.3109/17518423.2014.898107subject
Has Abstractpub_date
2016-01-01 00:00:00pages
31-7issue
1eissn
1751-8423issn
1751-8431journal_volume
19pub_type
杂志文章abstract:BACKGROUND:Parents' experiences transitioning their children from neonatal to developmental/rehabilitation services (DRS) are unknown. METHODS:A qualitative descriptive approach was used, including interviews with 18 parents (13 mothers and 5 fathers) of children born preterm and diagnosed with cerebral palsy (CP), lo...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
doi:10.1080/17518423.2018.1434698
更新日期:2019-02-01 00:00:00
abstract:OBJECTIVE:The aim of this paper is to bridge the gap between the corpus of imitation research and video-based intervention (VBI) research, and consider the impact imitation skills may be having on VBI outcomes and highlight potential areas for improving efficacy. METHOD:A review of the imitation literature was conduct...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章,评审
doi:10.3109/17518423.2012.758185
更新日期:2013-08-01 00:00:00
abstract:OBJECTIVE:This exploratory study aimed to describe the self-initiated pretend play of three children who had sustained an acquired brain injury (ABI). No previous research was found. METHODS:Three children aged 3.0-6.0 years were recruited through purposive sampling. Pretend play ability was assessed using the Child-I...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
doi:10.3109/17518423.2012.655798
更新日期:2012-01-01 00:00:00
abstract:OBJECTIVE:To assess the responsiveness, examine the scoring range and determine the efficiency of a multidimensional computer adaptive testing version of the Pediatric Evaluation of Disability Inventory (PEDI-MCAT) for children admitted to inpatient pulmonary rehabilitation. METHODS:The PEDI-MCAT was completed by clin...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
doi:10.3109/17518420903386179
更新日期:2010-01-01 00:00:00
abstract:OBJECTIVE:To investigate the ability of the New Jersey Institute of Technology Robot Assisted Virtual Rehabilitation (NJIT-RAVR) system training to elicit changes in upper extremity (UE) function in children with hemiplegia secondary to cerebral palsy. METHODS:Nine children (mean age 9 years, three males) participated...
journal_title:Developmental neurorehabilitation
pub_type: 临床试验,杂志文章
doi:10.3109/17518423.2010.501362
更新日期:2010-01-01 00:00:00
abstract:PURPOSE:Challenging behaviours present major impediments to a young child's life. Being able to properly assess these behaviours can lead to early intervention and remediation. METHOD:In the present study, the problem behaviours of 644 children 17-37 months of age who were at risk for developmental disabilities were s...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
doi:10.3109/17518420903074887
更新日期:2010-02-01 00:00:00
abstract:PURPOSE:Autism spectrum disorder (ASD) screening is recommended for all children aged 18-24 months. However, healthcare providers may be burdened with the responsibility of conducting these screens in addition to necessary services. Therefore, developing a time-efficient screener with sound psychometric properties is e...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
doi:10.1080/17518423.2016.1211189
更新日期:2017-07-01 00:00:00
abstract:PURPOSE:To describe the creation and validation of six simulations concerned with effective listening and interpersonal communication in pediatric rehabilitation. METHODS AND FINDINGS:The simulations involved clinicians from various disciplines, were based on clinical scenarios related to client issues, and reflected ...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
doi:10.3109/17518423.2014.989461
更新日期:2016-10-01 00:00:00
abstract:OBJECTIVE:This prospective study investigated the relationship between Amiel-Tison neurological assessment (ATNA) in preterm children and their psychosocial functioning in adolescence. METHODS:From the initial group of 45 children regularly assessed by the ATNA from term until the age of 2 years, 27 participated in th...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
doi:10.1080/17518423.2018.1434699
更新日期:2019-01-01 00:00:00
abstract:OBJECTIVE:To investigate the effect of a combination of botulinum toxin A (BTX-A) and rehabilitation on spasticity, pain and motor functioning in children with acquired brain injury (ABI). METHODS:All children and adolescents with ABI, aged 2-20 years, consecutively treated in the department over a 22-month period, we...
journal_title:Developmental neurorehabilitation
pub_type: 临床试验,杂志文章
doi:10.1080/17518420902927994
更新日期:2009-06-01 00:00:00
abstract:PURPOSE:To investigate the congruent validity of a structured interview protocol for assessing the preferences of seven children with autism spectrum disorder (ASD). METHOD:Using the structured interview protocol described by Green et al., parents were asked to provide a rank ordering of their child's preferred foods,...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
doi:10.3109/17518423.2011.606509
更新日期:2011-01-01 00:00:00
abstract:BACKGROUND:Little is known about whether individuals with autism spectrum disorder (ASD) or attention deficit hyperactive disorder (ADHD) experience any specific facilitators or barriers to driving education. OBJECTIVE:To explore the facilitators or barriers to driving education experienced by individuals with ASD or ...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
doi:10.3109/17518423.2015.1058299
更新日期:2017-02-01 00:00:00
abstract:OBJECTIVE:Since its 2001 publication, a number of issues have been raised about the ICF. The World Health Organization anticipated the ICF would undergo a continuous process of revision. This paper adds to this process. METHOD:This article describes how the ICF framework shares a number of tenets with a systems perspe...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章,评审
doi:10.3109/17518421003620525
更新日期:2010-01-01 00:00:00
abstract::Background: Children with traumatic brain injury (TBI) are reported to have persistent deficits in executive functioning and subtle motor functionsAim: This study examined the relationship between subtle motor signs and executive functioning in children with TBIMethods: Eighteen children aged 13-18 years with mild to ...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
doi:10.1080/17518423.2019.1655676
更新日期:2020-01-01 00:00:00
abstract:OBJECTIVE:Motor experience plays a central role in cognitive development. Assistive technologies can thus provide augmentative manipulation for children with motor disabilities. This paper explores the use of robots to this end. METHOD:A revision of studies conducted with typically-developing children and children wit...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章,评审
doi:10.3109/17518423.2011.635609
更新日期:2012-01-01 00:00:00
abstract:BACKGROUND:Profound and multiple learning disabilities (PMLD) are a complex range of disabilities that affect the general health and well-being of the individual and their capacity to interact and learn. METHOD:We developed a new methodology to capture the non-symbolic signalling behaviours of children with PMLD withi...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
doi:10.3109/17518423.2014.935822
更新日期:2016-08-01 00:00:00
abstract:OBJECTIVE:To prepare for an RCT by examining the effects of an educational intervention on the listening skills of pediatric rehabilitation clinicians, piloting study procedures, and investigating participants' learning experiences. METHODS:Six experienced clinicians received the intervention, consisting of video simu...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
doi:10.3109/17518423.2015.1063731
更新日期:2017-01-01 00:00:00
abstract:OBJECTIVE:This paper contributes to research investigating the effectiveness of video game intervention in shower training of children with autism spectrum disorders. Previous studies have supported the use of video games in special education. METHODS:We employed the Kinect sensor to gamify shower training. Specifical...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
doi:10.1080/17518423.2018.1501778
更新日期:2019-07-01 00:00:00
abstract:OBJECTIVE:Extending the use of microswitch-based programmes to (a) establish mouth-drying responses and reduce the effects of drooling, (b) assess the possibility of widening inter-response intervals and (c) determine whether different microswitch solutions would impact the accuracy/effectiveness of mouth drying. METH...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
doi:10.3109/17518423.2011.570286
更新日期:2011-01-01 00:00:00
abstract:OBJECTIVE:Studies involving the use of telepractice in the delivery of services to individuals with autism spectrum disorders (ASD) were reviewed with the intent to inform practice and identify areas for future research. METHODS:Systematic searches of electronic databases, reference lists and journals identified eight...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章,评审
doi:10.3109/17518423.2010.499889
更新日期:2010-01-01 00:00:00
abstract:BACKGROUND:In Canada, allocation of rehabilitation services is often based on the assumption that families who have third party insurance funding are well served by the private sector system and are not in need of publicly funded rehabilitation services. However, there has been little research comparing the experiences...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
doi:10.1080/17518420701780115
更新日期:2008-04-01 00:00:00
abstract::Objective: We investigated the impact of the pre-training neuropsychological (NP) impairment and of the training progress on the NP and behavioural outcome after computerized cognitive training (CogT) in children with ADHD. Method: Thirty-one participants underwent individualized CogT (focussing on one or two cognitiv...
journal_title:Developmental neurorehabilitation
pub_type: 临床试验,杂志文章
doi:10.1080/17518423.2019.1600064
更新日期:2019-08-01 00:00:00
abstract:OBJECTIVE:This paper describes four case studies of communication support for students with multiple and severe disability (MSD) in special school classrooms that used a mentor-model approach to the professional development of educational staff. METHODS:A range of observational and report instruments was used to measu...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
doi:10.3109/17518423.2013.861528
更新日期:2014-04-01 00:00:00
abstract:PURPOSE:This study aimed to examine the association between motor and mental functioning in toddlers with cerebral palsy (CP). METHODS:The Mental and Motor Scales of the Bayley Scales of Infant Development-Second Edition (BSID-II) were administered. SUBJECTS:Seventy-eight toddlers with CP (mean age 2 years 7 months, ...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
doi:10.1080/17518420802581164
更新日期:2008-10-01 00:00:00
abstract:OBJECTIVE:Arts-based programmes have been shown to be useful for individuals with disturbances in cognitive and behavioural functioning. The current case studies examined the feasibility and effectiveness of a theatre skills training programme to facilitate social skills and participation for adolescents with childhood...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
doi:10.3109/17518423.2012.673178
更新日期:2012-01-01 00:00:00
abstract::As individuals with autism spectrum disorder (ASD) transition to adulthood, problem behavior may present restrictions to an independent lifestyle. In addition, problem behavior may interfere with performance of daily routines necessary for independent living. We developed a successful treatment for automatically reinf...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
doi:10.1080/17518423.2020.1770352
更新日期:2020-10-01 00:00:00
abstract:INTRODUCTION:Burns create a myriad of complications that affect the child's developmental, functional and aesthetic status. The WeeFIM is a standardized measure of functional performance developed for use in children 6-months to 8-years of age but with application through adolescence. It includes 18 domains of performa...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
doi:10.1080/17518420701520644
更新日期:2008-01-01 00:00:00
abstract:OBJECTIVE:To examine if body weight supported treadmill training (BWSTT) improves the regularity of stepping kinematics in children with cerebral palsy (CP). METHODS:Twelve children with CP who had Gross Motor Function Classification Scores that ranged from II-IV participated in 12 weeks of body weight supported tread...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
doi:10.3109/17518423.2011.552459
更新日期:2011-01-01 00:00:00
abstract:OBJECTIVE:This pilot study explored the nature and quality of social experiences of children with Asperger Syndrome/High Functioning Autism (AS/HFA) through experience sampling method (ESM) while participating in everyday activities. METHODS:ESM was used to identify the contexts and content of daily life experiences. ...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
doi:10.3109/17518423.2014.915244
更新日期:2016-01-01 00:00:00
abstract:PURPOSE:To identify child, family, and service determinants of playfulness of young children with cerebral palsy. METHODS:Participants were 429 children, 18-60 months. Children were divided into two groups, Gross Motor Function Classification System levels I-II and III-V. Therapists collected data on body functions an...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
doi:10.1080/17518423.2018.1471623
更新日期:2019-05-01 00:00:00