Abstract:
BACKGROUND:Parents' experiences transitioning their children from neonatal to developmental/rehabilitation services (DRS) are unknown. METHODS:A qualitative descriptive approach was used, including interviews with 18 parents (13 mothers and 5 fathers) of children born preterm and diagnosed with cerebral palsy (CP), located in a large urban center in Canada. Interview data underwent thematic analysis. RESULTS:Parents' experiences with transition to DRS were a whole new world with three key themes: Wanting to know what to expect, feeling supported in their transition, and getting there emotionally and physically. Transition broke an emotional bond with neonatal services while parents were simultaneously entering DRS, experiencing their child's CP diagnosis, and reliving prior emotional trauma. CONCLUSIONS:The findings reveal a cumulative emotional burden for parents in the first 3 years of life; a known critical period for parenting and early childhood development. Early transition interventions should consider including enhanced supports and services for parents.
journal_name
Dev Neurorehabiljournal_title
Developmental neurorehabilitationauthors
Ballantyne M,Bernardo S,Sozer A,Orava T,C McPherson A,Church P,Fehlings Ddoi
10.1080/17518423.2018.1434698subject
Has Abstractpub_date
2019-02-01 00:00:00pages
87-97issue
2eissn
1751-8423issn
1751-8431journal_volume
22pub_type
杂志文章abstract:OBJECTIVE:Motor experience plays a central role in cognitive development. Assistive technologies can thus provide augmentative manipulation for children with motor disabilities. This paper explores the use of robots to this end. METHOD:A revision of studies conducted with typically-developing children and children wit...
journal_title:Developmental neurorehabilitation
pub_type: 杂志文章,评审
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journal_title:Developmental neurorehabilitation
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abstract:OBJECTIVE:To assess the responsiveness, examine the scoring range and determine the efficiency of a multidimensional computer adaptive testing version of the Pediatric Evaluation of Disability Inventory (PEDI-MCAT) for children admitted to inpatient pulmonary rehabilitation. METHODS:The PEDI-MCAT was completed by clin...
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journal_title:Developmental neurorehabilitation
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journal_title:Developmental neurorehabilitation
pub_type: 杂志文章
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journal_title:Developmental neurorehabilitation
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