Abstract：
BACKGROUND:This paper explores carers' views of dying, death and bereavement for family members who had recently died with heart failure adding to a growing literature on end of life experiences for people with conditions other than cancer. METHODS:Twenty interviews were conducted with bereaved carers of older people with heart failure (HF) who had been participating in a longitudinal study. Carers were approached in writing 3 months after the death. Interviews were transcribed verbatim and analysed thematically with the assistance of NUD*IST. RESULTS:Findings were grouped into three time periods: prior to death; the death itself and bereavement. Most carers found discussions about end of life with their family member prior to death difficult. Dissatisfaction with the manner of the death was focused around hospital care, particularly what they believed to be futile treatments. In contrast deaths in the home were considered 'good'. Carers adopted a range of coping strategies to deal with grief including 'using their faith' and 'busying themselves' with practicalities. There was some satisfaction with services accessed during the bereavement period although only a small number had taken up counselling. DISCUSSION:Our findings suggest that an absence of discussion about end of life care wishes with family members or health professionals is a barrier to advance care planning. Carers' perceptions about prioritising making the dying person comfortable can be in conflict with doctors' decisions to treat. Whilst carers report a range of strategies adopted in response to bereavement there is a need for continued support for vulnerable carers after the death of the person with HF.
journal_name
BMC Palliat Carejournal_title
BMC palliative careauthors
Small N,Barnes S,Gott M,Payne S,Parker C,Seamark D,Gariballa Sdoi
10.1186/1472-684X-8-6subject
Has Abstractpub_date
2009-06-16 00:00:00pages
6issn
1472-684Xpii
1472-684X-8-6journal_volume
8pub_type
杂志文章abstract：BACKGROUND:Globally, the number of people who die with dementia is increasing. The importance of a palliative approach in the care of people with dementia is recognised and there are national polices to enhance current care. In the UK implementation of these polices is promoted by the National Institute for Health and ...
journal_title：BMC palliative care
pub_type： 杂志文章,评审
doi：10.1186/s12904-015-0047-6
更新日期：2015-10-19 00:00:00
abstract：BACKGROUND:Empirical knowledge around palliative care provision and needs of people with intellectual disabilities is extremely limited, as is the availability of research resources, including expertise and funding. This paper describes a consultation process that sought to develop an agenda for research priorities for...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-016-0108-5
更新日期：2016-03-24 00:00:00
abstract：BACKGROUND:In the last years of life, burden of disease and disability and need of health- and social care often increase. Social, functional and psychological factors may be important in regard to social- and health care utilization. This study aims to describe use of health- and social care during the last year of li...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-020-00598-x
更新日期：2020-06-23 00:00:00
abstract：BACKGROUND:The Integrated Palliative care Outcome Scale (IPOS) was developed for evaluating essential outcomes for palliative care patients. Our objectives here are to describe the process of a six-phase cross-cultural adaptation of IPOS to French (IPOS-Fr), highlight the difficulties encountered and strategies to solv...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-019-0422-9
更新日期：2019-04-18 00:00:00
abstract：BACKGROUND:Discrepancies between the information that patients have received and the patients' awareness of their condition have frequently been observed in literature and given a number of different explanations. The chief contribution of this study is that by following patients over time it is possible not only to no...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-7-2
更新日期：2008-02-28 00:00:00
abstract：:BACKGROUND: Although guidelines for the care of the dying patient exist the evidence base to support the guidelines is poor. Some of the factors contributing to this include failure to recruit to trials, protective healthcare professionals and subsequent attrition from trials due to the death of the patients. Recent s...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-3-1
更新日期：2004-04-27 00:00:00
abstract：: Parkinson's disease (PD) is one of the most common neurodegenerative disorders of the elderly population. Few therapeutic options are available for patients with PD requiring palliative care. Treatment of the early stages of PD is entirely different from later stages. During the later stages, the palliative care mode...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-11-20
更新日期：2012-10-25 00:00:00
abstract：BACKGROUND:There are many potential benefits to chaplaincy in transforming into a "research-informed" profession. However little is known or has been documented about the roles of chaplains on research teams and as researchers or about the effects of research engagement on chaplains themselves. This report describes th...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-015-0006-2
更新日期：2015-05-02 00:00:00
abstract：BACKGROUND:Models of palliative care delivery develop within a social, cultural, and political context. This paper describes the 30-year history of the National Tumor Association (ANT), a palliative care organization founded in the Italian province of Bologna, focusing on this model of home care for palliative cancer p...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-9-12
更新日期：2010-06-08 00:00:00
abstract：BACKGROUND:Previous studies have found that cancer patients undergoing chemotherapy can effectively manage their own symptoms when given tailored advice. This approach, however, may challenge patients with poor performance status and/or emotional distress. Our goal is to test an automated intervention that engages a fr...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-10-21
更新日期：2011-11-25 00:00:00
abstract：UNLABELLED: BACKGROUND:Parental palliative disease is a family affair, however adolescent's well-being and coping are still rarely considered. The objectives of this paper were a) to identify differences in psychosocial adjustment and health-related quality of life (HRQoL) among adolescents and young adults with paren...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-11-21
更新日期：2012-10-30 00:00:00
abstract：BACKGROUND:The supportive hospice aged residential exchange (SHARE) is a new model of palliative care education that has been designed for residential aged care. The goal of SHARE is to help clinical staff improve palliative care within residential aged care facilities and to improve specialist palliative care nurses' ...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-020-00633-x
更新日期：2020-08-17 00:00:00
abstract：BACKGROUND:Professionals and relatives increasingly have to deal with people with intellectual disabilities (ID) who are in need of end-of-life care. This is a specific type of care that may require a different approach to the focus on participation that currently characterizes the care for people with ID. This paper d...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-015-0030-2
更新日期：2015-07-25 00:00:00
abstract：UNLABELLED: BACKGROUND:Development of interventions that address psychosocial and existential distress in people with motor neurone disease (MND) or that alleviate caregiver burden in MND family carers have often been suggested in the research literature. Dignity therapy, which was developed to reduce psychosocial and...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-11-18
更新日期：2012-09-20 00:00:00
abstract：BACKGROUND:While the home is the most common setting for the provision of palliative care in Australia, a common problem encountered here is the inability of patient/carers to manage medications, which can lead to misadventure and hospitalisation. This can be averted through detection and resolution of drug related pro...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-10-16
更新日期：2011-10-31 00:00:00
abstract：BACKGROUND:Overuse of anti-cancer therapy is an important quality-of-care issue. An aggressive approach to treatment can have negative effects on quality of life and cost, but its effect on survival is not well-defined. METHODS:Using the Surveillance, Epidemiology, and End Results-Medicare database, we identified 7,87...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-10-14
更新日期：2011-09-21 00:00:00
abstract：BACKGROUND:A compassionate community approach to palliative care provides important rationale for building community-based hospice volunteer capacity. In this project, we piloted one such capacity-building model in which volunteers and a nurse partnered to provide navigation support beginning in the early palliative ph...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-017-0210-3
更新日期：2017-07-03 00:00:00
abstract：BACKGROUND:Children show long-term psychological distress if family communication and illness-related information are poor during and after a parent's illness and death. Few psychosocial interventions for families with minor children living with a parent who has a life-threatening illness have been evaluated rigorously...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-020-00551-y
更新日期：2020-04-16 00:00:00
abstract：BACKGROUND:Palliative and end-of-life care development is hindered by a lack of information about the circumstances surrounding dying in developing and resource-poor countries. Our aims were to develop and obtain face and content validity for a self-administered questionnaire on end-of-life care provision and medical d...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-020-00630-0
更新日期：2020-08-14 00:00:00
abstract：BACKGROUND:The leading cause of death among young children in southern Africa is complications due to HIV infection and, in South Africa, over a third of all deaths of children younger than five are associated with HIV infection. There is a great and urgent need for children's palliative care in Africa, whether HIV-rel...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-016-0114-7
更新日期：2016-04-09 00:00:00
abstract：BACKGROUND:Most patients with life-limiting illnesses are treated and cared for over a long period of time in primary care and guidelines suggest that ACP discussions should be initiated in primary care. However, a practical model to implement ACP in general practice is lacking. Therefore, the objective of this study i...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-016-0091-x
更新日期：2016-02-11 00:00:00
abstract：BACKGROUND:The McGill Quality of Life Questionnaire - Expanded (MQOL-E) and the Quality of Life in Life-Threatening Illness-Family Carer/Caregiver version (QOLLTI-F) are developed for use with patients facing the end of life and their family carers, respectively. They are also developed for possible use as companion in...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-020-00549-6
更新日期：2020-03-25 00:00:00
abstract：BACKGROUND:Confinement to an in-patient hospital ward impairs patients' sense of social support and connectedness. Providing the means, through communication technology, for patients to maintain contact with friends and family can potentially improve well-being at the end of life by minimizing social isolation and faci...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-017-0203-2
更新日期：2017-05-06 00:00:00
abstract：UNLABELLED: BACKGROUND:This study explores with patients, carers and health care professionals if, when and how Advance Care Planning conversations about patients' preferences for place of care (and death) were facilitated and documented. METHODS:The study adopted an exploratory case study design using qualitative in...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-11-15
更新日期：2012-09-17 00:00:00
abstract：BACKGROUND:Spiritual care is frequently cited as a key component of hospice care in Taiwanese healthcare and beyond. The aim of this research is to gauge physicians and nurses' self-reported perspectives and clinical practices on the roles of their professions in addressing spiritual care in an inpatient palliative car...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-020-00608-y
更新日期：2020-07-01 00:00:00
abstract：BACKGROUND:Implementation of quality improvements in palliative care (PC) is challenging, and detailed knowledge about factors that may facilitate or hinder implementation is essential for success. One part of the EU-funded IMPACT project (IMplementation of quality indicators in PAlliative Care sTudy) aiming to increas...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-016-0132-5
更新日期：2016-07-15 00:00:00
abstract：BACKGROUND:In palliative care (PC) patients and relatives (P/R) often show their gratitude to the healthcare professionals (HP) who care for them. HP appreciate these displays of gratitude, although the impact of the same has not been examined in detail. Publications analysed tell personal experiences in which HP say t...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-019-0412-y
更新日期：2019-03-21 00:00:00
abstract：:BACKGROUND: Transitions in the location of care and in who provides such care can be extremely stressful for individuals facing death and for those close to them. The objective of this study was to describe the distribution of transitions in care experienced by palliative care patients following admission to a compreh...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-4-3
更新日期：2005-02-22 00:00:00
abstract：BACKGROUND:The aim of palliative care is to improve the quality of life of patients and families through the prevention and relief of suffering. Frequently, patients may choose to receive palliative care in the home. The objective of this paper is to summarize the quality and primary outcomes measured within the pallia...
journal_title：BMC palliative care
pub_type： 杂志文章,评审
doi：10.1186/s12904-018-0299-z
更新日期：2018-03-07 00:00:00
abstract：BACKGROUND:One essential element of research is the successful recruitment of participants. However, concerns are obvious regarding the ethical implications of involving terminally ill and even dying patients and their informal caregivers as research participants. This study aims to illustrate central issues encountere...
journal_title：BMC palliative care
pub_type： 杂志文章,多中心研究
doi：10.1186/s12904-015-0020-4
更新日期：2015-05-02 00:00:00
