Abstract:
BACKGROUND:A compassionate community approach to palliative care provides important rationale for building community-based hospice volunteer capacity. In this project, we piloted one such capacity-building model in which volunteers and a nurse partnered to provide navigation support beginning in the early palliative phase for adults living in community. The goal was to improve quality of life by developing independence, engagement, and community connections. METHODS:Volunteers received navigation training through a three-day workshop and then conducted in-home visits with clients living with advanced chronic illness over one year. A nurse navigator provided education and mentorship. Mixed method evaluation data was collected from clients, volunteer navigators, the nurse navigator, and other stakeholders. RESULTS:Seven volunteers were partnered with 18 clients. Over the one-year pilot, the volunteer navigators conducted visits in home or by phone every two to three weeks. Volunteers were skilled and resourceful in building connections and facilitating engagement. Although it took time to learn the navigator role, volunteers felt well-prepared and found the role satisfying and meaningful. Clients and family rated the service as highly important to their care because of how the volunteer helped to make the difficult experiences of aging and advanced chronic illness more livable. Significant benefits cited by clients were making good decisions for both now and in the future; having a surrogate social safety net; supporting engagement with life; and ultimately, transforming the experience of living with illness. Overall the program was perceived to be well-designed by stakeholders and meeting an important need in the community. Sustainability, however, was a concern expressed by both clients and volunteers. CONCLUSIONS:Volunteers providing supportive navigation services during the early phase of palliative care is a feasible way to foster a compassionate community approach to care for an aging population. The program is now being implemented by hospice societies in diverse communities across Canada.
journal_name
BMC Palliat Carejournal_title
BMC palliative careauthors
Pesut B,Duggleby W,Warner G,Fassbender K,Antifeau E,Hooper B,Greig M,Sullivan Kdoi
10.1186/s12904-017-0210-3subject
Has Abstractpub_date
2017-07-03 00:00:00pages
2issue
1issn
1472-684Xpii
10.1186/s12904-017-0210-3journal_volume
17pub_type
杂志文章abstract:BACKGROUND:In palliative care (PC) patients and relatives (P/R) often show their gratitude to the healthcare professionals (HP) who care for them. HP appreciate these displays of gratitude, although the impact of the same has not been examined in detail. Publications analysed tell personal experiences in which HP say t...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-019-0412-y
更新日期:2019-03-21 00:00:00
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journal_title:BMC palliative care
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journal_title:BMC palliative care
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abstract:BACKGROUND:Professionals and relatives increasingly have to deal with people with intellectual disabilities (ID) who are in need of end-of-life care. This is a specific type of care that may require a different approach to the focus on participation that currently characterizes the care for people with ID. This paper d...
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journal_title:BMC palliative care
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pub_type: 杂志文章
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journal_title:BMC palliative care
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更新日期:2011-10-31 00:00:00
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abstract:BACKGROUND:To determine the feasibility and acceptability of lower limb neuromuscular electrical stimulation (NMES) as a home-based exercise therapy in patients with cancer who could not attend hospital-based exercise training. METHODS:A single-arm prospective pilot study of NMES, applied daily to both quadriceps musc...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-13-23
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journal_title:BMC palliative care
pub_type: 杂志文章,评审
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更新日期:2018-03-07 00:00:00
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pub_type: 杂志文章
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更新日期:2018-03-27 00:00:00
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pub_type: 杂志文章
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更新日期:2017-09-06 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-017-0189-9
更新日期:2017-02-13 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-019-0422-9
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pub_type: 杂志文章
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更新日期:2012-09-17 00:00:00
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pub_type: 杂志文章,多中心研究
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pub_type: 杂志文章,评审
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doi:10.1186/1472-684X-4-3
更新日期:2005-02-22 00:00:00
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更新日期:2020-06-23 00:00:00
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