Palliative care in the home: a scoping review of study quality, primary outcomes, and thematic component analysis.

abstract：BACKGROUND:Communication in do not resuscitate (DNR) and artificial nutrition and hydration (ANH) at the end of life is a key component of advance care planning (ACP) which is essential for patients with advanced cancer to have cares concordant with their wishes. The SOP model (Shared decision making with Oncologists a...

journal_title：BMC palliative care

authors： Huang HL,Tsai JS,Yao CA,Cheng SY,Hu WY,Chiu TY

更新日期：2020-02-04 00:00:00

abstract：BACKGROUND:Under-diagnosis of pain is a serious problem in cancer care. Accurate pain assessment by physicians may form the basis of effective care. The aim of this study is to examine the association between late referral to a Palliative Care Team (PCT) after admission and the under-diagnosis of pain by primary physic...

journal_title：BMC palliative care

authors： Akashi M,Yano E,Aruga E

更新日期：2012-06-07 00:00:00

abstract：BACKGROUND:Little is known about palliative care professionals' attitudes towards guidelines. In 2015, the German Association for Palliative Medicine (DGP) published an evidence based guideline for palliative care in adults with incurable cancer. Before publication we conducted a national survey among members of the DG...

journal_title：BMC palliative care

authors： Kalies H,Schöttmer R,Simon ST,Voltz R,Crispin A,Bausewein C

更新日期：2017-03-21 00:00:00

abstract：BACKGROUND:Globally the state of palliative care research remains uncertain. Questions remain regarding impact, funding, and research priorities. Building upon previous research, this review examines palliative care research in Ireland and contributes to a wider international debate on the state of palliative care rese...

journal_title：BMC palliative care

authors： McIlfatrick S,Muldrew DHL,Hasson F,Payne S

更新日期：2018-09-27 00:00:00

abstract：BACKGROUND:Rapid effective responsiveness to patient needs is pivotal to high quality palliative care. Aboriginal and Torres Strait Islander (Indigenous) people are susceptible to life-limiting illnesses at younger ages than other Australians and experience inequity of health service provision. The Palliative Care Outc...

journal_title：BMC palliative care

authors： Woods JA,Johnson CE,Ngo HT,Katzenellenbogen JM,Murray K,Thompson SC

更新日期：2018-12-22 00:00:00

abstract：BACKGROUND:Much of what we understand about the design of healthcare systems to support care of the dying comes from our experiences with providing palliative care for dying cancer patients. It is increasingly recognized that in addition to cancer, high quality end of life care should be an integral part of care that i...

journal_title：BMC palliative care

authors： Sawatzky R,Porterfield P,Lee J,Dixon D,Lounsbury K,Pesut B,Roberts D,Tayler C,Voth J,Stajduhar K

更新日期：2016-01-15 00:00:00

abstract：BACKGROUND:Research has highlighted the need for improving the implementation of advance care planning (ACP) in nursing homes. We developed a theory-based multicomponent ACP intervention (the ACP+ programme) aimed at supporting nursing home staff with the implementation of ACP into routine nursing home care. We describ...

journal_title：BMC palliative care

authors： Gilissen J,Pivodic L,Wendrich-van Dael A,Gastmans C,Vander Stichele R,Engels Y,Vernooij-Dassen M,Deliens L,Van den Block L

更新日期：2020-01-08 00:00:00

abstract：BACKGROUND:According to common practice based on a generally agreed interpretation of Icelandic law on the rights of patients, health care professionals cannot discuss prognosis and treatment with a patient's family without that patient's consent. This limitation poses ethical problems, because research has shown that,...

journal_title：BMC palliative care

authors： Skulason B,Hauksdottir A,Ahcic K,Helgason AR

更新日期：2014-03-11 00:00:00

abstract：BACKGROUND:Professionals and relatives increasingly have to deal with people with intellectual disabilities (ID) who are in need of end-of-life care. This is a specific type of care that may require a different approach to the focus on participation that currently characterizes the care for people with ID. This paper d...

journal_title：BMC palliative care

authors： Bekkema N,de Veer AJ,Hertogh CM,Francke AL

更新日期：2015-07-25 00:00:00

abstract：UNLABELLED: BACKGROUND:Parental palliative disease is a family affair, however adolescent's well-being and coping are still rarely considered. The objectives of this paper were a) to identify differences in psychosocial adjustment and health-related quality of life (HRQoL) among adolescents and young adults with paren...

journal_title：BMC palliative care

authors： Kühne F,Krattenmacher T,Bergelt C,Ernst JC,Flechtner HH,Führer D,Herzog W,Klitzing KV,Romer G,Möller B

更新日期：2012-10-30 00:00:00

abstract：:BACKGROUND: Transitions in the location of care and in who provides such care can be extremely stressful for individuals facing death and for those close to them. The objective of this study was to describe the distribution of transitions in care experienced by palliative care patients following admission to a compreh...

journal_title：BMC palliative care

authors： Burge FI,Lawson B,Critchley P,Maxwell D

更新日期：2005-02-22 00:00:00

abstract：BACKGROUND:One ambition regarding palliative care is that it should be more accessible to patients and families regardless of care setting. Previous studies show many difficulties and shortcomings in the care of patients with palliative care needs in acute care facilities, but also challenges regarding efforts to imple...

journal_title：BMC palliative care

authors： Hahne P,Lundström S,Leveälahti H,Winnhed J,Öhlén J

更新日期：2017-12-28 00:00:00

abstract：BACKGROUND:Children with chronic complex-medical conditions comprise a small minority of children who require substantial healthcare with major implications for hospital utilization and costs in pediatrics. Community-Based Pediatric Palliative Care (CBPPC) provides a holistic approach to patient care that can improve t...

journal_title：BMC palliative care

authors： Goldhagen J,Fafard M,Komatz K,Eason T,Livingood WC

更新日期：2016-08-03 00:00:00

abstract：BACKGROUND:Although spiritual care is a basic element of holistic nursing, nurses' spiritual care knowledge and abilities are often unable to satisfy patients' spiritual care needs. Therefore, nurses are in urgent need of relevant training to enhance their abilities to provide patients with spiritual care. DESIGN:A no...

journal_title：BMC palliative care

authors： Hu Y,Jiao M,Li F

更新日期：2019-11-26 00:00:00

abstract：BACKGROUND:Over the past decades there has been a significant increase in the number of published clinical trials in palliative care. However, empirical evidence suggests that there are methodological problems in the design and conduct of studies, which raises questions about the validity and generalisability of the re...

journal_title：BMC palliative care

authors： Bouça-Machado R,Rosário M,Alarcão J,Correia-Guedes L,Abreu D,Ferreira JJ

更新日期：2017-01-25 00:00:00

abstract：BACKGROUND:Studies have shown that telehealth applications in palliative care are feasible, can improve quality of care, and reduce costs but few studies have focused on user acceptance of current technology applications in palliative care. Furthermore, the perspectives of health administrators have not been explored i...

journal_title：BMC palliative care

authors： Nguyen M,Fujioka J,Wentlandt K,Onabajo N,Wong I,Bhatia RS,Bhattacharyya O,Stamenova V

更新日期：2020-09-07 00:00:00

abstract：BACKGROUND:The Patient Satisfaction Questionnaire (PSQ) is an assessment tool used to evaluate patients' perspectives of their doctor's communication and interpersonal skills. The present pilot study investigated whether the PSQ could be administered successfully in a hospice inpatient setting and if it is an acceptabl...

journal_title：BMC palliative care

authors： Henriksen KM,Heller N,Finucane AM,Oxenham D

更新日期：2014-06-02 00:00:00

abstract：BACKGROUND:Observational studies investigating risk factors in coronavirus disease 2019 (COVID-19) have not considered the confounding effects of advanced care planning, such that a valid picture of risk for elderly, frail and multi-morbid patients is unknown. We aimed to report ceiling of care and cardiopulmonary resu...

journal_title：BMC palliative care

authors： Straw S,McGinlay M,Drozd M,Slater TA,Cowley A,Kamalathasan S,Maxwell N,Bird RA,Koshy AO,Prica M,Patel PA,Relton SD,Gierula J,Cubbon RM,Kearney MT,Witte KK

更新日期：2021-01-11 00:00:00

abstract：BACKGROUND:Many people with advanced dementia live in residential aged care homes. Care home staff need the knowledge and skills to provide high-quality end-of-life (EOL) dementia care. However, several studies have found EOL dementia care to be suboptimal, and care staff have reported they would benefit from training ...

journal_title：BMC palliative care

authors： Tropea J,Johnson CE,Nestel D,Paul SK,Brand CA,Hutchinson AF,Bicknell R,Lim WK

更新日期：2019-10-23 00:00:00

abstract：BACKGROUND:Children show long-term psychological distress if family communication and illness-related information are poor during and after a parent's illness and death. Few psychosocial interventions for families with minor children living with a parent who has a life-threatening illness have been evaluated rigorously...

journal_title：BMC palliative care

authors： Eklund R,Alvariza A,Kreicbergs U,Jalmsell L,Lövgren M

更新日期：2020-04-16 00:00:00

abstract：BACKGROUND:One essential element of research is the successful recruitment of participants. However, concerns are obvious regarding the ethical implications of involving terminally ill and even dying patients and their informal caregivers as research participants. This study aims to illustrate central issues encountere...

journal_title：BMC palliative care

authors： Stiel S,Heckel M,Bussmann S,Weber M,Ostgathe C

更新日期：2015-05-02 00:00:00

abstract：BACKGROUND:The supportive hospice aged residential exchange (SHARE) is a new model of palliative care education that has been designed for residential aged care. The goal of SHARE is to help clinical staff improve palliative care within residential aged care facilities and to improve specialist palliative care nurses' ...

journal_title：BMC palliative care

authors： Frey R,Barham S,Balmer D,Boyd M,Robinson J,Gott M

更新日期：2020-08-17 00:00:00

abstract：BACKGROUND:Early integration of palliative care concurrently to standard cancer care is associated with several benefits for patients and their caregivers. However, communication barriers on part of the caring physicians often impede a timely referral to palliative care. This study describes the protocol of the evaluat...

journal_title：BMC palliative care

authors： Harnischfeger N,Rath HM,Ullrich A,Alt-Epping B,Letsch A,Thuss-Patience P,Bokemeyer C,Oechsle K,Bergelt C

更新日期：2020-05-12 00:00:00

abstract：BACKGROUND:There is little scholarship on culturally safe approaches to palliative care, especially for rural Indigenous clients. Thus, it is important to articulate how cultural safety can be enacted to support rural Indigenous Peoples and communities at end of life. We sought to identify strategies described in exist...

journal_title：BMC palliative care

authors： Schill K,Caxaj S

更新日期：2019-02-14 00:00:00

abstract：BACKGROUND:The goal of Canada's Compassionate Care Benefit (CCB) is to enable family members and other loved ones who are employed to take a temporary secured leave to care for a terminally ill individual at end of life. Successful applicants of the CCB can receive up to 55% of their average insured earnings, up to a m...

journal_title：BMC palliative care

authors： Crooks VA,Williams A

更新日期：2008-08-28 00:00:00

abstract：BACKGROUND:During the last few decades, patients' rights have been reinforced in many countries by acts of law. Measures now include health care proxies to uphold the doctor-patient relationship and advance directives for end-of-life patients. These could be relevant tools as early as the initial diagnosis of haematolo...

journal_title：BMC palliative care

authors： Trarieux-Signol S,Moreau S,Gourin MP,Penot A,Edoux de Lafont G,Preux PM,Bordessoule D

更新日期：2014-12-11 00:00:00

abstract：BACKGROUND:Research suggests that there may be bereavement experiences and support needs which are specific to family caregivers providing end of life care (EoLC), although this remains an under-researched area. This paper focuses on themes relating to bereavement which were derived from an analysis of free text survey...

journal_title：BMC palliative care

authors： Harrop E,Morgan F,Byrne A,Nelson A

更新日期：2016-11-08 00:00:00

abstract：: Parkinson's disease (PD) is one of the most common neurodegenerative disorders of the elderly population. Few therapeutic options are available for patients with PD requiring palliative care. Treatment of the early stages of PD is entirely different from later stages. During the later stages, the palliative care mode...

journal_title：BMC palliative care

authors： Lokk J,Delbari A

更新日期：2012-10-25 00:00:00

abstract：BACKGROUND:There are many potential benefits to chaplaincy in transforming into a "research-informed" profession. However little is known or has been documented about the roles of chaplains on research teams and as researchers or about the effects of research engagement on chaplains themselves. This report describes th...

journal_title：BMC palliative care

authors： Kestenbaum A,James J,Morgan S,Shields M,Hocker W,Rabow M,Dunn LB

更新日期：2015-05-02 00:00:00

abstract：BACKGROUND:Palliative and end-of-life care development is hindered by a lack of information about the circumstances surrounding dying in developing and resource-poor countries. Our aims were to develop and obtain face and content validity for a self-administered questionnaire on end-of-life care provision and medical d...

journal_title：BMC palliative care

authors： Jennings N,Chambaere K,Cox Macpherson C,Cox KL,Deliens L,Cohen J

更新日期：2020-08-14 00:00:00