Abstract：
UNLABELLED: BACKGROUND:Parental palliative disease is a family affair, however adolescent's well-being and coping are still rarely considered. The objectives of this paper were a) to identify differences in psychosocial adjustment and health-related quality of life (HRQoL) among adolescents and young adults with parents suffering from palliative cancer or cancers in other disease stages, b) to relate psychosocial adjustment and health-related quality of life to adolescent coping, and c) to explore significant mediator and predictor variables. METHODS:Cross-sectional data were derived from a multi-site research study of families before child-centered counselling. N=86 adolescents and young adults were included, their mean age 13.78 years (sd 2.45), 56% being female. Performed analyses included ANCOVA, multiple linear regression, and mediation analysis. RESULTS:Adolescents with parents suffering from palliative cancers reported significantly less total psychosocial problems, and better overall HRQoL. There were no significant group differences regarding coping frequency and efficacy. Our set of coping items significantly mediated the effect of parental disease stage on psychosocial problems and HRQoL. Further, parental disease status and general family functioning predicted psychosocial problems (R2adj =.390) and HRQoL (R2adj =.239) best. CONCLUSION:The study indicates distress among adolescents throughout the entire parental disease process. Our analysis suggests that counselling services could offer supportive interventions which focus particularly on adolescent coping as well as family functioning.
journal_name
BMC Palliat Carejournal_title
BMC palliative careauthors
Kühne F,Krattenmacher T,Bergelt C,Ernst JC,Flechtner HH,Führer D,Herzog W,Klitzing KV,Romer G,Möller Bdoi
10.1186/1472-684X-11-21subject
Has Abstractpub_date
2012-10-30 00:00:00pages
21issn
1472-684Xpii
1472-684X-11-21journal_volume
11pub_type
杂志文章abstract：BACKGROUND:Models of palliative care delivery develop within a social, cultural, and political context. This paper describes the 30-year history of the National Tumor Association (ANT), a palliative care organization founded in the Italian province of Bologna, focusing on this model of home care for palliative cancer p...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-9-12
更新日期：2010-06-08 00:00:00
abstract：:BACKGROUND: Transitions in the location of care and in who provides such care can be extremely stressful for individuals facing death and for those close to them. The objective of this study was to describe the distribution of transitions in care experienced by palliative care patients following admission to a compreh...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-4-3
更新日期：2005-02-22 00:00:00
abstract：BACKGROUND:Over the past decades there has been a significant increase in the number of published clinical trials in palliative care. However, empirical evidence suggests that there are methodological problems in the design and conduct of studies, which raises questions about the validity and generalisability of the re...
journal_title：BMC palliative care
pub_type： 杂志文章,评审
doi：10.1186/s12904-016-0181-9
更新日期：2017-01-25 00:00:00
abstract：:BACKGROUND: Although guidelines for the care of the dying patient exist the evidence base to support the guidelines is poor. Some of the factors contributing to this include failure to recruit to trials, protective healthcare professionals and subsequent attrition from trials due to the death of the patients. Recent s...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-3-1
更新日期：2004-04-27 00:00:00
abstract：BACKGROUND:More attention is being paid to the wellbeing of staff working in stressful situations. However, little is known about staff experience of providing end-of-life care to children within a hospice setting. This study aims to explore the experiences of care team staff who provide end-of-life care within a child...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-017-0189-9
更新日期：2017-02-13 00:00:00
abstract：BACKGROUND:Over the past ten years there has been an increasing focus on the need for improving the experience of end of life care. A number of policy initiatives have been introduced to develop approaches to discussing and documenting individual preferences for end of life care, in particular preferred place to die. ...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-10-18
更新日期：2011-11-04 00:00:00
abstract：BACKGROUND:Laws allowing assisted suicide and euthanasia have been implemented in many locations around the world but some individuals suffering with terminal illness receiving palliative care services are hastening death or die by suicide without assistance. This systematic review aims to summarise evidence of palliat...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-019-0451-4
更新日期：2019-08-31 00:00:00
abstract：BACKGROUND:Globally the state of palliative care research remains uncertain. Questions remain regarding impact, funding, and research priorities. Building upon previous research, this review examines palliative care research in Ireland and contributes to a wider international debate on the state of palliative care rese...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-018-0364-7
更新日期：2018-09-27 00:00:00
abstract：BACKGROUND:Spiritual care is frequently cited as a key component of hospice care in Taiwanese healthcare and beyond. The aim of this research is to gauge physicians and nurses' self-reported perspectives and clinical practices on the roles of their professions in addressing spiritual care in an inpatient palliative car...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-020-00608-y
更新日期：2020-07-01 00:00:00
abstract：BACKGROUND:Communication in do not resuscitate (DNR) and artificial nutrition and hydration (ANH) at the end of life is a key component of advance care planning (ACP) which is essential for patients with advanced cancer to have cares concordant with their wishes. The SOP model (Shared decision making with Oncologists a...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-020-0521-7
更新日期：2020-02-04 00:00:00
abstract：BACKGROUND:To understand the status of residents' awareness of and demand for hospice care services in Hangzhou and to provide a reference for promoting the formulation of hospice care-related policies in China. METHODS:A small cross-sectional survey of 519 adults aged over 40 years old living in the rural-urban fring...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-020-00628-8
更新日期：2020-08-17 00:00:00
abstract：BACKGROUND:Although spiritual care is a basic element of holistic nursing, nurses' spiritual care knowledge and abilities are often unable to satisfy patients' spiritual care needs. Therefore, nurses are in urgent need of relevant training to enhance their abilities to provide patients with spiritual care. DESIGN:A no...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-019-0489-3
更新日期：2019-11-26 00:00:00
abstract：UNLABELLED: BACKGROUND:This study explores with patients, carers and health care professionals if, when and how Advance Care Planning conversations about patients' preferences for place of care (and death) were facilitated and documented. METHODS:The study adopted an exploratory case study design using qualitative in...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-11-15
更新日期：2012-09-17 00:00:00
abstract：BACKGROUND:This paper explores carers' views of dying, death and bereavement for family members who had recently died with heart failure adding to a growing literature on end of life experiences for people with conditions other than cancer. METHODS:Twenty interviews were conducted with bereaved carers of older people ...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-8-6
更新日期：2009-06-16 00:00:00
abstract：BACKGROUND:More people die in hospital than in any other setting which is why it is important to study the outcomes of hospital care at end of life. This study analyses what influenced outcomes in a sample of patients who died in hospital in Ireland in 2008/9. The study was undertaken as part of the Irish Hospice Found...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-015-0014-2
更新日期：2015-04-18 00:00:00
abstract：BACKGROUND:The Integrated Palliative care Outcome Scale (IPOS) was developed for evaluating essential outcomes for palliative care patients. Our objectives here are to describe the process of a six-phase cross-cultural adaptation of IPOS to French (IPOS-Fr), highlight the difficulties encountered and strategies to solv...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-019-0422-9
更新日期：2019-04-18 00:00:00
abstract：BACKGROUND:Little is known about palliative care professionals' attitudes towards guidelines. In 2015, the German Association for Palliative Medicine (DGP) published an evidence based guideline for palliative care in adults with incurable cancer. Before publication we conducted a national survey among members of the DG...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-017-0187-y
更新日期：2017-03-21 00:00:00
abstract：BACKGROUND:There is little scholarship on culturally safe approaches to palliative care, especially for rural Indigenous clients. Thus, it is important to articulate how cultural safety can be enacted to support rural Indigenous Peoples and communities at end of life. We sought to identify strategies described in exist...
journal_title：BMC palliative care
pub_type： 杂志文章,评审
doi：10.1186/s12904-019-0404-y
更新日期：2019-02-14 00:00:00
abstract：BACKGROUND:Half of nursing home residents (NHR) suffer from dementia. End-of-life hospitalizations are often burdensome in residents with dementia. A systematic review was conducted to study the occurrence of hospitalizations at the end of life in NHR with dementia and to compare these figures to NHR without dementia. ...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-019-0462-1
更新日期：2019-09-10 00:00:00
abstract：BACKGROUND:Under-diagnosis of pain is a serious problem in cancer care. Accurate pain assessment by physicians may form the basis of effective care. The aim of this study is to examine the association between late referral to a Palliative Care Team (PCT) after admission and the under-diagnosis of pain by primary physic...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-11-7
更新日期：2012-06-07 00:00:00
abstract：BACKGROUND:Palliative and end-of-life care development is hindered by a lack of information about the circumstances surrounding dying in developing and resource-poor countries. Our aims were to develop and obtain face and content validity for a self-administered questionnaire on end-of-life care provision and medical d...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-020-00630-0
更新日期：2020-08-14 00:00:00
abstract：BACKGROUND:According to common practice based on a generally agreed interpretation of Icelandic law on the rights of patients, health care professionals cannot discuss prognosis and treatment with a patient's family without that patient's consent. This limitation poses ethical problems, because research has shown that,...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-13-8
更新日期：2014-03-11 00:00:00
abstract：BACKGROUND:The aim of palliative care is to improve the quality of life of patients and families through the prevention and relief of suffering. Frequently, patients may choose to receive palliative care in the home. The objective of this paper is to summarize the quality and primary outcomes measured within the pallia...
journal_title：BMC palliative care
pub_type： 杂志文章,评审
doi：10.1186/s12904-018-0299-z
更新日期：2018-03-07 00:00:00
abstract：:Population-based mortality follow-back survey designs have been used to collect information concerning end-of-life care from bereaved family members in several countries. In Canada, this design was recently employed to gather population-based information about the end-of-life care experience among adults in Nova Scoti...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-12-28
更新日期：2013-08-06 00:00:00
abstract：BACKGROUND:Much of what we understand about the design of healthcare systems to support care of the dying comes from our experiences with providing palliative care for dying cancer patients. It is increasingly recognized that in addition to cancer, high quality end of life care should be an integral part of care that i...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-016-0076-9
更新日期：2016-01-15 00:00:00
abstract：: Parkinson's disease (PD) is one of the most common neurodegenerative disorders of the elderly population. Few therapeutic options are available for patients with PD requiring palliative care. Treatment of the early stages of PD is entirely different from later stages. During the later stages, the palliative care mode...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-11-20
更新日期：2012-10-25 00:00:00
abstract：BACKGROUND:Soft tissue sarcomas (STS) account for less than 1% of all malignancies. Approximately 50% of the patients develop metastases with limited survival in the course of their disease. For those patients, palliative treatment aiming at symptom relief and improvement of quality of life is most important. However, ...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-020-00702-1
更新日期：2021-01-14 00:00:00
abstract：BACKGROUND:In palliative care (PC) patients and relatives (P/R) often show their gratitude to the healthcare professionals (HP) who care for them. HP appreciate these displays of gratitude, although the impact of the same has not been examined in detail. Publications analysed tell personal experiences in which HP say t...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-019-0412-y
更新日期：2019-03-21 00:00:00
abstract：BACKGROUND:Observational studies investigating risk factors in coronavirus disease 2019 (COVID-19) have not considered the confounding effects of advanced care planning, such that a valid picture of risk for elderly, frail and multi-morbid patients is unknown. We aimed to report ceiling of care and cardiopulmonary resu...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-021-00711-8
更新日期：2021-01-11 00:00:00
abstract：BACKGROUND:The goal of Canada's Compassionate Care Benefit (CCB) is to enable family members and other loved ones who are employed to take a temporary secured leave to care for a terminally ill individual at end of life. Successful applicants of the CCB can receive up to 55% of their average insured earnings, up to a m...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-7-14
更新日期：2008-08-28 00:00:00
