Shared decision making with oncologists and palliative care specialists effectively increases the documentation of the preferences for do not resuscitate and artificial nutrition and hydration in patients with advanced cancer: a model testing study.

abstract：BACKGROUND:According to common practice based on a generally agreed interpretation of Icelandic law on the rights of patients, health care professionals cannot discuss prognosis and treatment with a patient's family without that patient's consent. This limitation poses ethical problems, because research has shown that,...

journal_title：BMC palliative care

authors： Skulason B,Hauksdottir A,Ahcic K,Helgason AR

更新日期：2014-03-11 00:00:00

abstract：BACKGROUND:The supportive hospice aged residential exchange (SHARE) is a new model of palliative care education that has been designed for residential aged care. The goal of SHARE is to help clinical staff improve palliative care within residential aged care facilities and to improve specialist palliative care nurses' ...

journal_title：BMC palliative care

authors： Frey R,Barham S,Balmer D,Boyd M,Robinson J,Gott M

更新日期：2020-08-17 00:00:00

abstract：BACKGROUND:Effective integration between hospices, palliative care services and other local health care services to support patients with palliative care needs is an important international priority. A previous model suggests that integration involves a cumulative stepped process of engagement with other organisations ...

journal_title：BMC palliative care

authors： Payne S,Eastham R,Hughes S,Varey S,Hasselaar J,Preston N

更新日期：2017-11-28 00:00:00

abstract：BACKGROUND:Overuse of anti-cancer therapy is an important quality-of-care issue. An aggressive approach to treatment can have negative effects on quality of life and cost, but its effect on survival is not well-defined. METHODS:Using the Surveillance, Epidemiology, and End Results-Medicare database, we identified 7,87...

journal_title：BMC palliative care

authors： Saito AM,Landrum MB,Neville BA,Ayanian JZ,Earle CC

更新日期：2011-09-21 00:00:00

abstract：BACKGROUND:Hospice palliative care (HPC) is a philosophy of care that aims to relieve suffering and improve the quality of life for clients with life-threatening illnesses or end of life issues. The goals of HPC are not only to ameliorate clients' symptoms but also to reduce unneeded or unwanted medical interventions s...

journal_title：BMC palliative care

authors： Salam-White L,Hirdes JP,Poss JW,Blums J

更新日期：2014-07-11 00:00:00

abstract：BACKGROUND:Palliative and end-of-life care development is hindered by a lack of information about the circumstances surrounding dying in developing and resource-poor countries. Our aims were to develop and obtain face and content validity for a self-administered questionnaire on end-of-life care provision and medical d...

journal_title：BMC palliative care

authors： Jennings N,Chambaere K,Cox Macpherson C,Cox KL,Deliens L,Cohen J

更新日期：2020-08-14 00:00:00

abstract：BACKGROUND:Observational studies investigating risk factors in coronavirus disease 2019 (COVID-19) have not considered the confounding effects of advanced care planning, such that a valid picture of risk for elderly, frail and multi-morbid patients is unknown. We aimed to report ceiling of care and cardiopulmonary resu...

journal_title：BMC palliative care

authors： Straw S,McGinlay M,Drozd M,Slater TA,Cowley A,Kamalathasan S,Maxwell N,Bird RA,Koshy AO,Prica M,Patel PA,Relton SD,Gierula J,Cubbon RM,Kearney MT,Witte KK

更新日期：2021-01-11 00:00:00

abstract：UNLABELLED: BACKGROUND:The United Kingdom has led the world in the development of children's palliative care. Over the past two decades, the illness trajectories of children with life-limiting conditions have extended with new treatments and better home-based care. Future planning is a critically under-researched aspe...

journal_title：BMC palliative care

authors： Noyes J,Hastings RP,Lewis M,Hain R,Bennett V,Hobson L,Spencer LH

更新日期：2013-02-05 00:00:00

abstract：UNLABELLED: BACKGROUND:This study explores with patients, carers and health care professionals if, when and how Advance Care Planning conversations about patients' preferences for place of care (and death) were facilitated and documented. METHODS:The study adopted an exploratory case study design using qualitative in...

journal_title：BMC palliative care

authors： Almack K,Cox K,Moghaddam N,Pollock K,Seymour J

更新日期：2012-09-17 00:00:00

abstract：BACKGROUND:In the last years of life, burden of disease and disability and need of health- and social care often increase. Social, functional and psychological factors may be important in regard to social- and health care utilization. This study aims to describe use of health- and social care during the last year of li...

journal_title：BMC palliative care

authors： Hallgren J,Johansson L,Lannering C,Ernsth Bravell M,Gillsjö C

更新日期：2020-06-23 00:00:00

abstract：BACKGROUND:A compassionate community approach to palliative care provides important rationale for building community-based hospice volunteer capacity. In this project, we piloted one such capacity-building model in which volunteers and a nurse partnered to provide navigation support beginning in the early palliative ph...

journal_title：BMC palliative care

authors： Pesut B,Duggleby W,Warner G,Fassbender K,Antifeau E,Hooper B,Greig M,Sullivan K

更新日期：2017-07-03 00:00:00

abstract：:BACKGROUND: Although guidelines for the care of the dying patient exist the evidence base to support the guidelines is poor. Some of the factors contributing to this include failure to recruit to trials, protective healthcare professionals and subsequent attrition from trials due to the death of the patients. Recent s...

journal_title：BMC palliative care

authors： Fowell A,Russell I,Johnstone R,Finlay I,Russell D

更新日期：2004-04-27 00:00:00

abstract：BACKGROUND:While the home is the most common setting for the provision of palliative care in Australia, a common problem encountered here is the inability of patient/carers to manage medications, which can lead to misadventure and hospitalisation. This can be averted through detection and resolution of drug related pro...

journal_title：BMC palliative care

authors： Hussainy SY,Box M,Scholes S

更新日期：2011-10-31 00:00:00

abstract：BACKGROUND:One ambition regarding palliative care is that it should be more accessible to patients and families regardless of care setting. Previous studies show many difficulties and shortcomings in the care of patients with palliative care needs in acute care facilities, but also challenges regarding efforts to imple...

journal_title：BMC palliative care

authors： Hahne P,Lundström S,Leveälahti H,Winnhed J,Öhlén J

更新日期：2017-12-28 00:00:00

abstract：BACKGROUND:Implementation of quality improvements in palliative care (PC) is challenging, and detailed knowledge about factors that may facilitate or hinder implementation is essential for success. One part of the EU-funded IMPACT project (IMplementation of quality indicators in PAlliative Care sTudy) aiming to increas...

journal_title：BMC palliative care

authors： Sommerbakk R,Haugen DF,Tjora A,Kaasa S,Hjermstad MJ

更新日期：2016-07-15 00:00:00

abstract：UNLABELLED: BACKGROUND:Parental palliative disease is a family affair, however adolescent's well-being and coping are still rarely considered. The objectives of this paper were a) to identify differences in psychosocial adjustment and health-related quality of life (HRQoL) among adolescents and young adults with paren...

journal_title：BMC palliative care

authors： Kühne F,Krattenmacher T,Bergelt C,Ernst JC,Flechtner HH,Führer D,Herzog W,Klitzing KV,Romer G,Möller B

更新日期：2012-10-30 00:00:00

abstract：BACKGROUND:Cervical cancer is mostly diagnosed at advanced stages among the majority of women in low-income settings, with palliative care being the only feasible form of care. This study was aimed at investigating palliative care knowledge and access among women with cervical cancer in Harare, Zimbabwe. METHODS:Seque...

journal_title：BMC palliative care

authors： Tapera O,Nyakabau AM

更新日期：2020-02-13 00:00:00

abstract：BACKGROUND:Being a family carer to a patient nearing the end of their life is a challenging and confronting experience. Studies show that caregiving can have negative consequences on the health of family carers including fatigue, sleep problems, depression, anxiety and burnout. One of the goals of palliative care is to...

journal_title：BMC palliative care

authors： Hudson PL,Remedios C,Thomas K

更新日期：2010-08-05 00:00:00

abstract：:Population-based mortality follow-back survey designs have been used to collect information concerning end-of-life care from bereaved family members in several countries. In Canada, this design was recently employed to gather population-based information about the end-of-life care experience among adults in Nova Scoti...

journal_title：BMC palliative care

authors： Lawson B,Van Aarsen K,Burge F

更新日期：2013-08-06 00:00:00

abstract：UNLABELLED: BACKGROUND:Development of interventions that address psychosocial and existential distress in people with motor neurone disease (MND) or that alleviate caregiver burden in MND family carers have often been suggested in the research literature. Dignity therapy, which was developed to reduce psychosocial and...

journal_title：BMC palliative care

authors： Bentley B,Aoun SM,O'Connor M,Breen LJ,Chochinov HM

更新日期：2012-09-20 00:00:00

abstract：BACKGROUND:Institutional deaths (hospitals and nursing homes) are an important issue because they are often at odds with patient preference and associated with high healthcare costs. The aim of this study was to examine deaths in institutions and the role of individual, regional, and healthcare supply characteristics i...

journal_title：BMC palliative care

authors： Luta X,Panczak R,Maessen M,Egger M,Goodman DC,Zwahlen M,Stuck AE,Clough-Gorr K

更新日期：2016-09-23 00:00:00

abstract：BACKGROUND:Research suggests that there may be bereavement experiences and support needs which are specific to family caregivers providing end of life care (EoLC), although this remains an under-researched area. This paper focuses on themes relating to bereavement which were derived from an analysis of free text survey...

journal_title：BMC palliative care

authors： Harrop E,Morgan F,Byrne A,Nelson A

更新日期：2016-11-08 00:00:00

abstract：BACKGROUND:Empirical knowledge around palliative care provision and needs of people with intellectual disabilities is extremely limited, as is the availability of research resources, including expertise and funding. This paper describes a consultation process that sought to develop an agenda for research priorities for...

journal_title：BMC palliative care

authors： Tuffrey-Wijne I,Wicki M,Heslop P,McCarron M,Todd S,Oliver D,de Veer A,Ahlström G,Schäper S,Hynes G,O'Farrell J,Adler J,Riese F,Curfs L

更新日期：2016-03-24 00:00:00

abstract：BACKGROUND:To understand the status of residents' awareness of and demand for hospice care services in Hangzhou and to provide a reference for promoting the formulation of hospice care-related policies in China. METHODS:A small cross-sectional survey of 519 adults aged over 40 years old living in the rural-urban fring...

journal_title：BMC palliative care

authors： Xie Y,Xu Y,Yang S,Yan J,Jin XQ,Liu C

更新日期：2020-08-17 00:00:00

abstract：BACKGROUND:The goal of Canada's Compassionate Care Benefit (CCB) is to enable family members and other loved ones who are employed to take a temporary secured leave to care for a terminally ill individual at end of life. Successful applicants of the CCB can receive up to 55% of their average insured earnings, up to a m...

journal_title：BMC palliative care

authors： Crooks VA,Williams A

更新日期：2008-08-28 00:00:00

abstract：BACKGROUND:Family members are involved in the care of palliative patients at home and therefore, should be viewed as important sources of information to help clinicians better understand the quality palliative care service patients receive. The objective of the study was to analyse what is valued most by family carers ...

journal_title：BMC palliative care

authors： Aparicio M,Centeno C,Carrasco JM,Barbosa A,Arantzamendi M

更新日期：2017-09-06 00:00:00

abstract：BACKGROUND:There are many potential benefits to chaplaincy in transforming into a "research-informed" profession. However little is known or has been documented about the roles of chaplains on research teams and as researchers or about the effects of research engagement on chaplains themselves. This report describes th...

journal_title：BMC palliative care

authors： Kestenbaum A,James J,Morgan S,Shields M,Hocker W,Rabow M,Dunn LB

更新日期：2015-05-02 00:00:00

abstract：BACKGROUND:Keeping people living with advanced dementia in their usual place of residence is becoming a key governmental goal but to achieve this, family carers and health care professionals must negotiate how to provide optimal care. Previously, we reported a realist analysis of the health care professional perspectiv...

journal_title：BMC palliative care

authors： Kupeli N,Sampson EL,Leavey G,Harrington J,Davis S,Candy B,King M,Nazareth I,Jones L,Moore K

更新日期：2019-10-24 00:00:00

abstract：BACKGROUND:Homeless people often suffer from complex and chronic comorbidities, have high rates of morbidity and die at much younger ages than the general population. Due to a complex combination of physical, psychosocial and addiction problems at the end of life, they often have limited access to palliative care. Both...

journal_title：BMC palliative care

authors： Klop HT,de Veer AJE,van Dongen SI,Francke AL,Rietjens JAC,Onwuteaka-Philipsen BD

更新日期：2018-04-24 00:00:00

abstract：BACKGROUND:Soft tissue sarcomas (STS) account for less than 1% of all malignancies. Approximately 50% of the patients develop metastases with limited survival in the course of their disease. For those patients, palliative treatment aiming at symptom relief and improvement of quality of life is most important. However, ...

journal_title：BMC palliative care

authors： Brandes F,Striefler JK,Dörr A,Schmiester M,Märdian S,Koulaxouzidis G,Kaul D,Behzadi A,Thuss-Patience P,Ahn J,Pelzer U,Bullinger L,Flörcken A

更新日期：2021-01-14 00:00:00