What are families most grateful for after receiving palliative care? Content analysis of written documents received: a chance to improve the quality of care.

abstract：BACKGROUND:The Palliative Performance Scale (PPS) was first introduced in1996 as a new tool for measurement of performance status in palliative care. PPS has been used in many countries and has been translated into other languages. METHODS:This study evaluated the reliability and validity of PPS. A web-based, case sce...

journal_title：BMC palliative care

authors： Ho F,Lau F,Downing MG,Lesperance M

更新日期：2008-08-04 00:00:00

abstract：BACKGROUND:Homeless people often suffer from complex and chronic comorbidities, have high rates of morbidity and die at much younger ages than the general population. Due to a complex combination of physical, psychosocial and addiction problems at the end of life, they often have limited access to palliative care. Both...

journal_title：BMC palliative care

authors： Klop HT,de Veer AJE,van Dongen SI,Francke AL,Rietjens JAC,Onwuteaka-Philipsen BD

更新日期：2018-04-24 00:00:00

abstract：BACKGROUND:It has been recognised that more evidence about important aspects of family members' sense of security during palliative care is needed. The objectives of the study was: i) to discover what variables are associated with family members feeling secure during palliative care; ii) to develop a model of family me...

journal_title：BMC palliative care

authors： Milberg A,Liljeroos M,Krevers B

更新日期：2019-07-25 00:00:00

abstract：BACKGROUND:Keeping people living with advanced dementia in their usual place of residence is becoming a key governmental goal but to achieve this, family carers and health care professionals must negotiate how to provide optimal care. Previously, we reported a realist analysis of the health care professional perspectiv...

journal_title：BMC palliative care

authors： Kupeli N,Sampson EL,Leavey G,Harrington J,Davis S,Candy B,King M,Nazareth I,Jones L,Moore K

更新日期：2019-10-24 00:00:00

abstract：BACKGROUND:An international discussion about whether or not to legally permit euthanasia and (or) physician assisted suicide (EAS) is ongoing. Unbearable suffering in patients may result in a request for EAS. In the Netherlands EAS is legally permitted, and unbearable suffering is one of the central compulsory criteria...

journal_title：BMC palliative care

authors： Ruijs CD,van der Wal G,Kerkhof AJ,Onwuteaka-Philipsen BD

更新日期：2014-12-23 00:00:00

abstract：BACKGROUND:Professionals and relatives increasingly have to deal with people with intellectual disabilities (ID) who are in need of end-of-life care. This is a specific type of care that may require a different approach to the focus on participation that currently characterizes the care for people with ID. This paper d...

journal_title：BMC palliative care

authors： Bekkema N,de Veer AJ,Hertogh CM,Francke AL

更新日期：2015-07-25 00:00:00

abstract：BACKGROUND:Palliative and end-of-life care development is hindered by a lack of information about the circumstances surrounding dying in developing and resource-poor countries. Our aims were to develop and obtain face and content validity for a self-administered questionnaire on end-of-life care provision and medical d...

journal_title：BMC palliative care

authors： Jennings N,Chambaere K,Cox Macpherson C,Cox KL,Deliens L,Cohen J

更新日期：2020-08-14 00:00:00

abstract：BACKGROUND:Being a family carer to a patient nearing the end of their life is a challenging and confronting experience. Studies show that caregiving can have negative consequences on the health of family carers including fatigue, sleep problems, depression, anxiety and burnout. One of the goals of palliative care is to...

journal_title：BMC palliative care

authors： Hudson PL,Remedios C,Thomas K

更新日期：2010-08-05 00:00:00

abstract：BACKGROUND:The benefit of palliative chemotherapy (PC) in patients with advanced solid tumors and poor performance status (ECOG-PS) has not been prospectively validated, which makes treatment decision challenging. We aimed to evaluate the overall survival, factors associated with early mortality, and adoption of additi...

journal_title：BMC palliative care

authors： Fiorin de Vasconcellos V,Rcc Bonadio R,Avanço G,Negrão MV,Pimenta Riechelmann R

更新日期：2019-05-20 00:00:00

abstract：BACKGROUND:Volunteers play a significant role in supporting hospice and palliative care in Africa, but little is known about the types of volunteers, their motivations and roles in service delivery. METHODS:Palliative care experts from 30 African countries were invited to participate in an online survey, conducted in ...

journal_title：BMC palliative care

authors： Loth CC,Namisango E,Powell RA,Pabst KH,Leng M,Hamada M,Radbruch L

更新日期：2020-04-14 00:00:00

abstract：BACKGROUND:Discrepancies between the information that patients have received and the patients' awareness of their condition have frequently been observed in literature and given a number of different explanations. The chief contribution of this study is that by following patients over time it is possible not only to no...

journal_title：BMC palliative care

authors： Hoff L,Hermerén G

更新日期：2008-02-28 00:00:00

abstract：BACKGROUND:To improve the quality of advance care planning (ACP) in primary care, it is important to understand the frequency of and topics involved in the ACP discussion between patients and their family physicians (FPs). METHODS:A secondary analysis of a previous multicenter cross-sectional observational study was p...

journal_title：BMC palliative care

authors： Hamano J,Oishi A,Morita T,Kizawa Y

更新日期：2020-03-17 00:00:00

abstract：BACKGROUND:Globally, the number of people who die with dementia is increasing. The importance of a palliative approach in the care of people with dementia is recognised and there are national polices to enhance current care. In the UK implementation of these polices is promoted by the National Institute for Health and ...

journal_title：BMC palliative care

authors： Candy B,Elliott M,Moore K,Vickerstaff V,Sampson E,Jones L

更新日期：2015-10-19 00:00:00

abstract：UNLABELLED: BACKGROUND:Development of interventions that address psychosocial and existential distress in people with motor neurone disease (MND) or that alleviate caregiver burden in MND family carers have often been suggested in the research literature. Dignity therapy, which was developed to reduce psychosocial and...

journal_title：BMC palliative care

authors： Bentley B,Aoun SM,O'Connor M,Breen LJ,Chochinov HM

更新日期：2012-09-20 00:00:00

abstract：:BACKGROUND: Although guidelines for the care of the dying patient exist the evidence base to support the guidelines is poor. Some of the factors contributing to this include failure to recruit to trials, protective healthcare professionals and subsequent attrition from trials due to the death of the patients. Recent s...

journal_title：BMC palliative care

authors： Fowell A,Russell I,Johnstone R,Finlay I,Russell D

更新日期：2004-04-27 00:00:00

abstract：BACKGROUND:According to common practice based on a generally agreed interpretation of Icelandic law on the rights of patients, health care professionals cannot discuss prognosis and treatment with a patient's family without that patient's consent. This limitation poses ethical problems, because research has shown that,...

journal_title：BMC palliative care

authors： Skulason B,Hauksdottir A,Ahcic K,Helgason AR

更新日期：2014-03-11 00:00:00

abstract：BACKGROUND:The focus of Specialized Palliative Care (SPC) is to improve care for patients with incurable diseases and their families, which includes the opportunity to make their own choice of place of care and ultimately place of death. The Danish Palliative Care Trial (DOMUS) aims to investigate whether an accelerate...

journal_title：BMC palliative care

authors： Nordly M,Benthien KS,Von Der Maase H,Johansen C,Kruse M,Timm H,Vadstrup ES,Kurita GP,von Heymann-Horan AB,Sjøgren P

更新日期：2014-09-09 00:00:00

abstract：BACKGROUND:Most patients with life-limiting illnesses are treated and cared for over a long period of time in primary care and guidelines suggest that ACP discussions should be initiated in primary care. However, a practical model to implement ACP in general practice is lacking. Therefore, the objective of this study i...

journal_title：BMC palliative care

authors： De Vleminck A,Houttekier D,Deliens L,Vander Stichele R,Pardon K

更新日期：2016-02-11 00:00:00

abstract：BACKGROUND:Under-diagnosis of pain is a serious problem in cancer care. Accurate pain assessment by physicians may form the basis of effective care. The aim of this study is to examine the association between late referral to a Palliative Care Team (PCT) after admission and the under-diagnosis of pain by primary physic...

journal_title：BMC palliative care

authors： Akashi M,Yano E,Aruga E

更新日期：2012-06-07 00:00:00

abstract：BACKGROUND:Communication in do not resuscitate (DNR) and artificial nutrition and hydration (ANH) at the end of life is a key component of advance care planning (ACP) which is essential for patients with advanced cancer to have cares concordant with their wishes. The SOP model (Shared decision making with Oncologists a...

journal_title：BMC palliative care

authors： Huang HL,Tsai JS,Yao CA,Cheng SY,Hu WY,Chiu TY

更新日期：2020-02-04 00:00:00

abstract：BACKGROUND:Globally the state of palliative care research remains uncertain. Questions remain regarding impact, funding, and research priorities. Building upon previous research, this review examines palliative care research in Ireland and contributes to a wider international debate on the state of palliative care rese...

journal_title：BMC palliative care

authors： McIlfatrick S,Muldrew DHL,Hasson F,Payne S

更新日期：2018-09-27 00:00:00

abstract：BACKGROUND:The McGill Quality of Life Questionnaire - Expanded (MQOL-E) and the Quality of Life in Life-Threatening Illness-Family Carer/Caregiver version (QOLLTI-F) are developed for use with patients facing the end of life and their family carers, respectively. They are also developed for possible use as companion in...

journal_title：BMC palliative care

authors： Axelsson L,Alvariza A,Carlsson N,Cohen SR,Sawatzky R,Årestedt K

更新日期：2020-03-25 00:00:00

abstract：BACKGROUND:The Patient Satisfaction Questionnaire (PSQ) is an assessment tool used to evaluate patients' perspectives of their doctor's communication and interpersonal skills. The present pilot study investigated whether the PSQ could be administered successfully in a hospice inpatient setting and if it is an acceptabl...

journal_title：BMC palliative care

authors： Henriksen KM,Heller N,Finucane AM,Oxenham D

更新日期：2014-06-02 00:00:00

abstract：BACKGROUND:A compassionate community approach to palliative care provides important rationale for building community-based hospice volunteer capacity. In this project, we piloted one such capacity-building model in which volunteers and a nurse partnered to provide navigation support beginning in the early palliative ph...

journal_title：BMC palliative care

authors： Pesut B,Duggleby W,Warner G,Fassbender K,Antifeau E,Hooper B,Greig M,Sullivan K

更新日期：2017-07-03 00:00:00

abstract：BACKGROUND:While the home is the most common setting for the provision of palliative care in Australia, a common problem encountered here is the inability of patient/carers to manage medications, which can lead to misadventure and hospitalisation. This can be averted through detection and resolution of drug related pro...

journal_title：BMC palliative care

authors： Hussainy SY,Box M,Scholes S

更新日期：2011-10-31 00:00:00

abstract：BACKGROUND:The objective of the Balearic Islands Palliative Care (PC) Program is to improve the quality of PC through a shared model consisting of primary health care professionals, home-based PC teams, and PC units in hospitals. According to the World Health Organization (WHO), patients with advanced cancer and other ...

journal_title：BMC palliative care

authors： Llobera J,Sansó N,Ruiz A,Llagostera M,Serratusell E,Serrano C,Roselló MLM,Benito E,Castaño EJ,Leiva A

更新日期：2017-07-10 00:00:00

abstract：UNLABELLED: BACKGROUND:This study explores with patients, carers and health care professionals if, when and how Advance Care Planning conversations about patients' preferences for place of care (and death) were facilitated and documented. METHODS:The study adopted an exploratory case study design using qualitative in...

journal_title：BMC palliative care

authors： Almack K,Cox K,Moghaddam N,Pollock K,Seymour J

更新日期：2012-09-17 00:00:00

abstract：BACKGROUND:One essential element of research is the successful recruitment of participants. However, concerns are obvious regarding the ethical implications of involving terminally ill and even dying patients and their informal caregivers as research participants. This study aims to illustrate central issues encountere...

journal_title：BMC palliative care

authors： Stiel S,Heckel M,Bussmann S,Weber M,Ostgathe C

更新日期：2015-05-02 00:00:00

abstract：BACKGROUND:Even though struggling with similar symptom burden, patients with chronic heart failure (CHF) receive less palliative care than patients suffering from malignant diseases. Researchers have found that this might be related to lack of knowledge about palliative care, insufficient interprofessional communicatio...

journal_title：BMC palliative care

authors： Ziehm J,Farin E,Seibel K,Becker G,Köberich S

更新日期：2016-08-15 00:00:00

abstract：BACKGROUND:Many people with advanced dementia live in residential aged care homes. Care home staff need the knowledge and skills to provide high-quality end-of-life (EOL) dementia care. However, several studies have found EOL dementia care to be suboptimal, and care staff have reported they would benefit from training ...

journal_title：BMC palliative care

authors： Tropea J,Johnson CE,Nestel D,Paul SK,Brand CA,Hutchinson AF,Bicknell R,Lim WK

更新日期：2019-10-23 00:00:00