Abstract:
BACKGROUND:The goal of Canada's Compassionate Care Benefit (CCB) is to enable family members and other loved ones who are employed to take a temporary secured leave to care for a terminally ill individual at end of life. Successful applicants of the CCB can receive up to 55% of their average insured earnings, up to a maximum of CDN$435 per week, over a six week period to provide care for a gravely ill family member at risk of death within a six month period, as evidenced by a medical certificate. The goal of this study is to evaluate the CCB from the perspective of family caregivers providing care to individuals at end of life. There are three specific research objectives. Meeting these objectives will address our study purpose which is to make policy-relevant recommendations informed by the needs of Canadian family caregivers and input from other key stakeholders who shape program uptake. Being the first study that will capture family caregivers' experiences and perceptions of the CCB and gather contextual data with front-line palliative care practitioners, employers, and human resources personnel, we will be in a unique position to provide policy solutions/recommendations that will address concerns raised by numerous individuals and organizations. METHODS:We will achieve the research goal and objectives through employing utilization-focused evaluation as our methodology, in-depth interviews and focus groups as our techniques of data collection, and constant comparative as our technique of data analysis. Three respondent groups will participate: (1) family caregivers who are providing or who have provided end of life care via phone interview; (2) front-line palliative care practitioners via phone interview; and (3) human resources personnel and employers via focus group. Each of these three groups has a stake in the successful administration of the CCB. A watching brief of policy documents, grey literature, media reports, and other relevant items will also be managed throughout data collection. DISCUSSION:We propose to conduct this study over a three year period beginning in October, 2006 and ending in October, 2009.
journal_name
BMC Palliat Carejournal_title
BMC palliative careauthors
Crooks VA,Williams Adoi
10.1186/1472-684X-7-14subject
Has Abstractpub_date
2008-08-28 00:00:00pages
14issn
1472-684Xpii
1472-684X-7-14journal_volume
7pub_type
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journal_title:BMC palliative care
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更新日期:2020-07-01 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-8-6
更新日期:2009-06-16 00:00:00
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abstract:BACKGROUND:Globally the state of palliative care research remains uncertain. Questions remain regarding impact, funding, and research priorities. Building upon previous research, this review examines palliative care research in Ireland and contributes to a wider international debate on the state of palliative care rese...
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pub_type: 杂志文章
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更新日期:2018-09-27 00:00:00
abstract::BACKGROUND: Although guidelines for the care of the dying patient exist the evidence base to support the guidelines is poor. Some of the factors contributing to this include failure to recruit to trials, protective healthcare professionals and subsequent attrition from trials due to the death of the patients. Recent s...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-3-1
更新日期:2004-04-27 00:00:00
abstract:: Parkinson's disease (PD) is one of the most common neurodegenerative disorders of the elderly population. Few therapeutic options are available for patients with PD requiring palliative care. Treatment of the early stages of PD is entirely different from later stages. During the later stages, the palliative care mode...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-11-20
更新日期:2012-10-25 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-10-18
更新日期:2011-11-04 00:00:00
abstract:BACKGROUND:Hospice palliative care (HPC) is a philosophy of care that aims to relieve suffering and improve the quality of life for clients with life-threatening illnesses or end of life issues. The goals of HPC are not only to ameliorate clients' symptoms but also to reduce unneeded or unwanted medical interventions s...
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pub_type: 杂志文章
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更新日期:2014-07-11 00:00:00
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更新日期:2020-08-17 00:00:00
abstract:BACKGROUND:There is limited population-level research on end-of-life care in Australia that considers health care use and costs across hospital and community sectors. The aim of this study was to quantify health care use and costs in the last 6 months of life in a cohort of elderly Australian decedents and to examine t...
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更新日期:2017-06-21 00:00:00
abstract:BACKGROUND:Much of what we understand about the design of healthcare systems to support care of the dying comes from our experiences with providing palliative care for dying cancer patients. It is increasingly recognized that in addition to cancer, high quality end of life care should be an integral part of care that i...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-016-0076-9
更新日期:2016-01-15 00:00:00
abstract:BACKGROUND:Many people with advanced dementia live in residential aged care homes. Care home staff need the knowledge and skills to provide high-quality end-of-life (EOL) dementia care. However, several studies have found EOL dementia care to be suboptimal, and care staff have reported they would benefit from training ...
journal_title:BMC palliative care
pub_type: 杂志文章,随机对照试验
doi:10.1186/s12904-019-0474-x
更新日期:2019-10-23 00:00:00
abstract:BACKGROUND:Family members are involved in the care of palliative patients at home and therefore, should be viewed as important sources of information to help clinicians better understand the quality palliative care service patients receive. The objective of the study was to analyse what is valued most by family carers ...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-017-0229-5
更新日期:2017-09-06 00:00:00
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pub_type: 杂志文章
doi:10.1186/s12904-016-0091-x
更新日期:2016-02-11 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-017-0250-8
更新日期:2017-11-28 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-12-5
更新日期:2013-02-05 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章,评审
doi:10.1186/s12904-015-0047-6
更新日期:2015-10-19 00:00:00
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pub_type: 杂志文章,评审
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pub_type: 杂志文章
doi:10.1186/1472-684X-7-10
更新日期:2008-08-04 00:00:00
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pub_type: 杂志文章,多中心研究
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更新日期:2015-05-02 00:00:00
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pub_type: 杂志文章
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更新日期:2016-04-09 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-13-27
更新日期:2014-06-02 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章
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更新日期:2019-10-24 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-017-0262-4
更新日期:2017-12-28 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章,评审
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更新日期:2018-02-20 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章
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更新日期:2020-02-04 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-11-21
更新日期:2012-10-30 00:00:00