Development of a complex intervention to support the initiation of advance care planning by general practitioners in patients at risk of deteriorating or dying: a phase 0-1 study.

abstract：BACKGROUND:There are many potential benefits to chaplaincy in transforming into a "research-informed" profession. However little is known or has been documented about the roles of chaplains on research teams and as researchers or about the effects of research engagement on chaplains themselves. This report describes th...

journal_title：BMC palliative care

authors： Kestenbaum A,James J,Morgan S,Shields M,Hocker W,Rabow M,Dunn LB

更新日期：2015-05-02 00:00:00

abstract：BACKGROUND:The focus of Specialized Palliative Care (SPC) is to improve care for patients with incurable diseases and their families, which includes the opportunity to make their own choice of place of care and ultimately place of death. The Danish Palliative Care Trial (DOMUS) aims to investigate whether an accelerate...

journal_title：BMC palliative care

authors： Nordly M,Benthien KS,Von Der Maase H,Johansen C,Kruse M,Timm H,Vadstrup ES,Kurita GP,von Heymann-Horan AB,Sjøgren P

更新日期：2014-09-09 00:00:00

abstract：BACKGROUND:In the last years of life, burden of disease and disability and need of health- and social care often increase. Social, functional and psychological factors may be important in regard to social- and health care utilization. This study aims to describe use of health- and social care during the last year of li...

journal_title：BMC palliative care

authors： Hallgren J,Johansson L,Lannering C,Ernsth Bravell M,Gillsjö C

更新日期：2020-06-23 00:00:00

abstract：BACKGROUND:This paper explores carers' views of dying, death and bereavement for family members who had recently died with heart failure adding to a growing literature on end of life experiences for people with conditions other than cancer. METHODS:Twenty interviews were conducted with bereaved carers of older people ...

journal_title：BMC palliative care

authors： Small N,Barnes S,Gott M,Payne S,Parker C,Seamark D,Gariballa S

更新日期：2009-06-16 00:00:00

abstract：:BACKGROUND: Although guidelines for the care of the dying patient exist the evidence base to support the guidelines is poor. Some of the factors contributing to this include failure to recruit to trials, protective healthcare professionals and subsequent attrition from trials due to the death of the patients. Recent s...

journal_title：BMC palliative care

authors： Fowell A,Russell I,Johnstone R,Finlay I,Russell D

更新日期：2004-04-27 00:00:00

abstract：BACKGROUND:Research suggests that there may be bereavement experiences and support needs which are specific to family caregivers providing end of life care (EoLC), although this remains an under-researched area. This paper focuses on themes relating to bereavement which were derived from an analysis of free text survey...

journal_title：BMC palliative care

authors： Harrop E,Morgan F,Byrne A,Nelson A

更新日期：2016-11-08 00:00:00

abstract：BACKGROUND:Being a family carer to a patient nearing the end of their life is a challenging and confronting experience. Studies show that caregiving can have negative consequences on the health of family carers including fatigue, sleep problems, depression, anxiety and burnout. One of the goals of palliative care is to...

journal_title：BMC palliative care

authors： Hudson PL,Remedios C,Thomas K

更新日期：2010-08-05 00:00:00

abstract：BACKGROUND:Keeping people living with advanced dementia in their usual place of residence is becoming a key governmental goal but to achieve this, family carers and health care professionals must negotiate how to provide optimal care. Previously, we reported a realist analysis of the health care professional perspectiv...

journal_title：BMC palliative care

authors： Kupeli N,Sampson EL,Leavey G,Harrington J,Davis S,Candy B,King M,Nazareth I,Jones L,Moore K

更新日期：2019-10-24 00:00:00

abstract：BACKGROUND:Models of palliative care delivery develop within a social, cultural, and political context. This paper describes the 30-year history of the National Tumor Association (ANT), a palliative care organization founded in the Italian province of Bologna, focusing on this model of home care for palliative cancer p...

journal_title：BMC palliative care

authors： Casadio M,Biasco G,Abernethy A,Bonazzi V,Pannuti R,Pannuti F

更新日期：2010-06-08 00:00:00

abstract：BACKGROUND:Homeless people often suffer from complex and chronic comorbidities, have high rates of morbidity and die at much younger ages than the general population. Due to a complex combination of physical, psychosocial and addiction problems at the end of life, they often have limited access to palliative care. Both...

journal_title：BMC palliative care

authors： Klop HT,de Veer AJE,van Dongen SI,Francke AL,Rietjens JAC,Onwuteaka-Philipsen BD

更新日期：2018-04-24 00:00:00

abstract：BACKGROUND:One ambition regarding palliative care is that it should be more accessible to patients and families regardless of care setting. Previous studies show many difficulties and shortcomings in the care of patients with palliative care needs in acute care facilities, but also challenges regarding efforts to imple...

journal_title：BMC palliative care

authors： Hahne P,Lundström S,Leveälahti H,Winnhed J,Öhlén J

更新日期：2017-12-28 00:00:00

abstract：BACKGROUND:There is little scholarship on culturally safe approaches to palliative care, especially for rural Indigenous clients. Thus, it is important to articulate how cultural safety can be enacted to support rural Indigenous Peoples and communities at end of life. We sought to identify strategies described in exist...

journal_title：BMC palliative care

authors： Schill K,Caxaj S

更新日期：2019-02-14 00:00:00

abstract：BACKGROUND:A compassionate community approach to palliative care provides important rationale for building community-based hospice volunteer capacity. In this project, we piloted one such capacity-building model in which volunteers and a nurse partnered to provide navigation support beginning in the early palliative ph...

journal_title：BMC palliative care

authors： Pesut B,Duggleby W,Warner G,Fassbender K,Antifeau E,Hooper B,Greig M,Sullivan K

更新日期：2017-07-03 00:00:00

abstract：BACKGROUND:Although spiritual care is a basic element of holistic nursing, nurses' spiritual care knowledge and abilities are often unable to satisfy patients' spiritual care needs. Therefore, nurses are in urgent need of relevant training to enhance their abilities to provide patients with spiritual care. DESIGN:A no...

journal_title：BMC palliative care

authors： Hu Y,Jiao M,Li F

更新日期：2019-11-26 00:00:00

abstract：BACKGROUND:Many people with advanced dementia live in residential aged care homes. Care home staff need the knowledge and skills to provide high-quality end-of-life (EOL) dementia care. However, several studies have found EOL dementia care to be suboptimal, and care staff have reported they would benefit from training ...

journal_title：BMC palliative care

authors： Tropea J,Johnson CE,Nestel D,Paul SK,Brand CA,Hutchinson AF,Bicknell R,Lim WK

更新日期：2019-10-23 00:00:00

abstract：BACKGROUND:The leading cause of death among young children in southern Africa is complications due to HIV infection and, in South Africa, over a third of all deaths of children younger than five are associated with HIV infection. There is a great and urgent need for children's palliative care in Africa, whether HIV-rel...

journal_title：BMC palliative care

authors： Naicker SN,Richter L,Stein A,Campbell L,Marston J

更新日期：2016-04-09 00:00:00

abstract：BACKGROUND:Effective integration between hospices, palliative care services and other local health care services to support patients with palliative care needs is an important international priority. A previous model suggests that integration involves a cumulative stepped process of engagement with other organisations ...

journal_title：BMC palliative care

authors： Payne S,Eastham R,Hughes S,Varey S,Hasselaar J,Preston N

更新日期：2017-11-28 00:00:00

abstract：BACKGROUND:There is a dearth of data regarding the optimal method of detecting and treating depression in palliative care. This study applied the Delphi method to evaluate expert opinion on choice of screening tool, choice of antidepressant and choice of psychological therapy. The aim was to inform the development of b...

journal_title：BMC palliative care

authors： Rayner L,Price A,Hotopf M,Higginson IJ

更新日期：2011-05-27 00:00:00

abstract：:BACKGROUND: Transitions in the location of care and in who provides such care can be extremely stressful for individuals facing death and for those close to them. The objective of this study was to describe the distribution of transitions in care experienced by palliative care patients following admission to a compreh...

journal_title：BMC palliative care

authors： Burge FI,Lawson B,Critchley P,Maxwell D

更新日期：2005-02-22 00:00:00

abstract：BACKGROUND:To understand the status of residents' awareness of and demand for hospice care services in Hangzhou and to provide a reference for promoting the formulation of hospice care-related policies in China. METHODS:A small cross-sectional survey of 519 adults aged over 40 years old living in the rural-urban fring...

journal_title：BMC palliative care

authors： Xie Y,Xu Y,Yang S,Yan J,Jin XQ,Liu C

更新日期：2020-08-17 00:00:00

abstract：BACKGROUND:Over the past ten years there has been an increasing focus on the need for improving the experience of end of life care. A number of policy initiatives have been introduced to develop approaches to discussing and documenting individual preferences for end of life care, in particular preferred place to die. ...

journal_title：BMC palliative care

authors： Cox K,Moghaddam N,Almack K,Pollock K,Seymour J

更新日期：2011-11-04 00:00:00

abstract：BACKGROUND:Much of what we understand about the design of healthcare systems to support care of the dying comes from our experiences with providing palliative care for dying cancer patients. It is increasingly recognized that in addition to cancer, high quality end of life care should be an integral part of care that i...

journal_title：BMC palliative care

authors： Sawatzky R,Porterfield P,Lee J,Dixon D,Lounsbury K,Pesut B,Roberts D,Tayler C,Voth J,Stajduhar K

更新日期：2016-01-15 00:00:00

abstract：BACKGROUND:Globally, the number of people who die with dementia is increasing. The importance of a palliative approach in the care of people with dementia is recognised and there are national polices to enhance current care. In the UK implementation of these polices is promoted by the National Institute for Health and ...

journal_title：BMC palliative care

authors： Candy B,Elliott M,Moore K,Vickerstaff V,Sampson E,Jones L

更新日期：2015-10-19 00:00:00

abstract：BACKGROUND:According to common practice based on a generally agreed interpretation of Icelandic law on the rights of patients, health care professionals cannot discuss prognosis and treatment with a patient's family without that patient's consent. This limitation poses ethical problems, because research has shown that,...

journal_title：BMC palliative care

authors： Skulason B,Hauksdottir A,Ahcic K,Helgason AR

更新日期：2014-03-11 00:00:00

abstract：BACKGROUND:Research has highlighted the need for improving the implementation of advance care planning (ACP) in nursing homes. We developed a theory-based multicomponent ACP intervention (the ACP+ programme) aimed at supporting nursing home staff with the implementation of ACP into routine nursing home care. We describ...

journal_title：BMC palliative care

authors： Gilissen J,Pivodic L,Wendrich-van Dael A,Gastmans C,Vander Stichele R,Engels Y,Vernooij-Dassen M,Deliens L,Van den Block L

更新日期：2020-01-08 00:00:00

abstract：BACKGROUND:Professionals and relatives increasingly have to deal with people with intellectual disabilities (ID) who are in need of end-of-life care. This is a specific type of care that may require a different approach to the focus on participation that currently characterizes the care for people with ID. This paper d...

journal_title：BMC palliative care

authors： Bekkema N,de Veer AJ,Hertogh CM,Francke AL

更新日期：2015-07-25 00:00:00

abstract：:Population-based mortality follow-back survey designs have been used to collect information concerning end-of-life care from bereaved family members in several countries. In Canada, this design was recently employed to gather population-based information about the end-of-life care experience among adults in Nova Scoti...

journal_title：BMC palliative care

authors： Lawson B,Van Aarsen K,Burge F

更新日期：2013-08-06 00:00:00

abstract：BACKGROUND:The goal of Canada's Compassionate Care Benefit (CCB) is to enable family members and other loved ones who are employed to take a temporary secured leave to care for a terminally ill individual at end of life. Successful applicants of the CCB can receive up to 55% of their average insured earnings, up to a m...

journal_title：BMC palliative care

authors： Crooks VA,Williams A

更新日期：2008-08-28 00:00:00

abstract：BACKGROUND:The objective of the Balearic Islands Palliative Care (PC) Program is to improve the quality of PC through a shared model consisting of primary health care professionals, home-based PC teams, and PC units in hospitals. According to the World Health Organization (WHO), patients with advanced cancer and other ...

journal_title：BMC palliative care

authors： Llobera J,Sansó N,Ruiz A,Llagostera M,Serratusell E,Serrano C,Roselló MLM,Benito E,Castaño EJ,Leiva A

更新日期：2017-07-10 00:00:00

abstract：BACKGROUND:Children show long-term psychological distress if family communication and illness-related information are poor during and after a parent's illness and death. Few psychosocial interventions for families with minor children living with a parent who has a life-threatening illness have been evaluated rigorously...

journal_title：BMC palliative care

authors： Eklund R,Alvariza A,Kreicbergs U,Jalmsell L,Lövgren M

更新日期：2020-04-16 00:00:00