Abstract：
BACKGROUND:In the last years of life, burden of disease and disability and need of health- and social care often increase. Social, functional and psychological factors may be important in regard to social- and health care utilization. This study aims to describe use of health- and social care during the last year of life among persons living in ordinary housing or in assisted living facilities. METHODS:A retrospective study examining health- and social care utilization during their last year of life, using a subsample from the Swedish twin registries individually linked to several Swedish national quality registries (NQR). Persons that died during 2008-2009 and 2011-2012 (n = 1518) were selected. RESULTS:Mean age at death was 85.9 ± 7.3 (range 65.1-109.0). Among the 1518 participants (women n = 888, 58.5%), of which 741 (49%) were living in assisted living facilities and 1061 (69.9%) had at least one hospitalization during last year of life. The most common causes of death were cardiovascular disease (43.8%) and tumors (15.3%). A multivariable logistic regression revealed that living in ordinary housing, younger age and higher numbers of NQR's increased the likelihood of hospitalization. CONCLUSIONS:Persons in their last year of life consumed high amount of health- and social care although 12% did not receive any home care. Married persons received less home care than never married. Persons living in ordinary housing had higher numbers of hospitalizations compared to participants in assisted living facilities. Older persons and persons registered in fewer NQR's were less hospitalized.
journal_name
BMC Palliat Carejournal_title
BMC palliative careauthors
Hallgren J,Johansson L,Lannering C,Ernsth Bravell M,Gillsjö Cdoi
10.1186/s12904-020-00598-xsubject
Has Abstractpub_date
2020-06-23 00:00:00pages
90issue
1issn
1472-684Xpii
10.1186/s12904-020-00598-xjournal_volume
19pub_type
杂志文章abstract：BACKGROUND:People with schizophrenia are at risk of receiving poorer end of life care than other patients. They are often undertreated, avoid treatment and are about half as likely to access palliative care. There are limited options for end of life care for this under-serviced group in need. This study aims to address...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-018-0309-1
更新日期：2018-03-27 00:00:00
abstract：BACKGROUND:Overuse of anti-cancer therapy is an important quality-of-care issue. An aggressive approach to treatment can have negative effects on quality of life and cost, but its effect on survival is not well-defined. METHODS:Using the Surveillance, Epidemiology, and End Results-Medicare database, we identified 7,87...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-10-14
更新日期：2011-09-21 00:00:00
abstract：BACKGROUND:There are many potential benefits to chaplaincy in transforming into a "research-informed" profession. However little is known or has been documented about the roles of chaplains on research teams and as researchers or about the effects of research engagement on chaplains themselves. This report describes th...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-015-0006-2
更新日期：2015-05-02 00:00:00
abstract：BACKGROUND:There is little scholarship on culturally safe approaches to palliative care, especially for rural Indigenous clients. Thus, it is important to articulate how cultural safety can be enacted to support rural Indigenous Peoples and communities at end of life. We sought to identify strategies described in exist...
journal_title：BMC palliative care
pub_type： 杂志文章,评审
doi：10.1186/s12904-019-0404-y
更新日期：2019-02-14 00:00:00
abstract：BACKGROUND:The prevalence and implementation of institutional end-of-life policies has been comprehensively studied in Flanders, Belgium, a country where euthanasia was legalised in 2002. Developing end-of-life policies in hospitals is a first step towards improving the quality of medical decision-making at the end-of-...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-8-20
更新日期：2009-12-30 00:00:00
abstract：BACKGROUND:According to common practice based on a generally agreed interpretation of Icelandic law on the rights of patients, health care professionals cannot discuss prognosis and treatment with a patient's family without that patient's consent. This limitation poses ethical problems, because research has shown that,...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-13-8
更新日期：2014-03-11 00:00:00
abstract：:BACKGROUND: Transitions in the location of care and in who provides such care can be extremely stressful for individuals facing death and for those close to them. The objective of this study was to describe the distribution of transitions in care experienced by palliative care patients following admission to a compreh...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-4-3
更新日期：2005-02-22 00:00:00
abstract：BACKGROUND:Globally, the number of people who die with dementia is increasing. The importance of a palliative approach in the care of people with dementia is recognised and there are national polices to enhance current care. In the UK implementation of these polices is promoted by the National Institute for Health and ...
journal_title：BMC palliative care
pub_type： 杂志文章,评审
doi：10.1186/s12904-015-0047-6
更新日期：2015-10-19 00:00:00
abstract：BACKGROUND:Implementation of quality improvements in palliative care (PC) is challenging, and detailed knowledge about factors that may facilitate or hinder implementation is essential for success. One part of the EU-funded IMPACT project (IMplementation of quality indicators in PAlliative Care sTudy) aiming to increas...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-016-0132-5
更新日期：2016-07-15 00:00:00
abstract：BACKGROUND:The goal of Canada's Compassionate Care Benefit (CCB) is to enable family members and other loved ones who are employed to take a temporary secured leave to care for a terminally ill individual at end of life. Successful applicants of the CCB can receive up to 55% of their average insured earnings, up to a m...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-7-14
更新日期：2008-08-28 00:00:00
abstract：BACKGROUND:A compassionate community approach to palliative care provides important rationale for building community-based hospice volunteer capacity. In this project, we piloted one such capacity-building model in which volunteers and a nurse partnered to provide navigation support beginning in the early palliative ph...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-017-0210-3
更新日期：2017-07-03 00:00:00
abstract：BACKGROUND:Palliative and end-of-life care development is hindered by a lack of information about the circumstances surrounding dying in developing and resource-poor countries. Our aims were to develop and obtain face and content validity for a self-administered questionnaire on end-of-life care provision and medical d...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-020-00630-0
更新日期：2020-08-14 00:00:00
abstract：BACKGROUND:Institutional deaths (hospitals and nursing homes) are an important issue because they are often at odds with patient preference and associated with high healthcare costs. The aim of this study was to examine deaths in institutions and the role of individual, regional, and healthcare supply characteristics i...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-016-0156-x
更新日期：2016-09-23 00:00:00
abstract：BACKGROUND:It has been recognised that more evidence about important aspects of family members' sense of security during palliative care is needed. The objectives of the study was: i) to discover what variables are associated with family members feeling secure during palliative care; ii) to develop a model of family me...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-019-0446-1
更新日期：2019-07-25 00:00:00
abstract：BACKGROUND:More attention is being paid to the wellbeing of staff working in stressful situations. However, little is known about staff experience of providing end-of-life care to children within a hospice setting. This study aims to explore the experiences of care team staff who provide end-of-life care within a child...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-017-0189-9
更新日期：2017-02-13 00:00:00
abstract：BACKGROUND:There is a dearth of data regarding the optimal method of detecting and treating depression in palliative care. This study applied the Delphi method to evaluate expert opinion on choice of screening tool, choice of antidepressant and choice of psychological therapy. The aim was to inform the development of b...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-10-10
更新日期：2011-05-27 00:00:00
abstract：BACKGROUND:Confinement to an in-patient hospital ward impairs patients' sense of social support and connectedness. Providing the means, through communication technology, for patients to maintain contact with friends and family can potentially improve well-being at the end of life by minimizing social isolation and faci...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-017-0203-2
更新日期：2017-05-06 00:00:00
abstract：BACKGROUND:Half of nursing home residents (NHR) suffer from dementia. End-of-life hospitalizations are often burdensome in residents with dementia. A systematic review was conducted to study the occurrence of hospitalizations at the end of life in NHR with dementia and to compare these figures to NHR without dementia. ...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-019-0462-1
更新日期：2019-09-10 00:00:00
abstract：BACKGROUND:Professionals and relatives increasingly have to deal with people with intellectual disabilities (ID) who are in need of end-of-life care. This is a specific type of care that may require a different approach to the focus on participation that currently characterizes the care for people with ID. This paper d...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-015-0030-2
更新日期：2015-07-25 00:00:00
abstract：BACKGROUND:To understand the status of residents' awareness of and demand for hospice care services in Hangzhou and to provide a reference for promoting the formulation of hospice care-related policies in China. METHODS:A small cross-sectional survey of 519 adults aged over 40 years old living in the rural-urban fring...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-020-00628-8
更新日期：2020-08-17 00:00:00
abstract：BACKGROUND:Many people with advanced dementia live in residential aged care homes. Care home staff need the knowledge and skills to provide high-quality end-of-life (EOL) dementia care. However, several studies have found EOL dementia care to be suboptimal, and care staff have reported they would benefit from training ...
journal_title：BMC palliative care
pub_type： 杂志文章,随机对照试验
doi：10.1186/s12904-019-0474-x
更新日期：2019-10-23 00:00:00
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journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-3-1
更新日期：2004-04-27 00:00:00
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journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-017-0250-8
更新日期：2017-11-28 00:00:00
abstract：BACKGROUND:The focus of Specialized Palliative Care (SPC) is to improve care for patients with incurable diseases and their families, which includes the opportunity to make their own choice of place of care and ultimately place of death. The Danish Palliative Care Trial (DOMUS) aims to investigate whether an accelerate...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-13-44
更新日期：2014-09-09 00:00:00
abstract：BACKGROUND:Volunteers play a significant role in supporting hospice and palliative care in Africa, but little is known about the types of volunteers, their motivations and roles in service delivery. METHODS:Palliative care experts from 30 African countries were invited to participate in an online survey, conducted in ...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-020-00545-w
更新日期：2020-04-14 00:00:00
abstract：BACKGROUND:Observational studies investigating risk factors in coronavirus disease 2019 (COVID-19) have not considered the confounding effects of advanced care planning, such that a valid picture of risk for elderly, frail and multi-morbid patients is unknown. We aimed to report ceiling of care and cardiopulmonary resu...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-021-00711-8
更新日期：2021-01-11 00:00:00
abstract：BACKGROUND:This paper explores carers' views of dying, death and bereavement for family members who had recently died with heart failure adding to a growing literature on end of life experiences for people with conditions other than cancer. METHODS:Twenty interviews were conducted with bereaved carers of older people ...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-8-6
更新日期：2009-06-16 00:00:00
abstract：BACKGROUND:The use of music as therapy in multidisciplinary end-of-life care dates back to the 1970s and nowadays music therapy (MT) is one of the most frequently used complementary therapy in in-patient palliative care in the US. However existing research investigated music therapy's potential impact mainly from one p...
journal_title：BMC palliative care
pub_type： 杂志文章,评审
doi：10.1186/s12904-018-0286-4
更新日期：2018-02-20 00:00:00
abstract：BACKGROUND:To determine the feasibility and acceptability of lower limb neuromuscular electrical stimulation (NMES) as a home-based exercise therapy in patients with cancer who could not attend hospital-based exercise training. METHODS:A single-arm prospective pilot study of NMES, applied daily to both quadriceps musc...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-13-23
更新日期：2014-05-01 00:00:00
abstract：BACKGROUND:The Integrated Palliative care Outcome Scale (IPOS) was developed for evaluating essential outcomes for palliative care patients. Our objectives here are to describe the process of a six-phase cross-cultural adaptation of IPOS to French (IPOS-Fr), highlight the difficulties encountered and strategies to solv...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-019-0422-9
更新日期：2019-04-18 00:00:00
