Abstract：
BACKGROUND:Over the past ten years there has been an increasing focus on the need for improving the experience of end of life care. A number of policy initiatives have been introduced to develop approaches to discussing and documenting individual preferences for end of life care, in particular preferred place to die. METHODS:The aim was to investigate practice in relation to discussing and documenting end of life care and preferred place to die in the last 4 weeks of life with patients and their families. The study utilised an audit of 65 case notes, alongside four group interviews with a mix of health care professionals involved in palliative care provision. RESULTS:While there was evidence that discussions relating to end of life care and preferred place to die had taken place in around half of the audited case notes, there appeared to be a lack of a systematic approach to the recording of discussions with patients or carers about these kind of issues. Health care staff subsequently highlighted that initiating discussions about end of life care and preferences in relation to place of death was challenging and that the recording and tracking of such preferences was problematic. CONCLUSIONS:Further work is required to establish how information may be adequately recorded, revised and transferred across services to ensure that patients' preferences in relation to end of life care and place of death are, as far as possible, achieved.
journal_name
BMC Palliat Carejournal_title
BMC palliative careauthors
Cox K,Moghaddam N,Almack K,Pollock K,Seymour Jdoi
10.1186/1472-684X-10-18subject
Has Abstractpub_date
2011-11-04 00:00:00pages
18issn
1472-684Xpii
1472-684X-10-18journal_volume
10pub_type
杂志文章abstract：BACKGROUND:During the last few decades, patients' rights have been reinforced in many countries by acts of law. Measures now include health care proxies to uphold the doctor-patient relationship and advance directives for end-of-life patients. These could be relevant tools as early as the initial diagnosis of haematolo...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-13-57
更新日期：2014-12-11 00:00:00
abstract：BACKGROUND:Hospice palliative care (HPC) is a philosophy of care that aims to relieve suffering and improve the quality of life for clients with life-threatening illnesses or end of life issues. The goals of HPC are not only to ameliorate clients' symptoms but also to reduce unneeded or unwanted medical interventions s...
journal_title：BMC palliative care
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doi：10.1186/1472-684X-13-35
更新日期：2014-07-11 00:00:00
abstract：BACKGROUND:Half of nursing home residents (NHR) suffer from dementia. End-of-life hospitalizations are often burdensome in residents with dementia. A systematic review was conducted to study the occurrence of hospitalizations at the end of life in NHR with dementia and to compare these figures to NHR without dementia. ...
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doi：10.1186/s12904-019-0462-1
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journal_title：BMC palliative care
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doi：10.1186/s12904-017-0210-3
更新日期：2017-07-03 00:00:00
abstract：UNLABELLED: BACKGROUND:Parental palliative disease is a family affair, however adolescent's well-being and coping are still rarely considered. The objectives of this paper were a) to identify differences in psychosocial adjustment and health-related quality of life (HRQoL) among adolescents and young adults with paren...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-11-21
更新日期：2012-10-30 00:00:00
abstract：BACKGROUND:One essential element of research is the successful recruitment of participants. However, concerns are obvious regarding the ethical implications of involving terminally ill and even dying patients and their informal caregivers as research participants. This study aims to illustrate central issues encountere...
journal_title：BMC palliative care
pub_type： 杂志文章,多中心研究
doi：10.1186/s12904-015-0020-4
更新日期：2015-05-02 00:00:00
abstract：BACKGROUND:Much of what we understand about the design of healthcare systems to support care of the dying comes from our experiences with providing palliative care for dying cancer patients. It is increasingly recognized that in addition to cancer, high quality end of life care should be an integral part of care that i...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-016-0076-9
更新日期：2016-01-15 00:00:00
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journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-017-0262-4
更新日期：2017-12-28 00:00:00
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journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-019-0427-4
更新日期：2019-05-20 00:00:00
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journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-3-1
更新日期：2004-04-27 00:00:00
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journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-020-00545-w
更新日期：2020-04-14 00:00:00
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journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-4-3
更新日期：2005-02-22 00:00:00
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journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-019-0412-y
更新日期：2019-03-21 00:00:00
abstract：BACKGROUND:The aim of palliative care is to improve the quality of life of patients and families through the prevention and relief of suffering. Frequently, patients may choose to receive palliative care in the home. The objective of this paper is to summarize the quality and primary outcomes measured within the pallia...
journal_title：BMC palliative care
pub_type： 杂志文章,评审
doi：10.1186/s12904-018-0299-z
更新日期：2018-03-07 00:00:00
abstract：BACKGROUND:Empirical knowledge around palliative care provision and needs of people with intellectual disabilities is extremely limited, as is the availability of research resources, including expertise and funding. This paper describes a consultation process that sought to develop an agenda for research priorities for...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-016-0108-5
更新日期：2016-03-24 00:00:00
abstract：BACKGROUND:Soft tissue sarcomas (STS) account for less than 1% of all malignancies. Approximately 50% of the patients develop metastases with limited survival in the course of their disease. For those patients, palliative treatment aiming at symptom relief and improvement of quality of life is most important. However, ...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-020-00702-1
更新日期：2021-01-14 00:00:00
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pub_type： 杂志文章
doi：10.1186/s12904-020-00626-w
更新日期：2020-08-16 00:00:00
abstract：BACKGROUND:The focus of Specialized Palliative Care (SPC) is to improve care for patients with incurable diseases and their families, which includes the opportunity to make their own choice of place of care and ultimately place of death. The Danish Palliative Care Trial (DOMUS) aims to investigate whether an accelerate...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-13-44
更新日期：2014-09-09 00:00:00
abstract：BACKGROUND:Children with chronic complex-medical conditions comprise a small minority of children who require substantial healthcare with major implications for hospital utilization and costs in pediatrics. Community-Based Pediatric Palliative Care (CBPPC) provides a holistic approach to patient care that can improve t...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-016-0138-z
更新日期：2016-08-03 00:00:00
abstract：BACKGROUND:Palliative and end-of-life care development is hindered by a lack of information about the circumstances surrounding dying in developing and resource-poor countries. Our aims were to develop and obtain face and content validity for a self-administered questionnaire on end-of-life care provision and medical d...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-020-00630-0
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abstract：BACKGROUND:The prevalence and implementation of institutional end-of-life policies has been comprehensively studied in Flanders, Belgium, a country where euthanasia was legalised in 2002. Developing end-of-life policies in hospitals is a first step towards improving the quality of medical decision-making at the end-of-...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-8-20
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abstract：BACKGROUND:The Palliative Performance Scale (PPS) was first introduced in1996 as a new tool for measurement of performance status in palliative care. PPS has been used in many countries and has been translated into other languages. METHODS:This study evaluated the reliability and validity of PPS. A web-based, case sce...
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pub_type： 杂志文章
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更新日期：2008-08-04 00:00:00
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journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-020-00549-6
更新日期：2020-03-25 00:00:00
abstract：BACKGROUND:More attention is being paid to the wellbeing of staff working in stressful situations. However, little is known about staff experience of providing end-of-life care to children within a hospice setting. This study aims to explore the experiences of care team staff who provide end-of-life care within a child...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-017-0189-9
更新日期：2017-02-13 00:00:00
abstract：BACKGROUND:Most patients with life-limiting illnesses are treated and cared for over a long period of time in primary care and guidelines suggest that ACP discussions should be initiated in primary care. However, a practical model to implement ACP in general practice is lacking. Therefore, the objective of this study i...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-016-0091-x
更新日期：2016-02-11 00:00:00
abstract：BACKGROUND:The use of music as therapy in multidisciplinary end-of-life care dates back to the 1970s and nowadays music therapy (MT) is one of the most frequently used complementary therapy in in-patient palliative care in the US. However existing research investigated music therapy's potential impact mainly from one p...
journal_title：BMC palliative care
pub_type： 杂志文章,评审
doi：10.1186/s12904-018-0286-4
更新日期：2018-02-20 00:00:00
abstract：BACKGROUND:To understand the status of residents' awareness of and demand for hospice care services in Hangzhou and to provide a reference for promoting the formulation of hospice care-related policies in China. METHODS:A small cross-sectional survey of 519 adults aged over 40 years old living in the rural-urban fring...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/s12904-020-00628-8
更新日期：2020-08-17 00:00:00
abstract：BACKGROUND:There is little scholarship on culturally safe approaches to palliative care, especially for rural Indigenous clients. Thus, it is important to articulate how cultural safety can be enacted to support rural Indigenous Peoples and communities at end of life. We sought to identify strategies described in exist...
journal_title：BMC palliative care
pub_type： 杂志文章,评审
doi：10.1186/s12904-019-0404-y
更新日期：2019-02-14 00:00:00
abstract：BACKGROUND:The Patient Satisfaction Questionnaire (PSQ) is an assessment tool used to evaluate patients' perspectives of their doctor's communication and interpersonal skills. The present pilot study investigated whether the PSQ could be administered successfully in a hospice inpatient setting and if it is an acceptabl...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-13-27
更新日期：2014-06-02 00:00:00
abstract：UNLABELLED: BACKGROUND:This study explores with patients, carers and health care professionals if, when and how Advance Care Planning conversations about patients' preferences for place of care (and death) were facilitated and documented. METHODS:The study adopted an exploratory case study design using qualitative in...
journal_title：BMC palliative care
pub_type： 杂志文章
doi：10.1186/1472-684X-11-15
更新日期：2012-09-17 00:00:00
