Community-based pediatric palliative care for health related quality of life, hospital utilization and costs lessons learned from a pilot study.

abstract：BACKGROUND:Half of nursing home residents (NHR) suffer from dementia. End-of-life hospitalizations are often burdensome in residents with dementia. A systematic review was conducted to study the occurrence of hospitalizations at the end of life in NHR with dementia and to compare these figures to NHR without dementia. ...

journal_title：BMC palliative care

authors： Hoffmann F,Strautmann A,Allers K

更新日期：2019-09-10 00:00:00

abstract：BACKGROUND:In the last years of life, burden of disease and disability and need of health- and social care often increase. Social, functional and psychological factors may be important in regard to social- and health care utilization. This study aims to describe use of health- and social care during the last year of li...

journal_title：BMC palliative care

authors： Hallgren J,Johansson L,Lannering C,Ernsth Bravell M,Gillsjö C

更新日期：2020-06-23 00:00:00

abstract：BACKGROUND:The prevalence and implementation of institutional end-of-life policies has been comprehensively studied in Flanders, Belgium, a country where euthanasia was legalised in 2002. Developing end-of-life policies in hospitals is a first step towards improving the quality of medical decision-making at the end-of-...

journal_title：BMC palliative care

authors： D'Haene I,Vander Stichele RH,Pasman HR,Noortgate NV,Bilsen J,Mortier F,Deliens L

更新日期：2009-12-30 00:00:00

abstract：BACKGROUND:The objective of the Balearic Islands Palliative Care (PC) Program is to improve the quality of PC through a shared model consisting of primary health care professionals, home-based PC teams, and PC units in hospitals. According to the World Health Organization (WHO), patients with advanced cancer and other ...

journal_title：BMC palliative care

authors： Llobera J,Sansó N,Ruiz A,Llagostera M,Serratusell E,Serrano C,Roselló MLM,Benito E,Castaño EJ,Leiva A

更新日期：2017-07-10 00:00:00

abstract：BACKGROUND:It has been recognised that more evidence about important aspects of family members' sense of security during palliative care is needed. The objectives of the study was: i) to discover what variables are associated with family members feeling secure during palliative care; ii) to develop a model of family me...

journal_title：BMC palliative care

authors： Milberg A,Liljeroos M,Krevers B

更新日期：2019-07-25 00:00:00

abstract：BACKGROUND:One essential element of research is the successful recruitment of participants. However, concerns are obvious regarding the ethical implications of involving terminally ill and even dying patients and their informal caregivers as research participants. This study aims to illustrate central issues encountere...

journal_title：BMC palliative care

authors： Stiel S,Heckel M,Bussmann S,Weber M,Ostgathe C

更新日期：2015-05-02 00:00:00

abstract：BACKGROUND:Empirical knowledge around palliative care provision and needs of people with intellectual disabilities is extremely limited, as is the availability of research resources, including expertise and funding. This paper describes a consultation process that sought to develop an agenda for research priorities for...

journal_title：BMC palliative care

authors： Tuffrey-Wijne I,Wicki M,Heslop P,McCarron M,Todd S,Oliver D,de Veer A,Ahlström G,Schäper S,Hynes G,O'Farrell J,Adler J,Riese F,Curfs L

更新日期：2016-03-24 00:00:00

abstract：BACKGROUND:One ambition regarding palliative care is that it should be more accessible to patients and families regardless of care setting. Previous studies show many difficulties and shortcomings in the care of patients with palliative care needs in acute care facilities, but also challenges regarding efforts to imple...

journal_title：BMC palliative care

authors： Hahne P,Lundström S,Leveälahti H,Winnhed J,Öhlén J

更新日期：2017-12-28 00:00:00

abstract：BACKGROUND:Spiritual care is frequently cited as a key component of hospice care in Taiwanese healthcare and beyond. The aim of this research is to gauge physicians and nurses' self-reported perspectives and clinical practices on the roles of their professions in addressing spiritual care in an inpatient palliative car...

journal_title：BMC palliative care

authors： Tao Z,Wu P,Luo A,Ho TL,Chen CY,Cheng SY

更新日期：2020-07-01 00:00:00

abstract：BACKGROUND:Little is known about palliative care professionals' attitudes towards guidelines. In 2015, the German Association for Palliative Medicine (DGP) published an evidence based guideline for palliative care in adults with incurable cancer. Before publication we conducted a national survey among members of the DG...

journal_title：BMC palliative care

authors： Kalies H,Schöttmer R,Simon ST,Voltz R,Crispin A,Bausewein C

更新日期：2017-03-21 00:00:00

abstract：BACKGROUND:Understanding end of life preferences amongst the oldest old is crucial to informing appropriate palliative and end of life care internationally. However, little has been reported in the academic literature about the end of life preferences of people in advanced age, particularly the preferences of indigenou...

journal_title：BMC palliative care

authors： Gott M,Frey R,Wiles J,Rolleston A,Teh R,Moeke-Maxwell T,Kerse N

更新日期：2017-12-19 00:00:00

abstract：BACKGROUND:Confinement to an in-patient hospital ward impairs patients' sense of social support and connectedness. Providing the means, through communication technology, for patients to maintain contact with friends and family can potentially improve well-being at the end of life by minimizing social isolation and faci...

journal_title：BMC palliative care

authors： Guo Q,Cann B,McClement S,Thompson G,Chochinov HM

更新日期：2017-05-06 00:00:00

abstract：BACKGROUND:The supportive hospice aged residential exchange (SHARE) is a new model of palliative care education that has been designed for residential aged care. The goal of SHARE is to help clinical staff improve palliative care within residential aged care facilities and to improve specialist palliative care nurses' ...

journal_title：BMC palliative care

authors： Frey R,Barham S,Balmer D,Boyd M,Robinson J,Gott M

更新日期：2020-08-17 00:00:00

abstract：BACKGROUND:Research has highlighted the need for improving the implementation of advance care planning (ACP) in nursing homes. We developed a theory-based multicomponent ACP intervention (the ACP+ programme) aimed at supporting nursing home staff with the implementation of ACP into routine nursing home care. We describ...

journal_title：BMC palliative care

authors： Gilissen J,Pivodic L,Wendrich-van Dael A,Gastmans C,Vander Stichele R,Engels Y,Vernooij-Dassen M,Deliens L,Van den Block L

更新日期：2020-01-08 00:00:00

abstract：BACKGROUND:Children show long-term psychological distress if family communication and illness-related information are poor during and after a parent's illness and death. Few psychosocial interventions for families with minor children living with a parent who has a life-threatening illness have been evaluated rigorously...

journal_title：BMC palliative care

authors： Eklund R,Alvariza A,Kreicbergs U,Jalmsell L,Lövgren M

更新日期：2020-04-16 00:00:00

abstract：BACKGROUND:According to common practice based on a generally agreed interpretation of Icelandic law on the rights of patients, health care professionals cannot discuss prognosis and treatment with a patient's family without that patient's consent. This limitation poses ethical problems, because research has shown that,...

journal_title：BMC palliative care

authors： Skulason B,Hauksdottir A,Ahcic K,Helgason AR

更新日期：2014-03-11 00:00:00

abstract：BACKGROUND:Current policies recommend integrating home care and palliative care to enable patients to remain at home and avoid unnecessary hospital admission and emergency department (ED) visits. The Italian health care system had implemented integrated palliative home care (IHPC) services to guarantee a comprehensive,...

journal_title：BMC palliative care

authors： Borraccino A,Campagna S,Politano G,Dalmasso M,Dimonte V,Gianino MM

更新日期：2020-08-16 00:00:00

abstract：BACKGROUND:Overuse of anti-cancer therapy is an important quality-of-care issue. An aggressive approach to treatment can have negative effects on quality of life and cost, but its effect on survival is not well-defined. METHODS:Using the Surveillance, Epidemiology, and End Results-Medicare database, we identified 7,87...

journal_title：BMC palliative care

authors： Saito AM,Landrum MB,Neville BA,Ayanian JZ,Earle CC

更新日期：2011-09-21 00:00:00

abstract：BACKGROUND:More people die in hospital than in any other setting which is why it is important to study the outcomes of hospital care at end of life. This study analyses what influenced outcomes in a sample of patients who died in hospital in Ireland in 2008/9. The study was undertaken as part of the Irish Hospice Found...

journal_title：BMC palliative care

authors： McKeown K,Haase T,Pratschke J,Twomey S,Donovan H,Engling F

更新日期：2015-04-18 00:00:00

abstract：BACKGROUND:To determine the feasibility and acceptability of lower limb neuromuscular electrical stimulation (NMES) as a home-based exercise therapy in patients with cancer who could not attend hospital-based exercise training. METHODS:A single-arm prospective pilot study of NMES, applied daily to both quadriceps musc...

journal_title：BMC palliative care

authors： Windholz T,Swanson T,Vanderbyl BL,Jagoe RT

更新日期：2014-05-01 00:00:00

abstract：BACKGROUND:Soft tissue sarcomas (STS) account for less than 1% of all malignancies. Approximately 50% of the patients develop metastases with limited survival in the course of their disease. For those patients, palliative treatment aiming at symptom relief and improvement of quality of life is most important. However, ...

journal_title：BMC palliative care

authors： Brandes F,Striefler JK,Dörr A,Schmiester M,Märdian S,Koulaxouzidis G,Kaul D,Behzadi A,Thuss-Patience P,Ahn J,Pelzer U,Bullinger L,Flörcken A

更新日期：2021-01-14 00:00:00

abstract：BACKGROUND:Models of palliative care delivery develop within a social, cultural, and political context. This paper describes the 30-year history of the National Tumor Association (ANT), a palliative care organization founded in the Italian province of Bologna, focusing on this model of home care for palliative cancer p...

journal_title：BMC palliative care

authors： Casadio M,Biasco G,Abernethy A,Bonazzi V,Pannuti R,Pannuti F

更新日期：2010-06-08 00:00:00

abstract：BACKGROUND:Effective integration between hospices, palliative care services and other local health care services to support patients with palliative care needs is an important international priority. A previous model suggests that integration involves a cumulative stepped process of engagement with other organisations ...

journal_title：BMC palliative care

authors： Payne S,Eastham R,Hughes S,Varey S,Hasselaar J,Preston N

更新日期：2017-11-28 00:00:00

abstract：BACKGROUND:Many people with advanced dementia live in residential aged care homes. Care home staff need the knowledge and skills to provide high-quality end-of-life (EOL) dementia care. However, several studies have found EOL dementia care to be suboptimal, and care staff have reported they would benefit from training ...

journal_title：BMC palliative care

authors： Tropea J,Johnson CE,Nestel D,Paul SK,Brand CA,Hutchinson AF,Bicknell R,Lim WK

更新日期：2019-10-23 00:00:00

abstract：BACKGROUND:The benefit of palliative chemotherapy (PC) in patients with advanced solid tumors and poor performance status (ECOG-PS) has not been prospectively validated, which makes treatment decision challenging. We aimed to evaluate the overall survival, factors associated with early mortality, and adoption of additi...

journal_title：BMC palliative care

authors： Fiorin de Vasconcellos V,Rcc Bonadio R,Avanço G,Negrão MV,Pimenta Riechelmann R

更新日期：2019-05-20 00:00:00

abstract：BACKGROUND:While the home is the most common setting for the provision of palliative care in Australia, a common problem encountered here is the inability of patient/carers to manage medications, which can lead to misadventure and hospitalisation. This can be averted through detection and resolution of drug related pro...

journal_title：BMC palliative care

authors： Hussainy SY,Box M,Scholes S

更新日期：2011-10-31 00:00:00

abstract：:BACKGROUND: Although guidelines for the care of the dying patient exist the evidence base to support the guidelines is poor. Some of the factors contributing to this include failure to recruit to trials, protective healthcare professionals and subsequent attrition from trials due to the death of the patients. Recent s...

journal_title：BMC palliative care

authors： Fowell A,Russell I,Johnstone R,Finlay I,Russell D

更新日期：2004-04-27 00:00:00

abstract：BACKGROUND:Under-diagnosis of pain is a serious problem in cancer care. Accurate pain assessment by physicians may form the basis of effective care. The aim of this study is to examine the association between late referral to a Palliative Care Team (PCT) after admission and the under-diagnosis of pain by primary physic...

journal_title：BMC palliative care

authors： Akashi M,Yano E,Aruga E

更新日期：2012-06-07 00:00:00

abstract：BACKGROUND:Family members are involved in the care of palliative patients at home and therefore, should be viewed as important sources of information to help clinicians better understand the quality palliative care service patients receive. The objective of the study was to analyse what is valued most by family carers ...

journal_title：BMC palliative care

authors： Aparicio M,Centeno C,Carrasco JM,Barbosa A,Arantzamendi M

更新日期：2017-09-06 00:00:00

abstract：BACKGROUND:There is limited population-level research on end-of-life care in Australia that considers health care use and costs across hospital and community sectors. The aim of this study was to quantify health care use and costs in the last 6 months of life in a cohort of elderly Australian decedents and to examine t...

journal_title：BMC palliative care

authors： Reeve R,Srasuebkul P,Langton JM,Haas M,Viney R,Pearson SA,EOL-CC study authors.

更新日期：2017-06-21 00:00:00