Cluster randomisation or randomised consent as an appropriate methodology for trials in palliative care: a feasibility study [ISRCTN60243484].

abstract：BACKGROUND:The supportive hospice aged residential exchange (SHARE) is a new model of palliative care education that has been designed for residential aged care. The goal of SHARE is to help clinical staff improve palliative care within residential aged care facilities and to improve specialist palliative care nurses' ...

journal_title：BMC palliative care

authors： Frey R,Barham S,Balmer D,Boyd M,Robinson J,Gott M

更新日期：2020-08-17 00:00:00

abstract：BACKGROUND:To understand the status of residents' awareness of and demand for hospice care services in Hangzhou and to provide a reference for promoting the formulation of hospice care-related policies in China. METHODS:A small cross-sectional survey of 519 adults aged over 40 years old living in the rural-urban fring...

journal_title：BMC palliative care

authors： Xie Y,Xu Y,Yang S,Yan J,Jin XQ,Liu C

更新日期：2020-08-17 00:00:00

abstract：BACKGROUND:People with schizophrenia are at risk of receiving poorer end of life care than other patients. They are often undertreated, avoid treatment and are about half as likely to access palliative care. There are limited options for end of life care for this under-serviced group in need. This study aims to address...

journal_title：BMC palliative care

authors： McNamara B,Same A,Rosenwax L,Kelly B

更新日期：2018-03-27 00:00:00

abstract：BACKGROUND:Research suggests that there may be bereavement experiences and support needs which are specific to family caregivers providing end of life care (EoLC), although this remains an under-researched area. This paper focuses on themes relating to bereavement which were derived from an analysis of free text survey...

journal_title：BMC palliative care

authors： Harrop E,Morgan F,Byrne A,Nelson A

更新日期：2016-11-08 00:00:00

abstract：BACKGROUND:Keeping people living with advanced dementia in their usual place of residence is becoming a key governmental goal but to achieve this, family carers and health care professionals must negotiate how to provide optimal care. Previously, we reported a realist analysis of the health care professional perspectiv...

journal_title：BMC palliative care

authors： Kupeli N,Sampson EL,Leavey G,Harrington J,Davis S,Candy B,King M,Nazareth I,Jones L,Moore K

更新日期：2019-10-24 00:00:00

abstract：BACKGROUND:Implementation of quality improvements in palliative care (PC) is challenging, and detailed knowledge about factors that may facilitate or hinder implementation is essential for success. One part of the EU-funded IMPACT project (IMplementation of quality indicators in PAlliative Care sTudy) aiming to increas...

journal_title：BMC palliative care

authors： Sommerbakk R,Haugen DF,Tjora A,Kaasa S,Hjermstad MJ

更新日期：2016-07-15 00:00:00

abstract：BACKGROUND:Early integration of palliative care concurrently to standard cancer care is associated with several benefits for patients and their caregivers. However, communication barriers on part of the caring physicians often impede a timely referral to palliative care. This study describes the protocol of the evaluat...

journal_title：BMC palliative care

authors： Harnischfeger N,Rath HM,Ullrich A,Alt-Epping B,Letsch A,Thuss-Patience P,Bokemeyer C,Oechsle K,Bergelt C

更新日期：2020-05-12 00:00:00

abstract：BACKGROUND:Globally the state of palliative care research remains uncertain. Questions remain regarding impact, funding, and research priorities. Building upon previous research, this review examines palliative care research in Ireland and contributes to a wider international debate on the state of palliative care rese...

journal_title：BMC palliative care

authors： McIlfatrick S,Muldrew DHL,Hasson F,Payne S

更新日期：2018-09-27 00:00:00

abstract：BACKGROUND:Rapid effective responsiveness to patient needs is pivotal to high quality palliative care. Aboriginal and Torres Strait Islander (Indigenous) people are susceptible to life-limiting illnesses at younger ages than other Australians and experience inequity of health service provision. The Palliative Care Outc...

journal_title：BMC palliative care

authors： Woods JA,Johnson CE,Ngo HT,Katzenellenbogen JM,Murray K,Thompson SC

更新日期：2018-12-22 00:00:00

abstract：BACKGROUND:Children show long-term psychological distress if family communication and illness-related information are poor during and after a parent's illness and death. Few psychosocial interventions for families with minor children living with a parent who has a life-threatening illness have been evaluated rigorously...

journal_title：BMC palliative care

authors： Eklund R,Alvariza A,Kreicbergs U,Jalmsell L,Lövgren M

更新日期：2020-04-16 00:00:00

abstract：BACKGROUND:The use of music as therapy in multidisciplinary end-of-life care dates back to the 1970s and nowadays music therapy (MT) is one of the most frequently used complementary therapy in in-patient palliative care in the US. However existing research investigated music therapy's potential impact mainly from one p...

journal_title：BMC palliative care

authors： Schmid W,Rosland JH,von Hofacker S,Hunskår I,Bruvik F

更新日期：2018-02-20 00:00:00

abstract：BACKGROUND:In the last years of life, burden of disease and disability and need of health- and social care often increase. Social, functional and psychological factors may be important in regard to social- and health care utilization. This study aims to describe use of health- and social care during the last year of li...

journal_title：BMC palliative care

authors： Hallgren J,Johansson L,Lannering C,Ernsth Bravell M,Gillsjö C

更新日期：2020-06-23 00:00:00

abstract：UNLABELLED: BACKGROUND:This study explores with patients, carers and health care professionals if, when and how Advance Care Planning conversations about patients' preferences for place of care (and death) were facilitated and documented. METHODS:The study adopted an exploratory case study design using qualitative in...

journal_title：BMC palliative care

authors： Almack K,Cox K,Moghaddam N,Pollock K,Seymour J

更新日期：2012-09-17 00:00:00

abstract：BACKGROUND:Volunteers play a significant role in supporting hospice and palliative care in Africa, but little is known about the types of volunteers, their motivations and roles in service delivery. METHODS:Palliative care experts from 30 African countries were invited to participate in an online survey, conducted in ...

journal_title：BMC palliative care

authors： Loth CC,Namisango E,Powell RA,Pabst KH,Leng M,Hamada M,Radbruch L

更新日期：2020-04-14 00:00:00

abstract：BACKGROUND:According to common practice based on a generally agreed interpretation of Icelandic law on the rights of patients, health care professionals cannot discuss prognosis and treatment with a patient's family without that patient's consent. This limitation poses ethical problems, because research has shown that,...

journal_title：BMC palliative care

authors： Skulason B,Hauksdottir A,Ahcic K,Helgason AR

更新日期：2014-03-11 00:00:00

abstract：BACKGROUND:Being a family carer to a patient nearing the end of their life is a challenging and confronting experience. Studies show that caregiving can have negative consequences on the health of family carers including fatigue, sleep problems, depression, anxiety and burnout. One of the goals of palliative care is to...

journal_title：BMC palliative care

authors： Hudson PL,Remedios C,Thomas K

更新日期：2010-08-05 00:00:00

abstract：BACKGROUND:Models of palliative care delivery develop within a social, cultural, and political context. This paper describes the 30-year history of the National Tumor Association (ANT), a palliative care organization founded in the Italian province of Bologna, focusing on this model of home care for palliative cancer p...

journal_title：BMC palliative care

authors： Casadio M,Biasco G,Abernethy A,Bonazzi V,Pannuti R,Pannuti F

更新日期：2010-06-08 00:00:00

abstract：BACKGROUND:The goal of Canada's Compassionate Care Benefit (CCB) is to enable family members and other loved ones who are employed to take a temporary secured leave to care for a terminally ill individual at end of life. Successful applicants of the CCB can receive up to 55% of their average insured earnings, up to a m...

journal_title：BMC palliative care

authors： Crooks VA,Williams A

更新日期：2008-08-28 00:00:00

abstract：BACKGROUND:More attention is being paid to the wellbeing of staff working in stressful situations. However, little is known about staff experience of providing end-of-life care to children within a hospice setting. This study aims to explore the experiences of care team staff who provide end-of-life care within a child...

journal_title：BMC palliative care

authors： McConnell T,Porter S

更新日期：2017-02-13 00:00:00

abstract：BACKGROUND:There is little scholarship on culturally safe approaches to palliative care, especially for rural Indigenous clients. Thus, it is important to articulate how cultural safety can be enacted to support rural Indigenous Peoples and communities at end of life. We sought to identify strategies described in exist...

journal_title：BMC palliative care

authors： Schill K,Caxaj S

更新日期：2019-02-14 00:00:00

abstract：BACKGROUND:The prevalence and implementation of institutional end-of-life policies has been comprehensively studied in Flanders, Belgium, a country where euthanasia was legalised in 2002. Developing end-of-life policies in hospitals is a first step towards improving the quality of medical decision-making at the end-of-...

journal_title：BMC palliative care

authors： D'Haene I,Vander Stichele RH,Pasman HR,Noortgate NV,Bilsen J,Mortier F,Deliens L

更新日期：2009-12-30 00:00:00

abstract：BACKGROUND:The leading cause of death among young children in southern Africa is complications due to HIV infection and, in South Africa, over a third of all deaths of children younger than five are associated with HIV infection. There is a great and urgent need for children's palliative care in Africa, whether HIV-rel...

journal_title：BMC palliative care

authors： Naicker SN,Richter L,Stein A,Campbell L,Marston J

更新日期：2016-04-09 00:00:00

abstract：BACKGROUND:The McGill Quality of Life Questionnaire - Expanded (MQOL-E) and the Quality of Life in Life-Threatening Illness-Family Carer/Caregiver version (QOLLTI-F) are developed for use with patients facing the end of life and their family carers, respectively. They are also developed for possible use as companion in...

journal_title：BMC palliative care

authors： Axelsson L,Alvariza A,Carlsson N,Cohen SR,Sawatzky R,Årestedt K

更新日期：2020-03-25 00:00:00

abstract：BACKGROUND:Much of what we understand about the design of healthcare systems to support care of the dying comes from our experiences with providing palliative care for dying cancer patients. It is increasingly recognized that in addition to cancer, high quality end of life care should be an integral part of care that i...

journal_title：BMC palliative care

authors： Sawatzky R,Porterfield P,Lee J,Dixon D,Lounsbury K,Pesut B,Roberts D,Tayler C,Voth J,Stajduhar K

更新日期：2016-01-15 00:00:00

abstract：BACKGROUND:Although spiritual care is a basic element of holistic nursing, nurses' spiritual care knowledge and abilities are often unable to satisfy patients' spiritual care needs. Therefore, nurses are in urgent need of relevant training to enhance their abilities to provide patients with spiritual care. DESIGN:A no...

journal_title：BMC palliative care

authors： Hu Y,Jiao M,Li F

更新日期：2019-11-26 00:00:00

abstract：BACKGROUND:It has been recognised that more evidence about important aspects of family members' sense of security during palliative care is needed. The objectives of the study was: i) to discover what variables are associated with family members feeling secure during palliative care; ii) to develop a model of family me...

journal_title：BMC palliative care

authors： Milberg A,Liljeroos M,Krevers B

更新日期：2019-07-25 00:00:00

abstract：BACKGROUND:Laws allowing assisted suicide and euthanasia have been implemented in many locations around the world but some individuals suffering with terminal illness receiving palliative care services are hastening death or die by suicide without assistance. This systematic review aims to summarise evidence of palliat...

journal_title：BMC palliative care

authors： Gerson SM,Bingley A,Preston N,Grinyer A

更新日期：2019-08-31 00:00:00

abstract：BACKGROUND:The Patient Satisfaction Questionnaire (PSQ) is an assessment tool used to evaluate patients' perspectives of their doctor's communication and interpersonal skills. The present pilot study investigated whether the PSQ could be administered successfully in a hospice inpatient setting and if it is an acceptabl...

journal_title：BMC palliative care

authors： Henriksen KM,Heller N,Finucane AM,Oxenham D

更新日期：2014-06-02 00:00:00

abstract：BACKGROUND:Palliative and end-of-life care development is hindered by a lack of information about the circumstances surrounding dying in developing and resource-poor countries. Our aims were to develop and obtain face and content validity for a self-administered questionnaire on end-of-life care provision and medical d...

journal_title：BMC palliative care

authors： Jennings N,Chambaere K,Cox Macpherson C,Cox KL,Deliens L,Cohen J

更新日期：2020-08-14 00:00:00

abstract：BACKGROUND:There is a dearth of data regarding the optimal method of detecting and treating depression in palliative care. This study applied the Delphi method to evaluate expert opinion on choice of screening tool, choice of antidepressant and choice of psychological therapy. The aim was to inform the development of b...

journal_title：BMC palliative care

authors： Rayner L,Price A,Hotopf M,Higginson IJ

更新日期：2011-05-27 00:00:00