Abstract:
BACKGROUND:People with schizophrenia are at risk of receiving poorer end of life care than other patients. They are often undertreated, avoid treatment and are about half as likely to access palliative care. There are limited options for end of life care for this under-serviced group in need. This study aims to address the paucity of research by documenting possible need, experiences of health care service use and factors affecting palliative care use for people with schizophrenia who have advanced life limiting illness. METHODS:Semi-structured interviews were undertaken with 16 experienced health professionals caring for people with schizophrenia in Western Australia. The interviews focussed on their perceptions and experiences of end of life care, their patients' unmet needs, palliative care options, and suggested services to support this vulnerable group and improve health care provision. The research used a qualitative design and thematic analyses. RESULTS:The participants all advocated strongly for their patients and recognised their extreme vulnerability. They identified a range of challenges and unmet needs experienced by people with schizophrenia at the end of life including: illness factors such as the impact of schizophrenia on information processing and communication; social factors such as stigma, isolation and the absence of a carer; and health care factors such as late diagnosis, delayed access to care, and mismanagement in care. Four themes were organised into two domains with the first exploring the individual and social circumstances of people with schizophrenia, including the challenges they experience in the health care system. The second domain covers themes that discuss barriers and facilitators to people with schizophrenia receiving palliative care and key features in palliative care provision, including recognising declining health, communication and planning, and collaboration and capacity building in the broader health, mental health and palliative care sectors. CONCLUSIONS:To ensure people with schizophrenia are well supported at the end of life a model of palliative care is required that offers both specialised services and capacity building within the pre-existing health workforce. Resources are needed to address the stigma and lack of services faced by this vulnerable group.
journal_name
BMC Palliat Carejournal_title
BMC palliative careauthors
McNamara B,Same A,Rosenwax L,Kelly Bdoi
10.1186/s12904-018-0309-1subject
Has Abstractpub_date
2018-03-27 00:00:00pages
53issue
1issn
1472-684Xpii
10.1186/s12904-018-0309-1journal_volume
17pub_type
杂志文章abstract:BACKGROUND:There is limited population-level research on end-of-life care in Australia that considers health care use and costs across hospital and community sectors. The aim of this study was to quantify health care use and costs in the last 6 months of life in a cohort of elderly Australian decedents and to examine t...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-017-0213-0
更新日期:2017-06-21 00:00:00
abstract:BACKGROUND:Palliative and end-of-life care development is hindered by a lack of information about the circumstances surrounding dying in developing and resource-poor countries. Our aims were to develop and obtain face and content validity for a self-administered questionnaire on end-of-life care provision and medical d...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-020-00630-0
更新日期:2020-08-14 00:00:00
abstract:BACKGROUND:The aim of palliative care is to improve the quality of life of patients and families through the prevention and relief of suffering. Frequently, patients may choose to receive palliative care in the home. The objective of this paper is to summarize the quality and primary outcomes measured within the pallia...
journal_title:BMC palliative care
pub_type: 杂志文章,评审
doi:10.1186/s12904-018-0299-z
更新日期:2018-03-07 00:00:00
abstract:BACKGROUND:This paper explores carers' views of dying, death and bereavement for family members who had recently died with heart failure adding to a growing literature on end of life experiences for people with conditions other than cancer. METHODS:Twenty interviews were conducted with bereaved carers of older people ...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-8-6
更新日期:2009-06-16 00:00:00
abstract:BACKGROUND:More people die in hospital than in any other setting which is why it is important to study the outcomes of hospital care at end of life. This study analyses what influenced outcomes in a sample of patients who died in hospital in Ireland in 2008/9. The study was undertaken as part of the Irish Hospice Found...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-015-0014-2
更新日期:2015-04-18 00:00:00
abstract:BACKGROUND:Studies have shown that telehealth applications in palliative care are feasible, can improve quality of care, and reduce costs but few studies have focused on user acceptance of current technology applications in palliative care. Furthermore, the perspectives of health administrators have not been explored i...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-020-00644-8
更新日期:2020-09-07 00:00:00
abstract:BACKGROUND:Volunteers play a significant role in supporting hospice and palliative care in Africa, but little is known about the types of volunteers, their motivations and roles in service delivery. METHODS:Palliative care experts from 30 African countries were invited to participate in an online survey, conducted in ...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-020-00545-w
更新日期:2020-04-14 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章,评审
doi:10.1186/s12904-019-0404-y
更新日期:2019-02-14 00:00:00
abstract:BACKGROUND:Implementation of quality improvements in palliative care (PC) is challenging, and detailed knowledge about factors that may facilitate or hinder implementation is essential for success. One part of the EU-funded IMPACT project (IMplementation of quality indicators in PAlliative Care sTudy) aiming to increas...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-016-0132-5
更新日期:2016-07-15 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-019-0505-7
更新日期:2020-01-08 00:00:00
abstract:BACKGROUND:Globally the state of palliative care research remains uncertain. Questions remain regarding impact, funding, and research priorities. Building upon previous research, this review examines palliative care research in Ireland and contributes to a wider international debate on the state of palliative care rese...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-018-0364-7
更新日期:2018-09-27 00:00:00
abstract:BACKGROUND:To determine the feasibility and acceptability of lower limb neuromuscular electrical stimulation (NMES) as a home-based exercise therapy in patients with cancer who could not attend hospital-based exercise training. METHODS:A single-arm prospective pilot study of NMES, applied daily to both quadriceps musc...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-13-23
更新日期:2014-05-01 00:00:00
abstract:BACKGROUND:Even though struggling with similar symptom burden, patients with chronic heart failure (CHF) receive less palliative care than patients suffering from malignant diseases. Researchers have found that this might be related to lack of knowledge about palliative care, insufficient interprofessional communicatio...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-016-0149-9
更新日期:2016-08-15 00:00:00
abstract:BACKGROUND:Over the past decades there has been a significant increase in the number of published clinical trials in palliative care. However, empirical evidence suggests that there are methodological problems in the design and conduct of studies, which raises questions about the validity and generalisability of the re...
journal_title:BMC palliative care
pub_type: 杂志文章,评审
doi:10.1186/s12904-016-0181-9
更新日期:2017-01-25 00:00:00
abstract:BACKGROUND:The McGill Quality of Life Questionnaire - Expanded (MQOL-E) and the Quality of Life in Life-Threatening Illness-Family Carer/Caregiver version (QOLLTI-F) are developed for use with patients facing the end of life and their family carers, respectively. They are also developed for possible use as companion in...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-020-00549-6
更新日期:2020-03-25 00:00:00
abstract:BACKGROUND:Communication in do not resuscitate (DNR) and artificial nutrition and hydration (ANH) at the end of life is a key component of advance care planning (ACP) which is essential for patients with advanced cancer to have cares concordant with their wishes. The SOP model (Shared decision making with Oncologists a...
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pub_type: 杂志文章
doi:10.1186/s12904-020-0521-7
更新日期:2020-02-04 00:00:00
abstract:BACKGROUND:Much of what we understand about the design of healthcare systems to support care of the dying comes from our experiences with providing palliative care for dying cancer patients. It is increasingly recognized that in addition to cancer, high quality end of life care should be an integral part of care that i...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-016-0076-9
更新日期:2016-01-15 00:00:00
abstract:BACKGROUND:Many people with advanced dementia live in residential aged care homes. Care home staff need the knowledge and skills to provide high-quality end-of-life (EOL) dementia care. However, several studies have found EOL dementia care to be suboptimal, and care staff have reported they would benefit from training ...
journal_title:BMC palliative care
pub_type: 杂志文章,随机对照试验
doi:10.1186/s12904-019-0474-x
更新日期:2019-10-23 00:00:00
abstract:BACKGROUND:Advanced cancer patients experience considerable symptoms, problems, and needs. Early referral of these patients to specialised palliative care (SPC) could improve their symptoms and problems.The Danish Palliative Care Trial (DanPaCT) investigates whether patients with metastatic cancer, who report palliativ...
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pub_type: 杂志文章
doi:10.1186/1472-684X-12-37
更新日期:2013-10-24 00:00:00
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pub_type: 杂志文章,多中心研究
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更新日期:2015-05-02 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-11-18
更新日期:2012-09-20 00:00:00
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pub_type: 杂志文章
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更新日期:2013-08-06 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章
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更新日期:2021-01-11 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-13-44
更新日期:2014-09-09 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-020-00568-3
更新日期:2020-05-12 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章
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更新日期:2019-08-31 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-10-21
更新日期:2011-11-25 00:00:00
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pub_type: 杂志文章
doi:10.1186/s12904-019-0467-9
更新日期:2019-10-24 00:00:00
abstract:BACKGROUND:Rapid effective responsiveness to patient needs is pivotal to high quality palliative care. Aboriginal and Torres Strait Islander (Indigenous) people are susceptible to life-limiting illnesses at younger ages than other Australians and experience inequity of health service provision. The Palliative Care Outc...
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pub_type: 杂志文章
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更新日期:2018-12-22 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-020-00626-w
更新日期:2020-08-16 00:00:00