Abstract:
BACKGROUND:Research suggests that there may be bereavement experiences and support needs which are specific to family caregivers providing end of life care (EoLC), although this remains an under-researched area. This paper focuses on themes relating to bereavement which were derived from an analysis of free text survey responses collected in a research priority setting exercise for palliative and EoLC. METHODS:The priority setting exercise involved a public survey, designed to generate research priorities. Rather than identify research topics, many people instead described their experiences and raised more general questions relating to palliative and end of life care. To explore these experiences and perspectives a supplementary thematic analysis was conducted on the survey responses. 1403 respondents took part, including patients, current and bereaved carers, health and social care professionals, volunteers and members of the public. RESULTS:Several grief issues were identified, which seem specific to the experiences of family caregivers. Responses demonstrated a relationship between death experiences, feelings of guilt and bereavement outcomes for some family caregivers, as well as caregiver experiences of a "void" created by the withdrawal of professional support after death. Communication and support needs were also identified by participants. CONCLUSION:This analysis provides further evidence of some of the specific effects that caring for a loved one at the end of life can have on bereavement experiences. Finding ways of improving communication around the time of death and effective follow up approaches post death could help to address some of these issues.
journal_name
BMC Palliat Carejournal_title
BMC palliative careauthors
Harrop E,Morgan F,Byrne A,Nelson Adoi
10.1186/s12904-016-0165-9subject
Has Abstractpub_date
2016-11-08 00:00:00pages
92issue
1issn
1472-684Xpii
10.1186/s12904-016-0165-9journal_volume
15pub_type
杂志文章abstract:BACKGROUND:More people die in hospital than in any other setting which is why it is important to study the outcomes of hospital care at end of life. This study analyses what influenced outcomes in a sample of patients who died in hospital in Ireland in 2008/9. The study was undertaken as part of the Irish Hospice Found...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-015-0014-2
更新日期:2015-04-18 00:00:00
abstract:BACKGROUND:Keeping people living with advanced dementia in their usual place of residence is becoming a key governmental goal but to achieve this, family carers and health care professionals must negotiate how to provide optimal care. Previously, we reported a realist analysis of the health care professional perspectiv...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-019-0467-9
更新日期:2019-10-24 00:00:00
abstract:BACKGROUND:The focus of Specialized Palliative Care (SPC) is to improve care for patients with incurable diseases and their families, which includes the opportunity to make their own choice of place of care and ultimately place of death. The Danish Palliative Care Trial (DOMUS) aims to investigate whether an accelerate...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-13-44
更新日期:2014-09-09 00:00:00
abstract:BACKGROUND:People with schizophrenia are at risk of receiving poorer end of life care than other patients. They are often undertreated, avoid treatment and are about half as likely to access palliative care. There are limited options for end of life care for this under-serviced group in need. This study aims to address...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-018-0309-1
更新日期:2018-03-27 00:00:00
abstract:BACKGROUND:Communication in do not resuscitate (DNR) and artificial nutrition and hydration (ANH) at the end of life is a key component of advance care planning (ACP) which is essential for patients with advanced cancer to have cares concordant with their wishes. The SOP model (Shared decision making with Oncologists a...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-020-0521-7
更新日期:2020-02-04 00:00:00
abstract:BACKGROUND:This paper explores carers' views of dying, death and bereavement for family members who had recently died with heart failure adding to a growing literature on end of life experiences for people with conditions other than cancer. METHODS:Twenty interviews were conducted with bereaved carers of older people ...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-8-6
更新日期:2009-06-16 00:00:00
abstract:BACKGROUND:Globally the state of palliative care research remains uncertain. Questions remain regarding impact, funding, and research priorities. Building upon previous research, this review examines palliative care research in Ireland and contributes to a wider international debate on the state of palliative care rese...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-018-0364-7
更新日期:2018-09-27 00:00:00
abstract:BACKGROUND:The supportive hospice aged residential exchange (SHARE) is a new model of palliative care education that has been designed for residential aged care. The goal of SHARE is to help clinical staff improve palliative care within residential aged care facilities and to improve specialist palliative care nurses' ...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-020-00633-x
更新日期:2020-08-17 00:00:00
abstract:BACKGROUND:Globally, the number of people who die with dementia is increasing. The importance of a palliative approach in the care of people with dementia is recognised and there are national polices to enhance current care. In the UK implementation of these polices is promoted by the National Institute for Health and ...
journal_title:BMC palliative care
pub_type: 杂志文章,评审
doi:10.1186/s12904-015-0047-6
更新日期:2015-10-19 00:00:00
abstract:BACKGROUND:The Integrated Palliative care Outcome Scale (IPOS) was developed for evaluating essential outcomes for palliative care patients. Our objectives here are to describe the process of a six-phase cross-cultural adaptation of IPOS to French (IPOS-Fr), highlight the difficulties encountered and strategies to solv...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-019-0422-9
更新日期:2019-04-18 00:00:00
abstract:BACKGROUND:Professionals and relatives increasingly have to deal with people with intellectual disabilities (ID) who are in need of end-of-life care. This is a specific type of care that may require a different approach to the focus on participation that currently characterizes the care for people with ID. This paper d...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-015-0030-2
更新日期:2015-07-25 00:00:00
abstract:BACKGROUND:Research has highlighted the need for improving the implementation of advance care planning (ACP) in nursing homes. We developed a theory-based multicomponent ACP intervention (the ACP+ programme) aimed at supporting nursing home staff with the implementation of ACP into routine nursing home care. We describ...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-019-0505-7
更新日期:2020-01-08 00:00:00
abstract:BACKGROUND:One essential element of research is the successful recruitment of participants. However, concerns are obvious regarding the ethical implications of involving terminally ill and even dying patients and their informal caregivers as research participants. This study aims to illustrate central issues encountere...
journal_title:BMC palliative care
pub_type: 杂志文章,多中心研究
doi:10.1186/s12904-015-0020-4
更新日期:2015-05-02 00:00:00
abstract:BACKGROUND:Much of what we understand about the design of healthcare systems to support care of the dying comes from our experiences with providing palliative care for dying cancer patients. It is increasingly recognized that in addition to cancer, high quality end of life care should be an integral part of care that i...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-016-0076-9
更新日期:2016-01-15 00:00:00
abstract:BACKGROUND:Laws allowing assisted suicide and euthanasia have been implemented in many locations around the world but some individuals suffering with terminal illness receiving palliative care services are hastening death or die by suicide without assistance. This systematic review aims to summarise evidence of palliat...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-019-0451-4
更新日期:2019-08-31 00:00:00
abstract:BACKGROUND:Little is known about palliative care professionals' attitudes towards guidelines. In 2015, the German Association for Palliative Medicine (DGP) published an evidence based guideline for palliative care in adults with incurable cancer. Before publication we conducted a national survey among members of the DG...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-017-0187-y
更新日期:2017-03-21 00:00:00
abstract:BACKGROUND:The objective of the Balearic Islands Palliative Care (PC) Program is to improve the quality of PC through a shared model consisting of primary health care professionals, home-based PC teams, and PC units in hospitals. According to the World Health Organization (WHO), patients with advanced cancer and other ...
journal_title:BMC palliative care
pub_type: 杂志文章,多中心研究,随机对照试验
doi:10.1186/s12904-017-0217-9
更新日期:2017-07-10 00:00:00
abstract::BACKGROUND: Although guidelines for the care of the dying patient exist the evidence base to support the guidelines is poor. Some of the factors contributing to this include failure to recruit to trials, protective healthcare professionals and subsequent attrition from trials due to the death of the patients. Recent s...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-3-1
更新日期:2004-04-27 00:00:00
abstract:BACKGROUND:The leading cause of death among young children in southern Africa is complications due to HIV infection and, in South Africa, over a third of all deaths of children younger than five are associated with HIV infection. There is a great and urgent need for children's palliative care in Africa, whether HIV-rel...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-016-0114-7
更新日期:2016-04-09 00:00:00
abstract:BACKGROUND:Confinement to an in-patient hospital ward impairs patients' sense of social support and connectedness. Providing the means, through communication technology, for patients to maintain contact with friends and family can potentially improve well-being at the end of life by minimizing social isolation and faci...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-017-0203-2
更新日期:2017-05-06 00:00:00
abstract:BACKGROUND:There are many potential benefits to chaplaincy in transforming into a "research-informed" profession. However little is known or has been documented about the roles of chaplains on research teams and as researchers or about the effects of research engagement on chaplains themselves. This report describes th...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-015-0006-2
更新日期:2015-05-02 00:00:00
abstract:BACKGROUND:Children show long-term psychological distress if family communication and illness-related information are poor during and after a parent's illness and death. Few psychosocial interventions for families with minor children living with a parent who has a life-threatening illness have been evaluated rigorously...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-020-00551-y
更新日期:2020-04-16 00:00:00
abstract:BACKGROUND:Although spiritual care is a basic element of holistic nursing, nurses' spiritual care knowledge and abilities are often unable to satisfy patients' spiritual care needs. Therefore, nurses are in urgent need of relevant training to enhance their abilities to provide patients with spiritual care. DESIGN:A no...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-019-0489-3
更新日期:2019-11-26 00:00:00
abstract:BACKGROUND:The McGill Quality of Life Questionnaire - Expanded (MQOL-E) and the Quality of Life in Life-Threatening Illness-Family Carer/Caregiver version (QOLLTI-F) are developed for use with patients facing the end of life and their family carers, respectively. They are also developed for possible use as companion in...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-020-00549-6
更新日期:2020-03-25 00:00:00
abstract:BACKGROUND:Hospice palliative care (HPC) is a philosophy of care that aims to relieve suffering and improve the quality of life for clients with life-threatening illnesses or end of life issues. The goals of HPC are not only to ameliorate clients' symptoms but also to reduce unneeded or unwanted medical interventions s...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-13-35
更新日期:2014-07-11 00:00:00
abstract:BACKGROUND:There is a dearth of data regarding the optimal method of detecting and treating depression in palliative care. This study applied the Delphi method to evaluate expert opinion on choice of screening tool, choice of antidepressant and choice of psychological therapy. The aim was to inform the development of b...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-10-10
更新日期:2011-05-27 00:00:00
abstract:BACKGROUND:To understand the status of residents' awareness of and demand for hospice care services in Hangzhou and to provide a reference for promoting the formulation of hospice care-related policies in China. METHODS:A small cross-sectional survey of 519 adults aged over 40 years old living in the rural-urban fring...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-020-00628-8
更新日期:2020-08-17 00:00:00
abstract:BACKGROUND:Spiritual care is frequently cited as a key component of hospice care in Taiwanese healthcare and beyond. The aim of this research is to gauge physicians and nurses' self-reported perspectives and clinical practices on the roles of their professions in addressing spiritual care in an inpatient palliative car...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-020-00608-y
更新日期:2020-07-01 00:00:00
abstract:BACKGROUND:An international discussion about whether or not to legally permit euthanasia and (or) physician assisted suicide (EAS) is ongoing. Unbearable suffering in patients may result in a request for EAS. In the Netherlands EAS is legally permitted, and unbearable suffering is one of the central compulsory criteria...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-13-62
更新日期:2014-12-23 00:00:00
abstract:BACKGROUND:While the home is the most common setting for the provision of palliative care in Australia, a common problem encountered here is the inability of patient/carers to manage medications, which can lead to misadventure and hospitalisation. This can be averted through detection and resolution of drug related pro...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-10-16
更新日期:2011-10-31 00:00:00