Strengthening primary health care teams with palliative care leaders: protocol for a cluster randomized clinical trial.

abstract：BACKGROUND:The McGill Quality of Life Questionnaire - Expanded (MQOL-E) and the Quality of Life in Life-Threatening Illness-Family Carer/Caregiver version (QOLLTI-F) are developed for use with patients facing the end of life and their family carers, respectively. They are also developed for possible use as companion in...

journal_title：BMC palliative care

authors： Axelsson L,Alvariza A,Carlsson N,Cohen SR,Sawatzky R,Årestedt K

更新日期：2020-03-25 00:00:00

abstract：BACKGROUND:In the last years of life, burden of disease and disability and need of health- and social care often increase. Social, functional and psychological factors may be important in regard to social- and health care utilization. This study aims to describe use of health- and social care during the last year of li...

journal_title：BMC palliative care

authors： Hallgren J,Johansson L,Lannering C,Ernsth Bravell M,Gillsjö C

更新日期：2020-06-23 00:00:00

abstract：BACKGROUND:Advanced cancer patients experience considerable symptoms, problems, and needs. Early referral of these patients to specialised palliative care (SPC) could improve their symptoms and problems.The Danish Palliative Care Trial (DanPaCT) investigates whether patients with metastatic cancer, who report palliativ...

journal_title：BMC palliative care

authors： Johnsen AT,Damkier A,Vejlgaard TB,Lindschou J,Sjøgren P,Gluud C,Neergaard MA,Petersen MA,Lundorff LE,Pedersen L,Fayers P,Strömgren AS,Higginson IJ,Groenvold M

更新日期：2013-10-24 00:00:00

abstract：BACKGROUND:Implementation of quality improvements in palliative care (PC) is challenging, and detailed knowledge about factors that may facilitate or hinder implementation is essential for success. One part of the EU-funded IMPACT project (IMplementation of quality indicators in PAlliative Care sTudy) aiming to increas...

journal_title：BMC palliative care

authors： Sommerbakk R,Haugen DF,Tjora A,Kaasa S,Hjermstad MJ

更新日期：2016-07-15 00:00:00

abstract：BACKGROUND:The benefit of palliative chemotherapy (PC) in patients with advanced solid tumors and poor performance status (ECOG-PS) has not been prospectively validated, which makes treatment decision challenging. We aimed to evaluate the overall survival, factors associated with early mortality, and adoption of additi...

journal_title：BMC palliative care

authors： Fiorin de Vasconcellos V,Rcc Bonadio R,Avanço G,Negrão MV,Pimenta Riechelmann R

更新日期：2019-05-20 00:00:00

abstract：BACKGROUND:Previous studies have found that cancer patients undergoing chemotherapy can effectively manage their own symptoms when given tailored advice. This approach, however, may challenge patients with poor performance status and/or emotional distress. Our goal is to test an automated intervention that engages a fr...

journal_title：BMC palliative care

authors： Silveira MJ,Given CW,Cease KB,Sikorskii A,Given B,Northouse LL,Piette JD

更新日期：2011-11-25 00:00:00

abstract：BACKGROUND:Children show long-term psychological distress if family communication and illness-related information are poor during and after a parent's illness and death. Few psychosocial interventions for families with minor children living with a parent who has a life-threatening illness have been evaluated rigorously...

journal_title：BMC palliative care

authors： Eklund R,Alvariza A,Kreicbergs U,Jalmsell L,Lövgren M

更新日期：2020-04-16 00:00:00

abstract：BACKGROUND:The use of music as therapy in multidisciplinary end-of-life care dates back to the 1970s and nowadays music therapy (MT) is one of the most frequently used complementary therapy in in-patient palliative care in the US. However existing research investigated music therapy's potential impact mainly from one p...

journal_title：BMC palliative care

authors： Schmid W,Rosland JH,von Hofacker S,Hunskår I,Bruvik F

更新日期：2018-02-20 00:00:00

abstract：BACKGROUND:Hospice palliative care (HPC) is a philosophy of care that aims to relieve suffering and improve the quality of life for clients with life-threatening illnesses or end of life issues. The goals of HPC are not only to ameliorate clients' symptoms but also to reduce unneeded or unwanted medical interventions s...

journal_title：BMC palliative care

authors： Salam-White L,Hirdes JP,Poss JW,Blums J

更新日期：2014-07-11 00:00:00

abstract：BACKGROUND:More attention is being paid to the wellbeing of staff working in stressful situations. However, little is known about staff experience of providing end-of-life care to children within a hospice setting. This study aims to explore the experiences of care team staff who provide end-of-life care within a child...

journal_title：BMC palliative care

authors： McConnell T,Porter S

更新日期：2017-02-13 00:00:00

abstract：BACKGROUND:Models of palliative care delivery develop within a social, cultural, and political context. This paper describes the 30-year history of the National Tumor Association (ANT), a palliative care organization founded in the Italian province of Bologna, focusing on this model of home care for palliative cancer p...

journal_title：BMC palliative care

authors： Casadio M,Biasco G,Abernethy A,Bonazzi V,Pannuti R,Pannuti F

更新日期：2010-06-08 00:00:00

abstract：BACKGROUND:Globally, the number of people who die with dementia is increasing. The importance of a palliative approach in the care of people with dementia is recognised and there are national polices to enhance current care. In the UK implementation of these polices is promoted by the National Institute for Health and ...

journal_title：BMC palliative care

authors： Candy B,Elliott M,Moore K,Vickerstaff V,Sampson E,Jones L

更新日期：2015-10-19 00:00:00

abstract：BACKGROUND:Overuse of anti-cancer therapy is an important quality-of-care issue. An aggressive approach to treatment can have negative effects on quality of life and cost, but its effect on survival is not well-defined. METHODS:Using the Surveillance, Epidemiology, and End Results-Medicare database, we identified 7,87...

journal_title：BMC palliative care

authors： Saito AM,Landrum MB,Neville BA,Ayanian JZ,Earle CC

更新日期：2011-09-21 00:00:00

abstract：BACKGROUND:Much of what we understand about the design of healthcare systems to support care of the dying comes from our experiences with providing palliative care for dying cancer patients. It is increasingly recognized that in addition to cancer, high quality end of life care should be an integral part of care that i...

journal_title：BMC palliative care

authors： Sawatzky R,Porterfield P,Lee J,Dixon D,Lounsbury K,Pesut B,Roberts D,Tayler C,Voth J,Stajduhar K

更新日期：2016-01-15 00:00:00

abstract：BACKGROUND:Studies have shown that telehealth applications in palliative care are feasible, can improve quality of care, and reduce costs but few studies have focused on user acceptance of current technology applications in palliative care. Furthermore, the perspectives of health administrators have not been explored i...

journal_title：BMC palliative care

authors： Nguyen M,Fujioka J,Wentlandt K,Onabajo N,Wong I,Bhatia RS,Bhattacharyya O,Stamenova V

更新日期：2020-09-07 00:00:00

abstract：BACKGROUND:While the home is the most common setting for the provision of palliative care in Australia, a common problem encountered here is the inability of patient/carers to manage medications, which can lead to misadventure and hospitalisation. This can be averted through detection and resolution of drug related pro...

journal_title：BMC palliative care

authors： Hussainy SY,Box M,Scholes S

更新日期：2011-10-31 00:00:00

abstract：BACKGROUND:Many people with advanced dementia live in residential aged care homes. Care home staff need the knowledge and skills to provide high-quality end-of-life (EOL) dementia care. However, several studies have found EOL dementia care to be suboptimal, and care staff have reported they would benefit from training ...

journal_title：BMC palliative care

authors： Tropea J,Johnson CE,Nestel D,Paul SK,Brand CA,Hutchinson AF,Bicknell R,Lim WK

更新日期：2019-10-23 00:00:00

abstract：:Population-based mortality follow-back survey designs have been used to collect information concerning end-of-life care from bereaved family members in several countries. In Canada, this design was recently employed to gather population-based information about the end-of-life care experience among adults in Nova Scoti...

journal_title：BMC palliative care

authors： Lawson B,Van Aarsen K,Burge F

更新日期：2013-08-06 00:00:00

abstract：BACKGROUND:An international discussion about whether or not to legally permit euthanasia and (or) physician assisted suicide (EAS) is ongoing. Unbearable suffering in patients may result in a request for EAS. In the Netherlands EAS is legally permitted, and unbearable suffering is one of the central compulsory criteria...

journal_title：BMC palliative care

authors： Ruijs CD,van der Wal G,Kerkhof AJ,Onwuteaka-Philipsen BD

更新日期：2014-12-23 00:00:00

abstract：BACKGROUND:The Patient Satisfaction Questionnaire (PSQ) is an assessment tool used to evaluate patients' perspectives of their doctor's communication and interpersonal skills. The present pilot study investigated whether the PSQ could be administered successfully in a hospice inpatient setting and if it is an acceptabl...

journal_title：BMC palliative care

authors： Henriksen KM,Heller N,Finucane AM,Oxenham D

更新日期：2014-06-02 00:00:00

abstract：BACKGROUND:Although spiritual care is a basic element of holistic nursing, nurses' spiritual care knowledge and abilities are often unable to satisfy patients' spiritual care needs. Therefore, nurses are in urgent need of relevant training to enhance their abilities to provide patients with spiritual care. DESIGN:A no...

journal_title：BMC palliative care

authors： Hu Y,Jiao M,Li F

更新日期：2019-11-26 00:00:00

abstract：BACKGROUND:Family members are involved in the care of palliative patients at home and therefore, should be viewed as important sources of information to help clinicians better understand the quality palliative care service patients receive. The objective of the study was to analyse what is valued most by family carers ...

journal_title：BMC palliative care

authors： Aparicio M,Centeno C,Carrasco JM,Barbosa A,Arantzamendi M

更新日期：2017-09-06 00:00:00

abstract：BACKGROUND:The goal of Canada's Compassionate Care Benefit (CCB) is to enable family members and other loved ones who are employed to take a temporary secured leave to care for a terminally ill individual at end of life. Successful applicants of the CCB can receive up to 55% of their average insured earnings, up to a m...

journal_title：BMC palliative care

authors： Crooks VA,Williams A

更新日期：2008-08-28 00:00:00

abstract：BACKGROUND:Empirical knowledge around palliative care provision and needs of people with intellectual disabilities is extremely limited, as is the availability of research resources, including expertise and funding. This paper describes a consultation process that sought to develop an agenda for research priorities for...

journal_title：BMC palliative care

authors： Tuffrey-Wijne I,Wicki M,Heslop P,McCarron M,Todd S,Oliver D,de Veer A,Ahlström G,Schäper S,Hynes G,O'Farrell J,Adler J,Riese F,Curfs L

更新日期：2016-03-24 00:00:00

abstract：BACKGROUND:This paper explores carers' views of dying, death and bereavement for family members who had recently died with heart failure adding to a growing literature on end of life experiences for people with conditions other than cancer. METHODS:Twenty interviews were conducted with bereaved carers of older people ...

journal_title：BMC palliative care

authors： Small N,Barnes S,Gott M,Payne S,Parker C,Seamark D,Gariballa S

更新日期：2009-06-16 00:00:00

abstract：BACKGROUND:Rapid effective responsiveness to patient needs is pivotal to high quality palliative care. Aboriginal and Torres Strait Islander (Indigenous) people are susceptible to life-limiting illnesses at younger ages than other Australians and experience inequity of health service provision. The Palliative Care Outc...

journal_title：BMC palliative care

authors： Woods JA,Johnson CE,Ngo HT,Katzenellenbogen JM,Murray K,Thompson SC

更新日期：2018-12-22 00:00:00

abstract：BACKGROUND:Effective integration between hospices, palliative care services and other local health care services to support patients with palliative care needs is an important international priority. A previous model suggests that integration involves a cumulative stepped process of engagement with other organisations ...

journal_title：BMC palliative care

authors： Payne S,Eastham R,Hughes S,Varey S,Hasselaar J,Preston N

更新日期：2017-11-28 00:00:00

abstract：BACKGROUND:Most patients with life-limiting illnesses are treated and cared for over a long period of time in primary care and guidelines suggest that ACP discussions should be initiated in primary care. However, a practical model to implement ACP in general practice is lacking. Therefore, the objective of this study i...

journal_title：BMC palliative care

authors： De Vleminck A,Houttekier D,Deliens L,Vander Stichele R,Pardon K

更新日期：2016-02-11 00:00:00

abstract：BACKGROUND:To determine the feasibility and acceptability of lower limb neuromuscular electrical stimulation (NMES) as a home-based exercise therapy in patients with cancer who could not attend hospital-based exercise training. METHODS:A single-arm prospective pilot study of NMES, applied daily to both quadriceps musc...

journal_title：BMC palliative care

authors： Windholz T,Swanson T,Vanderbyl BL,Jagoe RT

更新日期：2014-05-01 00:00:00

abstract：BACKGROUND:More people die in hospital than in any other setting which is why it is important to study the outcomes of hospital care at end of life. This study analyses what influenced outcomes in a sample of patients who died in hospital in Ireland in 2008/9. The study was undertaken as part of the Irish Hospice Found...

journal_title：BMC palliative care

authors： McKeown K,Haase T,Pratschke J,Twomey S,Donovan H,Engling F

更新日期：2015-04-18 00:00:00