Development and pilot evaluation of a home-based palliative care training and support package for young children in southern Africa.

abstract：BACKGROUND:Children with chronic complex-medical conditions comprise a small minority of children who require substantial healthcare with major implications for hospital utilization and costs in pediatrics. Community-Based Pediatric Palliative Care (CBPPC) provides a holistic approach to patient care that can improve t...

journal_title：BMC palliative care

authors： Goldhagen J,Fafard M,Komatz K,Eason T,Livingood WC

更新日期：2016-08-03 00:00:00

abstract：BACKGROUND:During the last few decades, patients' rights have been reinforced in many countries by acts of law. Measures now include health care proxies to uphold the doctor-patient relationship and advance directives for end-of-life patients. These could be relevant tools as early as the initial diagnosis of haematolo...

journal_title：BMC palliative care

authors： Trarieux-Signol S,Moreau S,Gourin MP,Penot A,Edoux de Lafont G,Preux PM,Bordessoule D

更新日期：2014-12-11 00:00:00

abstract：BACKGROUND:People with schizophrenia are at risk of receiving poorer end of life care than other patients. They are often undertreated, avoid treatment and are about half as likely to access palliative care. There are limited options for end of life care for this under-serviced group in need. This study aims to address...

journal_title：BMC palliative care

authors： McNamara B,Same A,Rosenwax L,Kelly B

更新日期：2018-03-27 00:00:00

abstract：BACKGROUND:Half of nursing home residents (NHR) suffer from dementia. End-of-life hospitalizations are often burdensome in residents with dementia. A systematic review was conducted to study the occurrence of hospitalizations at the end of life in NHR with dementia and to compare these figures to NHR without dementia. ...

journal_title：BMC palliative care

authors： Hoffmann F,Strautmann A,Allers K

更新日期：2019-09-10 00:00:00

abstract：BACKGROUND:Cervical cancer is mostly diagnosed at advanced stages among the majority of women in low-income settings, with palliative care being the only feasible form of care. This study was aimed at investigating palliative care knowledge and access among women with cervical cancer in Harare, Zimbabwe. METHODS:Seque...

journal_title：BMC palliative care

authors： Tapera O,Nyakabau AM

更新日期：2020-02-13 00:00:00

abstract：:Population-based mortality follow-back survey designs have been used to collect information concerning end-of-life care from bereaved family members in several countries. In Canada, this design was recently employed to gather population-based information about the end-of-life care experience among adults in Nova Scoti...

journal_title：BMC palliative care

authors： Lawson B,Van Aarsen K,Burge F

更新日期：2013-08-06 00:00:00

abstract：BACKGROUND:Hospice palliative care (HPC) is a philosophy of care that aims to relieve suffering and improve the quality of life for clients with life-threatening illnesses or end of life issues. The goals of HPC are not only to ameliorate clients' symptoms but also to reduce unneeded or unwanted medical interventions s...

journal_title：BMC palliative care

authors： Salam-White L,Hirdes JP,Poss JW,Blums J

更新日期：2014-07-11 00:00:00

abstract：BACKGROUND:More people die in hospital than in any other setting which is why it is important to study the outcomes of hospital care at end of life. This study analyses what influenced outcomes in a sample of patients who died in hospital in Ireland in 2008/9. The study was undertaken as part of the Irish Hospice Found...

journal_title：BMC palliative care

authors： McKeown K,Haase T,Pratschke J,Twomey S,Donovan H,Engling F

更新日期：2015-04-18 00:00:00

abstract：BACKGROUND:To understand the status of residents' awareness of and demand for hospice care services in Hangzhou and to provide a reference for promoting the formulation of hospice care-related policies in China. METHODS:A small cross-sectional survey of 519 adults aged over 40 years old living in the rural-urban fring...

journal_title：BMC palliative care

authors： Xie Y,Xu Y,Yang S,Yan J,Jin XQ,Liu C

更新日期：2020-08-17 00:00:00

abstract：BACKGROUND:The benefit of palliative chemotherapy (PC) in patients with advanced solid tumors and poor performance status (ECOG-PS) has not been prospectively validated, which makes treatment decision challenging. We aimed to evaluate the overall survival, factors associated with early mortality, and adoption of additi...

journal_title：BMC palliative care

authors： Fiorin de Vasconcellos V,Rcc Bonadio R,Avanço G,Negrão MV,Pimenta Riechelmann R

更新日期：2019-05-20 00:00:00

abstract：BACKGROUND:The objective of the Balearic Islands Palliative Care (PC) Program is to improve the quality of PC through a shared model consisting of primary health care professionals, home-based PC teams, and PC units in hospitals. According to the World Health Organization (WHO), patients with advanced cancer and other ...

journal_title：BMC palliative care

authors： Llobera J,Sansó N,Ruiz A,Llagostera M,Serratusell E,Serrano C,Roselló MLM,Benito E,Castaño EJ,Leiva A

更新日期：2017-07-10 00:00:00

abstract：BACKGROUND:The Integrated Palliative care Outcome Scale (IPOS) was developed for evaluating essential outcomes for palliative care patients. Our objectives here are to describe the process of a six-phase cross-cultural adaptation of IPOS to French (IPOS-Fr), highlight the difficulties encountered and strategies to solv...

journal_title：BMC palliative care

authors： Sterie AC,Bernard M

更新日期：2019-04-18 00:00:00

abstract：BACKGROUND:This paper explores carers' views of dying, death and bereavement for family members who had recently died with heart failure adding to a growing literature on end of life experiences for people with conditions other than cancer. METHODS:Twenty interviews were conducted with bereaved carers of older people ...

journal_title：BMC palliative care

authors： Small N,Barnes S,Gott M,Payne S,Parker C,Seamark D,Gariballa S

更新日期：2009-06-16 00:00:00

abstract：BACKGROUND:Although spiritual care is a basic element of holistic nursing, nurses' spiritual care knowledge and abilities are often unable to satisfy patients' spiritual care needs. Therefore, nurses are in urgent need of relevant training to enhance their abilities to provide patients with spiritual care. DESIGN:A no...

journal_title：BMC palliative care

authors： Hu Y,Jiao M,Li F

更新日期：2019-11-26 00:00:00

abstract：BACKGROUND:While the home is the most common setting for the provision of palliative care in Australia, a common problem encountered here is the inability of patient/carers to manage medications, which can lead to misadventure and hospitalisation. This can be averted through detection and resolution of drug related pro...

journal_title：BMC palliative care

authors： Hussainy SY,Box M,Scholes S

更新日期：2011-10-31 00:00:00

abstract：BACKGROUND:The McGill Quality of Life Questionnaire - Expanded (MQOL-E) and the Quality of Life in Life-Threatening Illness-Family Carer/Caregiver version (QOLLTI-F) are developed for use with patients facing the end of life and their family carers, respectively. They are also developed for possible use as companion in...

journal_title：BMC palliative care

authors： Axelsson L,Alvariza A,Carlsson N,Cohen SR,Sawatzky R,Årestedt K

更新日期：2020-03-25 00:00:00

abstract：BACKGROUND:Research has highlighted the need for improving the implementation of advance care planning (ACP) in nursing homes. We developed a theory-based multicomponent ACP intervention (the ACP+ programme) aimed at supporting nursing home staff with the implementation of ACP into routine nursing home care. We describ...

journal_title：BMC palliative care

authors： Gilissen J,Pivodic L,Wendrich-van Dael A,Gastmans C,Vander Stichele R,Engels Y,Vernooij-Dassen M,Deliens L,Van den Block L

更新日期：2020-01-08 00:00:00

abstract：BACKGROUND:In the last years of life, burden of disease and disability and need of health- and social care often increase. Social, functional and psychological factors may be important in regard to social- and health care utilization. This study aims to describe use of health- and social care during the last year of li...

journal_title：BMC palliative care

authors： Hallgren J,Johansson L,Lannering C,Ernsth Bravell M,Gillsjö C

更新日期：2020-06-23 00:00:00

abstract：BACKGROUND:In palliative care (PC) patients and relatives (P/R) often show their gratitude to the healthcare professionals (HP) who care for them. HP appreciate these displays of gratitude, although the impact of the same has not been examined in detail. Publications analysed tell personal experiences in which HP say t...

journal_title：BMC palliative care

authors： Aparicio M,Centeno C,Arantzamendi M

更新日期：2019-03-21 00:00:00

abstract：BACKGROUND:One essential element of research is the successful recruitment of participants. However, concerns are obvious regarding the ethical implications of involving terminally ill and even dying patients and their informal caregivers as research participants. This study aims to illustrate central issues encountere...

journal_title：BMC palliative care

authors： Stiel S,Heckel M,Bussmann S,Weber M,Ostgathe C

更新日期：2015-05-02 00:00:00

abstract：BACKGROUND:Studies have shown that telehealth applications in palliative care are feasible, can improve quality of care, and reduce costs but few studies have focused on user acceptance of current technology applications in palliative care. Furthermore, the perspectives of health administrators have not been explored i...

journal_title：BMC palliative care

authors： Nguyen M,Fujioka J,Wentlandt K,Onabajo N,Wong I,Bhatia RS,Bhattacharyya O,Stamenova V

更新日期：2020-09-07 00:00:00

abstract：UNLABELLED: BACKGROUND:The United Kingdom has led the world in the development of children's palliative care. Over the past two decades, the illness trajectories of children with life-limiting conditions have extended with new treatments and better home-based care. Future planning is a critically under-researched aspe...

journal_title：BMC palliative care

authors： Noyes J,Hastings RP,Lewis M,Hain R,Bennett V,Hobson L,Spencer LH

更新日期：2013-02-05 00:00:00

abstract：BACKGROUND:Children show long-term psychological distress if family communication and illness-related information are poor during and after a parent's illness and death. Few psychosocial interventions for families with minor children living with a parent who has a life-threatening illness have been evaluated rigorously...

journal_title：BMC palliative care

authors： Eklund R,Alvariza A,Kreicbergs U,Jalmsell L,Lövgren M

更新日期：2020-04-16 00:00:00

abstract：BACKGROUND:Institutional deaths (hospitals and nursing homes) are an important issue because they are often at odds with patient preference and associated with high healthcare costs. The aim of this study was to examine deaths in institutions and the role of individual, regional, and healthcare supply characteristics i...

journal_title：BMC palliative care

authors： Luta X,Panczak R,Maessen M,Egger M,Goodman DC,Zwahlen M,Stuck AE,Clough-Gorr K

更新日期：2016-09-23 00:00:00

abstract：BACKGROUND:Professionals and relatives increasingly have to deal with people with intellectual disabilities (ID) who are in need of end-of-life care. This is a specific type of care that may require a different approach to the focus on participation that currently characterizes the care for people with ID. This paper d...

journal_title：BMC palliative care

authors： Bekkema N,de Veer AJ,Hertogh CM,Francke AL

更新日期：2015-07-25 00:00:00

abstract：BACKGROUND:There are many potential benefits to chaplaincy in transforming into a "research-informed" profession. However little is known or has been documented about the roles of chaplains on research teams and as researchers or about the effects of research engagement on chaplains themselves. This report describes th...

journal_title：BMC palliative care

authors： Kestenbaum A,James J,Morgan S,Shields M,Hocker W,Rabow M,Dunn LB

更新日期：2015-05-02 00:00:00

abstract：BACKGROUND:The supportive hospice aged residential exchange (SHARE) is a new model of palliative care education that has been designed for residential aged care. The goal of SHARE is to help clinical staff improve palliative care within residential aged care facilities and to improve specialist palliative care nurses' ...

journal_title：BMC palliative care

authors： Frey R,Barham S,Balmer D,Boyd M,Robinson J,Gott M

更新日期：2020-08-17 00:00:00

abstract：UNLABELLED: BACKGROUND:This study explores with patients, carers and health care professionals if, when and how Advance Care Planning conversations about patients' preferences for place of care (and death) were facilitated and documented. METHODS:The study adopted an exploratory case study design using qualitative in...

journal_title：BMC palliative care

authors： Almack K,Cox K,Moghaddam N,Pollock K,Seymour J

更新日期：2012-09-17 00:00:00

abstract：BACKGROUND:There is little scholarship on culturally safe approaches to palliative care, especially for rural Indigenous clients. Thus, it is important to articulate how cultural safety can be enacted to support rural Indigenous Peoples and communities at end of life. We sought to identify strategies described in exist...

journal_title：BMC palliative care

authors： Schill K,Caxaj S

更新日期：2019-02-14 00:00:00

abstract：BACKGROUND:Observational studies investigating risk factors in coronavirus disease 2019 (COVID-19) have not considered the confounding effects of advanced care planning, such that a valid picture of risk for elderly, frail and multi-morbid patients is unknown. We aimed to report ceiling of care and cardiopulmonary resu...

journal_title：BMC palliative care

authors： Straw S,McGinlay M,Drozd M,Slater TA,Cowley A,Kamalathasan S,Maxwell N,Bird RA,Koshy AO,Prica M,Patel PA,Relton SD,Gierula J,Cubbon RM,Kearney MT,Witte KK

更新日期：2021-01-11 00:00:00