Challenges and strategies in the administration of a population based mortality follow-back survey design.

abstract：BACKGROUND:Institutional deaths (hospitals and nursing homes) are an important issue because they are often at odds with patient preference and associated with high healthcare costs. The aim of this study was to examine deaths in institutions and the role of individual, regional, and healthcare supply characteristics i...

journal_title：BMC palliative care

authors： Luta X,Panczak R,Maessen M,Egger M,Goodman DC,Zwahlen M,Stuck AE,Clough-Gorr K

更新日期：2016-09-23 00:00:00

abstract：BACKGROUND:Early integration of palliative care concurrently to standard cancer care is associated with several benefits for patients and their caregivers. However, communication barriers on part of the caring physicians often impede a timely referral to palliative care. This study describes the protocol of the evaluat...

journal_title：BMC palliative care

authors： Harnischfeger N,Rath HM,Ullrich A,Alt-Epping B,Letsch A,Thuss-Patience P,Bokemeyer C,Oechsle K,Bergelt C

更新日期：2020-05-12 00:00:00

abstract：BACKGROUND:The aim of palliative care is to improve the quality of life of patients and families through the prevention and relief of suffering. Frequently, patients may choose to receive palliative care in the home. The objective of this paper is to summarize the quality and primary outcomes measured within the pallia...

journal_title：BMC palliative care

authors： Hofmeister M,Memedovich A,Dowsett LE,Sevick L,McCarron T,Spackman E,Stafinski T,Menon D,Noseworthy T,Clement F

更新日期：2018-03-07 00:00:00

abstract：BACKGROUND:Although spiritual care is a basic element of holistic nursing, nurses' spiritual care knowledge and abilities are often unable to satisfy patients' spiritual care needs. Therefore, nurses are in urgent need of relevant training to enhance their abilities to provide patients with spiritual care. DESIGN:A no...

journal_title：BMC palliative care

authors： Hu Y,Jiao M,Li F

更新日期：2019-11-26 00:00:00

abstract：BACKGROUND:Most patients with life-limiting illnesses are treated and cared for over a long period of time in primary care and guidelines suggest that ACP discussions should be initiated in primary care. However, a practical model to implement ACP in general practice is lacking. Therefore, the objective of this study i...

journal_title：BMC palliative care

authors： De Vleminck A,Houttekier D,Deliens L,Vander Stichele R,Pardon K

更新日期：2016-02-11 00:00:00

abstract：BACKGROUND:Over the past ten years there has been an increasing focus on the need for improving the experience of end of life care. A number of policy initiatives have been introduced to develop approaches to discussing and documenting individual preferences for end of life care, in particular preferred place to die. ...

journal_title：BMC palliative care

authors： Cox K,Moghaddam N,Almack K,Pollock K,Seymour J

更新日期：2011-11-04 00:00:00

abstract：BACKGROUND:One ambition regarding palliative care is that it should be more accessible to patients and families regardless of care setting. Previous studies show many difficulties and shortcomings in the care of patients with palliative care needs in acute care facilities, but also challenges regarding efforts to imple...

journal_title：BMC palliative care

authors： Hahne P,Lundström S,Leveälahti H,Winnhed J,Öhlén J

更新日期：2017-12-28 00:00:00

abstract：BACKGROUND:The focus of Specialized Palliative Care (SPC) is to improve care for patients with incurable diseases and their families, which includes the opportunity to make their own choice of place of care and ultimately place of death. The Danish Palliative Care Trial (DOMUS) aims to investigate whether an accelerate...

journal_title：BMC palliative care

authors： Nordly M,Benthien KS,Von Der Maase H,Johansen C,Kruse M,Timm H,Vadstrup ES,Kurita GP,von Heymann-Horan AB,Sjøgren P

更新日期：2014-09-09 00:00:00

abstract：BACKGROUND:Even though struggling with similar symptom burden, patients with chronic heart failure (CHF) receive less palliative care than patients suffering from malignant diseases. Researchers have found that this might be related to lack of knowledge about palliative care, insufficient interprofessional communicatio...

journal_title：BMC palliative care

authors： Ziehm J,Farin E,Seibel K,Becker G,Köberich S

更新日期：2016-08-15 00:00:00

abstract：BACKGROUND:Half of nursing home residents (NHR) suffer from dementia. End-of-life hospitalizations are often burdensome in residents with dementia. A systematic review was conducted to study the occurrence of hospitalizations at the end of life in NHR with dementia and to compare these figures to NHR without dementia. ...

journal_title：BMC palliative care

authors： Hoffmann F,Strautmann A,Allers K

更新日期：2019-09-10 00:00:00

abstract：UNLABELLED: BACKGROUND:Development of interventions that address psychosocial and existential distress in people with motor neurone disease (MND) or that alleviate caregiver burden in MND family carers have often been suggested in the research literature. Dignity therapy, which was developed to reduce psychosocial and...

journal_title：BMC palliative care

authors： Bentley B,Aoun SM,O'Connor M,Breen LJ,Chochinov HM

更新日期：2012-09-20 00:00:00

abstract：BACKGROUND:Confinement to an in-patient hospital ward impairs patients' sense of social support and connectedness. Providing the means, through communication technology, for patients to maintain contact with friends and family can potentially improve well-being at the end of life by minimizing social isolation and faci...

journal_title：BMC palliative care

authors： Guo Q,Cann B,McClement S,Thompson G,Chochinov HM

更新日期：2017-05-06 00:00:00

abstract：BACKGROUND:One essential element of research is the successful recruitment of participants. However, concerns are obvious regarding the ethical implications of involving terminally ill and even dying patients and their informal caregivers as research participants. This study aims to illustrate central issues encountere...

journal_title：BMC palliative care

authors： Stiel S,Heckel M,Bussmann S,Weber M,Ostgathe C

更新日期：2015-05-02 00:00:00

abstract：BACKGROUND:To improve the quality of advance care planning (ACP) in primary care, it is important to understand the frequency of and topics involved in the ACP discussion between patients and their family physicians (FPs). METHODS:A secondary analysis of a previous multicenter cross-sectional observational study was p...

journal_title：BMC palliative care

authors： Hamano J,Oishi A,Morita T,Kizawa Y

更新日期：2020-03-17 00:00:00

abstract：BACKGROUND:More people die in hospital than in any other setting which is why it is important to study the outcomes of hospital care at end of life. This study analyses what influenced outcomes in a sample of patients who died in hospital in Ireland in 2008/9. The study was undertaken as part of the Irish Hospice Found...

journal_title：BMC palliative care

authors： McKeown K,Haase T,Pratschke J,Twomey S,Donovan H,Engling F

更新日期：2015-04-18 00:00:00

abstract：BACKGROUND:Homeless people often suffer from complex and chronic comorbidities, have high rates of morbidity and die at much younger ages than the general population. Due to a complex combination of physical, psychosocial and addiction problems at the end of life, they often have limited access to palliative care. Both...

journal_title：BMC palliative care

authors： Klop HT,de Veer AJE,van Dongen SI,Francke AL,Rietjens JAC,Onwuteaka-Philipsen BD

更新日期：2018-04-24 00:00:00

abstract：BACKGROUND:The McGill Quality of Life Questionnaire - Expanded (MQOL-E) and the Quality of Life in Life-Threatening Illness-Family Carer/Caregiver version (QOLLTI-F) are developed for use with patients facing the end of life and their family carers, respectively. They are also developed for possible use as companion in...

journal_title：BMC palliative care

authors： Axelsson L,Alvariza A,Carlsson N,Cohen SR,Sawatzky R,Årestedt K

更新日期：2020-03-25 00:00:00

abstract：BACKGROUND:The Palliative Performance Scale (PPS) was first introduced in1996 as a new tool for measurement of performance status in palliative care. PPS has been used in many countries and has been translated into other languages. METHODS:This study evaluated the reliability and validity of PPS. A web-based, case sce...

journal_title：BMC palliative care

authors： Ho F,Lau F,Downing MG,Lesperance M

更新日期：2008-08-04 00:00:00

abstract：BACKGROUND:Professionals and relatives increasingly have to deal with people with intellectual disabilities (ID) who are in need of end-of-life care. This is a specific type of care that may require a different approach to the focus on participation that currently characterizes the care for people with ID. This paper d...

journal_title：BMC palliative care

authors： Bekkema N,de Veer AJ,Hertogh CM,Francke AL

更新日期：2015-07-25 00:00:00

abstract：BACKGROUND:Empirical knowledge around palliative care provision and needs of people with intellectual disabilities is extremely limited, as is the availability of research resources, including expertise and funding. This paper describes a consultation process that sought to develop an agenda for research priorities for...

journal_title：BMC palliative care

authors： Tuffrey-Wijne I,Wicki M,Heslop P,McCarron M,Todd S,Oliver D,de Veer A,Ahlström G,Schäper S,Hynes G,O'Farrell J,Adler J,Riese F,Curfs L

更新日期：2016-03-24 00:00:00

abstract：BACKGROUND:More attention is being paid to the wellbeing of staff working in stressful situations. However, little is known about staff experience of providing end-of-life care to children within a hospice setting. This study aims to explore the experiences of care team staff who provide end-of-life care within a child...

journal_title：BMC palliative care

authors： McConnell T,Porter S

更新日期：2017-02-13 00:00:00

abstract：BACKGROUND:Laws allowing assisted suicide and euthanasia have been implemented in many locations around the world but some individuals suffering with terminal illness receiving palliative care services are hastening death or die by suicide without assistance. This systematic review aims to summarise evidence of palliat...

journal_title：BMC palliative care

authors： Gerson SM,Bingley A,Preston N,Grinyer A

更新日期：2019-08-31 00:00:00

abstract：BACKGROUND:Discrepancies between the information that patients have received and the patients' awareness of their condition have frequently been observed in literature and given a number of different explanations. The chief contribution of this study is that by following patients over time it is possible not only to no...

journal_title：BMC palliative care

authors： Hoff L,Hermerén G

更新日期：2008-02-28 00:00:00

abstract：BACKGROUND:Much of what we understand about the design of healthcare systems to support care of the dying comes from our experiences with providing palliative care for dying cancer patients. It is increasingly recognized that in addition to cancer, high quality end of life care should be an integral part of care that i...

journal_title：BMC palliative care

authors： Sawatzky R,Porterfield P,Lee J,Dixon D,Lounsbury K,Pesut B,Roberts D,Tayler C,Voth J,Stajduhar K

更新日期：2016-01-15 00:00:00

abstract：BACKGROUND:Hospice palliative care (HPC) is a philosophy of care that aims to relieve suffering and improve the quality of life for clients with life-threatening illnesses or end of life issues. The goals of HPC are not only to ameliorate clients' symptoms but also to reduce unneeded or unwanted medical interventions s...

journal_title：BMC palliative care

authors： Salam-White L,Hirdes JP,Poss JW,Blums J

更新日期：2014-07-11 00:00:00

abstract：BACKGROUND:In the last years of life, burden of disease and disability and need of health- and social care often increase. Social, functional and psychological factors may be important in regard to social- and health care utilization. This study aims to describe use of health- and social care during the last year of li...

journal_title：BMC palliative care

authors： Hallgren J,Johansson L,Lannering C,Ernsth Bravell M,Gillsjö C

更新日期：2020-06-23 00:00:00

abstract：BACKGROUND:The leading cause of death among young children in southern Africa is complications due to HIV infection and, in South Africa, over a third of all deaths of children younger than five are associated with HIV infection. There is a great and urgent need for children's palliative care in Africa, whether HIV-rel...

journal_title：BMC palliative care

authors： Naicker SN,Richter L,Stein A,Campbell L,Marston J

更新日期：2016-04-09 00:00:00

abstract：BACKGROUND:A compassionate community approach to palliative care provides important rationale for building community-based hospice volunteer capacity. In this project, we piloted one such capacity-building model in which volunteers and a nurse partnered to provide navigation support beginning in the early palliative ph...

journal_title：BMC palliative care

authors： Pesut B,Duggleby W,Warner G,Fassbender K,Antifeau E,Hooper B,Greig M,Sullivan K

更新日期：2017-07-03 00:00:00

abstract：BACKGROUND:According to common practice based on a generally agreed interpretation of Icelandic law on the rights of patients, health care professionals cannot discuss prognosis and treatment with a patient's family without that patient's consent. This limitation poses ethical problems, because research has shown that,...

journal_title：BMC palliative care

authors： Skulason B,Hauksdottir A,Ahcic K,Helgason AR

更新日期：2014-03-11 00:00:00

abstract：BACKGROUND:There is little scholarship on culturally safe approaches to palliative care, especially for rural Indigenous clients. Thus, it is important to articulate how cultural safety can be enacted to support rural Indigenous Peoples and communities at end of life. We sought to identify strategies described in exist...

journal_title：BMC palliative care

authors： Schill K,Caxaj S

更新日期：2019-02-14 00:00:00