当前位置： SCI文献检索 > BMC Palliative Care期刊下所有文献 > Information from physicians and retention of information by patients - obstacles to the awareness of patients of progressing disease when life is near the end.

Information from physicians and retention of information by patients - obstacles to the awareness of patients of progressing disease when life is near the end.

Abstract：

BACKGROUND:Discrepancies between the information that patients have received and the patients' awareness of their condition have frequently been observed in literature and given a number of different explanations. The chief contribution of this study is that by following patients over time it is possible not only to notice any changes in the patients' knowledge or awareness of their disease, but also to investigate the interview material for possible reasons for those changes. Since the study is based on two different groups of patients it will also be possible to notice if the category of disease matters for patients' awareness of their condition. METHODS:Twelve patients with malign haematological diseases or lung cancer were followed with interviews from diagnosis to cure or death, or at most for two years. The method is qualitative. Semi-structured interviews were conducted, transcribed into written text, and then used for a qualitative content analysis. RESULTS:During the process of analysis four different expressions (subcategories) emerged about the awareness of patients concerning their health status: informed and aware, not informed and not aware, aware though not informed, or not aware though informed. Then the search started for obstacles to the awareness of patients regarding their progressing disease and approaching death. Four kinds of obstacles were found: due to the physician, the patient, the physician and the patient in collusion, or neither to the physician nor the patient but the insidious way in which lung cancer (mostly) and haematological malignancies (occasionally) progress. CONCLUSION:To optimize the care of patients who wish to be informed and aware during their disease, it is important that the health care staff recognizes potential obstacles to the awareness of patients in order to minimize such obstacles. The physicians could improve their communication with patients with life-threatening diseases, and avoid having a narrow focus on the treatment calendar. The patients could be encouraged to have a more proactive attitude in their communication with their physician.

journal_name

BMC Palliat Care

journal_title

BMC palliative care

authors

Hoff L,Hermerén G

doi

10.1186/1472-684X-7-2

subject

Has Abstract

pub_date

2008-02-28 00:00:00

pages

issn

1472-684X

pii

1472-684X-7-2

journal_volume

pub_type

杂志文章

在线工具

Information from physicians and retention of information by patients - obstacles to the awareness of patients of progressing disease when life is near the end.