Abstract:
UNLABELLED: BACKGROUND:Development of interventions that address psychosocial and existential distress in people with motor neurone disease (MND) or that alleviate caregiver burden in MND family carers have often been suggested in the research literature. Dignity therapy, which was developed to reduce psychosocial and existential distress at the end of life, has been shown to benefit people dying of cancer and their families. These results may not be transferable to people with MND. The objectives of this study are to assess the feasibility, acceptability and potential effectiveness of dignity therapy to enhance the end of life experience for people with motor neurone disease and their family carers. METHODS/DESIGN:This is a cross-sectional study utilizing a single treatment group and a pre/post test design. The study population will comprise fifty people diagnosed with MND and their nominated family carers. Primarily quantitative outcomes will be gathered through measures assessed at baseline and at approximately one week after the intervention. Outcomes for participants include hopefulness, spirituality and dignity. Outcomes for family carers include perceived caregiver burden, hopefulness and anxiety/depression. Feedback and satisfaction with the intervention will be gathered through a questionnaire. DISCUSSION:This detailed research will explore if dignity therapy has the potential to enhance the end of life experience for people with MND and their family carers, and fill a gap for professionals who are called on to address the spiritual, existential and psychosocial needs of their MND patients and families. TRIAL REGISTRATION:ACTRN Trial Number: ACTRN12611000410954.
journal_name
BMC Palliat Carejournal_title
BMC palliative careauthors
Bentley B,Aoun SM,O'Connor M,Breen LJ,Chochinov HMdoi
10.1186/1472-684X-11-18subject
Has Abstractpub_date
2012-09-20 00:00:00pages
18issn
1472-684Xpii
1472-684X-11-18journal_volume
11pub_type
杂志文章abstract:BACKGROUND:The focus of Specialized Palliative Care (SPC) is to improve care for patients with incurable diseases and their families, which includes the opportunity to make their own choice of place of care and ultimately place of death. The Danish Palliative Care Trial (DOMUS) aims to investigate whether an accelerate...
journal_title:BMC palliative care
pub_type: 杂志文章
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更新日期:2014-09-09 00:00:00
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journal_title:BMC palliative care
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pub_type: 杂志文章
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更新日期:2020-04-16 00:00:00
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journal_title:BMC palliative care
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doi:10.1186/s12904-017-0258-0
更新日期:2017-12-19 00:00:00
abstract:BACKGROUND:In palliative care (PC) patients and relatives (P/R) often show their gratitude to the healthcare professionals (HP) who care for them. HP appreciate these displays of gratitude, although the impact of the same has not been examined in detail. Publications analysed tell personal experiences in which HP say t...
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pub_type: 杂志文章
doi:10.1186/s12904-019-0412-y
更新日期:2019-03-21 00:00:00
abstract:BACKGROUND:Observational studies investigating risk factors in coronavirus disease 2019 (COVID-19) have not considered the confounding effects of advanced care planning, such that a valid picture of risk for elderly, frail and multi-morbid patients is unknown. We aimed to report ceiling of care and cardiopulmonary resu...
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更新日期:2021-01-11 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章,评审
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更新日期:2015-10-19 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章,随机对照试验
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更新日期:2019-10-23 00:00:00
abstract:BACKGROUND:There are many potential benefits to chaplaincy in transforming into a "research-informed" profession. However little is known or has been documented about the roles of chaplains on research teams and as researchers or about the effects of research engagement on chaplains themselves. This report describes th...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-015-0006-2
更新日期:2015-05-02 00:00:00
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更新日期:2012-09-17 00:00:00
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pub_type: 杂志文章
doi:10.1186/s12904-018-0364-7
更新日期:2018-09-27 00:00:00
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journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-7-10
更新日期:2008-08-04 00:00:00
abstract:: Parkinson's disease (PD) is one of the most common neurodegenerative disorders of the elderly population. Few therapeutic options are available for patients with PD requiring palliative care. Treatment of the early stages of PD is entirely different from later stages. During the later stages, the palliative care mode...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-11-20
更新日期:2012-10-25 00:00:00
abstract:BACKGROUND:Under-diagnosis of pain is a serious problem in cancer care. Accurate pain assessment by physicians may form the basis of effective care. The aim of this study is to examine the association between late referral to a Palliative Care Team (PCT) after admission and the under-diagnosis of pain by primary physic...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-11-7
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abstract:BACKGROUND:Much of what we understand about the design of healthcare systems to support care of the dying comes from our experiences with providing palliative care for dying cancer patients. It is increasingly recognized that in addition to cancer, high quality end of life care should be an integral part of care that i...
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pub_type: 杂志文章
doi:10.1186/s12904-016-0076-9
更新日期:2016-01-15 00:00:00
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pub_type: 杂志文章
doi:10.1186/1472-684X-10-14
更新日期:2011-09-21 00:00:00
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pub_type: 杂志文章
doi:10.1186/s12904-016-0156-x
更新日期:2016-09-23 00:00:00
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pub_type: 杂志文章
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更新日期:2019-05-20 00:00:00
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pub_type: 杂志文章
doi:10.1186/s12904-017-0203-2
更新日期:2017-05-06 00:00:00
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pub_type: 杂志文章
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pub_type: 杂志文章
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更新日期:2021-01-14 00:00:00
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pub_type: 杂志文章
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更新日期:2020-05-12 00:00:00
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pub_type: 杂志文章
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更新日期:2016-08-03 00:00:00
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pub_type: 杂志文章
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更新日期:2011-11-25 00:00:00
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更新日期:2020-02-04 00:00:00
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pub_type: 杂志文章
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pub_type: 杂志文章
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更新日期:2017-12-28 00:00:00
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pub_type: 杂志文章
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更新日期:2016-04-09 00:00:00