Abstract:
BACKGROUND:Previous studies have found that cancer patients undergoing chemotherapy can effectively manage their own symptoms when given tailored advice. This approach, however, may challenge patients with poor performance status and/or emotional distress. Our goal is to test an automated intervention that engages a friend or family member to support a patient through chemotherapy. METHODS/DESIGN:We describe the design and rationale of a randomized, controlled trial to assess the efficacy of 10 weeks of web-based caregiver alerts and tailored advice for helping a patient manage symptoms related to chemotherapy. The study aims to test the primary hypothesis that patients whose caregivers receive alerts and tailored advice will report less frequent and less severe symptoms at 10 and 14 weeks when compared to patients in the control arm; similarly, they will report better physical function, fewer outpatient visits and hospitalizations related to symptoms, and greater adherence to chemotherapy. 300 patients with solid tumors undergoing chemotherapy at two Veteran Administration oncology clinics reporting any symptom at a severity of ≥4 and a willing informal caregiver will be assigned to either 10 weeks of automated telephonic symptom assessment (ATSA) alone, or 10 weeks of ATSA plus web-based notification of symptom severity and problem solving advice to their chosen caregiver. Patients and caregivers will be surveyed at intake, 10 weeks and 14 weeks. Both groups will receive standard oncology, hospice, and palliative care. DISCUSSION:Patients undergoing chemotherapy experience many symptoms that they may be able to manage with the support of an activated caregiver. This intervention uses readily available technology to improve patient caregiver communication about symptoms and caregiver knowledge of symptom management. If successful, it could substantially improve the quality of life of veterans and their families during the stresses of chemotherapy without substantially increasing the cost of care. TRIAL REGISTRATION:NCT00983892.
journal_name
BMC Palliat Carejournal_title
BMC palliative careauthors
Silveira MJ,Given CW,Cease KB,Sikorskii A,Given B,Northouse LL,Piette JDdoi
10.1186/1472-684X-10-21subject
Has Abstractpub_date
2011-11-25 00:00:00pages
21issn
1472-684Xpii
1472-684X-10-21journal_volume
10pub_type
杂志文章abstract:BACKGROUND:A compassionate community approach to palliative care provides important rationale for building community-based hospice volunteer capacity. In this project, we piloted one such capacity-building model in which volunteers and a nurse partnered to provide navigation support beginning in the early palliative ph...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-017-0210-3
更新日期:2017-07-03 00:00:00
abstract:BACKGROUND:Models of palliative care delivery develop within a social, cultural, and political context. This paper describes the 30-year history of the National Tumor Association (ANT), a palliative care organization founded in the Italian province of Bologna, focusing on this model of home care for palliative cancer p...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-9-12
更新日期:2010-06-08 00:00:00
abstract:BACKGROUND:There is a dearth of data regarding the optimal method of detecting and treating depression in palliative care. This study applied the Delphi method to evaluate expert opinion on choice of screening tool, choice of antidepressant and choice of psychological therapy. The aim was to inform the development of b...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-10-10
更新日期:2011-05-27 00:00:00
abstract:BACKGROUND:According to common practice based on a generally agreed interpretation of Icelandic law on the rights of patients, health care professionals cannot discuss prognosis and treatment with a patient's family without that patient's consent. This limitation poses ethical problems, because research has shown that,...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-13-8
更新日期:2014-03-11 00:00:00
abstract:BACKGROUND:Over the past ten years there has been an increasing focus on the need for improving the experience of end of life care. A number of policy initiatives have been introduced to develop approaches to discussing and documenting individual preferences for end of life care, in particular preferred place to die. ...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-10-18
更新日期:2011-11-04 00:00:00
abstract:BACKGROUND:Implementation of quality improvements in palliative care (PC) is challenging, and detailed knowledge about factors that may facilitate or hinder implementation is essential for success. One part of the EU-funded IMPACT project (IMplementation of quality indicators in PAlliative Care sTudy) aiming to increas...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-016-0132-5
更新日期:2016-07-15 00:00:00
abstract:BACKGROUND:The objective of the Balearic Islands Palliative Care (PC) Program is to improve the quality of PC through a shared model consisting of primary health care professionals, home-based PC teams, and PC units in hospitals. According to the World Health Organization (WHO), patients with advanced cancer and other ...
journal_title:BMC palliative care
pub_type: 杂志文章,多中心研究,随机对照试验
doi:10.1186/s12904-017-0217-9
更新日期:2017-07-10 00:00:00
abstract:BACKGROUND:Laws allowing assisted suicide and euthanasia have been implemented in many locations around the world but some individuals suffering with terminal illness receiving palliative care services are hastening death or die by suicide without assistance. This systematic review aims to summarise evidence of palliat...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-019-0451-4
更新日期:2019-08-31 00:00:00
abstract:BACKGROUND:The aim of palliative care is to improve the quality of life of patients and families through the prevention and relief of suffering. Frequently, patients may choose to receive palliative care in the home. The objective of this paper is to summarize the quality and primary outcomes measured within the pallia...
journal_title:BMC palliative care
pub_type: 杂志文章,评审
doi:10.1186/s12904-018-0299-z
更新日期:2018-03-07 00:00:00
abstract:BACKGROUND:While the home is the most common setting for the provision of palliative care in Australia, a common problem encountered here is the inability of patient/carers to manage medications, which can lead to misadventure and hospitalisation. This can be averted through detection and resolution of drug related pro...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-10-16
更新日期:2011-10-31 00:00:00
abstract:BACKGROUND:More people die in hospital than in any other setting which is why it is important to study the outcomes of hospital care at end of life. This study analyses what influenced outcomes in a sample of patients who died in hospital in Ireland in 2008/9. The study was undertaken as part of the Irish Hospice Found...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-015-0014-2
更新日期:2015-04-18 00:00:00
abstract:BACKGROUND:Understanding end of life preferences amongst the oldest old is crucial to informing appropriate palliative and end of life care internationally. However, little has been reported in the academic literature about the end of life preferences of people in advanced age, particularly the preferences of indigenou...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-017-0258-0
更新日期:2017-12-19 00:00:00
abstract:BACKGROUND:Current policies recommend integrating home care and palliative care to enable patients to remain at home and avoid unnecessary hospital admission and emergency department (ED) visits. The Italian health care system had implemented integrated palliative home care (IHPC) services to guarantee a comprehensive,...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-020-00626-w
更新日期:2020-08-16 00:00:00
abstract:BACKGROUND:Many people with advanced dementia live in residential aged care homes. Care home staff need the knowledge and skills to provide high-quality end-of-life (EOL) dementia care. However, several studies have found EOL dementia care to be suboptimal, and care staff have reported they would benefit from training ...
journal_title:BMC palliative care
pub_type: 杂志文章,随机对照试验
doi:10.1186/s12904-019-0474-x
更新日期:2019-10-23 00:00:00
abstract:BACKGROUND:Observational studies investigating risk factors in coronavirus disease 2019 (COVID-19) have not considered the confounding effects of advanced care planning, such that a valid picture of risk for elderly, frail and multi-morbid patients is unknown. We aimed to report ceiling of care and cardiopulmonary resu...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-021-00711-8
更新日期:2021-01-11 00:00:00
abstract:BACKGROUND:To understand the status of residents' awareness of and demand for hospice care services in Hangzhou and to provide a reference for promoting the formulation of hospice care-related policies in China. METHODS:A small cross-sectional survey of 519 adults aged over 40 years old living in the rural-urban fring...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-020-00628-8
更新日期:2020-08-17 00:00:00
abstract:BACKGROUND:Effective integration between hospices, palliative care services and other local health care services to support patients with palliative care needs is an important international priority. A previous model suggests that integration involves a cumulative stepped process of engagement with other organisations ...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-017-0250-8
更新日期:2017-11-28 00:00:00
abstract::BACKGROUND: Transitions in the location of care and in who provides such care can be extremely stressful for individuals facing death and for those close to them. The objective of this study was to describe the distribution of transitions in care experienced by palliative care patients following admission to a compreh...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-4-3
更新日期:2005-02-22 00:00:00
abstract:BACKGROUND:The benefit of palliative chemotherapy (PC) in patients with advanced solid tumors and poor performance status (ECOG-PS) has not been prospectively validated, which makes treatment decision challenging. We aimed to evaluate the overall survival, factors associated with early mortality, and adoption of additi...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-019-0427-4
更新日期:2019-05-20 00:00:00
abstract:UNLABELLED: BACKGROUND:Development of interventions that address psychosocial and existential distress in people with motor neurone disease (MND) or that alleviate caregiver burden in MND family carers have often been suggested in the research literature. Dignity therapy, which was developed to reduce psychosocial and...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-11-18
更新日期:2012-09-20 00:00:00
abstract:BACKGROUND:Cervical cancer is mostly diagnosed at advanced stages among the majority of women in low-income settings, with palliative care being the only feasible form of care. This study was aimed at investigating palliative care knowledge and access among women with cervical cancer in Harare, Zimbabwe. METHODS:Seque...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-020-0523-5
更新日期:2020-02-13 00:00:00
abstract:BACKGROUND:One essential element of research is the successful recruitment of participants. However, concerns are obvious regarding the ethical implications of involving terminally ill and even dying patients and their informal caregivers as research participants. This study aims to illustrate central issues encountere...
journal_title:BMC palliative care
pub_type: 杂志文章,多中心研究
doi:10.1186/s12904-015-0020-4
更新日期:2015-05-02 00:00:00
abstract:BACKGROUND:Half of nursing home residents (NHR) suffer from dementia. End-of-life hospitalizations are often burdensome in residents with dementia. A systematic review was conducted to study the occurrence of hospitalizations at the end of life in NHR with dementia and to compare these figures to NHR without dementia. ...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-019-0462-1
更新日期:2019-09-10 00:00:00
abstract:BACKGROUND:Family members are involved in the care of palliative patients at home and therefore, should be viewed as important sources of information to help clinicians better understand the quality palliative care service patients receive. The objective of the study was to analyse what is valued most by family carers ...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-017-0229-5
更新日期:2017-09-06 00:00:00
abstract:BACKGROUND:Much of what we understand about the design of healthcare systems to support care of the dying comes from our experiences with providing palliative care for dying cancer patients. It is increasingly recognized that in addition to cancer, high quality end of life care should be an integral part of care that i...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-016-0076-9
更新日期:2016-01-15 00:00:00
abstract:BACKGROUND:To determine the feasibility and acceptability of lower limb neuromuscular electrical stimulation (NMES) as a home-based exercise therapy in patients with cancer who could not attend hospital-based exercise training. METHODS:A single-arm prospective pilot study of NMES, applied daily to both quadriceps musc...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-13-23
更新日期:2014-05-01 00:00:00
abstract:BACKGROUND:Empirical knowledge around palliative care provision and needs of people with intellectual disabilities is extremely limited, as is the availability of research resources, including expertise and funding. This paper describes a consultation process that sought to develop an agenda for research priorities for...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-016-0108-5
更新日期:2016-03-24 00:00:00
abstract:BACKGROUND:Children with chronic complex-medical conditions comprise a small minority of children who require substantial healthcare with major implications for hospital utilization and costs in pediatrics. Community-Based Pediatric Palliative Care (CBPPC) provides a holistic approach to patient care that can improve t...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-016-0138-z
更新日期:2016-08-03 00:00:00
abstract:BACKGROUND:There are many potential benefits to chaplaincy in transforming into a "research-informed" profession. However little is known or has been documented about the roles of chaplains on research teams and as researchers or about the effects of research engagement on chaplains themselves. This report describes th...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-015-0006-2
更新日期:2015-05-02 00:00:00
abstract:BACKGROUND:There is limited population-level research on end-of-life care in Australia that considers health care use and costs across hospital and community sectors. The aim of this study was to quantify health care use and costs in the last 6 months of life in a cohort of elderly Australian decedents and to examine t...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-017-0213-0
更新日期:2017-06-21 00:00:00