Measuring quality of life in life-threatening illness - content validity and response processes of MQOL-E and QOLLTI-F in Swedish patients and family carers.

abstract：BACKGROUND:The objective of the Balearic Islands Palliative Care (PC) Program is to improve the quality of PC through a shared model consisting of primary health care professionals, home-based PC teams, and PC units in hospitals. According to the World Health Organization (WHO), patients with advanced cancer and other ...

journal_title：BMC palliative care

authors： Llobera J,Sansó N,Ruiz A,Llagostera M,Serratusell E,Serrano C,Roselló MLM,Benito E,Castaño EJ,Leiva A

更新日期：2017-07-10 00:00:00

abstract：BACKGROUND:Much of what we understand about the design of healthcare systems to support care of the dying comes from our experiences with providing palliative care for dying cancer patients. It is increasingly recognized that in addition to cancer, high quality end of life care should be an integral part of care that i...

journal_title：BMC palliative care

authors： Sawatzky R,Porterfield P,Lee J,Dixon D,Lounsbury K,Pesut B,Roberts D,Tayler C,Voth J,Stajduhar K

更新日期：2016-01-15 00:00:00

abstract：BACKGROUND:During the last few decades, patients' rights have been reinforced in many countries by acts of law. Measures now include health care proxies to uphold the doctor-patient relationship and advance directives for end-of-life patients. These could be relevant tools as early as the initial diagnosis of haematolo...

journal_title：BMC palliative care

authors： Trarieux-Signol S,Moreau S,Gourin MP,Penot A,Edoux de Lafont G,Preux PM,Bordessoule D

更新日期：2014-12-11 00:00:00

abstract：BACKGROUND:Discrepancies between the information that patients have received and the patients' awareness of their condition have frequently been observed in literature and given a number of different explanations. The chief contribution of this study is that by following patients over time it is possible not only to no...

journal_title：BMC palliative care

authors： Hoff L,Hermerén G

更新日期：2008-02-28 00:00:00

abstract：BACKGROUND:Models of palliative care delivery develop within a social, cultural, and political context. This paper describes the 30-year history of the National Tumor Association (ANT), a palliative care organization founded in the Italian province of Bologna, focusing on this model of home care for palliative cancer p...

journal_title：BMC palliative care

authors： Casadio M,Biasco G,Abernethy A,Bonazzi V,Pannuti R,Pannuti F

更新日期：2010-06-08 00:00:00

abstract：BACKGROUND:Family members are involved in the care of palliative patients at home and therefore, should be viewed as important sources of information to help clinicians better understand the quality palliative care service patients receive. The objective of the study was to analyse what is valued most by family carers ...

journal_title：BMC palliative care

authors： Aparicio M,Centeno C,Carrasco JM,Barbosa A,Arantzamendi M

更新日期：2017-09-06 00:00:00

abstract：BACKGROUND:The use of music as therapy in multidisciplinary end-of-life care dates back to the 1970s and nowadays music therapy (MT) is one of the most frequently used complementary therapy in in-patient palliative care in the US. However existing research investigated music therapy's potential impact mainly from one p...

journal_title：BMC palliative care

authors： Schmid W,Rosland JH,von Hofacker S,Hunskår I,Bruvik F

更新日期：2018-02-20 00:00:00

abstract：BACKGROUND:Little is known about palliative care professionals' attitudes towards guidelines. In 2015, the German Association for Palliative Medicine (DGP) published an evidence based guideline for palliative care in adults with incurable cancer. Before publication we conducted a national survey among members of the DG...

journal_title：BMC palliative care

authors： Kalies H,Schöttmer R,Simon ST,Voltz R,Crispin A,Bausewein C

更新日期：2017-03-21 00:00:00

abstract：UNLABELLED: BACKGROUND:This study explores with patients, carers and health care professionals if, when and how Advance Care Planning conversations about patients' preferences for place of care (and death) were facilitated and documented. METHODS:The study adopted an exploratory case study design using qualitative in...

journal_title：BMC palliative care

authors： Almack K,Cox K,Moghaddam N,Pollock K,Seymour J

更新日期：2012-09-17 00:00:00

abstract：BACKGROUND:There is limited population-level research on end-of-life care in Australia that considers health care use and costs across hospital and community sectors. The aim of this study was to quantify health care use and costs in the last 6 months of life in a cohort of elderly Australian decedents and to examine t...

journal_title：BMC palliative care

authors： Reeve R,Srasuebkul P,Langton JM,Haas M,Viney R,Pearson SA,EOL-CC study authors.

更新日期：2017-06-21 00:00:00

abstract：BACKGROUND:Professionals and relatives increasingly have to deal with people with intellectual disabilities (ID) who are in need of end-of-life care. This is a specific type of care that may require a different approach to the focus on participation that currently characterizes the care for people with ID. This paper d...

journal_title：BMC palliative care

authors： Bekkema N,de Veer AJ,Hertogh CM,Francke AL

更新日期：2015-07-25 00:00:00

abstract：BACKGROUND:Research suggests that there may be bereavement experiences and support needs which are specific to family caregivers providing end of life care (EoLC), although this remains an under-researched area. This paper focuses on themes relating to bereavement which were derived from an analysis of free text survey...

journal_title：BMC palliative care

authors： Harrop E,Morgan F,Byrne A,Nelson A

更新日期：2016-11-08 00:00:00

abstract：BACKGROUND:The Patient Satisfaction Questionnaire (PSQ) is an assessment tool used to evaluate patients' perspectives of their doctor's communication and interpersonal skills. The present pilot study investigated whether the PSQ could be administered successfully in a hospice inpatient setting and if it is an acceptabl...

journal_title：BMC palliative care

authors： Henriksen KM,Heller N,Finucane AM,Oxenham D

更新日期：2014-06-02 00:00:00

abstract：BACKGROUND:Current policies recommend integrating home care and palliative care to enable patients to remain at home and avoid unnecessary hospital admission and emergency department (ED) visits. The Italian health care system had implemented integrated palliative home care (IHPC) services to guarantee a comprehensive,...

journal_title：BMC palliative care

authors： Borraccino A,Campagna S,Politano G,Dalmasso M,Dimonte V,Gianino MM

更新日期：2020-08-16 00:00:00

abstract：UNLABELLED: BACKGROUND:Parental palliative disease is a family affair, however adolescent's well-being and coping are still rarely considered. The objectives of this paper were a) to identify differences in psychosocial adjustment and health-related quality of life (HRQoL) among adolescents and young adults with paren...

journal_title：BMC palliative care

authors： Kühne F,Krattenmacher T,Bergelt C,Ernst JC,Flechtner HH,Führer D,Herzog W,Klitzing KV,Romer G,Möller B

更新日期：2012-10-30 00:00:00

abstract：BACKGROUND:Observational studies investigating risk factors in coronavirus disease 2019 (COVID-19) have not considered the confounding effects of advanced care planning, such that a valid picture of risk for elderly, frail and multi-morbid patients is unknown. We aimed to report ceiling of care and cardiopulmonary resu...

journal_title：BMC palliative care

authors： Straw S,McGinlay M,Drozd M,Slater TA,Cowley A,Kamalathasan S,Maxwell N,Bird RA,Koshy AO,Prica M,Patel PA,Relton SD,Gierula J,Cubbon RM,Kearney MT,Witte KK

更新日期：2021-01-11 00:00:00

abstract：:Population-based mortality follow-back survey designs have been used to collect information concerning end-of-life care from bereaved family members in several countries. In Canada, this design was recently employed to gather population-based information about the end-of-life care experience among adults in Nova Scoti...

journal_title：BMC palliative care

authors： Lawson B,Van Aarsen K,Burge F

更新日期：2013-08-06 00:00:00

abstract：BACKGROUND:The goal of Canada's Compassionate Care Benefit (CCB) is to enable family members and other loved ones who are employed to take a temporary secured leave to care for a terminally ill individual at end of life. Successful applicants of the CCB can receive up to 55% of their average insured earnings, up to a m...

journal_title：BMC palliative care

authors： Crooks VA,Williams A

更新日期：2008-08-28 00:00:00

abstract：BACKGROUND:Homeless people often suffer from complex and chronic comorbidities, have high rates of morbidity and die at much younger ages than the general population. Due to a complex combination of physical, psychosocial and addiction problems at the end of life, they often have limited access to palliative care. Both...

journal_title：BMC palliative care

authors： Klop HT,de Veer AJE,van Dongen SI,Francke AL,Rietjens JAC,Onwuteaka-Philipsen BD

更新日期：2018-04-24 00:00:00

abstract：BACKGROUND:The supportive hospice aged residential exchange (SHARE) is a new model of palliative care education that has been designed for residential aged care. The goal of SHARE is to help clinical staff improve palliative care within residential aged care facilities and to improve specialist palliative care nurses' ...

journal_title：BMC palliative care

authors： Frey R,Barham S,Balmer D,Boyd M,Robinson J,Gott M

更新日期：2020-08-17 00:00:00

abstract：BACKGROUND:Confinement to an in-patient hospital ward impairs patients' sense of social support and connectedness. Providing the means, through communication technology, for patients to maintain contact with friends and family can potentially improve well-being at the end of life by minimizing social isolation and faci...

journal_title：BMC palliative care

authors： Guo Q,Cann B,McClement S,Thompson G,Chochinov HM

更新日期：2017-05-06 00:00:00

abstract：BACKGROUND:It has been recognised that more evidence about important aspects of family members' sense of security during palliative care is needed. The objectives of the study was: i) to discover what variables are associated with family members feeling secure during palliative care; ii) to develop a model of family me...

journal_title：BMC palliative care

authors： Milberg A,Liljeroos M,Krevers B

更新日期：2019-07-25 00:00:00

abstract：BACKGROUND:There is a dearth of data regarding the optimal method of detecting and treating depression in palliative care. This study applied the Delphi method to evaluate expert opinion on choice of screening tool, choice of antidepressant and choice of psychological therapy. The aim was to inform the development of b...

journal_title：BMC palliative care

authors： Rayner L,Price A,Hotopf M,Higginson IJ

更新日期：2011-05-27 00:00:00

abstract：:BACKGROUND: Although guidelines for the care of the dying patient exist the evidence base to support the guidelines is poor. Some of the factors contributing to this include failure to recruit to trials, protective healthcare professionals and subsequent attrition from trials due to the death of the patients. Recent s...

journal_title：BMC palliative care

authors： Fowell A,Russell I,Johnstone R,Finlay I,Russell D

更新日期：2004-04-27 00:00:00

abstract：BACKGROUND:Understanding end of life preferences amongst the oldest old is crucial to informing appropriate palliative and end of life care internationally. However, little has been reported in the academic literature about the end of life preferences of people in advanced age, particularly the preferences of indigenou...

journal_title：BMC palliative care

authors： Gott M,Frey R,Wiles J,Rolleston A,Teh R,Moeke-Maxwell T,Kerse N

更新日期：2017-12-19 00:00:00

abstract：BACKGROUND:Effective integration between hospices, palliative care services and other local health care services to support patients with palliative care needs is an important international priority. A previous model suggests that integration involves a cumulative stepped process of engagement with other organisations ...

journal_title：BMC palliative care

authors： Payne S,Eastham R,Hughes S,Varey S,Hasselaar J,Preston N

更新日期：2017-11-28 00:00:00

abstract：BACKGROUND:Research has highlighted the need for improving the implementation of advance care planning (ACP) in nursing homes. We developed a theory-based multicomponent ACP intervention (the ACP+ programme) aimed at supporting nursing home staff with the implementation of ACP into routine nursing home care. We describ...

journal_title：BMC palliative care

authors： Gilissen J,Pivodic L,Wendrich-van Dael A,Gastmans C,Vander Stichele R,Engels Y,Vernooij-Dassen M,Deliens L,Van den Block L

更新日期：2020-01-08 00:00:00

abstract：BACKGROUND:In the last years of life, burden of disease and disability and need of health- and social care often increase. Social, functional and psychological factors may be important in regard to social- and health care utilization. This study aims to describe use of health- and social care during the last year of li...

journal_title：BMC palliative care

authors： Hallgren J,Johansson L,Lannering C,Ernsth Bravell M,Gillsjö C

更新日期：2020-06-23 00:00:00

abstract：BACKGROUND:Empirical knowledge around palliative care provision and needs of people with intellectual disabilities is extremely limited, as is the availability of research resources, including expertise and funding. This paper describes a consultation process that sought to develop an agenda for research priorities for...

journal_title：BMC palliative care

authors： Tuffrey-Wijne I,Wicki M,Heslop P,McCarron M,Todd S,Oliver D,de Veer A,Ahlström G,Schäper S,Hynes G,O'Farrell J,Adler J,Riese F,Curfs L

更新日期：2016-03-24 00:00:00

abstract：BACKGROUND:Children show long-term psychological distress if family communication and illness-related information are poor during and after a parent's illness and death. Few psychosocial interventions for families with minor children living with a parent who has a life-threatening illness have been evaluated rigorously...

journal_title：BMC palliative care

authors： Eklund R,Alvariza A,Kreicbergs U,Jalmsell L,Lövgren M

更新日期：2020-04-16 00:00:00