Abstract:
BACKGROUND:The Patient Satisfaction Questionnaire (PSQ) is an assessment tool used to evaluate patients' perspectives of their doctor's communication and interpersonal skills. The present pilot study investigated whether the PSQ could be administered successfully in a hospice inpatient setting and if it is an acceptable tool for completion by patients and relatives in this context. METHODS:The study was conducted in two phases. A first phase was undertaken to establish the process of PSQ administration in a hospice inpatient ward. A second phase of questionnaire administration followed by semi-structured interviews explored inpatient experiences of the questionnaire process. RESULTS:Overall, 30 inpatients and one relative were invited to complete the PSQ across both phases of data collection, representing 53% of all inpatients at the time of data collection. The remaining 47% were deemed unsuitable to ask due to a diagnosis of dying (24%), confusion (17%), distress (3%) or lack of availability (2%). The average response rate across both phases of data collection was 87%. Qualitative interview data suggested that the PSQ was considered clear, easy to understand and not burdensome in terms of time or effort for this population. CONCLUSIONS:The PSQ appears an acceptable tool to use in a hospice inpatient setting. Many patients welcomed the opportunity to be involved and give feedback. Using a greater proportion of relatives as an alternative source of feedback could be considered in future studies.
journal_name
BMC Palliat Carejournal_title
BMC palliative careauthors
Henriksen KM,Heller N,Finucane AM,Oxenham Ddoi
10.1186/1472-684X-13-27subject
Has Abstractpub_date
2014-06-02 00:00:00pages
27issn
1472-684Xpii
1472-684X-13-27journal_volume
13pub_type
杂志文章abstract:BACKGROUND:Homeless people often suffer from complex and chronic comorbidities, have high rates of morbidity and die at much younger ages than the general population. Due to a complex combination of physical, psychosocial and addiction problems at the end of life, they often have limited access to palliative care. Both...
journal_title:BMC palliative care
pub_type: 杂志文章,评审
doi:10.1186/s12904-018-0320-6
更新日期:2018-04-24 00:00:00
abstract:BACKGROUND:There are many potential benefits to chaplaincy in transforming into a "research-informed" profession. However little is known or has been documented about the roles of chaplains on research teams and as researchers or about the effects of research engagement on chaplains themselves. This report describes th...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-015-0006-2
更新日期:2015-05-02 00:00:00
abstract:BACKGROUND:It has been recognised that more evidence about important aspects of family members' sense of security during palliative care is needed. The objectives of the study was: i) to discover what variables are associated with family members feeling secure during palliative care; ii) to develop a model of family me...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-019-0446-1
更新日期:2019-07-25 00:00:00
abstract:BACKGROUND:Although spiritual care is a basic element of holistic nursing, nurses' spiritual care knowledge and abilities are often unable to satisfy patients' spiritual care needs. Therefore, nurses are in urgent need of relevant training to enhance their abilities to provide patients with spiritual care. DESIGN:A no...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-019-0489-3
更新日期:2019-11-26 00:00:00
abstract:BACKGROUND:Effective integration between hospices, palliative care services and other local health care services to support patients with palliative care needs is an important international priority. A previous model suggests that integration involves a cumulative stepped process of engagement with other organisations ...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-017-0250-8
更新日期:2017-11-28 00:00:00
abstract:BACKGROUND:To understand the status of residents' awareness of and demand for hospice care services in Hangzhou and to provide a reference for promoting the formulation of hospice care-related policies in China. METHODS:A small cross-sectional survey of 519 adults aged over 40 years old living in the rural-urban fring...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-020-00628-8
更新日期:2020-08-17 00:00:00
abstract:: Parkinson's disease (PD) is one of the most common neurodegenerative disorders of the elderly population. Few therapeutic options are available for patients with PD requiring palliative care. Treatment of the early stages of PD is entirely different from later stages. During the later stages, the palliative care mode...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-11-20
更新日期:2012-10-25 00:00:00
abstract:BACKGROUND:Globally the state of palliative care research remains uncertain. Questions remain regarding impact, funding, and research priorities. Building upon previous research, this review examines palliative care research in Ireland and contributes to a wider international debate on the state of palliative care rese...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-018-0364-7
更新日期:2018-09-27 00:00:00
abstract:BACKGROUND:During the last few decades, patients' rights have been reinforced in many countries by acts of law. Measures now include health care proxies to uphold the doctor-patient relationship and advance directives for end-of-life patients. These could be relevant tools as early as the initial diagnosis of haematolo...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-13-57
更新日期:2014-12-11 00:00:00
abstract:BACKGROUND:Volunteers play a significant role in supporting hospice and palliative care in Africa, but little is known about the types of volunteers, their motivations and roles in service delivery. METHODS:Palliative care experts from 30 African countries were invited to participate in an online survey, conducted in ...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-020-00545-w
更新日期:2020-04-14 00:00:00
abstract:BACKGROUND:Most patients with life-limiting illnesses are treated and cared for over a long period of time in primary care and guidelines suggest that ACP discussions should be initiated in primary care. However, a practical model to implement ACP in general practice is lacking. Therefore, the objective of this study i...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-016-0091-x
更新日期:2016-02-11 00:00:00
abstract:BACKGROUND:The Integrated Palliative care Outcome Scale (IPOS) was developed for evaluating essential outcomes for palliative care patients. Our objectives here are to describe the process of a six-phase cross-cultural adaptation of IPOS to French (IPOS-Fr), highlight the difficulties encountered and strategies to solv...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-019-0422-9
更新日期:2019-04-18 00:00:00
abstract:BACKGROUND:Keeping people living with advanced dementia in their usual place of residence is becoming a key governmental goal but to achieve this, family carers and health care professionals must negotiate how to provide optimal care. Previously, we reported a realist analysis of the health care professional perspectiv...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-019-0467-9
更新日期:2019-10-24 00:00:00
abstract:BACKGROUND:The goal of Canada's Compassionate Care Benefit (CCB) is to enable family members and other loved ones who are employed to take a temporary secured leave to care for a terminally ill individual at end of life. Successful applicants of the CCB can receive up to 55% of their average insured earnings, up to a m...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-7-14
更新日期:2008-08-28 00:00:00
abstract:BACKGROUND:The prevalence and implementation of institutional end-of-life policies has been comprehensively studied in Flanders, Belgium, a country where euthanasia was legalised in 2002. Developing end-of-life policies in hospitals is a first step towards improving the quality of medical decision-making at the end-of-...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-8-20
更新日期:2009-12-30 00:00:00
abstract:BACKGROUND:Children with chronic complex-medical conditions comprise a small minority of children who require substantial healthcare with major implications for hospital utilization and costs in pediatrics. Community-Based Pediatric Palliative Care (CBPPC) provides a holistic approach to patient care that can improve t...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-016-0138-z
更新日期:2016-08-03 00:00:00
abstract:BACKGROUND:The objective of the Balearic Islands Palliative Care (PC) Program is to improve the quality of PC through a shared model consisting of primary health care professionals, home-based PC teams, and PC units in hospitals. According to the World Health Organization (WHO), patients with advanced cancer and other ...
journal_title:BMC palliative care
pub_type: 杂志文章,多中心研究,随机对照试验
doi:10.1186/s12904-017-0217-9
更新日期:2017-07-10 00:00:00
abstract:BACKGROUND:To improve the quality of advance care planning (ACP) in primary care, it is important to understand the frequency of and topics involved in the ACP discussion between patients and their family physicians (FPs). METHODS:A secondary analysis of a previous multicenter cross-sectional observational study was p...
journal_title:BMC palliative care
pub_type: 杂志文章,多中心研究
doi:10.1186/s12904-020-00543-y
更新日期:2020-03-17 00:00:00
abstract:BACKGROUND:Hospice palliative care (HPC) is a philosophy of care that aims to relieve suffering and improve the quality of life for clients with life-threatening illnesses or end of life issues. The goals of HPC are not only to ameliorate clients' symptoms but also to reduce unneeded or unwanted medical interventions s...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-13-35
更新日期:2014-07-11 00:00:00
abstract:BACKGROUND:Palliative and end-of-life care development is hindered by a lack of information about the circumstances surrounding dying in developing and resource-poor countries. Our aims were to develop and obtain face and content validity for a self-administered questionnaire on end-of-life care provision and medical d...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-020-00630-0
更新日期:2020-08-14 00:00:00
abstract:BACKGROUND:Confinement to an in-patient hospital ward impairs patients' sense of social support and connectedness. Providing the means, through communication technology, for patients to maintain contact with friends and family can potentially improve well-being at the end of life by minimizing social isolation and faci...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-017-0203-2
更新日期:2017-05-06 00:00:00
abstract:BACKGROUND:Early integration of palliative care concurrently to standard cancer care is associated with several benefits for patients and their caregivers. However, communication barriers on part of the caring physicians often impede a timely referral to palliative care. This study describes the protocol of the evaluat...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-020-00568-3
更新日期:2020-05-12 00:00:00
abstract:BACKGROUND:Research suggests that there may be bereavement experiences and support needs which are specific to family caregivers providing end of life care (EoLC), although this remains an under-researched area. This paper focuses on themes relating to bereavement which were derived from an analysis of free text survey...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-016-0165-9
更新日期:2016-11-08 00:00:00
abstract:BACKGROUND:In palliative care (PC) patients and relatives (P/R) often show their gratitude to the healthcare professionals (HP) who care for them. HP appreciate these displays of gratitude, although the impact of the same has not been examined in detail. Publications analysed tell personal experiences in which HP say t...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-019-0412-y
更新日期:2019-03-21 00:00:00
abstract:BACKGROUND:Rapid effective responsiveness to patient needs is pivotal to high quality palliative care. Aboriginal and Torres Strait Islander (Indigenous) people are susceptible to life-limiting illnesses at younger ages than other Australians and experience inequity of health service provision. The Palliative Care Outc...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-018-0380-7
更新日期:2018-12-22 00:00:00
abstract::Population-based mortality follow-back survey designs have been used to collect information concerning end-of-life care from bereaved family members in several countries. In Canada, this design was recently employed to gather population-based information about the end-of-life care experience among adults in Nova Scoti...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-12-28
更新日期:2013-08-06 00:00:00
abstract:BACKGROUND:Under-diagnosis of pain is a serious problem in cancer care. Accurate pain assessment by physicians may form the basis of effective care. The aim of this study is to examine the association between late referral to a Palliative Care Team (PCT) after admission and the under-diagnosis of pain by primary physic...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-11-7
更新日期:2012-06-07 00:00:00
abstract:BACKGROUND:Globally, the number of people who die with dementia is increasing. The importance of a palliative approach in the care of people with dementia is recognised and there are national polices to enhance current care. In the UK implementation of these polices is promoted by the National Institute for Health and ...
journal_title:BMC palliative care
pub_type: 杂志文章,评审
doi:10.1186/s12904-015-0047-6
更新日期:2015-10-19 00:00:00
abstract:BACKGROUND:Discrepancies between the information that patients have received and the patients' awareness of their condition have frequently been observed in literature and given a number of different explanations. The chief contribution of this study is that by following patients over time it is possible not only to no...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/1472-684X-7-2
更新日期:2008-02-28 00:00:00
abstract:BACKGROUND:Understanding end of life preferences amongst the oldest old is crucial to informing appropriate palliative and end of life care internationally. However, little has been reported in the academic literature about the end of life preferences of people in advanced age, particularly the preferences of indigenou...
journal_title:BMC palliative care
pub_type: 杂志文章
doi:10.1186/s12904-017-0258-0
更新日期:2017-12-19 00:00:00