Abstract：
: Purpose: Childhood cancer survivors are at risk for impaired psychosocial functioning, but limited research has focused on psychosexual outcomes in young adulthood. This qualitative study examined the perceived impact of childhood cancer on adult survivors' romantic relationships and sexual/physical intimacy. Methods: Phone interviews were completed with adult survivors of childhood cancer, exploring the impact of cancer on (1) romantic relationships and (2) sexual/physical intimacy. Verbatim transcripts were coded using thematic content analysis until saturation was confirmed (n = 40). Results: Survivors in this study (n = 40) were 23-42 years old (M = 29.8; 63% female) and 10-37 years postdiagnosis (M = 18.4). Regarding romantic relationships, 60% of participants reported a negative impact, while 55% of participants reported positive effects; ∼25% of participants reported no impact of childhood cancer on adult romantic relationships. Negative themes included fertility-related concerns, physical effects (e.g., self-consciousness), feeling emotionally guarded, and delayed dating. Positive themes were creating new perspectives, increased maturity, and stronger bonds with partners. Forty percent of survivors in this study perceived having fewer partners than peers. Regarding sexual/physical intimacy, 68% of participants reported a negative impact (themes: body image, fertility-related concerns, sexual/physical dysfunction), while 33% of participants reported no effects. Conclusions: This study demonstrates both positive and negative effects of childhood cancer on adult survivors' romantic relationships, whereas effects on physical intimacy were predominantly negative. Further research is needed to inform effective psychosexual interventions, and health care providers should routinely address these topics in survivorship care.
journal_name
J Adolesc Young Adult Oncoljournal_title
Journal of adolescent and young adult oncologyauthors
Nahata L,Morgan TL,Lipak KG,Olshefski RS,Gerhardt CA,Lehmann Vdoi
10.1089/jayao.2019.0114subject
Has Abstractpub_date
2020-06-01 00:00:00pages
359-366issue
3eissn
2156-5333issn
2156-535Xjournal_volume
9pub_type
杂志文章abstract：:Little is known about young adults with cancer at the end-of-life, but life review and legacy making may be important modalities to process the emotions associated with anticipatory grief. The study analyzed the illness blogs of five young women (aged 25-39 years) at the end-of-life using a narrative approach. Key ele...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2015.0003
更新日期：2015-12-01 00:00:00
abstract：PURPOSE:Hodgkin lymphoma (HL) is the commonest cancer in adolescents and young adults (AYAs), aged 15-29 years. While the survival rate is high, many survivors experience adverse late effects of therapy. Yet, this age group in general makes limited use of health services. This study sought to determine whether the need...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2015.0039
更新日期：2016-06-01 00:00:00
abstract：PURPOSE:Patients with testicular seminoma may face fertility issues because of their underlying disease as well as treatments they undergo. The current patterns of practice among U.S. radiation oncologists aimed at assessing and preserving fertility in patients with Stage I seminoma are unknown. METHODS:We surveyed pr...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2017.0122
更新日期：2018-06-01 00:00:00
abstract：PURPOSE:Young adult oncology has gained momentum in recognizing the unique medical and psychosocial needs of the population of adolescents and young adults with cancer (AYAC). However, many of their psychosocial needs remain unmet and we are yet to identify how clinical or research programs can be tailored to meet thes...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章,随机对照试验
doi：10.1089/jayao.2017.0101
更新日期：2019-04-01 00:00:00
abstract：: Purpose: Testicular germ cell tumors (TGCT) are the most common solid organ malignancy in young men. It is a largely curable disease, so the extent to which it affects quality of life-including male fertility-is important. Abnormal semen analysis is highly predictive of ma...
journal_title：Journal of adolescent and young adult oncology
pub_type： 评审
doi：10.1089/jayao.2014.0012
更新日期：2014-12-01 00:00:00
abstract：PURPOSE:As a consequence of cancer treatment, many adolescents and young adults (AYA) patients are required to take leave or face setbacks from their education. While most AYA cancer survivors and survivors of childhood cancer are capable of successfully returning to the educational system, unsuccessful returns place A...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2018.0058
更新日期：2018-10-01 00:00:00
abstract：:Many adolescent female cancer patients will survive into their reproductive years. Pediatric oncologists are advised to discuss oncofertility during treatment planning. In this pilot study, 19 adolescent females completed a retrospective survey assessing recall of a fertility discussion, satisfaction with fertility kn...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2017.0079
更新日期：2018-04-01 00:00:00
abstract：PURPOSE:This study describes the prevalence of religious and/or spiritual (R/S) struggle in long-term young adult (YA) survivors following hematopoietic cell transplantation (HCT) as well as existential concerns (EC), social support, and demographic, medical, and emotional correlates of R/S struggle. METHODS:Data were...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2017.0069
更新日期：2018-04-01 00:00:00
abstract：PURPOSE:Photovoice is a novel and promising intervention for working with youth in healthcare settings. Despite this, few studies have examined the efficacy of photovoice as a clinical tool for working with teenagers who are on their cancer journey. To better understand the needs of teenagers with cancer and the ways t...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2017.0073
更新日期：2018-02-01 00:00:00
abstract：:Based on an increased appreciation of the unique challenges facing adolescents and young adults with cancer, there has been a coordinated national effort in Australia in recent years to address this issue. In 2007, CanTeen, a consumer support organization for young people with cancer, partnered with the Australian fed...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2012.0032
更新日期：2013-09-01 00:00:00
abstract：:Delayed diagnosis due to lack of education may contribute to lack of improvement in adolescent and young adult (AYA) cancer survival. This program sought to educate trainees and AYAs in the community. The "Learning, Education, Awareness, Prevention (L.E.A.P) Young Adult Cancer" outreach program was developed to teach ...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2017.0060
更新日期：2018-02-01 00:00:00
abstract：: Introduction: Children and adolescents/young adults (AYAs) with cancer are a vulnerable population susceptible to numerous late effects, such as fatigue and depression, which may diminish their long-term psychological, physical, spiritual, and emotional health. A well-roun...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2020.0184
更新日期：2021-01-18 00:00:00
abstract：PURPOSE:An insufficient transition to normal life after cancer treatment in adolescent and young adults (AYAs) may lead to decreased occupational and educational opportunities throughout a survivor's lifespan. Key informant interviews were used to access unique knowledge of the healthcare, educational, and social syste...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2017.0128
更新日期：2018-08-01 00:00:00
abstract：: Purpose: About 30%-35% of nonmetastatic and 60%-80% of metastatic Ewing Sarcoma (ES) will relapse post-treatment and outcomes after relapse continue to be poor over last several decades. Prognostic factors affecting survival after relapse of ES are also not robustly known....
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2020.0016
更新日期：2020-07-20 00:00:00
abstract：:This case study describes the use of patient-reported outcome (PRO) in conjunction with psychosocial treatment for an adolescent oncology patient presenting with comorbid mental health difficulties. A nine-session evidence-based cognitive-behavioral treatment was implemented and PROs were used to document progress. Re...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2017.0090
更新日期：2018-06-01 00:00:00
abstract：:Cancer-related knowledge among childhood cancer survivors (CCSs) has been underexplored. In particular, little is known about factors impacting knowledge of the need for lifelong follow-up care in CCSs. This secondary analysis of data examined acculturation, cancer-related knowledge, demographics, and clinical factors...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2018.0099
更新日期：2019-06-01 00:00:00
abstract：:The inclusion of asparaginase in chemotherapy regimens to treat acute lymphoblastic leukemia (ALL) has had a positive impact on survival in pediatric patients. Historically, asparaginase has been excluded from most treatment protocols for adolescent and young adult (AYA) patients because of perceived toxicity in this ...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章,评审
doi：10.1089/jayao.2015.0014
更新日期：2015-09-01 00:00:00
abstract：PURPOSE:To examine key factors related to adolescent cancer survivors' return to school after cancer treatment completion, which can be a time of complex transition. PATIENTS AND METHODS:Seventy semi-structured interviews were conducted with 19 adolescent cancer survivors (mean age 16.1 years), 21 mothers, 15 fathers,...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2011.0006
更新日期：2011-06-01 00:00:00
abstract：: Background: Location of death (LOD) is an important aspect of end-of-life (EOL) care. Adolescents and young adults (YAs) with pediatric malignancies are increasingly treated in pediatric institutions. YAs, generally defined as 18-39 years old, deserve specific attention be...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2018.0123
更新日期：2019-08-01 00:00:00
abstract：PURPOSE:Adolescents with cancer have unique developmental considerations. These include brain development, particularly in the frontal lobe, and a focus on completing education and entering the workforce. Cancer and treatment at this stage may prove to uniquely affect survivors' experience of cognitive and occupational...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2017.0043
更新日期：2018-02-01 00:00:00
abstract：: Purpose: With an increasing focus on developing survivorship services tailored for adolescent and young adult (AYA) cancer survivors, incorporation of viewpoints from both survivors and health care professionals (HCPs) is important. This study aims to explore the perceptio...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2019.0145
更新日期：2020-06-01 00:00:00
abstract：PURPOSE:Orthotopic liver transplantation (OLT) is curative for hepatocellular carcinoma (HCC). HCC is typically a disease of older adults (OAs); therefore, characteristics and outcomes of OLT for young adults (YAs) (ages 18-40) are not described. The objective of this study was to assess the characteristics and outcome...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2016.0048
更新日期：2017-06-01 00:00:00
abstract：:Adolescents and young adults (AYAs) 15-39 years old face unique challenges during cancer treatment as developmental and social needs are often disrupted to achieve cure. Developmentally appropriate supportive care for AYAs across the cancer trajectory is needed. The purpose of this review is to identify and describe i...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章,评审
doi：10.1089/jayao.2017.0127
更新日期：2018-06-01 00:00:00
abstract：PURPOSE:Cancer is a significant health concern for adolescents and young adults (AYAs; aged 15-24 years). Monitoring population-level changes in incidence, mortality, and survival is complicated by the lack of published data presenting statistics separately for AYAs. This study synthesizes and reviews data on AYA cance...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2017.0095
更新日期：2018-06-01 00:00:00
abstract：PURPOSE:To identify the utility and issues associated with the use of decision trees in oncofertility patient care in Japan. METHODS:A total of 35 women who had been diagnosed with cancer, but had not begun anticancer treatment, were enrolled. We applied the oncofertility decision tree for women published by Gardino e...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2016.0045
更新日期：2017-03-01 00:00:00
abstract：:This review explores the literature on experiences of young people (15-39 years) living with cancer from nonmetropolitan areas, given most available research has focused on those living in major metropolitan areas. The purpose of the review was to inform (a) clinical practice and (b) future research on young people li...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2019.0053
更新日期：2020-04-01 00:00:00
abstract：:Adolescents and young adults (AYAs) with cancer represent a unique group with unmet needs. Metrics and quality indicators are important for evaluating AYA cancer care. The purpose of this study is to describe the quality indicators in a Canadian context that are used for AYA (15-39 years of age) cancer care and contro...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2019.0069
更新日期：2020-02-01 00:00:00
abstract：PURPOSE:There is a growing interest in fertility preservation as emerging research is highlighting the prevalence of infertility among young cancer survivors and its negative impact on quality of life. Previous qualitative research has identified barriers of fertility preservation care among professionals. The aim of t...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2016.0087
更新日期：2017-09-01 00:00:00
abstract：: Purpose: Most evidence for the relationship between physical activity, nutrition education, and late effects from cancer treatment come from cross-sectional studies. The purpose of this pilot study was to determine if 8 weeks of exercise and nutrition education in adolesce...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2020.0116
更新日期：2020-09-14 00:00:00
abstract：:Childhood cancer survivors (CCS) are at increased risk of subsequent malignant neoplasms (SMNs). However, the impact of SMNs on long-term psychosocial functioning is unknown. In a cohort of 322 young adult CCS, survivors who developed a SMN (n = 43, 13.4%) did not report a significantly higher burden of fatigue, insom...
journal_title：Journal of adolescent and young adult oncology
pub_type： 杂志文章
doi：10.1089/jayao.2020.0046
更新日期：2020-08-14 00:00:00
