Exploring Adolescents' Cancer Journey Through Photovoice: A Narrative Synthesis.

abstract：: Purpose: About 30%-35% of nonmetastatic and 60%-80% of metastatic Ewing Sarcoma (ES) will relapse post-treatment and outcomes after relapse continue to be poor over last several decades. Prognostic factors affecting survival after relapse of ES are also not robustly known....

journal_title：Journal of adolescent and young adult oncology

authors： Vijayasekharan K,Ramanathan S,Chinnaswamy G,Prasad M,Gulia A,Janu A,Rekhi B,Ramadwar M,Khanna N,Laskar S,Puranadare N,Bajpai J,Puri A,Banavali S,Vora T

更新日期：2020-07-20 00:00:00

abstract：PURPOSE:Cancer is a significant health concern for adolescents and young adults (AYAs; aged 15-24 years). Monitoring population-level changes in incidence, mortality, and survival is complicated by the lack of published data presenting statistics separately for AYAs. This study synthesizes and reviews data on AYA cance...

journal_title：Journal of adolescent and young adult oncology

authors： Roder DM,Warr A,Patterson P,Allison KR

更新日期：2018-06-01 00:00:00

abstract：:Delayed diagnosis due to lack of education may contribute to lack of improvement in adolescent and young adult (AYA) cancer survival. This program sought to educate trainees and AYAs in the community. The "Learning, Education, Awareness, Prevention (L.E.A.P) Young Adult Cancer" outreach program was developed to teach ...

journal_title：Journal of adolescent and young adult oncology

authors： Audino AN,Yeager ND

更新日期：2018-02-01 00:00:00

abstract：:Little is known about young adults with cancer at the end-of-life, but life review and legacy making may be important modalities to process the emotions associated with anticipatory grief. The study analyzed the illness blogs of five young women (aged 25-39 years) at the end-of-life using a narrative approach. Key ele...

journal_title：Journal of adolescent and young adult oncology

authors： Keim-Malpass J,Adelstein K,Kavalieratos D

更新日期：2015-12-01 00:00:00

abstract：:Cancer-related knowledge among childhood cancer survivors (CCSs) has been underexplored. In particular, little is known about factors impacting knowledge of the need for lifelong follow-up care in CCSs. This secondary analysis of data examined acculturation, cancer-related knowledge, demographics, and clinical factors...

journal_title：Journal of adolescent and young adult oncology

authors： Sleight AG,Ramirez CN,Miller KA,Milam JE

更新日期：2019-06-01 00:00:00

abstract：: Introduction: Children and adolescents/young adults (AYAs) with cancer are a vulnerable population susceptible to numerous late effects, such as fatigue and depression, which may diminish their long-term psychological, physical, spiritual, and emotional health. A well-roun...

journal_title：Journal of adolescent and young adult oncology

authors： Wayant C,Manquen J,Wendelbo H,Kerr N,Crow M,Goodell J,Tricco AC,Mack JW,Hellman C,Vassar M

更新日期：2021-01-18 00:00:00

abstract：PURPOSE:Adolescents with cancer have unique developmental considerations. These include brain development, particularly in the frontal lobe, and a focus on completing education and entering the workforce. Cancer and treatment at this stage may prove to uniquely affect survivors' experience of cognitive and occupational...

journal_title：Journal of adolescent and young adult oncology

authors： Nugent BD,Bender CM,Sereika SM,Tersak JM,Rosenzweig M

更新日期：2018-02-01 00:00:00

abstract：PURPOSE:Orthotopic liver transplantation (OLT) is curative for hepatocellular carcinoma (HCC). HCC is typically a disease of older adults (OAs); therefore, characteristics and outcomes of OLT for young adults (YAs) (ages 18-40) are not described. The objective of this study was to assess the characteristics and outcome...

journal_title：Journal of adolescent and young adult oncology

authors： Thomas SM,Moke D,Lopez R,Hanna R,Kabbany MN,Alkhouri N

更新日期：2017-06-01 00:00:00

abstract：: Purpose: With an increasing focus on developing survivorship services tailored for adolescent and young adult (AYA) cancer survivors, incorporation of viewpoints from both survivors and health care professionals (HCPs) is important. This study aims to explore the perceptio...

journal_title：Journal of adolescent and young adult oncology

authors： Ke Y,Tan CJ,Ng T,Tan IMJ,Goh WL,Poon E,Farid M,Neo PSH,Srilatha B,Chan A

更新日期：2020-06-01 00:00:00

abstract：PURPOSE:The aim of this study was to examine racial/ethnic disparities in the incidence rates and trends of soft tissue sarcoma (STS) by gender, age, and histological type among adolescents and young adults (AYAs) aged 15-29 years. METHODS:The 1995-2008 incidence data from 25 population-based cancer registries, coveri...

journal_title：Journal of adolescent and young adult oncology

authors： Hsieh MC,Wu XC,Andrews PA,Chen VW

更新日期：2013-09-01 00:00:00

abstract：PURPOSE:This study describes the prevalence of religious and/or spiritual (R/S) struggle in long-term young adult (YA) survivors following hematopoietic cell transplantation (HCT) as well as existential concerns (EC), social support, and demographic, medical, and emotional correlates of R/S struggle. METHODS:Data were...

journal_title：Journal of adolescent and young adult oncology

authors： King SDW,Fitchett G,Murphy PE,Rajaee G,Pargament KI,Loggers ET,Harrison DA,Johnson RH

更新日期：2018-04-01 00:00:00

abstract：PURPOSE:To identify the utility and issues associated with the use of decision trees in oncofertility patient care in Japan. METHODS:A total of 35 women who had been diagnosed with cancer, but had not begun anticancer treatment, were enrolled. We applied the oncofertility decision tree for women published by Gardino e...

journal_title：Journal of adolescent and young adult oncology

authors： Ito Y,Shiraishi E,Kato A,Haino T,Sugimoto K,Okamoto A,Suzuki N

更新日期：2017-03-01 00:00:00

abstract：: Purpose: Rates of obesity and obesity-related health consequences, including type 2 diabetes (T2D) and cancer, continue to rise. While cancer patients are at an increased risk of developing T2D, the prevalence of T2D and insulin prescription among young patients with cance...

journal_title：Journal of adolescent and young adult oncology

authors： Holowatyj AN,Viskochil R,Ose D,Tingey B,Haaland B,Wilson D,Larson M,Feltz S,Lewis MA,Colman H,Ulrich CM

更新日期：2020-07-29 00:00:00

abstract：:This case study describes the use of patient-reported outcome (PRO) in conjunction with psychosocial treatment for an adolescent oncology patient presenting with comorbid mental health difficulties. A nine-session evidence-based cognitive-behavioral treatment was implemented and PROs were used to document progress. Re...

journal_title：Journal of adolescent and young adult oncology

authors： Racine NM,Lafay-Cousin L,Schulte F

更新日期：2018-06-01 00:00:00

abstract：PURPOSE:Young adult cancer survivors have a number of increased health and psychosocial risks. To minimize these risks, they must address any modifiable risk factors, for example increase their physical activity (PA) and reduce stress. Unfortunately, more than half of young survivors remain sedentary, and few participa...

journal_title：Journal of adolescent and young adult oncology

authors： Rabin C,Pinto B,Fava J

更新日期：2016-03-01 00:00:00

abstract：PURPOSE:As a consequence of cancer treatment, many adolescents and young adults (AYA) patients are required to take leave or face setbacks from their education. While most AYA cancer survivors and survivors of childhood cancer are capable of successfully returning to the educational system, unsuccessful returns place A...

journal_title：Journal of adolescent and young adult oncology

authors： Elsbernd A,Pedersen KJ,Boisen KA,Midtgaard J,Larsen HB

更新日期：2018-10-01 00:00:00

abstract：: Purpose: To evaluate the impact of a series of one-day events delivered by Trekstock, a charity supporting young adults with cancer in the United Kingdom. Methods: Data on physical activity, mood, perceived support, self-effica...

journal_title：Journal of adolescent and young adult oncology

authors： Pugh G,Petrella A,Fisher A,Reynolds J,Epstone S

更新日期：2020-04-01 00:00:00

abstract：: Purpose: Young adults with cancer often experience stress, depression, and anxiety. Mindfulness meditation is an effective intervention for these outcomes, and maintenance support may be needed for long-term improvements. eHealth technologies provide a promising delivery s...

journal_title：Journal of adolescent and young adult oncology

authors： Murphy KM,Burns J,Victorson D

更新日期：2020-12-21 00:00:00

abstract：:Communication plays an essential role in social relationships. Yet it is unclear how young cancer patients and survivors communicate with peers, and whether this contributes to increased rates of social difficulties. We aimed to analyze how childhood cancer patients and survivors communicate about their cancer with fa...

journal_title：Journal of adolescent and young adult oncology

authors： Janin MMH,Ellis SJ,Wakefield CE,Fardell JE

更新日期：2018-10-01 00:00:00

abstract：: Purpose: Survivors of cancer diagnosed during adolescence and young adulthood (AYA; aged 15-39) may experience quality of life (QOL) limitations; however, little is known about QOL for AYA survivors who are now middle-aged or among racial/ethnic minority survivors. We eval...

journal_title：Journal of adolescent and young adult oncology

authors： Kirchhoff AC,Spraker-Perlman HL,McFadden M,Warner EL,Oeffinger KC,Wright J,Kinney AY

更新日期：2014-06-01 00:00:00

abstract：PURPOSE:As many as two-thirds of male childhood cancer survivors are at risk for fertility impairment as a consequence of treatment. Despite this, survivorship guidelines lack concrete recommendations as to when fertility status conversations should happen between patients and providers and what should be discussed. Th...

journal_title：Journal of adolescent and young adult oncology

authors： Ferrante AC,Gerhardt CA,Yeager ND,Rausch JR,Lehmann V,O'Brien S,Quinn GP,Nahata L

更新日期：2019-02-01 00:00:00

abstract：PURPOSE:Young adult oncology has gained momentum in recognizing the unique medical and psychosocial needs of the population of adolescents and young adults with cancer (AYAC). However, many of their psychosocial needs remain unmet and we are yet to identify how clinical or research programs can be tailored to meet thes...

journal_title：Journal of adolescent and young adult oncology

authors： Aubin S,Rosberger Z,Hafez N,Noory MR,Perez S,Lehmann S,Batist G,Kavan P

更新日期：2019-04-01 00:00:00

abstract：PURPOSE:Oncologic outcomes in advanced testicular cancer (TC) depend on appropriate and timely care. Often this care is referred to tertiary academic medical centers (AMCs). The aim of this study was to compare oncologic outcomes of adolescent and young adult (AYA) patients with TC treated from the outset at an AMC to ...

journal_title：Journal of adolescent and young adult oncology

authors： Cost NG,Caldwell BT,Adibi M,Raj GV,Sagalowsky AI,Margulis V

更新日期：2016-09-01 00:00:00

abstract：PURPOSE:Cancer-related fatigue in adults has been the subject of considerable recent research, confirming its importance as a common and debilitating symptom, and establishing a number of evidence-based interventions. There has, however, been limited focus on the fatigue suffered by teenagers and young adults with canc...

journal_title：Journal of adolescent and young adult oncology

authors： Spathis A,Booth S,Grove S,Hatcher H,Kuhn I,Barclay S

更新日期：2015-03-01 00:00:00

abstract：:Adolescents and young adults (AYAs) 15-39 years old face unique challenges during cancer treatment as developmental and social needs are often disrupted to achieve cure. Developmentally appropriate supportive care for AYAs across the cancer trajectory is needed. The purpose of this review is to identify and describe i...

journal_title：Journal of adolescent and young adult oncology

authors： Bell CJ,Bell RA,Zebrack B,Kato I,Morse A,Borinstein SC

更新日期：2018-06-01 00:00:00

abstract：:Based on an increased appreciation of the unique challenges facing adolescents and young adults with cancer, there has been a coordinated national effort in Australia in recent years to address this issue. In 2007, CanTeen, a consumer support organization for young people with cancer, partnered with the Australian fed...

journal_title：Journal of adolescent and young adult oncology

authors： Osborn M,Little C,Bowering S,Orme L

更新日期：2013-09-01 00:00:00

abstract：: Purpose: Testicular germ cell tumors (TGCT) are the most common solid organ malignancy in young men. It is a largely curable disease, so the extent to which it affects quality of life-including male fertility-is important. Abnormal semen analysis is highly predictive of ma...

journal_title：Journal of adolescent and young adult oncology

authors： Djaladat H,Burner E,Parikh PM,Beroukhim Kay D,Hays K

更新日期：2014-12-01 00:00:00

abstract：:This paper describes the development of an institution-specific website designed to meet the supportive and emotional needs of young adults (18-39 years old) with cancer in the United States. The website contains information about topics of particular interest to young adults, coping skills education, and resources; a...

journal_title：Journal of adolescent and young adult oncology

authors： Fasciano KM,Souza PM,Braun I,Trevino K

更新日期：2015-03-01 00:00:00

abstract：PURPOSE:Limited research exists on the social information needs of adolescents and young adults (AYAs, aged 15-39 at diagnosis) with cancer. METHODS:The Adolescent and Young Adult Health Outcomes and Patient Experiences (AYA HOPE) Study recruited 523 patients to complete surveys 6-14 months after cancer diagnosis. Par...

journal_title：Journal of adolescent and young adult oncology

authors： Kent EE,Smith AW,Keegan TH,Lynch CF,Wu XC,Hamilton AS,Kato I,Schwartz SM,Harlan LC

更新日期：2013-06-01 00:00:00

abstract：PURPOSE:An insufficient transition to normal life after cancer treatment in adolescent and young adults (AYAs) may lead to decreased occupational and educational opportunities throughout a survivor's lifespan. Key informant interviews were used to access unique knowledge of the healthcare, educational, and social syste...

journal_title：Journal of adolescent and young adult oncology

authors： Pedersen KJ,Boisen KA,Midtgaard J,Elsbernd A,Larsen HB

更新日期：2018-08-01 00:00:00