Abstract:
PURPOSE:As a consequence of cancer treatment, many adolescents and young adults (AYA) patients are required to take leave or face setbacks from their education. While most AYA cancer survivors and survivors of childhood cancer are capable of successfully returning to the educational system, unsuccessful returns place AYA at an increased risk of social isolation, stigmatization, and financial burden. The perspective of AYA cancer survivors who have returned to education is valuable to understand the challenges faced and resources available throughout this transition. The purpose of this study was to explore AYA cancer survivors' management of returning to secondary or higher education. METHODS:Semistructured interviews were conducted with AYA cancer survivors between the ages of 15 and 25 at diagnosis pursuing secondary or higher education (n = 9). Interviews were transcribed verbatim and analyzed using Malterud's Systemic Text Condensation. RESULTS:Five themes were found: (Theme 1) Symptoms and Late Effects, (Theme 2) Navigating the System, (Theme 3) Lack of Understanding from Peers, (Theme 4) Unofficial Support, and (Theme 5) Changed Perspectives. AYA cancer survivors described facing challenges from the physical late effects of cancer treatment, as well as misunderstanding from municipal systems and peer groups. However, they stated that assistance was provided from unofficial sources of support, such as teachers and parents. CONCLUSIONS:AYA cancer survivors face social and systemic challenges throughout the return to education. The findings of this study support previous research suggesting that late effects and misunderstanding from peers and academic and municipal institutions may play a role in impacting social outcomes and academic performance.
journal_name
J Adolesc Young Adult Oncoljournal_title
Journal of adolescent and young adult oncologyauthors
Elsbernd A,Pedersen KJ,Boisen KA,Midtgaard J,Larsen HBdoi
10.1089/jayao.2018.0058subject
Has Abstractpub_date
2018-10-01 00:00:00pages
618-625issue
5eissn
2156-5333issn
2156-535Xjournal_volume
7pub_type
杂志文章abstract::Communication plays an essential role in social relationships. Yet it is unclear how young cancer patients and survivors communicate with peers, and whether this contributes to increased rates of social difficulties. We aimed to analyze how childhood cancer patients and survivors communicate about their cancer with fa...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2017.0131
更新日期:2018-10-01 00:00:00
abstract:: Purpose: To evaluate the impact of a series of one-day events delivered by Trekstock, a charity supporting young adults with cancer in the United Kingdom. Methods: Data on physical activity, mood, perceived support, self-effica...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2019.0108
更新日期:2020-04-01 00:00:00
abstract::Radiation-induced phantosmia has been reported both in children and adults. A fraction of these patients have nausea and vomiting triggered by phantosmia. Radiation-induced phantosmia, although transient, can be distressing enough to prevent a patient from staying still during radiation therapy. To date, specific inte...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2019.0103
更新日期:2020-04-01 00:00:00
abstract:: Purpose: To explore and highlight the opportunities and challenges that underlie the development of survivorship care for adolescent and young adult cancer. Methods: A multimethod approach was used, with perspectives of survivo...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2019.0031
更新日期:2019-10-01 00:00:00
abstract::Many adolescent female cancer patients will survive into their reproductive years. Pediatric oncologists are advised to discuss oncofertility during treatment planning. In this pilot study, 19 adolescent females completed a retrospective survey assessing recall of a fertility discussion, satisfaction with fertility kn...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2017.0079
更新日期:2018-04-01 00:00:00
abstract::Adolescents and young adults (AYAs) with cancer represent a unique group with unmet needs. Metrics and quality indicators are important for evaluating AYA cancer care. The purpose of this study is to describe the quality indicators in a Canadian context that are used for AYA (15-39 years of age) cancer care and contro...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2019.0069
更新日期:2020-02-01 00:00:00
abstract:PURPOSE:The aim of this study was to examine racial/ethnic disparities in the incidence rates and trends of soft tissue sarcoma (STS) by gender, age, and histological type among adolescents and young adults (AYAs) aged 15-29 years. METHODS:The 1995-2008 incidence data from 25 population-based cancer registries, coveri...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2012.0031
更新日期:2013-09-01 00:00:00
abstract::Little is known about young adults with cancer at the end-of-life, but life review and legacy making may be important modalities to process the emotions associated with anticipatory grief. The study analyzed the illness blogs of five young women (aged 25-39 years) at the end-of-life using a narrative approach. Key ele...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2015.0003
更新日期:2015-12-01 00:00:00
abstract:: Background: Location of death (LOD) is an important aspect of end-of-life (EOL) care. Adolescents and young adults (YAs) with pediatric malignancies are increasingly treated in pediatric institutions. YAs, generally defined as 18-39 years old, deserve specific attention be...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2018.0123
更新日期:2019-08-01 00:00:00
abstract:PURPOSE:Photovoice is a novel and promising intervention for working with youth in healthcare settings. Despite this, few studies have examined the efficacy of photovoice as a clinical tool for working with teenagers who are on their cancer journey. To better understand the needs of teenagers with cancer and the ways t...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2017.0073
更新日期:2018-02-01 00:00:00
abstract:PURPOSE:Cancer-related fatigue in adults has been the subject of considerable recent research, confirming its importance as a common and debilitating symptom, and establishing a number of evidence-based interventions. There has, however, been limited focus on the fatigue suffered by teenagers and young adults with canc...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章,评审
doi:10.1089/jayao.2014.0023
更新日期:2015-03-01 00:00:00
abstract::This review explores the literature on experiences of young people (15-39 years) living with cancer from nonmetropolitan areas, given most available research has focused on those living in major metropolitan areas. The purpose of the review was to inform (a) clinical practice and (b) future research on young people li...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2019.0053
更新日期:2020-04-01 00:00:00
abstract:: Purpose: Testicular germ cell tumors (TGCT) are the most common solid organ malignancy in young men. It is a largely curable disease, so the extent to which it affects quality of life-including male fertility-is important. Abnormal semen analysis is highly predictive of ma...
journal_title:Journal of adolescent and young adult oncology
pub_type: 评审
doi:10.1089/jayao.2014.0012
更新日期:2014-12-01 00:00:00
abstract::This case study describes the use of patient-reported outcome (PRO) in conjunction with psychosocial treatment for an adolescent oncology patient presenting with comorbid mental health difficulties. A nine-session evidence-based cognitive-behavioral treatment was implemented and PROs were used to document progress. Re...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2017.0090
更新日期:2018-06-01 00:00:00
abstract::Adolescents and young adults (AYAs) 15-39 years old face unique challenges during cancer treatment as developmental and social needs are often disrupted to achieve cure. Developmentally appropriate supportive care for AYAs across the cancer trajectory is needed. The purpose of this review is to identify and describe i...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章,评审
doi:10.1089/jayao.2017.0127
更新日期:2018-06-01 00:00:00
abstract:PURPOSE:Orthotopic liver transplantation (OLT) is curative for hepatocellular carcinoma (HCC). HCC is typically a disease of older adults (OAs); therefore, characteristics and outcomes of OLT for young adults (YAs) (ages 18-40) are not described. The objective of this study was to assess the characteristics and outcome...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2016.0048
更新日期:2017-06-01 00:00:00
abstract::Delayed diagnosis due to lack of education may contribute to lack of improvement in adolescent and young adult (AYA) cancer survival. This program sought to educate trainees and AYAs in the community. The "Learning, Education, Awareness, Prevention (L.E.A.P) Young Adult Cancer" outreach program was developed to teach ...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2017.0060
更新日期:2018-02-01 00:00:00
abstract::Cancer-related knowledge among childhood cancer survivors (CCSs) has been underexplored. In particular, little is known about factors impacting knowledge of the need for lifelong follow-up care in CCSs. This secondary analysis of data examined acculturation, cancer-related knowledge, demographics, and clinical factors...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2018.0099
更新日期:2019-06-01 00:00:00
abstract:: Purpose: Survivors of cancer diagnosed during adolescence and young adulthood (AYA; aged 15-39) may experience quality of life (QOL) limitations; however, little is known about QOL for AYA survivors who are now middle-aged or among racial/ethnic minority survivors. We eval...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2013.0035
更新日期:2014-06-01 00:00:00
abstract:: Purpose: Cancer-related fatigue is a burdensome late effect of cancer treatment. A pilot study showed the effectiveness of cognitive-behavioral therapy (CBT) in fatigued survivors of childhood cancer (CCS). The aim of this study is to investigate whether the six cognitive-...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2020.0094
更新日期:2020-08-27 00:00:00
abstract:: Purpose: Childhood cancer survivors are at risk for impaired psychosocial functioning, but limited research has focused on psychosexual outcomes in young adulthood. This qualitative study examined the perceived impact of childhood cancer on adult survivors' romantic relati...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2019.0114
更新日期:2020-06-01 00:00:00
abstract::The inclusion of asparaginase in chemotherapy regimens to treat acute lymphoblastic leukemia (ALL) has had a positive impact on survival in pediatric patients. Historically, asparaginase has been excluded from most treatment protocols for adolescent and young adult (AYA) patients because of perceived toxicity in this ...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章,评审
doi:10.1089/jayao.2015.0014
更新日期:2015-09-01 00:00:00
abstract:: Purpose: Most evidence for the relationship between physical activity, nutrition education, and late effects from cancer treatment come from cross-sectional studies. The purpose of this pilot study was to determine if 8 weeks of exercise and nutrition education in adolesce...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2020.0116
更新日期:2020-09-14 00:00:00
abstract::Childhood cancer survivors (CCS) are at increased risk of subsequent malignant neoplasms (SMNs). However, the impact of SMNs on long-term psychosocial functioning is unknown. In a cohort of 322 young adult CCS, survivors who developed a SMN (n = 43, 13.4%) did not report a significantly higher burden of fatigue, insom...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2020.0046
更新日期:2020-08-14 00:00:00
abstract:PURPOSE:Hodgkin lymphoma (HL) is the commonest cancer in adolescents and young adults (AYAs), aged 15-29 years. While the survival rate is high, many survivors experience adverse late effects of therapy. Yet, this age group in general makes limited use of health services. This study sought to determine whether the need...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2015.0039
更新日期:2016-06-01 00:00:00
abstract:PURPOSE:Adolescents with cancer have unique developmental considerations. These include brain development, particularly in the frontal lobe, and a focus on completing education and entering the workforce. Cancer and treatment at this stage may prove to uniquely affect survivors' experience of cognitive and occupational...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2017.0043
更新日期:2018-02-01 00:00:00
abstract:PURPOSE:Young adult oncology has gained momentum in recognizing the unique medical and psychosocial needs of the population of adolescents and young adults with cancer (AYAC). However, many of their psychosocial needs remain unmet and we are yet to identify how clinical or research programs can be tailored to meet thes...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章,随机对照试验
doi:10.1089/jayao.2017.0101
更新日期:2019-04-01 00:00:00
abstract:PURPOSE:Patients with testicular seminoma may face fertility issues because of their underlying disease as well as treatments they undergo. The current patterns of practice among U.S. radiation oncologists aimed at assessing and preserving fertility in patients with Stage I seminoma are unknown. METHODS:We surveyed pr...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2017.0122
更新日期:2018-06-01 00:00:00
abstract::Adult hepatoblastoma (AHB) is a rare liver tumor with a poor prognosis in adolescents and adults. This contrasts with hepatoblastoma in children and is not fully understood. Here we describe two adolescents with AHB who were treated in our hospital. Adolescents are likely to receive less intensive chemotherapy protoco...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2017.0125
更新日期:2018-06-01 00:00:00
abstract:: Purpose: Young adults with cancer often experience stress, depression, and anxiety. Mindfulness meditation is an effective intervention for these outcomes, and maintenance support may be needed for long-term improvements. eHealth technologies provide a promising delivery s...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2020.0102
更新日期:2020-12-21 00:00:00