Cancer!? I Don't Have Time for That: Impact of a Psychosocial Intervention for Young Adults with Cancer.

abstract：: Background: Location of death (LOD) is an important aspect of end-of-life (EOL) care. Adolescents and young adults (YAs) with pediatric malignancies are increasingly treated in pediatric institutions. YAs, generally defined as 18-39 years old, deserve specific attention be...

journal_title：Journal of adolescent and young adult oncology

authors： Mark MSJ,Yang G,Ding L,Norris RE,Thienprayoon R

更新日期：2019-08-01 00:00:00

abstract：PURPOSE:Limited research exists on the social information needs of adolescents and young adults (AYAs, aged 15-39 at diagnosis) with cancer. METHODS:The Adolescent and Young Adult Health Outcomes and Patient Experiences (AYA HOPE) Study recruited 523 patients to complete surveys 6-14 months after cancer diagnosis. Par...

journal_title：Journal of adolescent and young adult oncology

authors： Kent EE,Smith AW,Keegan TH,Lynch CF,Wu XC,Hamilton AS,Kato I,Schwartz SM,Harlan LC

更新日期：2013-06-01 00:00:00

abstract：PURPOSE:Adolescents with cancer have unique developmental considerations. These include brain development, particularly in the frontal lobe, and a focus on completing education and entering the workforce. Cancer and treatment at this stage may prove to uniquely affect survivors' experience of cognitive and occupational...

journal_title：Journal of adolescent and young adult oncology

authors： Nugent BD,Bender CM,Sereika SM,Tersak JM,Rosenzweig M

更新日期：2018-02-01 00:00:00

abstract：:Infertility is often an expected side effect of cancer treatment, although the idea of fertility and sterility may be difficult for the child or adolescent patient to comprehend. Several established fertility preservation options exist for males and females, such as cryopreservation of sperm or embryos. Experimental t...

journal_title：Journal of adolescent and young adult oncology

authors： Knapp CA,Quinn GP,Murphy D

更新日期：2011-04-01 00:00:00

abstract：: Purpose: Rates of obesity and obesity-related health consequences, including type 2 diabetes (T2D) and cancer, continue to rise. While cancer patients are at an increased risk of developing T2D, the prevalence of T2D and insulin prescription among young patients with cance...

journal_title：Journal of adolescent and young adult oncology

authors： Holowatyj AN,Viskochil R,Ose D,Tingey B,Haaland B,Wilson D,Larson M,Feltz S,Lewis MA,Colman H,Ulrich CM

更新日期：2020-07-29 00:00:00

abstract：:Adolescents and young adults (AYAs) with cancer represent a unique group with unmet needs. Metrics and quality indicators are important for evaluating AYA cancer care. The purpose of this study is to describe the quality indicators in a Canadian context that are used for AYA (15-39 years of age) cancer care and contro...

journal_title：Journal of adolescent and young adult oncology

authors： Rae C,Shah N,De Pauw S,Costa A,Barr RD

更新日期：2020-02-01 00:00:00

abstract：: Purpose: Young adults with cancer often experience stress, depression, and anxiety. Mindfulness meditation is an effective intervention for these outcomes, and maintenance support may be needed for long-term improvements. eHealth technologies provide a promising delivery s...

journal_title：Journal of adolescent and young adult oncology

authors： Murphy KM,Burns J,Victorson D

更新日期：2020-12-21 00:00:00

abstract：PURPOSE:Young adult cancer survivors have a number of increased health and psychosocial risks. To minimize these risks, they must address any modifiable risk factors, for example increase their physical activity (PA) and reduce stress. Unfortunately, more than half of young survivors remain sedentary, and few participa...

journal_title：Journal of adolescent and young adult oncology

authors： Rabin C,Pinto B,Fava J

更新日期：2016-03-01 00:00:00

abstract：: Background: The increase in breast cancer (BC) cases in young women is of great importance since the tumor behavior in this group is generally more aggressive than in their older counterparts, and strategies for early diagnosis and prognostication are needed. Therefore, th...

journal_title：Journal of adolescent and young adult oncology

authors： Bocchi M,Pereira NS,Furuya RK,Fernandes CYM,Losi-Guembarovski R,Vitiello GAF,Amarante MK,Watanabe MAE

更新日期：2020-07-21 00:00:00

abstract：: Purpose: Cancer-related fatigue is a burdensome late effect of cancer treatment. A pilot study showed the effectiveness of cognitive-behavioral therapy (CBT) in fatigued survivors of childhood cancer (CCS). The aim of this study is to investigate whether the six cognitive-...

journal_title：Journal of adolescent and young adult oncology

authors： van Deuren S,van Dulmen-den Broeder E,Boonstra A,Gielissen M,Blijlevens N,Loonen J,Knoop H

更新日期：2020-08-27 00:00:00

abstract：:Communication plays an essential role in social relationships. Yet it is unclear how young cancer patients and survivors communicate with peers, and whether this contributes to increased rates of social difficulties. We aimed to analyze how childhood cancer patients and survivors communicate about their cancer with fa...

journal_title：Journal of adolescent and young adult oncology

authors： Janin MMH,Ellis SJ,Wakefield CE,Fardell JE

更新日期：2018-10-01 00:00:00

abstract：:Based on an increased appreciation of the unique challenges facing adolescents and young adults with cancer, there has been a coordinated national effort in Australia in recent years to address this issue. In 2007, CanTeen, a consumer support organization for young people with cancer, partnered with the Australian fed...

journal_title：Journal of adolescent and young adult oncology

authors： Osborn M,Little C,Bowering S,Orme L

更新日期：2013-09-01 00:00:00

abstract：PURPOSE:The aim of this study was to examine racial/ethnic disparities in the incidence rates and trends of soft tissue sarcoma (STS) by gender, age, and histological type among adolescents and young adults (AYAs) aged 15-29 years. METHODS:The 1995-2008 incidence data from 25 population-based cancer registries, coveri...

journal_title：Journal of adolescent and young adult oncology

authors： Hsieh MC,Wu XC,Andrews PA,Chen VW

更新日期：2013-09-01 00:00:00

abstract：PURPOSE:Surveillance for long-term complications related to previous cancer therapy can help diagnose/manage chronic health conditions in childhood cancer survivors and improve survivor quality of life. However, a challenge to delivering long-term care to childhood cancer survivors is loss to follow-up; many patients d...

journal_title：Journal of adolescent and young adult oncology

authors： Rokitka DA,Curtin C,Heffler JE,Zevon MA,Attwood K,Mahoney MC

更新日期：2017-03-01 00:00:00

abstract：: Purpose: Testicular germ cell tumors (TGCT) are the most common solid organ malignancy in young men. It is a largely curable disease, so the extent to which it affects quality of life-including male fertility-is important. Abnormal semen analysis is highly predictive of ma...

journal_title：Journal of adolescent and young adult oncology

authors： Djaladat H,Burner E,Parikh PM,Beroukhim Kay D,Hays K

更新日期：2014-12-01 00:00:00

abstract：: Introduction: Children and adolescents/young adults (AYAs) with cancer are a vulnerable population susceptible to numerous late effects, such as fatigue and depression, which may diminish their long-term psychological, physical, spiritual, and emotional health. A well-roun...

journal_title：Journal of adolescent and young adult oncology

authors： Wayant C,Manquen J,Wendelbo H,Kerr N,Crow M,Goodell J,Tricco AC,Mack JW,Hellman C,Vassar M

更新日期：2021-01-18 00:00:00

abstract：:This case study describes the use of patient-reported outcome (PRO) in conjunction with psychosocial treatment for an adolescent oncology patient presenting with comorbid mental health difficulties. A nine-session evidence-based cognitive-behavioral treatment was implemented and PROs were used to document progress. Re...

journal_title：Journal of adolescent and young adult oncology

authors： Racine NM,Lafay-Cousin L,Schulte F

更新日期：2018-06-01 00:00:00

abstract：: Purpose: Most evidence for the relationship between physical activity, nutrition education, and late effects from cancer treatment come from cross-sectional studies. The purpose of this pilot study was to determine if 8 weeks of exercise and nutrition education in adolesce...

journal_title：Journal of adolescent and young adult oncology

authors： DeNysschen CA,Panek-Shirley LM,Zimmerman B

更新日期：2020-09-14 00:00:00

abstract：PURPOSE:Cancer-related fatigue in adults has been the subject of considerable recent research, confirming its importance as a common and debilitating symptom, and establishing a number of evidence-based interventions. There has, however, been limited focus on the fatigue suffered by teenagers and young adults with canc...

journal_title：Journal of adolescent and young adult oncology

authors： Spathis A,Booth S,Grove S,Hatcher H,Kuhn I,Barclay S

更新日期：2015-03-01 00:00:00

abstract：:Radiation-induced phantosmia has been reported both in children and adults. A fraction of these patients have nausea and vomiting triggered by phantosmia. Radiation-induced phantosmia, although transient, can be distressing enough to prevent a patient from staying still during radiation therapy. To date, specific inte...

journal_title：Journal of adolescent and young adult oncology

authors： Raghavan KC,Camfield AS,Lucas J,Ismael Y,Rossi MG,Anghelescu DL

更新日期：2020-04-01 00:00:00

abstract：: Purpose: To explore and highlight the opportunities and challenges that underlie the development of survivorship care for adolescent and young adult cancer. Methods: A multimethod approach was used, with perspectives of survivo...

journal_title：Journal of adolescent and young adult oncology

authors： Baird H,Patterson P,Medlow S,Allison KR

更新日期：2019-10-01 00:00:00

abstract：:This paper describes the development of an institution-specific website designed to meet the supportive and emotional needs of young adults (18-39 years old) with cancer in the United States. The website contains information about topics of particular interest to young adults, coping skills education, and resources; a...

journal_title：Journal of adolescent and young adult oncology

authors： Fasciano KM,Souza PM,Braun I,Trevino K

更新日期：2015-03-01 00:00:00

abstract：PURPOSE:An insufficient transition to normal life after cancer treatment in adolescent and young adults (AYAs) may lead to decreased occupational and educational opportunities throughout a survivor's lifespan. Key informant interviews were used to access unique knowledge of the healthcare, educational, and social syste...

journal_title：Journal of adolescent and young adult oncology

authors： Pedersen KJ,Boisen KA,Midtgaard J,Elsbernd A,Larsen HB

更新日期：2018-08-01 00:00:00

abstract：PURPOSE:There is a growing interest in fertility preservation as emerging research is highlighting the prevalence of infertility among young cancer survivors and its negative impact on quality of life. Previous qualitative research has identified barriers of fertility preservation care among professionals. The aim of t...

journal_title：Journal of adolescent and young adult oncology

authors： Panagiotopoulou N,van Delft FW,Hale JP,Stewart JA

更新日期：2017-09-01 00:00:00

abstract：:Cancer-related knowledge among childhood cancer survivors (CCSs) has been underexplored. In particular, little is known about factors impacting knowledge of the need for lifelong follow-up care in CCSs. This secondary analysis of data examined acculturation, cancer-related knowledge, demographics, and clinical factors...

journal_title：Journal of adolescent and young adult oncology

authors： Sleight AG,Ramirez CN,Miller KA,Milam JE

更新日期：2019-06-01 00:00:00

abstract：: Purpose: About 30%-35% of nonmetastatic and 60%-80% of metastatic Ewing Sarcoma (ES) will relapse post-treatment and outcomes after relapse continue to be poor over last several decades. Prognostic factors affecting survival after relapse of ES are also not robustly known....

journal_title：Journal of adolescent and young adult oncology

authors： Vijayasekharan K,Ramanathan S,Chinnaswamy G,Prasad M,Gulia A,Janu A,Rekhi B,Ramadwar M,Khanna N,Laskar S,Puranadare N,Bajpai J,Puri A,Banavali S,Vora T

更新日期：2020-07-20 00:00:00

abstract：:Many adolescent female cancer patients will survive into their reproductive years. Pediatric oncologists are advised to discuss oncofertility during treatment planning. In this pilot study, 19 adolescent females completed a retrospective survey assessing recall of a fertility discussion, satisfaction with fertility kn...

journal_title：Journal of adolescent and young adult oncology

authors： Zarnegar S,Gosiengfiao Y,Rademaker A,Casey R,Albritton KH

更新日期：2018-04-01 00:00:00

abstract：:This review explores the literature on experiences of young people (15-39 years) living with cancer from nonmetropolitan areas, given most available research has focused on those living in major metropolitan areas. The purpose of the review was to inform (a) clinical practice and (b) future research on young people li...

journal_title：Journal of adolescent and young adult oncology

authors： Sariman JA,Harris NM,Harvey D,Sansom-Daly UM

更新日期：2020-04-01 00:00:00

abstract：:Fertility impairment and loss due to cancer or its treatment is a significant survivorship consideration for many pediatric, adolescent, and young adult cancer survivors. Chemotherapeutics, radiation, and surgery can impact the future fertility of men, women, and children with cancer. The field of oncofertility, found...

journal_title：Journal of adolescent and young adult oncology

authors： Waimey KE,Duncan FE,Su HI,Smith K,Wallach H,Jona K,Coutifaris C,Gracia CR,Shea LD,Brannigan RE,Chang RJ,Zelinski MB,Stouffer RL,Taylor RL,Woodruff TK

更新日期：2013-03-01 00:00:00

abstract：: Purpose: To evaluate the impact of a series of one-day events delivered by Trekstock, a charity supporting young adults with cancer in the United Kingdom. Methods: Data on physical activity, mood, perceived support, self-effica...

journal_title：Journal of adolescent and young adult oncology

authors： Pugh G,Petrella A,Fisher A,Reynolds J,Epstone S

更新日期：2020-04-01 00:00:00