Legacy Making Through Illness Blogs: Online Spaces for Young Adults Approaching the End-of-Life.

abstract：:Adult hepatoblastoma (AHB) is a rare liver tumor with a poor prognosis in adolescents and adults. This contrasts with hepatoblastoma in children and is not fully understood. Here we describe two adolescents with AHB who were treated in our hospital. Adolescents are likely to receive less intensive chemotherapy protoco...

journal_title：Journal of adolescent and young adult oncology

authors： de Bree K,Westermann AM,Klümpen HJ,Verheij J,Phoa SSKS,Oomen M,van Gulik TM

更新日期：2018-06-01 00:00:00

abstract：:Radiation-induced phantosmia has been reported both in children and adults. A fraction of these patients have nausea and vomiting triggered by phantosmia. Radiation-induced phantosmia, although transient, can be distressing enough to prevent a patient from staying still during radiation therapy. To date, specific inte...

journal_title：Journal of adolescent and young adult oncology

authors： Raghavan KC,Camfield AS,Lucas J,Ismael Y,Rossi MG,Anghelescu DL

更新日期：2020-04-01 00:00:00

abstract：: Purpose: Cancer-related fatigue is a burdensome late effect of cancer treatment. A pilot study showed the effectiveness of cognitive-behavioral therapy (CBT) in fatigued survivors of childhood cancer (CCS). The aim of this study is to investigate whether the six cognitive-...

journal_title：Journal of adolescent and young adult oncology

authors： van Deuren S,van Dulmen-den Broeder E,Boonstra A,Gielissen M,Blijlevens N,Loonen J,Knoop H

更新日期：2020-08-27 00:00:00

abstract：:This paper describes the development of an institution-specific website designed to meet the supportive and emotional needs of young adults (18-39 years old) with cancer in the United States. The website contains information about topics of particular interest to young adults, coping skills education, and resources; a...

journal_title：Journal of adolescent and young adult oncology

authors： Fasciano KM,Souza PM,Braun I,Trevino K

更新日期：2015-03-01 00:00:00

abstract：PURPOSE:Young adult oncology has gained momentum in recognizing the unique medical and psychosocial needs of the population of adolescents and young adults with cancer (AYAC). However, many of their psychosocial needs remain unmet and we are yet to identify how clinical or research programs can be tailored to meet thes...

journal_title：Journal of adolescent and young adult oncology

authors： Aubin S,Rosberger Z,Hafez N,Noory MR,Perez S,Lehmann S,Batist G,Kavan P

更新日期：2019-04-01 00:00:00

abstract：: Purpose: With an increasing focus on developing survivorship services tailored for adolescent and young adult (AYA) cancer survivors, incorporation of viewpoints from both survivors and health care professionals (HCPs) is important. This study aims to explore the perceptio...

journal_title：Journal of adolescent and young adult oncology

authors： Ke Y,Tan CJ,Ng T,Tan IMJ,Goh WL,Poon E,Farid M,Neo PSH,Srilatha B,Chan A

更新日期：2020-06-01 00:00:00

abstract：: Purpose: Childhood cancer survivors are at risk for impaired psychosocial functioning, but limited research has focused on psychosexual outcomes in young adulthood. This qualitative study examined the perceived impact of childhood cancer on adult survivors' romantic relati...

journal_title：Journal of adolescent and young adult oncology

authors： Nahata L,Morgan TL,Lipak KG,Olshefski RS,Gerhardt CA,Lehmann V

更新日期：2020-06-01 00:00:00

abstract：: Purpose: To evaluate the impact of a series of one-day events delivered by Trekstock, a charity supporting young adults with cancer in the United Kingdom. Methods: Data on physical activity, mood, perceived support, self-effica...

journal_title：Journal of adolescent and young adult oncology

authors： Pugh G,Petrella A,Fisher A,Reynolds J,Epstone S

更新日期：2020-04-01 00:00:00

abstract：:Based on an increased appreciation of the unique challenges facing adolescents and young adults with cancer, there has been a coordinated national effort in Australia in recent years to address this issue. In 2007, CanTeen, a consumer support organization for young people with cancer, partnered with the Australian fed...

journal_title：Journal of adolescent and young adult oncology

authors： Osborn M,Little C,Bowering S,Orme L

更新日期：2013-09-01 00:00:00

abstract：PURPOSE:To identify the utility and issues associated with the use of decision trees in oncofertility patient care in Japan. METHODS:A total of 35 women who had been diagnosed with cancer, but had not begun anticancer treatment, were enrolled. We applied the oncofertility decision tree for women published by Gardino e...

journal_title：Journal of adolescent and young adult oncology

authors： Ito Y,Shiraishi E,Kato A,Haino T,Sugimoto K,Okamoto A,Suzuki N

更新日期：2017-03-01 00:00:00

abstract：PURPOSE:Patients with testicular seminoma may face fertility issues because of their underlying disease as well as treatments they undergo. The current patterns of practice among U.S. radiation oncologists aimed at assessing and preserving fertility in patients with Stage I seminoma are unknown. METHODS:We surveyed pr...

journal_title：Journal of adolescent and young adult oncology

authors： Post CM,Jain A,Degnin C,Chen Y,Craycraft M,Hung AY,Jaboin JJ,Thomas CR Jr,Mitin T

更新日期：2018-06-01 00:00:00

abstract：:This case study describes the use of patient-reported outcome (PRO) in conjunction with psychosocial treatment for an adolescent oncology patient presenting with comorbid mental health difficulties. A nine-session evidence-based cognitive-behavioral treatment was implemented and PROs were used to document progress. Re...

journal_title：Journal of adolescent and young adult oncology

authors： Racine NM,Lafay-Cousin L,Schulte F

更新日期：2018-06-01 00:00:00

abstract：: Purpose: To explore and highlight the opportunities and challenges that underlie the development of survivorship care for adolescent and young adult cancer. Methods: A multimethod approach was used, with perspectives of survivo...

journal_title：Journal of adolescent and young adult oncology

authors： Baird H,Patterson P,Medlow S,Allison KR

更新日期：2019-10-01 00:00:00

abstract：: Purpose: Rates of obesity and obesity-related health consequences, including type 2 diabetes (T2D) and cancer, continue to rise. While cancer patients are at an increased risk of developing T2D, the prevalence of T2D and insulin prescription among young patients with cance...

journal_title：Journal of adolescent and young adult oncology

authors： Holowatyj AN,Viskochil R,Ose D,Tingey B,Haaland B,Wilson D,Larson M,Feltz S,Lewis MA,Colman H,Ulrich CM

更新日期：2020-07-29 00:00:00

abstract：:This review explores the literature on experiences of young people (15-39 years) living with cancer from nonmetropolitan areas, given most available research has focused on those living in major metropolitan areas. The purpose of the review was to inform (a) clinical practice and (b) future research on young people li...

journal_title：Journal of adolescent and young adult oncology

authors： Sariman JA,Harris NM,Harvey D,Sansom-Daly UM

更新日期：2020-04-01 00:00:00

abstract：: Purpose: Survivors of cancer diagnosed during adolescence and young adulthood (AYA; aged 15-39) may experience quality of life (QOL) limitations; however, little is known about QOL for AYA survivors who are now middle-aged or among racial/ethnic minority survivors. We eval...

journal_title：Journal of adolescent and young adult oncology

authors： Kirchhoff AC,Spraker-Perlman HL,McFadden M,Warner EL,Oeffinger KC,Wright J,Kinney AY

更新日期：2014-06-01 00:00:00

abstract：PURPOSE:Cancer is a significant health concern for adolescents and young adults (AYAs; aged 15-24 years). Monitoring population-level changes in incidence, mortality, and survival is complicated by the lack of published data presenting statistics separately for AYAs. This study synthesizes and reviews data on AYA cance...

journal_title：Journal of adolescent and young adult oncology

authors： Roder DM,Warr A,Patterson P,Allison KR

更新日期：2018-06-01 00:00:00

abstract：:Infertility is often an expected side effect of cancer treatment, although the idea of fertility and sterility may be difficult for the child or adolescent patient to comprehend. Several established fertility preservation options exist for males and females, such as cryopreservation of sperm or embryos. Experimental t...

journal_title：Journal of adolescent and young adult oncology

authors： Knapp CA,Quinn GP,Murphy D

更新日期：2011-04-01 00:00:00

abstract：:Cancer-related knowledge among childhood cancer survivors (CCSs) has been underexplored. In particular, little is known about factors impacting knowledge of the need for lifelong follow-up care in CCSs. This secondary analysis of data examined acculturation, cancer-related knowledge, demographics, and clinical factors...

journal_title：Journal of adolescent and young adult oncology

authors： Sleight AG,Ramirez CN,Miller KA,Milam JE

更新日期：2019-06-01 00:00:00

abstract：PURPOSE:There is a growing interest in fertility preservation as emerging research is highlighting the prevalence of infertility among young cancer survivors and its negative impact on quality of life. Previous qualitative research has identified barriers of fertility preservation care among professionals. The aim of t...

journal_title：Journal of adolescent and young adult oncology

authors： Panagiotopoulou N,van Delft FW,Hale JP,Stewart JA

更新日期：2017-09-01 00:00:00

abstract：:Fertility impairment and loss due to cancer or its treatment is a significant survivorship consideration for many pediatric, adolescent, and young adult cancer survivors. Chemotherapeutics, radiation, and surgery can impact the future fertility of men, women, and children with cancer. The field of oncofertility, found...

journal_title：Journal of adolescent and young adult oncology

authors： Waimey KE,Duncan FE,Su HI,Smith K,Wallach H,Jona K,Coutifaris C,Gracia CR,Shea LD,Brannigan RE,Chang RJ,Zelinski MB,Stouffer RL,Taylor RL,Woodruff TK

更新日期：2013-03-01 00:00:00

abstract：:Childhood cancer survivors (CCS) are at increased risk of subsequent malignant neoplasms (SMNs). However, the impact of SMNs on long-term psychosocial functioning is unknown. In a cohort of 322 young adult CCS, survivors who developed a SMN (n = 43, 13.4%) did not report a significantly higher burden of fatigue, insom...

journal_title：Journal of adolescent and young adult oncology

authors： Lu D,Kenney LB,Vrooman LM,Recklitis CJ

更新日期：2020-08-14 00:00:00

abstract：PURPOSE:Orthotopic liver transplantation (OLT) is curative for hepatocellular carcinoma (HCC). HCC is typically a disease of older adults (OAs); therefore, characteristics and outcomes of OLT for young adults (YAs) (ages 18-40) are not described. The objective of this study was to assess the characteristics and outcome...

journal_title：Journal of adolescent and young adult oncology

authors： Thomas SM,Moke D,Lopez R,Hanna R,Kabbany MN,Alkhouri N

更新日期：2017-06-01 00:00:00

abstract：PURPOSE:The aim of this study was to examine racial/ethnic disparities in the incidence rates and trends of soft tissue sarcoma (STS) by gender, age, and histological type among adolescents and young adults (AYAs) aged 15-29 years. METHODS:The 1995-2008 incidence data from 25 population-based cancer registries, coveri...

journal_title：Journal of adolescent and young adult oncology

authors： Hsieh MC,Wu XC,Andrews PA,Chen VW

更新日期：2013-09-01 00:00:00

abstract：PURPOSE:Cancer-related fatigue in adults has been the subject of considerable recent research, confirming its importance as a common and debilitating symptom, and establishing a number of evidence-based interventions. There has, however, been limited focus on the fatigue suffered by teenagers and young adults with canc...

journal_title：Journal of adolescent and young adult oncology

authors： Spathis A,Booth S,Grove S,Hatcher H,Kuhn I,Barclay S

更新日期：2015-03-01 00:00:00

abstract：PURPOSE:This study describes the prevalence of religious and/or spiritual (R/S) struggle in long-term young adult (YA) survivors following hematopoietic cell transplantation (HCT) as well as existential concerns (EC), social support, and demographic, medical, and emotional correlates of R/S struggle. METHODS:Data were...

journal_title：Journal of adolescent and young adult oncology

authors： King SDW,Fitchett G,Murphy PE,Rajaee G,Pargament KI,Loggers ET,Harrison DA,Johnson RH

更新日期：2018-04-01 00:00:00

abstract：:Hypogammaglobulinemia is a poorly described complication of chemotherapy in adolescents and young adults (AYAs, 15-39 years) with acute lymphoblastic leukemia (ALL). The majority of AYAs treated on a Berlin-Frankfurt-Munster-based ALL regimen experienced hypogammaglobulinemia (65.0% [13/20]). Febrile neutropenia episo...

journal_title：Journal of adolescent and young adult oncology

authors： Lange CS,Rahrig A,Althouse SK,Nelson RP,Batra S

更新日期：2020-12-01 00:00:00

abstract：: Purpose: Testicular germ cell tumors (TGCT) are the most common solid organ malignancy in young men. It is a largely curable disease, so the extent to which it affects quality of life-including male fertility-is important. Abnormal semen analysis is highly predictive of ma...

journal_title：Journal of adolescent and young adult oncology

authors： Djaladat H,Burner E,Parikh PM,Beroukhim Kay D,Hays K

更新日期：2014-12-01 00:00:00

abstract：:Following a presentation with abdominal pain, a 22-year-old female was diagnosed with a massive primary liver immature teratoma with evidence of omental and pelvic metastases. Despite chemotherapy, the teratoma continued to rapidly increase in size. Significant treatment-associated myelosuppression was challenging as ...

journal_title：Journal of adolescent and young adult oncology

authors： O'Reilly D,Alken S,Fiore B,Dooley L,Prior L,Hoti E,Fennelly D

更新日期：2020-02-01 00:00:00

abstract：PURPOSE:Young adult cancer survivors have a number of increased health and psychosocial risks. To minimize these risks, they must address any modifiable risk factors, for example increase their physical activity (PA) and reduce stress. Unfortunately, more than half of young survivors remain sedentary, and few participa...

journal_title：Journal of adolescent and young adult oncology

authors： Rabin C,Pinto B,Fava J

更新日期：2016-03-01 00:00:00