Understanding and Improving Survivorship Care for Adolescents and Young Adults with Cancer.

abstract：:Fertility impairment and loss due to cancer or its treatment is a significant survivorship consideration for many pediatric, adolescent, and young adult cancer survivors. Chemotherapeutics, radiation, and surgery can impact the future fertility of men, women, and children with cancer. The field of oncofertility, found...

journal_title：Journal of adolescent and young adult oncology

authors： Waimey KE,Duncan FE,Su HI,Smith K,Wallach H,Jona K,Coutifaris C,Gracia CR,Shea LD,Brannigan RE,Chang RJ,Zelinski MB,Stouffer RL,Taylor RL,Woodruff TK

更新日期：2013-03-01 00:00:00

abstract：PURPOSE:An insufficient transition to normal life after cancer treatment in adolescent and young adults (AYAs) may lead to decreased occupational and educational opportunities throughout a survivor's lifespan. Key informant interviews were used to access unique knowledge of the healthcare, educational, and social syste...

journal_title：Journal of adolescent and young adult oncology

authors： Pedersen KJ,Boisen KA,Midtgaard J,Elsbernd A,Larsen HB

更新日期：2018-08-01 00:00:00

abstract：:Many adolescent female cancer patients will survive into their reproductive years. Pediatric oncologists are advised to discuss oncofertility during treatment planning. In this pilot study, 19 adolescent females completed a retrospective survey assessing recall of a fertility discussion, satisfaction with fertility kn...

journal_title：Journal of adolescent and young adult oncology

authors： Zarnegar S,Gosiengfiao Y,Rademaker A,Casey R,Albritton KH

更新日期：2018-04-01 00:00:00

abstract：PURPOSE:Adolescents with cancer have unique developmental considerations. These include brain development, particularly in the frontal lobe, and a focus on completing education and entering the workforce. Cancer and treatment at this stage may prove to uniquely affect survivors' experience of cognitive and occupational...

journal_title：Journal of adolescent and young adult oncology

authors： Nugent BD,Bender CM,Sereika SM,Tersak JM,Rosenzweig M

更新日期：2018-02-01 00:00:00

abstract：:Adolescents and young adults (AYAs) with cancer represent a unique group with unmet needs. Metrics and quality indicators are important for evaluating AYA cancer care. The purpose of this study is to describe the quality indicators in a Canadian context that are used for AYA (15-39 years of age) cancer care and contro...

journal_title：Journal of adolescent and young adult oncology

authors： Rae C,Shah N,De Pauw S,Costa A,Barr RD

更新日期：2020-02-01 00:00:00

abstract：:The inclusion of asparaginase in chemotherapy regimens to treat acute lymphoblastic leukemia (ALL) has had a positive impact on survival in pediatric patients. Historically, asparaginase has been excluded from most treatment protocols for adolescent and young adult (AYA) patients because of perceived toxicity in this ...

journal_title：Journal of adolescent and young adult oncology

authors： Boissel N,Sender LS

更新日期：2015-09-01 00:00:00

abstract：:Following a presentation with abdominal pain, a 22-year-old female was diagnosed with a massive primary liver immature teratoma with evidence of omental and pelvic metastases. Despite chemotherapy, the teratoma continued to rapidly increase in size. Significant treatment-associated myelosuppression was challenging as ...

journal_title：Journal of adolescent and young adult oncology

authors： O'Reilly D,Alken S,Fiore B,Dooley L,Prior L,Hoti E,Fennelly D

更新日期：2020-02-01 00:00:00

abstract：PURPOSE:As a consequence of cancer treatment, many adolescents and young adults (AYA) patients are required to take leave or face setbacks from their education. While most AYA cancer survivors and survivors of childhood cancer are capable of successfully returning to the educational system, unsuccessful returns place A...

journal_title：Journal of adolescent and young adult oncology

authors： Elsbernd A,Pedersen KJ,Boisen KA,Midtgaard J,Larsen HB

更新日期：2018-10-01 00:00:00

abstract：:Based on an increased appreciation of the unique challenges facing adolescents and young adults with cancer, there has been a coordinated national effort in Australia in recent years to address this issue. In 2007, CanTeen, a consumer support organization for young people with cancer, partnered with the Australian fed...

journal_title：Journal of adolescent and young adult oncology

authors： Osborn M,Little C,Bowering S,Orme L

更新日期：2013-09-01 00:00:00

abstract：PURPOSE:To examine key factors related to adolescent cancer survivors' return to school after cancer treatment completion, which can be a time of complex transition. PATIENTS AND METHODS:Seventy semi-structured interviews were conducted with 19 adolescent cancer survivors (mean age 16.1 years), 21 mothers, 15 fathers,...

journal_title：Journal of adolescent and young adult oncology

authors： McLoone JK,Wakefield CE,Butow P,Fleming C,Cohn RJ

更新日期：2011-06-01 00:00:00

abstract：PURPOSE:Photovoice is a novel and promising intervention for working with youth in healthcare settings. Despite this, few studies have examined the efficacy of photovoice as a clinical tool for working with teenagers who are on their cancer journey. To better understand the needs of teenagers with cancer and the ways t...

journal_title：Journal of adolescent and young adult oncology

authors： Niepage M,Georgievski G,Shama W,Lucchetta S

更新日期：2018-02-01 00:00:00

abstract：PURPOSE:To identify the utility and issues associated with the use of decision trees in oncofertility patient care in Japan. METHODS:A total of 35 women who had been diagnosed with cancer, but had not begun anticancer treatment, were enrolled. We applied the oncofertility decision tree for women published by Gardino e...

journal_title：Journal of adolescent and young adult oncology

authors： Ito Y,Shiraishi E,Kato A,Haino T,Sugimoto K,Okamoto A,Suzuki N

更新日期：2017-03-01 00:00:00

abstract：:Adolescents and young adults (AYAs) 15-39 years old face unique challenges during cancer treatment as developmental and social needs are often disrupted to achieve cure. Developmentally appropriate supportive care for AYAs across the cancer trajectory is needed. The purpose of this review is to identify and describe i...

journal_title：Journal of adolescent and young adult oncology

authors： Bell CJ,Bell RA,Zebrack B,Kato I,Morse A,Borinstein SC

更新日期：2018-06-01 00:00:00

abstract：PURPOSE:Patients with testicular seminoma may face fertility issues because of their underlying disease as well as treatments they undergo. The current patterns of practice among U.S. radiation oncologists aimed at assessing and preserving fertility in patients with Stage I seminoma are unknown. METHODS:We surveyed pr...

journal_title：Journal of adolescent and young adult oncology

authors： Post CM,Jain A,Degnin C,Chen Y,Craycraft M,Hung AY,Jaboin JJ,Thomas CR Jr,Mitin T

更新日期：2018-06-01 00:00:00

abstract：: Purpose: Young adults with cancer often experience stress, depression, and anxiety. Mindfulness meditation is an effective intervention for these outcomes, and maintenance support may be needed for long-term improvements. eHealth technologies provide a promising delivery s...

journal_title：Journal of adolescent and young adult oncology

authors： Murphy KM,Burns J,Victorson D

更新日期：2020-12-21 00:00:00

abstract：: Purpose: With an increasing focus on developing survivorship services tailored for adolescent and young adult (AYA) cancer survivors, incorporation of viewpoints from both survivors and health care professionals (HCPs) is important. This study aims to explore the perceptio...

journal_title：Journal of adolescent and young adult oncology

authors： Ke Y,Tan CJ,Ng T,Tan IMJ,Goh WL,Poon E,Farid M,Neo PSH,Srilatha B,Chan A

更新日期：2020-06-01 00:00:00

abstract：:Delayed diagnosis due to lack of education may contribute to lack of improvement in adolescent and young adult (AYA) cancer survival. This program sought to educate trainees and AYAs in the community. The "Learning, Education, Awareness, Prevention (L.E.A.P) Young Adult Cancer" outreach program was developed to teach ...

journal_title：Journal of adolescent and young adult oncology

authors： Audino AN,Yeager ND

更新日期：2018-02-01 00:00:00

abstract：:Little is known about young adults with cancer at the end-of-life, but life review and legacy making may be important modalities to process the emotions associated with anticipatory grief. The study analyzed the illness blogs of five young women (aged 25-39 years) at the end-of-life using a narrative approach. Key ele...

journal_title：Journal of adolescent and young adult oncology

authors： Keim-Malpass J,Adelstein K,Kavalieratos D

更新日期：2015-12-01 00:00:00

abstract：PURPOSE:Orthotopic liver transplantation (OLT) is curative for hepatocellular carcinoma (HCC). HCC is typically a disease of older adults (OAs); therefore, characteristics and outcomes of OLT for young adults (YAs) (ages 18-40) are not described. The objective of this study was to assess the characteristics and outcome...

journal_title：Journal of adolescent and young adult oncology

authors： Thomas SM,Moke D,Lopez R,Hanna R,Kabbany MN,Alkhouri N

更新日期：2017-06-01 00:00:00

abstract：: Purpose: To evaluate the impact of a series of one-day events delivered by Trekstock, a charity supporting young adults with cancer in the United Kingdom. Methods: Data on physical activity, mood, perceived support, self-effica...

journal_title：Journal of adolescent and young adult oncology

authors： Pugh G,Petrella A,Fisher A,Reynolds J,Epstone S

更新日期：2020-04-01 00:00:00

abstract：: Purpose: Testicular germ cell tumors (TGCT) are the most common solid organ malignancy in young men. It is a largely curable disease, so the extent to which it affects quality of life-including male fertility-is important. Abnormal semen analysis is highly predictive of ma...

journal_title：Journal of adolescent and young adult oncology

authors： Djaladat H,Burner E,Parikh PM,Beroukhim Kay D,Hays K

更新日期：2014-12-01 00:00:00

abstract：: Purpose: Childhood cancer survivors are at risk for impaired psychosocial functioning, but limited research has focused on psychosexual outcomes in young adulthood. This qualitative study examined the perceived impact of childhood cancer on adult survivors' romantic relati...

journal_title：Journal of adolescent and young adult oncology

authors： Nahata L,Morgan TL,Lipak KG,Olshefski RS,Gerhardt CA,Lehmann V

更新日期：2020-06-01 00:00:00

abstract：: Purpose: Survivors of cancer diagnosed during adolescence and young adulthood (AYA; aged 15-39) may experience quality of life (QOL) limitations; however, little is known about QOL for AYA survivors who are now middle-aged or among racial/ethnic minority survivors. We eval...

journal_title：Journal of adolescent and young adult oncology

authors： Kirchhoff AC,Spraker-Perlman HL,McFadden M,Warner EL,Oeffinger KC,Wright J,Kinney AY

更新日期：2014-06-01 00:00:00

abstract：PURPOSE:Young adult cancer survivors have a number of increased health and psychosocial risks. To minimize these risks, they must address any modifiable risk factors, for example increase their physical activity (PA) and reduce stress. Unfortunately, more than half of young survivors remain sedentary, and few participa...

journal_title：Journal of adolescent and young adult oncology

authors： Rabin C,Pinto B,Fava J

更新日期：2016-03-01 00:00:00

abstract：PURPOSE:Cancer-related fatigue in adults has been the subject of considerable recent research, confirming its importance as a common and debilitating symptom, and establishing a number of evidence-based interventions. There has, however, been limited focus on the fatigue suffered by teenagers and young adults with canc...

journal_title：Journal of adolescent and young adult oncology

authors： Spathis A,Booth S,Grove S,Hatcher H,Kuhn I,Barclay S

更新日期：2015-03-01 00:00:00

abstract：: Purpose: Cancer-related fatigue is a burdensome late effect of cancer treatment. A pilot study showed the effectiveness of cognitive-behavioral therapy (CBT) in fatigued survivors of childhood cancer (CCS). The aim of this study is to investigate whether the six cognitive-...

journal_title：Journal of adolescent and young adult oncology

authors： van Deuren S,van Dulmen-den Broeder E,Boonstra A,Gielissen M,Blijlevens N,Loonen J,Knoop H

更新日期：2020-08-27 00:00:00

abstract：:This case study describes the use of patient-reported outcome (PRO) in conjunction with psychosocial treatment for an adolescent oncology patient presenting with comorbid mental health difficulties. A nine-session evidence-based cognitive-behavioral treatment was implemented and PROs were used to document progress. Re...

journal_title：Journal of adolescent and young adult oncology

authors： Racine NM,Lafay-Cousin L,Schulte F

更新日期：2018-06-01 00:00:00

abstract：: Purpose: This study describes the prevalence trends of electronic cigarette (e-cigarette) use in young adult cancer survivors and compares these to the prevalence among young adults without a cancer history. It also examines the association between conventional cigarette u...

journal_title：Journal of adolescent and young adult oncology

authors： Jackson I,Osaghae I,Etuk A,Jackson N

更新日期：2020-09-30 00:00:00

abstract：PURPOSE:Surveillance for long-term complications related to previous cancer therapy can help diagnose/manage chronic health conditions in childhood cancer survivors and improve survivor quality of life. However, a challenge to delivering long-term care to childhood cancer survivors is loss to follow-up; many patients d...

journal_title：Journal of adolescent and young adult oncology

authors： Rokitka DA,Curtin C,Heffler JE,Zevon MA,Attwood K,Mahoney MC

更新日期：2017-03-01 00:00:00

abstract：: Purpose: Rates of obesity and obesity-related health consequences, including type 2 diabetes (T2D) and cancer, continue to rise. While cancer patients are at an increased risk of developing T2D, the prevalence of T2D and insulin prescription among young patients with cance...

journal_title：Journal of adolescent and young adult oncology

authors： Holowatyj AN,Viskochil R,Ose D,Tingey B,Haaland B,Wilson D,Larson M,Feltz S,Lewis MA,Colman H,Ulrich CM

更新日期：2020-07-29 00:00:00