Recall of Fertility Discussion by Adolescent Female Cancer Patients: A Survey-Based Pilot Study.

Abstract:

:Many adolescent female cancer patients will survive into their reproductive years. Pediatric oncologists are advised to discuss oncofertility during treatment planning. In this pilot study, 19 adolescent females completed a retrospective survey assessing recall of a fertility discussion, satisfaction with fertility knowledge, and multiple factors that may influence recall, including parental involvement in decision-making. Eleven respondents (58%) remembered a discussion about infertility risk and 9 (47%) about fertility preservation. Most who recalled a discussion were satisfied with their fertility knowledge (10/11, 90.9%). In this study, we validated the feasibility of survey administration and identified trends in oncofertility counseling at our center.

authors

Zarnegar S,Gosiengfiao Y,Rademaker A,Casey R,Albritton KH

doi

10.1089/jayao.2017.0079

subject

Has Abstract

pub_date

2018-04-01 00:00:00

pages

249-253

issue

2

eissn

2156-5333

issn

2156-535X

journal_volume

7

pub_type

杂志文章
  • Prevalence and Factors Associated with Electronic Cigarette Use Among Young Adult Cancer Survivors Using Behavioral Risk Factor Surveillance System, 2016-2018.

    abstract:: Purpose: This study describes the prevalence trends of electronic cigarette (e-cigarette) use in young adult cancer survivors and compares these to the prevalence among young adults without a cancer history. It also examines the association between conventional cigarette u...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2020.0104

    authors: Jackson I,Osaghae I,Etuk A,Jackson N

    更新日期:2020-09-30 00:00:00

  • Optimizing Survivorship Care Services for Asian Adolescent and Young Adult Cancer Survivors: A Qualitative Study.

    abstract:: Purpose: With an increasing focus on developing survivorship services tailored for adolescent and young adult (AYA) cancer survivors, incorporation of viewpoints from both survivors and health care professionals (HCPs) is important. This study aims to explore the perceptio...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2019.0145

    authors: Ke Y,Tan CJ,Ng T,Tan IMJ,Goh WL,Poon E,Farid M,Neo PSH,Srilatha B,Chan A

    更新日期:2020-06-01 00:00:00

  • Talking About Cancer and Meeting Peer Survivors: Social Information Needs of Adolescents and Young Adults Diagnosed with Cancer.

    abstract:PURPOSE:Limited research exists on the social information needs of adolescents and young adults (AYAs, aged 15-39 at diagnosis) with cancer. METHODS:The Adolescent and Young Adult Health Outcomes and Patient Experiences (AYA HOPE) Study recruited 523 patients to complete surveys 6-14 months after cancer diagnosis. Par...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2012.0029

    authors: Kent EE,Smith AW,Keegan TH,Lynch CF,Wu XC,Hamilton AS,Kato I,Schwartz SM,Harlan LC

    更新日期:2013-06-01 00:00:00

  • Returning to School After Adolescent Cancer: A Qualitative Examination of Australian Survivors' and Their Families' Perspectives.

    abstract:PURPOSE:To examine key factors related to adolescent cancer survivors' return to school after cancer treatment completion, which can be a time of complex transition. PATIENTS AND METHODS:Seventy semi-structured interviews were conducted with 19 adolescent cancer survivors (mean age 16.1 years), 21 mothers, 15 fathers,...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2011.0006

    authors: McLoone JK,Wakefield CE,Butow P,Fleming C,Cohn RJ

    更新日期:2011-06-01 00:00:00

  • Identification of Evidence for Key Positive Psychological Constructs in Pediatric and Adolescent/Young Adult Patients with Cancer: A Scoping Review.

    abstract:: Introduction: Children and adolescents/young adults (AYAs) with cancer are a vulnerable population susceptible to numerous late effects, such as fatigue and depression, which may diminish their long-term psychological, physical, spiritual, and emotional health. A well-roun...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2020.0184

    authors: Wayant C,Manquen J,Wendelbo H,Kerr N,Crow M,Goodell J,Tricco AC,Mack JW,Hellman C,Vassar M

    更新日期:2021-01-18 00:00:00

  • Facing the Maze: Young Cancer Survivors' Return to Education and Work-A Professional Expert Key Informant Study.

    abstract:PURPOSE:An insufficient transition to normal life after cancer treatment in adolescent and young adults (AYAs) may lead to decreased occupational and educational opportunities throughout a survivor's lifespan. Key informant interviews were used to access unique knowledge of the healthcare, educational, and social syste...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2017.0128

    authors: Pedersen KJ,Boisen KA,Midtgaard J,Elsbernd A,Larsen HB

    更新日期:2018-08-01 00:00:00

  • Australian Adolescents and Young Adults-Trends in Cancer Incidence, Mortality, and Survival Over Three Decades.

    abstract:PURPOSE:Cancer is a significant health concern for adolescents and young adults (AYAs; aged 15-24 years). Monitoring population-level changes in incidence, mortality, and survival is complicated by the lack of published data presenting statistics separately for AYAs. This study synthesizes and reviews data on AYA cance...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2017.0095

    authors: Roder DM,Warr A,Patterson P,Allison KR

    更新日期:2018-06-01 00:00:00

  • Patient-Reported Outcomes in Psychological Treatment for an Adolescent Oncology Patient: A Case Report.

    abstract::This case study describes the use of patient-reported outcome (PRO) in conjunction with psychosocial treatment for an adolescent oncology patient presenting with comorbid mental health difficulties. A nine-session evidence-based cognitive-behavioral treatment was implemented and PROs were used to document progress. Re...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2017.0090

    authors: Racine NM,Lafay-Cousin L,Schulte F

    更新日期:2018-06-01 00:00:00

  • Patterns of Loss to Follow-Up Care Among Childhood Cancer Survivors.

    abstract:PURPOSE:Surveillance for long-term complications related to previous cancer therapy can help diagnose/manage chronic health conditions in childhood cancer survivors and improve survivor quality of life. However, a challenge to delivering long-term care to childhood cancer survivors is loss to follow-up; many patients d...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2016.0023

    authors: Rokitka DA,Curtin C,Heffler JE,Zevon MA,Attwood K,Mahoney MC

    更新日期:2017-03-01 00:00:00

  • Cognitive and Occupational Function in Survivors of Adolescent Cancer.

    abstract:PURPOSE:Adolescents with cancer have unique developmental considerations. These include brain development, particularly in the frontal lobe, and a focus on completing education and entering the workforce. Cancer and treatment at this stage may prove to uniquely affect survivors' experience of cognitive and occupational...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2017.0043

    authors: Nugent BD,Bender CM,Sereika SM,Tersak JM,Rosenzweig M

    更新日期:2018-02-01 00:00:00

  • Diabetes, Body Fatness, and Insulin Prescription Among Adolescents and Young Adults with Cancer.

    abstract:: Purpose: Rates of obesity and obesity-related health consequences, including type 2 diabetes (T2D) and cancer, continue to rise. While cancer patients are at an increased risk of developing T2D, the prevalence of T2D and insulin prescription among young patients with cance...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2020.0071

    authors: Holowatyj AN,Viskochil R,Ose D,Tingey B,Haaland B,Wilson D,Larson M,Feltz S,Lewis MA,Colman H,Ulrich CM

    更新日期:2020-07-29 00:00:00

  • Growing Teratoma Syndrome of the Liver in a 22-Year-Old Female.

    abstract::Following a presentation with abdominal pain, a 22-year-old female was diagnosed with a massive primary liver immature teratoma with evidence of omental and pelvic metastases. Despite chemotherapy, the teratoma continued to rapidly increase in size. Significant treatment-associated myelosuppression was challenging as ...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2019.0081

    authors: O'Reilly D,Alken S,Fiore B,Dooley L,Prior L,Hoti E,Fennelly D

    更新日期:2020-02-01 00:00:00

  • Trekstock Meet & Move: The Impact of One-Day Health and Well-Being Events for Young Adults with Cancer.

    abstract:: Purpose: To evaluate the impact of a series of one-day events delivered by Trekstock, a charity supporting young adults with cancer in the United Kingdom. Methods: Data on physical activity, mood, perceived support, self-effica...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2019.0108

    authors: Pugh G,Petrella A,Fisher A,Reynolds J,Epstone S

    更新日期:2020-04-01 00:00:00

  • Liver Transplantation for Hepatocellular Carcinoma in Young Adults: A United Network for Organ Sharing Study.

    abstract:PURPOSE:Orthotopic liver transplantation (OLT) is curative for hepatocellular carcinoma (HCC). HCC is typically a disease of older adults (OAs); therefore, characteristics and outcomes of OLT for young adults (YAs) (ages 18-40) are not described. The objective of this study was to assess the characteristics and outcome...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2016.0048

    authors: Thomas SM,Moke D,Lopez R,Hanna R,Kabbany MN,Alkhouri N

    更新日期:2017-06-01 00:00:00

  • Experiences of Young People Living with Cancer in Nonmetropolitan Areas: A Review of the Literature.

    abstract::This review explores the literature on experiences of young people (15-39 years) living with cancer from nonmetropolitan areas, given most available research has focused on those living in major metropolitan areas. The purpose of the review was to inform (a) clinical practice and (b) future research on young people li...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2019.0053

    authors: Sariman JA,Harris NM,Harvey D,Sansom-Daly UM

    更新日期:2020-04-01 00:00:00

  • Legacy Making Through Illness Blogs: Online Spaces for Young Adults Approaching the End-of-Life.

    abstract::Little is known about young adults with cancer at the end-of-life, but life review and legacy making may be important modalities to process the emotions associated with anticipatory grief. The study analyzed the illness blogs of five young women (aged 25-39 years) at the end-of-life using a narrative approach. Key ele...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2015.0003

    authors: Keim-Malpass J,Adelstein K,Kavalieratos D

    更新日期:2015-12-01 00:00:00

  • Cancer!? I Don't Have Time for That: Impact of a Psychosocial Intervention for Young Adults with Cancer.

    abstract:PURPOSE:Young adult oncology has gained momentum in recognizing the unique medical and psychosocial needs of the population of adolescents and young adults with cancer (AYAC). However, many of their psychosocial needs remain unmet and we are yet to identify how clinical or research programs can be tailored to meet thes...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章,随机对照试验

    doi:10.1089/jayao.2017.0101

    authors: Aubin S,Rosberger Z,Hafez N,Noory MR,Perez S,Lehmann S,Batist G,Kavan P

    更新日期:2019-04-01 00:00:00

  • Teenage and Young Adult Cancer-Related Fatigue Is Prevalent, Distressing, and Neglected: It Is Time to Intervene. A Systematic Literature Review and Narrative Synthesis.

    abstract:PURPOSE:Cancer-related fatigue in adults has been the subject of considerable recent research, confirming its importance as a common and debilitating symptom, and establishing a number of evidence-based interventions. There has, however, been limited focus on the fatigue suffered by teenagers and young adults with canc...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章,评审

    doi:10.1089/jayao.2014.0023

    authors: Spathis A,Booth S,Grove S,Hatcher H,Kuhn I,Barclay S

    更新日期:2015-03-01 00:00:00

  • Racial and Ethnic Disparities in the Incidence and Trends of Soft Tissue Sarcoma Among Adolescents and Young Adults in the United States, 1995-2008.

    abstract:PURPOSE:The aim of this study was to examine racial/ethnic disparities in the incidence rates and trends of soft tissue sarcoma (STS) by gender, age, and histological type among adolescents and young adults (AYAs) aged 15-29 years. METHODS:The 1995-2008 incidence data from 25 population-based cancer registries, coveri...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2012.0031

    authors: Hsieh MC,Wu XC,Andrews PA,Chen VW

    更新日期:2013-09-01 00:00:00

  • Future Directions in Oncofertility and Fertility Preservation: A Report from the 2011 Oncofertility Consortium Conference.

    abstract::Fertility impairment and loss due to cancer or its treatment is a significant survivorship consideration for many pediatric, adolescent, and young adult cancer survivors. Chemotherapeutics, radiation, and surgery can impact the future fertility of men, women, and children with cancer. The field of oncofertility, found...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2012.0035

    authors: Waimey KE,Duncan FE,Su HI,Smith K,Wallach H,Jona K,Coutifaris C,Gracia CR,Shea LD,Brannigan RE,Chang RJ,Zelinski MB,Stouffer RL,Taylor RL,Woodruff TK

    更新日期:2013-03-01 00:00:00

  • Hispanic Orientation and Cancer-Related Knowledge in Childhood Cancer Survivors.

    abstract::Cancer-related knowledge among childhood cancer survivors (CCSs) has been underexplored. In particular, little is known about factors impacting knowledge of the need for lifelong follow-up care in CCSs. This secondary analysis of data examined acculturation, cancer-related knowledge, demographics, and clinical factors...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2018.0099

    authors: Sleight AG,Ramirez CN,Miller KA,Milam JE

    更新日期:2019-06-01 00:00:00

  • Sociodemographic Disparities in Quality of Life for Survivors of Adolescent and Young Adult Cancers in the Behavioral Risk Factor Surveillance System.

    abstract:: Purpose: Survivors of cancer diagnosed during adolescence and young adulthood (AYA; aged 15-39) may experience quality of life (QOL) limitations; however, little is known about QOL for AYA survivors who are now middle-aged or among racial/ethnic minority survivors. We eval...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2013.0035

    authors: Kirchhoff AC,Spraker-Perlman HL,McFadden M,Warner EL,Oeffinger KC,Wright J,Kinney AY

    更新日期:2014-06-01 00:00:00

  • Romantic Relationships and Physical Intimacy Among Survivors of Childhood Cancer.

    abstract:: Purpose: Childhood cancer survivors are at risk for impaired psychosocial functioning, but limited research has focused on psychosexual outcomes in young adulthood. This qualitative study examined the perceived impact of childhood cancer on adult survivors' romantic relati...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2019.0114

    authors: Nahata L,Morgan TL,Lipak KG,Olshefski RS,Gerhardt CA,Lehmann V

    更新日期:2020-06-01 00:00:00

  • Measuring Development of Adolescent and Young Adult Cancer Patients: An Integrative Review of Available Instruments.

    abstract::Adolescents and young adults (AYAs) 15-39 years old face unique challenges during cancer treatment as developmental and social needs are often disrupted to achieve cure. Developmentally appropriate supportive care for AYAs across the cancer trajectory is needed. The purpose of this review is to identify and describe i...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章,评审

    doi:10.1089/jayao.2017.0127

    authors: Bell CJ,Bell RA,Zebrack B,Kato I,Morse A,Borinstein SC

    更新日期:2018-06-01 00:00:00

  • Understanding and Improving Survivorship Care for Adolescents and Young Adults with Cancer.

    abstract:: Purpose: To explore and highlight the opportunities and challenges that underlie the development of survivorship care for adolescent and young adult cancer. Methods: A multimethod approach was used, with perspectives of survivo...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2019.0031

    authors: Baird H,Patterson P,Medlow S,Allison KR

    更新日期:2019-10-01 00:00:00

  • Religious/Spiritual Struggle in Young Adult Hematopoietic Cell Transplant Survivors.

    abstract:PURPOSE:This study describes the prevalence of religious and/or spiritual (R/S) struggle in long-term young adult (YA) survivors following hematopoietic cell transplantation (HCT) as well as existential concerns (EC), social support, and demographic, medical, and emotional correlates of R/S struggle. METHODS:Data were...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2017.0069

    authors: King SDW,Fitchett G,Murphy PE,Rajaee G,Pargament KI,Loggers ET,Harrison DA,Johnson RH

    更新日期:2018-04-01 00:00:00

  • High Response Rates and Promising Outcomes of Patients with Relapsed Ewing Sarcoma, Especially in Adolescents and Young Adults Treated on a Novel Hybrid Salvage Chemotherapy Regimen.

    abstract:: Purpose: About 30%-35% of nonmetastatic and 60%-80% of metastatic Ewing Sarcoma (ES) will relapse post-treatment and outcomes after relapse continue to be poor over last several decades. Prognostic factors affecting survival after relapse of ES are also not robustly known....

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2020.0016

    authors: Vijayasekharan K,Ramanathan S,Chinnaswamy G,Prasad M,Gulia A,Janu A,Rekhi B,Ramadwar M,Khanna N,Laskar S,Puranadare N,Bajpai J,Puri A,Banavali S,Vora T

    更新日期:2020-07-20 00:00:00

  • Fertility Preservation Care for Children and Adolescents with Cancer: An Inquiry to Quantify Professionals' Barriers.

    abstract:PURPOSE:There is a growing interest in fertility preservation as emerging research is highlighting the prevalence of infertility among young cancer survivors and its negative impact on quality of life. Previous qualitative research has identified barriers of fertility preservation care among professionals. The aim of t...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2016.0087

    authors: Panagiotopoulou N,van Delft FW,Hale JP,Stewart JA

    更新日期:2017-09-01 00:00:00

  • System Performance Indicators for Adolescent and Young Adult Cancer Care and Control: A Scoping Review.

    abstract::Adolescents and young adults (AYAs) with cancer represent a unique group with unmet needs. Metrics and quality indicators are important for evaluating AYA cancer care. The purpose of this study is to describe the quality indicators in a Canadian context that are used for AYA (15-39 years of age) cancer care and contro...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2019.0069

    authors: Rae C,Shah N,De Pauw S,Costa A,Barr RD

    更新日期:2020-02-01 00:00:00

  • Consider the Source: Examining Attrition Rates, Response Rates, and Preliminary Effects of eHealth Mindfulness Messages and Delivery Framing in a Randomized Trial with Young Adult Cancer Survivors.

    abstract:: Purpose: Young adults with cancer often experience stress, depression, and anxiety. Mindfulness meditation is an effective intervention for these outcomes, and maintenance support may be needed for long-term improvements. eHealth technologies provide a promising delivery s...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章

    doi:10.1089/jayao.2020.0102

    authors: Murphy KM,Burns J,Victorson D

    更新日期:2020-12-21 00:00:00