Measuring Development of Adolescent and Young Adult Cancer Patients: An Integrative Review of Available Instruments.

abstract：PURPOSE:Photovoice is a novel and promising intervention for working with youth in healthcare settings. Despite this, few studies have examined the efficacy of photovoice as a clinical tool for working with teenagers who are on their cancer journey. To better understand the needs of teenagers with cancer and the ways t...

journal_title：Journal of adolescent and young adult oncology

authors： Niepage M,Georgievski G,Shama W,Lucchetta S

更新日期：2018-02-01 00:00:00

abstract：: Purpose: To evaluate the impact of a series of one-day events delivered by Trekstock, a charity supporting young adults with cancer in the United Kingdom. Methods: Data on physical activity, mood, perceived support, self-effica...

journal_title：Journal of adolescent and young adult oncology

authors： Pugh G,Petrella A,Fisher A,Reynolds J,Epstone S

更新日期：2020-04-01 00:00:00

abstract：: Purpose: Testicular germ cell tumors (TGCT) are the most common solid organ malignancy in young men. It is a largely curable disease, so the extent to which it affects quality of life-including male fertility-is important. Abnormal semen analysis is highly predictive of ma...

journal_title：Journal of adolescent and young adult oncology

authors： Djaladat H,Burner E,Parikh PM,Beroukhim Kay D,Hays K

更新日期：2014-12-01 00:00:00

abstract：:Based on an increased appreciation of the unique challenges facing adolescents and young adults with cancer, there has been a coordinated national effort in Australia in recent years to address this issue. In 2007, CanTeen, a consumer support organization for young people with cancer, partnered with the Australian fed...

journal_title：Journal of adolescent and young adult oncology

authors： Osborn M,Little C,Bowering S,Orme L

更新日期：2013-09-01 00:00:00

abstract：: Purpose: This study describes the prevalence trends of electronic cigarette (e-cigarette) use in young adult cancer survivors and compares these to the prevalence among young adults without a cancer history. It also examines the association between conventional cigarette u...

journal_title：Journal of adolescent and young adult oncology

authors： Jackson I,Osaghae I,Etuk A,Jackson N

更新日期：2020-09-30 00:00:00

abstract：: Purpose: To explore and highlight the opportunities and challenges that underlie the development of survivorship care for adolescent and young adult cancer. Methods: A multimethod approach was used, with perspectives of survivo...

journal_title：Journal of adolescent and young adult oncology

authors： Baird H,Patterson P,Medlow S,Allison KR

更新日期：2019-10-01 00:00:00

abstract：:Many adolescent female cancer patients will survive into their reproductive years. Pediatric oncologists are advised to discuss oncofertility during treatment planning. In this pilot study, 19 adolescent females completed a retrospective survey assessing recall of a fertility discussion, satisfaction with fertility kn...

journal_title：Journal of adolescent and young adult oncology

authors： Zarnegar S,Gosiengfiao Y,Rademaker A,Casey R,Albritton KH

更新日期：2018-04-01 00:00:00

abstract：: Background: Location of death (LOD) is an important aspect of end-of-life (EOL) care. Adolescents and young adults (YAs) with pediatric malignancies are increasingly treated in pediatric institutions. YAs, generally defined as 18-39 years old, deserve specific attention be...

journal_title：Journal of adolescent and young adult oncology

authors： Mark MSJ,Yang G,Ding L,Norris RE,Thienprayoon R

更新日期：2019-08-01 00:00:00

abstract：: Purpose: With an increasing focus on developing survivorship services tailored for adolescent and young adult (AYA) cancer survivors, incorporation of viewpoints from both survivors and health care professionals (HCPs) is important. This study aims to explore the perceptio...

journal_title：Journal of adolescent and young adult oncology

authors： Ke Y,Tan CJ,Ng T,Tan IMJ,Goh WL,Poon E,Farid M,Neo PSH,Srilatha B,Chan A

更新日期：2020-06-01 00:00:00

abstract：PURPOSE:As a consequence of cancer treatment, many adolescents and young adults (AYA) patients are required to take leave or face setbacks from their education. While most AYA cancer survivors and survivors of childhood cancer are capable of successfully returning to the educational system, unsuccessful returns place A...

journal_title：Journal of adolescent and young adult oncology

authors： Elsbernd A,Pedersen KJ,Boisen KA,Midtgaard J,Larsen HB

更新日期：2018-10-01 00:00:00

abstract：:Adult hepatoblastoma (AHB) is a rare liver tumor with a poor prognosis in adolescents and adults. This contrasts with hepatoblastoma in children and is not fully understood. Here we describe two adolescents with AHB who were treated in our hospital. Adolescents are likely to receive less intensive chemotherapy protoco...

journal_title：Journal of adolescent and young adult oncology

authors： de Bree K,Westermann AM,Klümpen HJ,Verheij J,Phoa SSKS,Oomen M,van Gulik TM

更新日期：2018-06-01 00:00:00

abstract：:Little is known about young adults with cancer at the end-of-life, but life review and legacy making may be important modalities to process the emotions associated with anticipatory grief. The study analyzed the illness blogs of five young women (aged 25-39 years) at the end-of-life using a narrative approach. Key ele...

journal_title：Journal of adolescent and young adult oncology

authors： Keim-Malpass J,Adelstein K,Kavalieratos D

更新日期：2015-12-01 00:00:00

abstract：PURPOSE:Hodgkin lymphoma (HL) is the commonest cancer in adolescents and young adults (AYAs), aged 15-29 years. While the survival rate is high, many survivors experience adverse late effects of therapy. Yet, this age group in general makes limited use of health services. This study sought to determine whether the need...

journal_title：Journal of adolescent and young adult oncology

authors： Rae C,Benger A,Fowler JA,MacEachern J,Pullenayegum E,Stryker M,Barr RD

更新日期：2016-06-01 00:00:00

abstract：: Purpose: Most evidence for the relationship between physical activity, nutrition education, and late effects from cancer treatment come from cross-sectional studies. The purpose of this pilot study was to determine if 8 weeks of exercise and nutrition education in adolesce...

journal_title：Journal of adolescent and young adult oncology

authors： DeNysschen CA,Panek-Shirley LM,Zimmerman B

更新日期：2020-09-14 00:00:00

abstract：:Cancer-related knowledge among childhood cancer survivors (CCSs) has been underexplored. In particular, little is known about factors impacting knowledge of the need for lifelong follow-up care in CCSs. This secondary analysis of data examined acculturation, cancer-related knowledge, demographics, and clinical factors...

journal_title：Journal of adolescent and young adult oncology

authors： Sleight AG,Ramirez CN,Miller KA,Milam JE

更新日期：2019-06-01 00:00:00

abstract：:Hypogammaglobulinemia is a poorly described complication of chemotherapy in adolescents and young adults (AYAs, 15-39 years) with acute lymphoblastic leukemia (ALL). The majority of AYAs treated on a Berlin-Frankfurt-Munster-based ALL regimen experienced hypogammaglobulinemia (65.0% [13/20]). Febrile neutropenia episo...

journal_title：Journal of adolescent and young adult oncology

authors： Lange CS,Rahrig A,Althouse SK,Nelson RP,Batra S

更新日期：2020-12-01 00:00:00

abstract：PURPOSE:There is a growing interest in fertility preservation as emerging research is highlighting the prevalence of infertility among young cancer survivors and its negative impact on quality of life. Previous qualitative research has identified barriers of fertility preservation care among professionals. The aim of t...

journal_title：Journal of adolescent and young adult oncology

authors： Panagiotopoulou N,van Delft FW,Hale JP,Stewart JA

更新日期：2017-09-01 00:00:00

abstract：PURPOSE:Orthotopic liver transplantation (OLT) is curative for hepatocellular carcinoma (HCC). HCC is typically a disease of older adults (OAs); therefore, characteristics and outcomes of OLT for young adults (YAs) (ages 18-40) are not described. The objective of this study was to assess the characteristics and outcome...

journal_title：Journal of adolescent and young adult oncology

authors： Thomas SM,Moke D,Lopez R,Hanna R,Kabbany MN,Alkhouri N

更新日期：2017-06-01 00:00:00

abstract：PURPOSE:Adolescents with cancer have unique developmental considerations. These include brain development, particularly in the frontal lobe, and a focus on completing education and entering the workforce. Cancer and treatment at this stage may prove to uniquely affect survivors' experience of cognitive and occupational...

journal_title：Journal of adolescent and young adult oncology

authors： Nugent BD,Bender CM,Sereika SM,Tersak JM,Rosenzweig M

更新日期：2018-02-01 00:00:00

abstract：:Adolescents and young adults (AYAs) with cancer represent a unique group with unmet needs. Metrics and quality indicators are important for evaluating AYA cancer care. The purpose of this study is to describe the quality indicators in a Canadian context that are used for AYA (15-39 years of age) cancer care and contro...

journal_title：Journal of adolescent and young adult oncology

authors： Rae C,Shah N,De Pauw S,Costa A,Barr RD

更新日期：2020-02-01 00:00:00

abstract：PURPOSE:This study describes the prevalence of religious and/or spiritual (R/S) struggle in long-term young adult (YA) survivors following hematopoietic cell transplantation (HCT) as well as existential concerns (EC), social support, and demographic, medical, and emotional correlates of R/S struggle. METHODS:Data were...

journal_title：Journal of adolescent and young adult oncology

authors： King SDW,Fitchett G,Murphy PE,Rajaee G,Pargament KI,Loggers ET,Harrison DA,Johnson RH

更新日期：2018-04-01 00:00:00

abstract：:Communication plays an essential role in social relationships. Yet it is unclear how young cancer patients and survivors communicate with peers, and whether this contributes to increased rates of social difficulties. We aimed to analyze how childhood cancer patients and survivors communicate about their cancer with fa...

journal_title：Journal of adolescent and young adult oncology

authors： Janin MMH,Ellis SJ,Wakefield CE,Fardell JE

更新日期：2018-10-01 00:00:00

abstract：PURPOSE:To examine key factors related to adolescent cancer survivors' return to school after cancer treatment completion, which can be a time of complex transition. PATIENTS AND METHODS:Seventy semi-structured interviews were conducted with 19 adolescent cancer survivors (mean age 16.1 years), 21 mothers, 15 fathers,...

journal_title：Journal of adolescent and young adult oncology

authors： McLoone JK,Wakefield CE,Butow P,Fleming C,Cohn RJ

更新日期：2011-06-01 00:00:00

abstract：PURPOSE:Limited research exists on the social information needs of adolescents and young adults (AYAs, aged 15-39 at diagnosis) with cancer. METHODS:The Adolescent and Young Adult Health Outcomes and Patient Experiences (AYA HOPE) Study recruited 523 patients to complete surveys 6-14 months after cancer diagnosis. Par...

journal_title：Journal of adolescent and young adult oncology

authors： Kent EE,Smith AW,Keegan TH,Lynch CF,Wu XC,Hamilton AS,Kato I,Schwartz SM,Harlan LC

更新日期：2013-06-01 00:00:00

abstract：: Purpose: About 30%-35% of nonmetastatic and 60%-80% of metastatic Ewing Sarcoma (ES) will relapse post-treatment and outcomes after relapse continue to be poor over last several decades. Prognostic factors affecting survival after relapse of ES are also not robustly known....

journal_title：Journal of adolescent and young adult oncology

authors： Vijayasekharan K,Ramanathan S,Chinnaswamy G,Prasad M,Gulia A,Janu A,Rekhi B,Ramadwar M,Khanna N,Laskar S,Puranadare N,Bajpai J,Puri A,Banavali S,Vora T

更新日期：2020-07-20 00:00:00

abstract：PURPOSE:Young adult cancer survivors have a number of increased health and psychosocial risks. To minimize these risks, they must address any modifiable risk factors, for example increase their physical activity (PA) and reduce stress. Unfortunately, more than half of young survivors remain sedentary, and few participa...

journal_title：Journal of adolescent and young adult oncology

authors： Rabin C,Pinto B,Fava J

更新日期：2016-03-01 00:00:00

abstract：:Radiation-induced phantosmia has been reported both in children and adults. A fraction of these patients have nausea and vomiting triggered by phantosmia. Radiation-induced phantosmia, although transient, can be distressing enough to prevent a patient from staying still during radiation therapy. To date, specific inte...

journal_title：Journal of adolescent and young adult oncology

authors： Raghavan KC,Camfield AS,Lucas J,Ismael Y,Rossi MG,Anghelescu DL

更新日期：2020-04-01 00:00:00

abstract：PURPOSE:As many as two-thirds of male childhood cancer survivors are at risk for fertility impairment as a consequence of treatment. Despite this, survivorship guidelines lack concrete recommendations as to when fertility status conversations should happen between patients and providers and what should be discussed. Th...

journal_title：Journal of adolescent and young adult oncology

authors： Ferrante AC,Gerhardt CA,Yeager ND,Rausch JR,Lehmann V,O'Brien S,Quinn GP,Nahata L

更新日期：2019-02-01 00:00:00

abstract：PURPOSE:Patients with testicular seminoma may face fertility issues because of their underlying disease as well as treatments they undergo. The current patterns of practice among U.S. radiation oncologists aimed at assessing and preserving fertility in patients with Stage I seminoma are unknown. METHODS:We surveyed pr...

journal_title：Journal of adolescent and young adult oncology

authors： Post CM,Jain A,Degnin C,Chen Y,Craycraft M,Hung AY,Jaboin JJ,Thomas CR Jr,Mitin T

更新日期：2018-06-01 00:00:00

abstract：:This case study describes the use of patient-reported outcome (PRO) in conjunction with psychosocial treatment for an adolescent oncology patient presenting with comorbid mental health difficulties. A nine-session evidence-based cognitive-behavioral treatment was implemented and PROs were used to document progress. Re...

journal_title：Journal of adolescent and young adult oncology

authors： Racine NM,Lafay-Cousin L,Schulte F

更新日期：2018-06-01 00:00:00