Fertility Preservation Care for Children and Adolescents with Cancer: An Inquiry to Quantify Professionals' Barriers.

abstract：PURPOSE:Surveillance for long-term complications related to previous cancer therapy can help diagnose/manage chronic health conditions in childhood cancer survivors and improve survivor quality of life. However, a challenge to delivering long-term care to childhood cancer survivors is loss to follow-up; many patients d...

journal_title：Journal of adolescent and young adult oncology

authors： Rokitka DA,Curtin C,Heffler JE,Zevon MA,Attwood K,Mahoney MC

更新日期：2017-03-01 00:00:00

abstract：:Adolescents and young adults (AYAs) 15-39 years old face unique challenges during cancer treatment as developmental and social needs are often disrupted to achieve cure. Developmentally appropriate supportive care for AYAs across the cancer trajectory is needed. The purpose of this review is to identify and describe i...

journal_title：Journal of adolescent and young adult oncology

authors： Bell CJ,Bell RA,Zebrack B,Kato I,Morse A,Borinstein SC

更新日期：2018-06-01 00:00:00

abstract：:Radiation-induced phantosmia has been reported both in children and adults. A fraction of these patients have nausea and vomiting triggered by phantosmia. Radiation-induced phantosmia, although transient, can be distressing enough to prevent a patient from staying still during radiation therapy. To date, specific inte...

journal_title：Journal of adolescent and young adult oncology

authors： Raghavan KC,Camfield AS,Lucas J,Ismael Y,Rossi MG,Anghelescu DL

更新日期：2020-04-01 00:00:00

abstract：: Purpose: Childhood cancer survivors are at risk for impaired psychosocial functioning, but limited research has focused on psychosexual outcomes in young adulthood. This qualitative study examined the perceived impact of childhood cancer on adult survivors' romantic relati...

journal_title：Journal of adolescent and young adult oncology

authors： Nahata L,Morgan TL,Lipak KG,Olshefski RS,Gerhardt CA,Lehmann V

更新日期：2020-06-01 00:00:00

abstract：: Background: The increase in breast cancer (BC) cases in young women is of great importance since the tumor behavior in this group is generally more aggressive than in their older counterparts, and strategies for early diagnosis and prognostication are needed. Therefore, th...

journal_title：Journal of adolescent and young adult oncology

authors： Bocchi M,Pereira NS,Furuya RK,Fernandes CYM,Losi-Guembarovski R,Vitiello GAF,Amarante MK,Watanabe MAE

更新日期：2020-07-21 00:00:00

abstract：PURPOSE:Young adult oncology has gained momentum in recognizing the unique medical and psychosocial needs of the population of adolescents and young adults with cancer (AYAC). However, many of their psychosocial needs remain unmet and we are yet to identify how clinical or research programs can be tailored to meet thes...

journal_title：Journal of adolescent and young adult oncology

authors： Aubin S,Rosberger Z,Hafez N,Noory MR,Perez S,Lehmann S,Batist G,Kavan P

更新日期：2019-04-01 00:00:00

abstract：:Communication plays an essential role in social relationships. Yet it is unclear how young cancer patients and survivors communicate with peers, and whether this contributes to increased rates of social difficulties. We aimed to analyze how childhood cancer patients and survivors communicate about their cancer with fa...

journal_title：Journal of adolescent and young adult oncology

authors： Janin MMH,Ellis SJ,Wakefield CE,Fardell JE

更新日期：2018-10-01 00:00:00

abstract：:Delayed diagnosis due to lack of education may contribute to lack of improvement in adolescent and young adult (AYA) cancer survival. This program sought to educate trainees and AYAs in the community. The "Learning, Education, Awareness, Prevention (L.E.A.P) Young Adult Cancer" outreach program was developed to teach ...

journal_title：Journal of adolescent and young adult oncology

authors： Audino AN,Yeager ND

更新日期：2018-02-01 00:00:00

abstract：:Adult hepatoblastoma (AHB) is a rare liver tumor with a poor prognosis in adolescents and adults. This contrasts with hepatoblastoma in children and is not fully understood. Here we describe two adolescents with AHB who were treated in our hospital. Adolescents are likely to receive less intensive chemotherapy protoco...

journal_title：Journal of adolescent and young adult oncology

authors： de Bree K,Westermann AM,Klümpen HJ,Verheij J,Phoa SSKS,Oomen M,van Gulik TM

更新日期：2018-06-01 00:00:00

abstract：PURPOSE:Adolescents with cancer have unique developmental considerations. These include brain development, particularly in the frontal lobe, and a focus on completing education and entering the workforce. Cancer and treatment at this stage may prove to uniquely affect survivors' experience of cognitive and occupational...

journal_title：Journal of adolescent and young adult oncology

authors： Nugent BD,Bender CM,Sereika SM,Tersak JM,Rosenzweig M

更新日期：2018-02-01 00:00:00

abstract：: Purpose: This study describes the prevalence trends of electronic cigarette (e-cigarette) use in young adult cancer survivors and compares these to the prevalence among young adults without a cancer history. It also examines the association between conventional cigarette u...

journal_title：Journal of adolescent and young adult oncology

authors： Jackson I,Osaghae I,Etuk A,Jackson N

更新日期：2020-09-30 00:00:00

abstract：: Purpose: About 30%-35% of nonmetastatic and 60%-80% of metastatic Ewing Sarcoma (ES) will relapse post-treatment and outcomes after relapse continue to be poor over last several decades. Prognostic factors affecting survival after relapse of ES are also not robustly known....

journal_title：Journal of adolescent and young adult oncology

authors： Vijayasekharan K,Ramanathan S,Chinnaswamy G,Prasad M,Gulia A,Janu A,Rekhi B,Ramadwar M,Khanna N,Laskar S,Puranadare N,Bajpai J,Puri A,Banavali S,Vora T

更新日期：2020-07-20 00:00:00

abstract：PURPOSE:Photovoice is a novel and promising intervention for working with youth in healthcare settings. Despite this, few studies have examined the efficacy of photovoice as a clinical tool for working with teenagers who are on their cancer journey. To better understand the needs of teenagers with cancer and the ways t...

journal_title：Journal of adolescent and young adult oncology

authors： Niepage M,Georgievski G,Shama W,Lucchetta S

更新日期：2018-02-01 00:00:00

abstract：PURPOSE:Cancer is a significant health concern for adolescents and young adults (AYAs; aged 15-24 years). Monitoring population-level changes in incidence, mortality, and survival is complicated by the lack of published data presenting statistics separately for AYAs. This study synthesizes and reviews data on AYA cance...

journal_title：Journal of adolescent and young adult oncology

authors： Roder DM,Warr A,Patterson P,Allison KR

更新日期：2018-06-01 00:00:00

abstract：PURPOSE:As many as two-thirds of male childhood cancer survivors are at risk for fertility impairment as a consequence of treatment. Despite this, survivorship guidelines lack concrete recommendations as to when fertility status conversations should happen between patients and providers and what should be discussed. Th...

journal_title：Journal of adolescent and young adult oncology

authors： Ferrante AC,Gerhardt CA,Yeager ND,Rausch JR,Lehmann V,O'Brien S,Quinn GP,Nahata L

更新日期：2019-02-01 00:00:00

abstract：:Hypogammaglobulinemia is a poorly described complication of chemotherapy in adolescents and young adults (AYAs, 15-39 years) with acute lymphoblastic leukemia (ALL). The majority of AYAs treated on a Berlin-Frankfurt-Munster-based ALL regimen experienced hypogammaglobulinemia (65.0% [13/20]). Febrile neutropenia episo...

journal_title：Journal of adolescent and young adult oncology

authors： Lange CS,Rahrig A,Althouse SK,Nelson RP,Batra S

更新日期：2020-12-01 00:00:00

abstract：PURPOSE:Limited research exists on the social information needs of adolescents and young adults (AYAs, aged 15-39 at diagnosis) with cancer. METHODS:The Adolescent and Young Adult Health Outcomes and Patient Experiences (AYA HOPE) Study recruited 523 patients to complete surveys 6-14 months after cancer diagnosis. Par...

journal_title：Journal of adolescent and young adult oncology

authors： Kent EE,Smith AW,Keegan TH,Lynch CF,Wu XC,Hamilton AS,Kato I,Schwartz SM,Harlan LC

更新日期：2013-06-01 00:00:00

abstract：: Introduction: Children and adolescents/young adults (AYAs) with cancer are a vulnerable population susceptible to numerous late effects, such as fatigue and depression, which may diminish their long-term psychological, physical, spiritual, and emotional health. A well-roun...

journal_title：Journal of adolescent and young adult oncology

authors： Wayant C,Manquen J,Wendelbo H,Kerr N,Crow M,Goodell J,Tricco AC,Mack JW,Hellman C,Vassar M

更新日期：2021-01-18 00:00:00

abstract：PURPOSE:This study describes the prevalence of religious and/or spiritual (R/S) struggle in long-term young adult (YA) survivors following hematopoietic cell transplantation (HCT) as well as existential concerns (EC), social support, and demographic, medical, and emotional correlates of R/S struggle. METHODS:Data were...

journal_title：Journal of adolescent and young adult oncology

authors： King SDW,Fitchett G,Murphy PE,Rajaee G,Pargament KI,Loggers ET,Harrison DA,Johnson RH

更新日期：2018-04-01 00:00:00

abstract：PURPOSE:To examine key factors related to adolescent cancer survivors' return to school after cancer treatment completion, which can be a time of complex transition. PATIENTS AND METHODS:Seventy semi-structured interviews were conducted with 19 adolescent cancer survivors (mean age 16.1 years), 21 mothers, 15 fathers,...

journal_title：Journal of adolescent and young adult oncology

authors： McLoone JK,Wakefield CE,Butow P,Fleming C,Cohn RJ

更新日期：2011-06-01 00:00:00

abstract：PURPOSE:Patients with testicular seminoma may face fertility issues because of their underlying disease as well as treatments they undergo. The current patterns of practice among U.S. radiation oncologists aimed at assessing and preserving fertility in patients with Stage I seminoma are unknown. METHODS:We surveyed pr...

journal_title：Journal of adolescent and young adult oncology

authors： Post CM,Jain A,Degnin C,Chen Y,Craycraft M,Hung AY,Jaboin JJ,Thomas CR Jr,Mitin T

更新日期：2018-06-01 00:00:00

abstract：:Following a presentation with abdominal pain, a 22-year-old female was diagnosed with a massive primary liver immature teratoma with evidence of omental and pelvic metastases. Despite chemotherapy, the teratoma continued to rapidly increase in size. Significant treatment-associated myelosuppression was challenging as ...

journal_title：Journal of adolescent and young adult oncology

authors： O'Reilly D,Alken S,Fiore B,Dooley L,Prior L,Hoti E,Fennelly D

更新日期：2020-02-01 00:00:00

abstract：PURPOSE:Oncologic outcomes in advanced testicular cancer (TC) depend on appropriate and timely care. Often this care is referred to tertiary academic medical centers (AMCs). The aim of this study was to compare oncologic outcomes of adolescent and young adult (AYA) patients with TC treated from the outset at an AMC to ...

journal_title：Journal of adolescent and young adult oncology

authors： Cost NG,Caldwell BT,Adibi M,Raj GV,Sagalowsky AI,Margulis V

更新日期：2016-09-01 00:00:00

abstract：:Based on an increased appreciation of the unique challenges facing adolescents and young adults with cancer, there has been a coordinated national effort in Australia in recent years to address this issue. In 2007, CanTeen, a consumer support organization for young people with cancer, partnered with the Australian fed...

journal_title：Journal of adolescent and young adult oncology

authors： Osborn M,Little C,Bowering S,Orme L

更新日期：2013-09-01 00:00:00

abstract：:Little is known about young adults with cancer at the end-of-life, but life review and legacy making may be important modalities to process the emotions associated with anticipatory grief. The study analyzed the illness blogs of five young women (aged 25-39 years) at the end-of-life using a narrative approach. Key ele...

journal_title：Journal of adolescent and young adult oncology

authors： Keim-Malpass J,Adelstein K,Kavalieratos D

更新日期：2015-12-01 00:00:00

abstract：: Purpose: To evaluate the impact of a series of one-day events delivered by Trekstock, a charity supporting young adults with cancer in the United Kingdom. Methods: Data on physical activity, mood, perceived support, self-effica...

journal_title：Journal of adolescent and young adult oncology

authors： Pugh G,Petrella A,Fisher A,Reynolds J,Epstone S

更新日期：2020-04-01 00:00:00

abstract：:Infertility is often an expected side effect of cancer treatment, although the idea of fertility and sterility may be difficult for the child or adolescent patient to comprehend. Several established fertility preservation options exist for males and females, such as cryopreservation of sperm or embryos. Experimental t...

journal_title：Journal of adolescent and young adult oncology

authors： Knapp CA,Quinn GP,Murphy D

更新日期：2011-04-01 00:00:00

abstract：:Childhood cancer survivors (CCS) are at increased risk of subsequent malignant neoplasms (SMNs). However, the impact of SMNs on long-term psychosocial functioning is unknown. In a cohort of 322 young adult CCS, survivors who developed a SMN (n = 43, 13.4%) did not report a significantly higher burden of fatigue, insom...

journal_title：Journal of adolescent and young adult oncology

authors： Lu D,Kenney LB,Vrooman LM,Recklitis CJ

更新日期：2020-08-14 00:00:00

abstract：: Purpose: Young adults with cancer often experience stress, depression, and anxiety. Mindfulness meditation is an effective intervention for these outcomes, and maintenance support may be needed for long-term improvements. eHealth technologies provide a promising delivery s...

journal_title：Journal of adolescent and young adult oncology

authors： Murphy KM,Burns J,Victorson D

更新日期：2020-12-21 00:00:00

abstract：:Fertility impairment and loss due to cancer or its treatment is a significant survivorship consideration for many pediatric, adolescent, and young adult cancer survivors. Chemotherapeutics, radiation, and surgery can impact the future fertility of men, women, and children with cancer. The field of oncofertility, found...

journal_title：Journal of adolescent and young adult oncology

authors： Waimey KE,Duncan FE,Su HI,Smith K,Wallach H,Jona K,Coutifaris C,Gracia CR,Shea LD,Brannigan RE,Chang RJ,Zelinski MB,Stouffer RL,Taylor RL,Woodruff TK

更新日期：2013-03-01 00:00:00