Location of Death and End-of-Life Characteristics of Young Adults with Cancer Treated at a Pediatric Hospital.

abstract：:Radiation-induced phantosmia has been reported both in children and adults. A fraction of these patients have nausea and vomiting triggered by phantosmia. Radiation-induced phantosmia, although transient, can be distressing enough to prevent a patient from staying still during radiation therapy. To date, specific inte...

journal_title：Journal of adolescent and young adult oncology

authors： Raghavan KC,Camfield AS,Lucas J,Ismael Y,Rossi MG,Anghelescu DL

更新日期：2020-04-01 00:00:00

abstract：PURPOSE:Photovoice is a novel and promising intervention for working with youth in healthcare settings. Despite this, few studies have examined the efficacy of photovoice as a clinical tool for working with teenagers who are on their cancer journey. To better understand the needs of teenagers with cancer and the ways t...

journal_title：Journal of adolescent and young adult oncology

authors： Niepage M,Georgievski G,Shama W,Lucchetta S

更新日期：2018-02-01 00:00:00

abstract：:Adolescents and young adults (AYAs) with cancer represent a unique group with unmet needs. Metrics and quality indicators are important for evaluating AYA cancer care. The purpose of this study is to describe the quality indicators in a Canadian context that are used for AYA (15-39 years of age) cancer care and contro...

journal_title：Journal of adolescent and young adult oncology

authors： Rae C,Shah N,De Pauw S,Costa A,Barr RD

更新日期：2020-02-01 00:00:00

abstract：PURPOSE:Patients with testicular seminoma may face fertility issues because of their underlying disease as well as treatments they undergo. The current patterns of practice among U.S. radiation oncologists aimed at assessing and preserving fertility in patients with Stage I seminoma are unknown. METHODS:We surveyed pr...

journal_title：Journal of adolescent and young adult oncology

authors： Post CM,Jain A,Degnin C,Chen Y,Craycraft M,Hung AY,Jaboin JJ,Thomas CR Jr,Mitin T

更新日期：2018-06-01 00:00:00

abstract：:Little is known about young adults with cancer at the end-of-life, but life review and legacy making may be important modalities to process the emotions associated with anticipatory grief. The study analyzed the illness blogs of five young women (aged 25-39 years) at the end-of-life using a narrative approach. Key ele...

journal_title：Journal of adolescent and young adult oncology

authors： Keim-Malpass J,Adelstein K,Kavalieratos D

更新日期：2015-12-01 00:00:00

abstract：PURPOSE:Limited research exists on the social information needs of adolescents and young adults (AYAs, aged 15-39 at diagnosis) with cancer. METHODS:The Adolescent and Young Adult Health Outcomes and Patient Experiences (AYA HOPE) Study recruited 523 patients to complete surveys 6-14 months after cancer diagnosis. Par...

journal_title：Journal of adolescent and young adult oncology

authors： Kent EE,Smith AW,Keegan TH,Lynch CF,Wu XC,Hamilton AS,Kato I,Schwartz SM,Harlan LC

更新日期：2013-06-01 00:00:00

abstract：PURPOSE:The aim of this study was to examine racial/ethnic disparities in the incidence rates and trends of soft tissue sarcoma (STS) by gender, age, and histological type among adolescents and young adults (AYAs) aged 15-29 years. METHODS:The 1995-2008 incidence data from 25 population-based cancer registries, coveri...

journal_title：Journal of adolescent and young adult oncology

authors： Hsieh MC,Wu XC,Andrews PA,Chen VW

更新日期：2013-09-01 00:00:00

abstract：:Fertility impairment and loss due to cancer or its treatment is a significant survivorship consideration for many pediatric, adolescent, and young adult cancer survivors. Chemotherapeutics, radiation, and surgery can impact the future fertility of men, women, and children with cancer. The field of oncofertility, found...

journal_title：Journal of adolescent and young adult oncology

authors： Waimey KE,Duncan FE,Su HI,Smith K,Wallach H,Jona K,Coutifaris C,Gracia CR,Shea LD,Brannigan RE,Chang RJ,Zelinski MB,Stouffer RL,Taylor RL,Woodruff TK

更新日期：2013-03-01 00:00:00

abstract：:This case study describes the use of patient-reported outcome (PRO) in conjunction with psychosocial treatment for an adolescent oncology patient presenting with comorbid mental health difficulties. A nine-session evidence-based cognitive-behavioral treatment was implemented and PROs were used to document progress. Re...

journal_title：Journal of adolescent and young adult oncology

authors： Racine NM,Lafay-Cousin L,Schulte F

更新日期：2018-06-01 00:00:00

abstract：:Based on an increased appreciation of the unique challenges facing adolescents and young adults with cancer, there has been a coordinated national effort in Australia in recent years to address this issue. In 2007, CanTeen, a consumer support organization for young people with cancer, partnered with the Australian fed...

journal_title：Journal of adolescent and young adult oncology

authors： Osborn M,Little C,Bowering S,Orme L

更新日期：2013-09-01 00:00:00

abstract：PURPOSE:This study describes the prevalence of religious and/or spiritual (R/S) struggle in long-term young adult (YA) survivors following hematopoietic cell transplantation (HCT) as well as existential concerns (EC), social support, and demographic, medical, and emotional correlates of R/S struggle. METHODS:Data were...

journal_title：Journal of adolescent and young adult oncology

authors： King SDW,Fitchett G,Murphy PE,Rajaee G,Pargament KI,Loggers ET,Harrison DA,Johnson RH

更新日期：2018-04-01 00:00:00

abstract：:Hypogammaglobulinemia is a poorly described complication of chemotherapy in adolescents and young adults (AYAs, 15-39 years) with acute lymphoblastic leukemia (ALL). The majority of AYAs treated on a Berlin-Frankfurt-Munster-based ALL regimen experienced hypogammaglobulinemia (65.0% [13/20]). Febrile neutropenia episo...

journal_title：Journal of adolescent and young adult oncology

authors： Lange CS,Rahrig A,Althouse SK,Nelson RP,Batra S

更新日期：2020-12-01 00:00:00

abstract：: Purpose: Young adults with cancer often experience stress, depression, and anxiety. Mindfulness meditation is an effective intervention for these outcomes, and maintenance support may be needed for long-term improvements. eHealth technologies provide a promising delivery s...

journal_title：Journal of adolescent and young adult oncology

authors： Murphy KM,Burns J,Victorson D

更新日期：2020-12-21 00:00:00

abstract：PURPOSE:Adolescents with cancer have unique developmental considerations. These include brain development, particularly in the frontal lobe, and a focus on completing education and entering the workforce. Cancer and treatment at this stage may prove to uniquely affect survivors' experience of cognitive and occupational...

journal_title：Journal of adolescent and young adult oncology

authors： Nugent BD,Bender CM,Sereika SM,Tersak JM,Rosenzweig M

更新日期：2018-02-01 00:00:00

abstract：:Many adolescent female cancer patients will survive into their reproductive years. Pediatric oncologists are advised to discuss oncofertility during treatment planning. In this pilot study, 19 adolescent females completed a retrospective survey assessing recall of a fertility discussion, satisfaction with fertility kn...

journal_title：Journal of adolescent and young adult oncology

authors： Zarnegar S,Gosiengfiao Y,Rademaker A,Casey R,Albritton KH

更新日期：2018-04-01 00:00:00

abstract：: Purpose: Survivors of cancer diagnosed during adolescence and young adulthood (AYA; aged 15-39) may experience quality of life (QOL) limitations; however, little is known about QOL for AYA survivors who are now middle-aged or among racial/ethnic minority survivors. We eval...

journal_title：Journal of adolescent and young adult oncology

authors： Kirchhoff AC,Spraker-Perlman HL,McFadden M,Warner EL,Oeffinger KC,Wright J,Kinney AY

更新日期：2014-06-01 00:00:00

abstract：: Background: The increase in breast cancer (BC) cases in young women is of great importance since the tumor behavior in this group is generally more aggressive than in their older counterparts, and strategies for early diagnosis and prognostication are needed. Therefore, th...

journal_title：Journal of adolescent and young adult oncology

authors： Bocchi M,Pereira NS,Furuya RK,Fernandes CYM,Losi-Guembarovski R,Vitiello GAF,Amarante MK,Watanabe MAE

更新日期：2020-07-21 00:00:00

abstract：: Purpose: Rates of obesity and obesity-related health consequences, including type 2 diabetes (T2D) and cancer, continue to rise. While cancer patients are at an increased risk of developing T2D, the prevalence of T2D and insulin prescription among young patients with cance...

journal_title：Journal of adolescent and young adult oncology

authors： Holowatyj AN,Viskochil R,Ose D,Tingey B,Haaland B,Wilson D,Larson M,Feltz S,Lewis MA,Colman H,Ulrich CM

更新日期：2020-07-29 00:00:00

abstract：: Purpose: Most evidence for the relationship between physical activity, nutrition education, and late effects from cancer treatment come from cross-sectional studies. The purpose of this pilot study was to determine if 8 weeks of exercise and nutrition education in adolesce...

journal_title：Journal of adolescent and young adult oncology

authors： DeNysschen CA,Panek-Shirley LM,Zimmerman B

更新日期：2020-09-14 00:00:00

abstract：: Purpose: To explore and highlight the opportunities and challenges that underlie the development of survivorship care for adolescent and young adult cancer. Methods: A multimethod approach was used, with perspectives of survivo...

journal_title：Journal of adolescent and young adult oncology

authors： Baird H,Patterson P,Medlow S,Allison KR

更新日期：2019-10-01 00:00:00

abstract：: Purpose: To evaluate the impact of a series of one-day events delivered by Trekstock, a charity supporting young adults with cancer in the United Kingdom. Methods: Data on physical activity, mood, perceived support, self-effica...

journal_title：Journal of adolescent and young adult oncology

authors： Pugh G,Petrella A,Fisher A,Reynolds J,Epstone S

更新日期：2020-04-01 00:00:00

abstract：:This paper describes the development of an institution-specific website designed to meet the supportive and emotional needs of young adults (18-39 years old) with cancer in the United States. The website contains information about topics of particular interest to young adults, coping skills education, and resources; a...

journal_title：Journal of adolescent and young adult oncology

authors： Fasciano KM,Souza PM,Braun I,Trevino K

更新日期：2015-03-01 00:00:00

abstract：PURPOSE:There is a growing interest in fertility preservation as emerging research is highlighting the prevalence of infertility among young cancer survivors and its negative impact on quality of life. Previous qualitative research has identified barriers of fertility preservation care among professionals. The aim of t...

journal_title：Journal of adolescent and young adult oncology

authors： Panagiotopoulou N,van Delft FW,Hale JP,Stewart JA

更新日期：2017-09-01 00:00:00

abstract：PURPOSE:As many as two-thirds of male childhood cancer survivors are at risk for fertility impairment as a consequence of treatment. Despite this, survivorship guidelines lack concrete recommendations as to when fertility status conversations should happen between patients and providers and what should be discussed. Th...

journal_title：Journal of adolescent and young adult oncology

authors： Ferrante AC,Gerhardt CA,Yeager ND,Rausch JR,Lehmann V,O'Brien S,Quinn GP,Nahata L

更新日期：2019-02-01 00:00:00

abstract：:Adult hepatoblastoma (AHB) is a rare liver tumor with a poor prognosis in adolescents and adults. This contrasts with hepatoblastoma in children and is not fully understood. Here we describe two adolescents with AHB who were treated in our hospital. Adolescents are likely to receive less intensive chemotherapy protoco...

journal_title：Journal of adolescent and young adult oncology

authors： de Bree K,Westermann AM,Klümpen HJ,Verheij J,Phoa SSKS,Oomen M,van Gulik TM

更新日期：2018-06-01 00:00:00

abstract：PURPOSE:As a consequence of cancer treatment, many adolescents and young adults (AYA) patients are required to take leave or face setbacks from their education. While most AYA cancer survivors and survivors of childhood cancer are capable of successfully returning to the educational system, unsuccessful returns place A...

journal_title：Journal of adolescent and young adult oncology

authors： Elsbernd A,Pedersen KJ,Boisen KA,Midtgaard J,Larsen HB

更新日期：2018-10-01 00:00:00

abstract：PURPOSE:Young adult cancer survivors have a number of increased health and psychosocial risks. To minimize these risks, they must address any modifiable risk factors, for example increase their physical activity (PA) and reduce stress. Unfortunately, more than half of young survivors remain sedentary, and few participa...

journal_title：Journal of adolescent and young adult oncology

authors： Rabin C,Pinto B,Fava J

更新日期：2016-03-01 00:00:00

abstract：PURPOSE:Young adult oncology has gained momentum in recognizing the unique medical and psychosocial needs of the population of adolescents and young adults with cancer (AYAC). However, many of their psychosocial needs remain unmet and we are yet to identify how clinical or research programs can be tailored to meet thes...

journal_title：Journal of adolescent and young adult oncology

authors： Aubin S,Rosberger Z,Hafez N,Noory MR,Perez S,Lehmann S,Batist G,Kavan P

更新日期：2019-04-01 00:00:00

abstract：:This review explores the literature on experiences of young people (15-39 years) living with cancer from nonmetropolitan areas, given most available research has focused on those living in major metropolitan areas. The purpose of the review was to inform (a) clinical practice and (b) future research on young people li...

journal_title：Journal of adolescent and young adult oncology

authors： Sariman JA,Harris NM,Harvey D,Sansom-Daly UM

更新日期：2020-04-01 00:00:00

abstract：:Cancer-related knowledge among childhood cancer survivors (CCSs) has been underexplored. In particular, little is known about factors impacting knowledge of the need for lifelong follow-up care in CCSs. This secondary analysis of data examined acculturation, cancer-related knowledge, demographics, and clinical factors...

journal_title：Journal of adolescent and young adult oncology

authors： Sleight AG,Ramirez CN,Miller KA,Milam JE

更新日期：2019-06-01 00:00:00