Interest in Learning About Fertility Status Among Male Adolescent and Young Adult Survivors of Childhood Cancer.


PURPOSE:As many as two-thirds of male childhood cancer survivors are at risk for fertility impairment as a consequence of treatment. Despite this, survivorship guidelines lack concrete recommendations as to when fertility status conversations should happen between patients and providers and what should be discussed. Thus, conversations may be inconsistent, or do not occur at all in survivorship. To inform recommendations for fertility-related conversations in survivorship, this pilot study aimed to better understand background (e.g., age, diagnosis and treatment intensity) and psychosocial factors (i.e., perceived barriers and perceived susceptibility) associated with survivor interest in learning about fertility status. METHODS:Male survivors (N = 45) 15-25 years of age were recruited within 1-8 years of completing treatment. Survivors completed questionnaires based on the Health Belief Model (HBM) to assess perception of infertility risk and attitudes toward testing. RESULTS:Most survivors (n = 31; 69%) reported they were informed of their risk for infertility by a healthcare provider before treatment, but only 31% (n = 14) of the sample banked sperm. Nearly two-thirds of survivors (n = 29; 64%) were interested in learning more about their fertility post-treatment. This interest was significantly correlated with greater perceived susceptibility to infertility by survivors, but it was not associated with other psychosocial or background factors. CONCLUSION:Informing survivors of their personal infertility risk may increase interest in pursuing testing. Offering opportunities for fertility testing and family planning alternatives may mitigate potential psychological distress and unplanned pregnancy. While additional research is needed, future survivorship guidelines should encourage regular communication about fertility status and offer fertility testing for male survivors.


Ferrante AC,Gerhardt CA,Yeager ND,Rausch JR,Lehmann V,O'Brien S,Quinn GP,Nahata L




Has Abstract


2019-02-01 00:00:00












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    abstract:PURPOSE:To examine key factors related to adolescent cancer survivors' return to school after cancer treatment completion, which can be a time of complex transition. PATIENTS AND METHODS:Seventy semi-structured interviews were conducted with 19 adolescent cancer survivors (mean age 16.1 years), 21 mothers, 15 fathers,...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: McLoone JK,Wakefield CE,Butow P,Fleming C,Cohn RJ

    更新日期:2011-06-01 00:00:00

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    abstract:PURPOSE:As a consequence of cancer treatment, many adolescents and young adults (AYA) patients are required to take leave or face setbacks from their education. While most AYA cancer survivors and survivors of childhood cancer are capable of successfully returning to the educational system, unsuccessful returns place A...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: Elsbernd A,Pedersen KJ,Boisen KA,Midtgaard J,Larsen HB

    更新日期:2018-10-01 00:00:00

  • An Innovative Website in the United States for Meeting the Emotional and Supportive Care Needs of Young Adults with Cancer.

    abstract::This paper describes the development of an institution-specific website designed to meet the supportive and emotional needs of young adults (18-39 years old) with cancer in the United States. The website contains information about topics of particular interest to young adults, coping skills education, and resources; a...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: Fasciano KM,Souza PM,Braun I,Trevino K

    更新日期:2015-03-01 00:00:00

  • Teenage and Young Adult Cancer-Related Fatigue Is Prevalent, Distressing, and Neglected: It Is Time to Intervene. A Systematic Literature Review and Narrative Synthesis.

    abstract:PURPOSE:Cancer-related fatigue in adults has been the subject of considerable recent research, confirming its importance as a common and debilitating symptom, and establishing a number of evidence-based interventions. There has, however, been limited focus on the fatigue suffered by teenagers and young adults with canc...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章,评审


    authors: Spathis A,Booth S,Grove S,Hatcher H,Kuhn I,Barclay S

    更新日期:2015-03-01 00:00:00

  • Talking About Cancer Among Adolescent and Young Adult Cancer Patients and Survivors: A Systematic Review.

    abstract::Communication plays an essential role in social relationships. Yet it is unclear how young cancer patients and survivors communicate with peers, and whether this contributes to increased rates of social difficulties. We aimed to analyze how childhood cancer patients and survivors communicate about their cancer with fa...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: Janin MMH,Ellis SJ,Wakefield CE,Fardell JE

    更新日期:2018-10-01 00:00:00

  • Romantic Relationships and Physical Intimacy Among Survivors of Childhood Cancer.

    abstract:: Purpose: Childhood cancer survivors are at risk for impaired psychosocial functioning, but limited research has focused on psychosexual outcomes in young adulthood. This qualitative study examined the perceived impact of childhood cancer on adult survivors' romantic relati...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: Nahata L,Morgan TL,Lipak KG,Olshefski RS,Gerhardt CA,Lehmann V

    更新日期:2020-06-01 00:00:00

  • Identification of Evidence for Key Positive Psychological Constructs in Pediatric and Adolescent/Young Adult Patients with Cancer: A Scoping Review.

    abstract:: Introduction: Children and adolescents/young adults (AYAs) with cancer are a vulnerable population susceptible to numerous late effects, such as fatigue and depression, which may diminish their long-term psychological, physical, spiritual, and emotional health. A well-roun...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: Wayant C,Manquen J,Wendelbo H,Kerr N,Crow M,Goodell J,Tricco AC,Mack JW,Hellman C,Vassar M

    更新日期:2021-01-18 00:00:00

  • Facing the Maze: Young Cancer Survivors' Return to Education and Work-A Professional Expert Key Informant Study.

    abstract:PURPOSE:An insufficient transition to normal life after cancer treatment in adolescent and young adults (AYAs) may lead to decreased occupational and educational opportunities throughout a survivor's lifespan. Key informant interviews were used to access unique knowledge of the healthcare, educational, and social syste...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: Pedersen KJ,Boisen KA,Midtgaard J,Elsbernd A,Larsen HB

    更新日期:2018-08-01 00:00:00

  • Measuring Development of Adolescent and Young Adult Cancer Patients: An Integrative Review of Available Instruments.

    abstract::Adolescents and young adults (AYAs) 15-39 years old face unique challenges during cancer treatment as developmental and social needs are often disrupted to achieve cure. Developmentally appropriate supportive care for AYAs across the cancer trajectory is needed. The purpose of this review is to identify and describe i...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章,评审


    authors: Bell CJ,Bell RA,Zebrack B,Kato I,Morse A,Borinstein SC

    更新日期:2018-06-01 00:00:00

  • Long-Term Psychosocial Well-Being and Quality of Life Among Childhood Cancer Survivors Who Developed a Subsequent Malignant Neoplasm.

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    authors: Lu D,Kenney LB,Vrooman LM,Recklitis CJ

    更新日期:2020-08-14 00:00:00

  • Growing Teratoma Syndrome of the Liver in a 22-Year-Old Female.

    abstract::Following a presentation with abdominal pain, a 22-year-old female was diagnosed with a massive primary liver immature teratoma with evidence of omental and pelvic metastases. Despite chemotherapy, the teratoma continued to rapidly increase in size. Significant treatment-associated myelosuppression was challenging as ...

    journal_title:Journal of adolescent and young adult oncology

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    authors: O'Reilly D,Alken S,Fiore B,Dooley L,Prior L,Hoti E,Fennelly D

    更新日期:2020-02-01 00:00:00

  • Trekstock Meet & Move: The Impact of One-Day Health and Well-Being Events for Young Adults with Cancer.

    abstract:: Purpose: To evaluate the impact of a series of one-day events delivered by Trekstock, a charity supporting young adults with cancer in the United Kingdom. Methods: Data on physical activity, mood, perceived support, self-effica...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: Pugh G,Petrella A,Fisher A,Reynolds J,Epstone S

    更新日期:2020-04-01 00:00:00

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    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: Cost NG,Caldwell BT,Adibi M,Raj GV,Sagalowsky AI,Margulis V

    更新日期:2016-09-01 00:00:00

  • Consider the Source: Examining Attrition Rates, Response Rates, and Preliminary Effects of eHealth Mindfulness Messages and Delivery Framing in a Randomized Trial with Young Adult Cancer Survivors.

    abstract:: Purpose: Young adults with cancer often experience stress, depression, and anxiety. Mindfulness meditation is an effective intervention for these outcomes, and maintenance support may be needed for long-term improvements. eHealth technologies provide a promising delivery s...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: Murphy KM,Burns J,Victorson D

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  • "Learning, Education, Awareness, Prevention (L.E.A.P.) Young Adult Cancer": An Education and Outreach Program.

    abstract::Delayed diagnosis due to lack of education may contribute to lack of improvement in adolescent and young adult (AYA) cancer survival. This program sought to educate trainees and AYAs in the community. The "Learning, Education, Awareness, Prevention (L.E.A.P) Young Adult Cancer" outreach program was developed to teach ...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: Audino AN,Yeager ND

    更新日期:2018-02-01 00:00:00

  • The Utility of Decision Trees in Oncofertility Care in Japan.

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    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: Ito Y,Shiraishi E,Kato A,Haino T,Sugimoto K,Okamoto A,Suzuki N

    更新日期:2017-03-01 00:00:00

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    abstract:PURPOSE:Young adult cancer survivors have a number of increased health and psychosocial risks. To minimize these risks, they must address any modifiable risk factors, for example increase their physical activity (PA) and reduce stress. Unfortunately, more than half of young survivors remain sedentary, and few participa...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章,随机对照试验


    authors: Rabin C,Pinto B,Fava J

    更新日期:2016-03-01 00:00:00

  • Best Practices in Adolescent and Young Adult Patients with Acute Lymphoblastic Leukemia: A Focus on Asparaginase.

    abstract::The inclusion of asparaginase in chemotherapy regimens to treat acute lymphoblastic leukemia (ALL) has had a positive impact on survival in pediatric patients. Historically, asparaginase has been excluded from most treatment protocols for adolescent and young adult (AYA) patients because of perceived toxicity in this ...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章,评审


    authors: Boissel N,Sender LS

    更新日期:2015-09-01 00:00:00

  • Liver Transplantation for Hepatocellular Carcinoma in Young Adults: A United Network for Organ Sharing Study.

    abstract:PURPOSE:Orthotopic liver transplantation (OLT) is curative for hepatocellular carcinoma (HCC). HCC is typically a disease of older adults (OAs); therefore, characteristics and outcomes of OLT for young adults (YAs) (ages 18-40) are not described. The objective of this study was to assess the characteristics and outcome...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: Thomas SM,Moke D,Lopez R,Hanna R,Kabbany MN,Alkhouri N

    更新日期:2017-06-01 00:00:00

  • Racial and Ethnic Disparities in the Incidence and Trends of Soft Tissue Sarcoma Among Adolescents and Young Adults in the United States, 1995-2008.

    abstract:PURPOSE:The aim of this study was to examine racial/ethnic disparities in the incidence rates and trends of soft tissue sarcoma (STS) by gender, age, and histological type among adolescents and young adults (AYAs) aged 15-29 years. METHODS:The 1995-2008 incidence data from 25 population-based cancer registries, coveri...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: Hsieh MC,Wu XC,Andrews PA,Chen VW

    更新日期:2013-09-01 00:00:00

  • Talking About Cancer and Meeting Peer Survivors: Social Information Needs of Adolescents and Young Adults Diagnosed with Cancer.

    abstract:PURPOSE:Limited research exists on the social information needs of adolescents and young adults (AYAs, aged 15-39 at diagnosis) with cancer. METHODS:The Adolescent and Young Adult Health Outcomes and Patient Experiences (AYA HOPE) Study recruited 523 patients to complete surveys 6-14 months after cancer diagnosis. Par...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: Kent EE,Smith AW,Keegan TH,Lynch CF,Wu XC,Hamilton AS,Kato I,Schwartz SM,Harlan LC

    更新日期:2013-06-01 00:00:00

  • Religious/Spiritual Struggle in Young Adult Hematopoietic Cell Transplant Survivors.

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    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: King SDW,Fitchett G,Murphy PE,Rajaee G,Pargament KI,Loggers ET,Harrison DA,Johnson RH

    更新日期:2018-04-01 00:00:00

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    abstract:PURPOSE:Surveillance for long-term complications related to previous cancer therapy can help diagnose/manage chronic health conditions in childhood cancer survivors and improve survivor quality of life. However, a challenge to delivering long-term care to childhood cancer survivors is loss to follow-up; many patients d...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: Rokitka DA,Curtin C,Heffler JE,Zevon MA,Attwood K,Mahoney MC

    更新日期:2017-03-01 00:00:00

  • High Response Rates and Promising Outcomes of Patients with Relapsed Ewing Sarcoma, Especially in Adolescents and Young Adults Treated on a Novel Hybrid Salvage Chemotherapy Regimen.

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    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: Vijayasekharan K,Ramanathan S,Chinnaswamy G,Prasad M,Gulia A,Janu A,Rekhi B,Ramadwar M,Khanna N,Laskar S,Puranadare N,Bajpai J,Puri A,Banavali S,Vora T

    更新日期:2020-07-20 00:00:00

  • Prevalence and Factors Associated with Electronic Cigarette Use Among Young Adult Cancer Survivors Using Behavioral Risk Factor Surveillance System, 2016-2018.

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    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: Jackson I,Osaghae I,Etuk A,Jackson N

    更新日期:2020-09-30 00:00:00

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    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: Post CM,Jain A,Degnin C,Chen Y,Craycraft M,Hung AY,Jaboin JJ,Thomas CR Jr,Mitin T

    更新日期:2018-06-01 00:00:00

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    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: Waimey KE,Duncan FE,Su HI,Smith K,Wallach H,Jona K,Coutifaris C,Gracia CR,Shea LD,Brannigan RE,Chang RJ,Zelinski MB,Stouffer RL,Taylor RL,Woodruff TK

    更新日期:2013-03-01 00:00:00

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    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: Lange CS,Rahrig A,Althouse SK,Nelson RP,Batra S

    更新日期:2020-12-01 00:00:00

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    abstract:: Background: Location of death (LOD) is an important aspect of end-of-life (EOL) care. Adolescents and young adults (YAs) with pediatric malignancies are increasingly treated in pediatric institutions. YAs, generally defined as 18-39 years old, deserve specific attention be...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: Mark MSJ,Yang G,Ding L,Norris RE,Thienprayoon R

    更新日期:2019-08-01 00:00:00

  • Two Cases of Hepatoblastoma in Young Adults.

    abstract::Adult hepatoblastoma (AHB) is a rare liver tumor with a poor prognosis in adolescents and adults. This contrasts with hepatoblastoma in children and is not fully understood. Here we describe two adolescents with AHB who were treated in our hospital. Adolescents are likely to receive less intensive chemotherapy protoco...

    journal_title:Journal of adolescent and young adult oncology

    pub_type: 杂志文章


    authors: de Bree K,Westermann AM,Klümpen HJ,Verheij J,Phoa SSKS,Oomen M,van Gulik TM

    更新日期:2018-06-01 00:00:00