Abstract:
:Infertility is often an expected side effect of cancer treatment, although the idea of fertility and sterility may be difficult for the child or adolescent patient to comprehend. Several established fertility preservation options exist for males and females, such as cryopreservation of sperm or embryos. Experimental therapies, which require institutional review board approval, are also being tested. While the science of fertility preservation for adolescents with cancer is advancing, the social science research in this area is lacking. Specifically, there are only a small number of studies about the psychological reproductive concerns in the pediatric oncology population. These studies have provided groundbreaking information for future research, but also illustrate the challenges in conducting research in this area. This article comments on those challenges and, when possible, presents solutions for confronting them.
journal_name
J Adolesc Young Adult Oncoljournal_title
Journal of adolescent and young adult oncologyauthors
Knapp CA,Quinn GP,Murphy Ddoi
10.1089/jayao.2010.0003subject
Has Abstractpub_date
2011-04-01 00:00:00pages
31-35issue
1eissn
2156-5333issn
2156-535Xpii
10.1089/jayao.2010.0003journal_volume
1pub_type
杂志文章abstract:PURPOSE:Oncologic outcomes in advanced testicular cancer (TC) depend on appropriate and timely care. Often this care is referred to tertiary academic medical centers (AMCs). The aim of this study was to compare oncologic outcomes of adolescent and young adult (AYA) patients with TC treated from the outset at an AMC to ...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2015.0057
更新日期:2016-09-01 00:00:00
abstract:: Purpose: To explore and highlight the opportunities and challenges that underlie the development of survivorship care for adolescent and young adult cancer. Methods: A multimethod approach was used, with perspectives of survivo...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2019.0031
更新日期:2019-10-01 00:00:00
abstract::Little is known about young adults with cancer at the end-of-life, but life review and legacy making may be important modalities to process the emotions associated with anticipatory grief. The study analyzed the illness blogs of five young women (aged 25-39 years) at the end-of-life using a narrative approach. Key ele...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2015.0003
更新日期:2015-12-01 00:00:00
abstract:PURPOSE:To identify the utility and issues associated with the use of decision trees in oncofertility patient care in Japan. METHODS:A total of 35 women who had been diagnosed with cancer, but had not begun anticancer treatment, were enrolled. We applied the oncofertility decision tree for women published by Gardino e...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2016.0045
更新日期:2017-03-01 00:00:00
abstract:PURPOSE:Photovoice is a novel and promising intervention for working with youth in healthcare settings. Despite this, few studies have examined the efficacy of photovoice as a clinical tool for working with teenagers who are on their cancer journey. To better understand the needs of teenagers with cancer and the ways t...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2017.0073
更新日期:2018-02-01 00:00:00
abstract:PURPOSE:Limited research exists on the social information needs of adolescents and young adults (AYAs, aged 15-39 at diagnosis) with cancer. METHODS:The Adolescent and Young Adult Health Outcomes and Patient Experiences (AYA HOPE) Study recruited 523 patients to complete surveys 6-14 months after cancer diagnosis. Par...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2012.0029
更新日期:2013-06-01 00:00:00
abstract:: Purpose: This study describes the prevalence trends of electronic cigarette (e-cigarette) use in young adult cancer survivors and compares these to the prevalence among young adults without a cancer history. It also examines the association between conventional cigarette u...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2020.0104
更新日期:2020-09-30 00:00:00
abstract:PURPOSE:There is a growing interest in fertility preservation as emerging research is highlighting the prevalence of infertility among young cancer survivors and its negative impact on quality of life. Previous qualitative research has identified barriers of fertility preservation care among professionals. The aim of t...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2016.0087
更新日期:2017-09-01 00:00:00
abstract:: Purpose: Cancer-related fatigue is a burdensome late effect of cancer treatment. A pilot study showed the effectiveness of cognitive-behavioral therapy (CBT) in fatigued survivors of childhood cancer (CCS). The aim of this study is to investigate whether the six cognitive-...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2020.0094
更新日期:2020-08-27 00:00:00
abstract:PURPOSE:To examine key factors related to adolescent cancer survivors' return to school after cancer treatment completion, which can be a time of complex transition. PATIENTS AND METHODS:Seventy semi-structured interviews were conducted with 19 adolescent cancer survivors (mean age 16.1 years), 21 mothers, 15 fathers,...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2011.0006
更新日期:2011-06-01 00:00:00
abstract:: Background: The increase in breast cancer (BC) cases in young women is of great importance since the tumor behavior in this group is generally more aggressive than in their older counterparts, and strategies for early diagnosis and prognostication are needed. Therefore, th...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2020.0037
更新日期:2020-07-21 00:00:00
abstract:PURPOSE:As a consequence of cancer treatment, many adolescents and young adults (AYA) patients are required to take leave or face setbacks from their education. While most AYA cancer survivors and survivors of childhood cancer are capable of successfully returning to the educational system, unsuccessful returns place A...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2018.0058
更新日期:2018-10-01 00:00:00
abstract:PURPOSE:Young adult cancer survivors have a number of increased health and psychosocial risks. To minimize these risks, they must address any modifiable risk factors, for example increase their physical activity (PA) and reduce stress. Unfortunately, more than half of young survivors remain sedentary, and few participa...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章,随机对照试验
doi:10.1089/jayao.2015.0033
更新日期:2016-03-01 00:00:00
abstract:PURPOSE:Patients with testicular seminoma may face fertility issues because of their underlying disease as well as treatments they undergo. The current patterns of practice among U.S. radiation oncologists aimed at assessing and preserving fertility in patients with Stage I seminoma are unknown. METHODS:We surveyed pr...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2017.0122
更新日期:2018-06-01 00:00:00
abstract:PURPOSE:Young adult oncology has gained momentum in recognizing the unique medical and psychosocial needs of the population of adolescents and young adults with cancer (AYAC). However, many of their psychosocial needs remain unmet and we are yet to identify how clinical or research programs can be tailored to meet thes...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章,随机对照试验
doi:10.1089/jayao.2017.0101
更新日期:2019-04-01 00:00:00
abstract::Delayed diagnosis due to lack of education may contribute to lack of improvement in adolescent and young adult (AYA) cancer survival. This program sought to educate trainees and AYAs in the community. The "Learning, Education, Awareness, Prevention (L.E.A.P) Young Adult Cancer" outreach program was developed to teach ...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2017.0060
更新日期:2018-02-01 00:00:00
abstract:: Purpose: Most evidence for the relationship between physical activity, nutrition education, and late effects from cancer treatment come from cross-sectional studies. The purpose of this pilot study was to determine if 8 weeks of exercise and nutrition education in adolesce...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2020.0116
更新日期:2020-09-14 00:00:00
abstract::This review explores the literature on experiences of young people (15-39 years) living with cancer from nonmetropolitan areas, given most available research has focused on those living in major metropolitan areas. The purpose of the review was to inform (a) clinical practice and (b) future research on young people li...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2019.0053
更新日期:2020-04-01 00:00:00
abstract:PURPOSE:An insufficient transition to normal life after cancer treatment in adolescent and young adults (AYAs) may lead to decreased occupational and educational opportunities throughout a survivor's lifespan. Key informant interviews were used to access unique knowledge of the healthcare, educational, and social syste...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2017.0128
更新日期:2018-08-01 00:00:00
abstract:: Purpose: Childhood cancer survivors are at risk for impaired psychosocial functioning, but limited research has focused on psychosexual outcomes in young adulthood. This qualitative study examined the perceived impact of childhood cancer on adult survivors' romantic relati...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2019.0114
更新日期:2020-06-01 00:00:00
abstract::Cancer-related knowledge among childhood cancer survivors (CCSs) has been underexplored. In particular, little is known about factors impacting knowledge of the need for lifelong follow-up care in CCSs. This secondary analysis of data examined acculturation, cancer-related knowledge, demographics, and clinical factors...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2018.0099
更新日期:2019-06-01 00:00:00
abstract:: Background: Location of death (LOD) is an important aspect of end-of-life (EOL) care. Adolescents and young adults (YAs) with pediatric malignancies are increasingly treated in pediatric institutions. YAs, generally defined as 18-39 years old, deserve specific attention be...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2018.0123
更新日期:2019-08-01 00:00:00
abstract::Childhood cancer survivors (CCS) are at increased risk of subsequent malignant neoplasms (SMNs). However, the impact of SMNs on long-term psychosocial functioning is unknown. In a cohort of 322 young adult CCS, survivors who developed a SMN (n = 43, 13.4%) did not report a significantly higher burden of fatigue, insom...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2020.0046
更新日期:2020-08-14 00:00:00
abstract::This case study describes the use of patient-reported outcome (PRO) in conjunction with psychosocial treatment for an adolescent oncology patient presenting with comorbid mental health difficulties. A nine-session evidence-based cognitive-behavioral treatment was implemented and PROs were used to document progress. Re...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2017.0090
更新日期:2018-06-01 00:00:00
abstract::Adult hepatoblastoma (AHB) is a rare liver tumor with a poor prognosis in adolescents and adults. This contrasts with hepatoblastoma in children and is not fully understood. Here we describe two adolescents with AHB who were treated in our hospital. Adolescents are likely to receive less intensive chemotherapy protoco...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2017.0125
更新日期:2018-06-01 00:00:00
abstract:PURPOSE:Surveillance for long-term complications related to previous cancer therapy can help diagnose/manage chronic health conditions in childhood cancer survivors and improve survivor quality of life. However, a challenge to delivering long-term care to childhood cancer survivors is loss to follow-up; many patients d...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2016.0023
更新日期:2017-03-01 00:00:00
abstract:PURPOSE:Cancer is a significant health concern for adolescents and young adults (AYAs; aged 15-24 years). Monitoring population-level changes in incidence, mortality, and survival is complicated by the lack of published data presenting statistics separately for AYAs. This study synthesizes and reviews data on AYA cance...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2017.0095
更新日期:2018-06-01 00:00:00
abstract:PURPOSE:The aim of this study was to examine racial/ethnic disparities in the incidence rates and trends of soft tissue sarcoma (STS) by gender, age, and histological type among adolescents and young adults (AYAs) aged 15-29 years. METHODS:The 1995-2008 incidence data from 25 population-based cancer registries, coveri...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2012.0031
更新日期:2013-09-01 00:00:00
abstract::Communication plays an essential role in social relationships. Yet it is unclear how young cancer patients and survivors communicate with peers, and whether this contributes to increased rates of social difficulties. We aimed to analyze how childhood cancer patients and survivors communicate about their cancer with fa...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2017.0131
更新日期:2018-10-01 00:00:00
abstract::Fertility impairment and loss due to cancer or its treatment is a significant survivorship consideration for many pediatric, adolescent, and young adult cancer survivors. Chemotherapeutics, radiation, and surgery can impact the future fertility of men, women, and children with cancer. The field of oncofertility, found...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2012.0035
更新日期:2013-03-01 00:00:00