Abstract:
: Introduction: Children and adolescents/young adults (AYAs) with cancer are a vulnerable population susceptible to numerous late effects, such as fatigue and depression, which may diminish their long-term psychological, physical, spiritual, and emotional health. A well-rounded understanding of how positive psychological constructs affect the quality of care and treatment outcomes is therefore warranted. Methods: We conducted a scoping review of 15 positive psychological constructs in children and AYAs with cancer. The primary research questions were (1) what is known about positive psychological constructs in children and AYAs with cancer; (2) what value is ascribed to these constructs by patients?. Results: Two hundred seventy-six articles were included after database search and screening. These studies were mostly observational or qualitative and conducted in North America. Constructs were often poorly defined, and measurement tools used to gather data were wide ranging. Numerous factors were correlated with increased or decreased expression of certain constructs, but overall themes were difficult to identify. Similarly, patients often spoke of what increased or decreased expression of a construct, with less emphasis on what they implicitly value. Discussion: This scoping review found ample evidence for what increases or decreases expression of positive psychological constructs, but this evidence was observational and often conflicting. In the future, we recommend the development of a core set of psychological outcomes, with definitions and corresponding measurement tools. We further recommend an emphasis on randomized trials to more rigorously study how expression of constructs can be improved and what effect this has on the quality of life.
journal_name
J Adolesc Young Adult Oncoljournal_title
Journal of adolescent and young adult oncologyauthors
Wayant C,Manquen J,Wendelbo H,Kerr N,Crow M,Goodell J,Tricco AC,Mack JW,Hellman C,Vassar Mdoi
10.1089/jayao.2020.0184subject
Has Abstractpub_date
2021-01-18 00:00:00eissn
2156-5333issn
2156-535Xpub_type
杂志文章abstract::The inclusion of asparaginase in chemotherapy regimens to treat acute lymphoblastic leukemia (ALL) has had a positive impact on survival in pediatric patients. Historically, asparaginase has been excluded from most treatment protocols for adolescent and young adult (AYA) patients because of perceived toxicity in this ...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章,评审
doi:10.1089/jayao.2015.0014
更新日期:2015-09-01 00:00:00
abstract::This paper describes the development of an institution-specific website designed to meet the supportive and emotional needs of young adults (18-39 years old) with cancer in the United States. The website contains information about topics of particular interest to young adults, coping skills education, and resources; a...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2014.0035
更新日期:2015-03-01 00:00:00
abstract::Adolescents and young adults (AYAs) with cancer represent a unique group with unmet needs. Metrics and quality indicators are important for evaluating AYA cancer care. The purpose of this study is to describe the quality indicators in a Canadian context that are used for AYA (15-39 years of age) cancer care and contro...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2019.0069
更新日期:2020-02-01 00:00:00
abstract:: Purpose: To explore and highlight the opportunities and challenges that underlie the development of survivorship care for adolescent and young adult cancer. Methods: A multimethod approach was used, with perspectives of survivo...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2019.0031
更新日期:2019-10-01 00:00:00
abstract:: Purpose: Cancer-related fatigue is a burdensome late effect of cancer treatment. A pilot study showed the effectiveness of cognitive-behavioral therapy (CBT) in fatigued survivors of childhood cancer (CCS). The aim of this study is to investigate whether the six cognitive-...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2020.0094
更新日期:2020-08-27 00:00:00
abstract:: Purpose: About 30%-35% of nonmetastatic and 60%-80% of metastatic Ewing Sarcoma (ES) will relapse post-treatment and outcomes after relapse continue to be poor over last several decades. Prognostic factors affecting survival after relapse of ES are also not robustly known....
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2020.0016
更新日期:2020-07-20 00:00:00
abstract:PURPOSE:As a consequence of cancer treatment, many adolescents and young adults (AYA) patients are required to take leave or face setbacks from their education. While most AYA cancer survivors and survivors of childhood cancer are capable of successfully returning to the educational system, unsuccessful returns place A...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2018.0058
更新日期:2018-10-01 00:00:00
abstract::Communication plays an essential role in social relationships. Yet it is unclear how young cancer patients and survivors communicate with peers, and whether this contributes to increased rates of social difficulties. We aimed to analyze how childhood cancer patients and survivors communicate about their cancer with fa...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2017.0131
更新日期:2018-10-01 00:00:00
abstract::This case study describes the use of patient-reported outcome (PRO) in conjunction with psychosocial treatment for an adolescent oncology patient presenting with comorbid mental health difficulties. A nine-session evidence-based cognitive-behavioral treatment was implemented and PROs were used to document progress. Re...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2017.0090
更新日期:2018-06-01 00:00:00
abstract::Adult hepatoblastoma (AHB) is a rare liver tumor with a poor prognosis in adolescents and adults. This contrasts with hepatoblastoma in children and is not fully understood. Here we describe two adolescents with AHB who were treated in our hospital. Adolescents are likely to receive less intensive chemotherapy protoco...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2017.0125
更新日期:2018-06-01 00:00:00
abstract:: Purpose: Testicular germ cell tumors (TGCT) are the most common solid organ malignancy in young men. It is a largely curable disease, so the extent to which it affects quality of life-including male fertility-is important. Abnormal semen analysis is highly predictive of ma...
journal_title:Journal of adolescent and young adult oncology
pub_type: 评审
doi:10.1089/jayao.2014.0012
更新日期:2014-12-01 00:00:00
abstract:: Background: The increase in breast cancer (BC) cases in young women is of great importance since the tumor behavior in this group is generally more aggressive than in their older counterparts, and strategies for early diagnosis and prognostication are needed. Therefore, th...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2020.0037
更新日期:2020-07-21 00:00:00
abstract:: Purpose: Young adults with cancer often experience stress, depression, and anxiety. Mindfulness meditation is an effective intervention for these outcomes, and maintenance support may be needed for long-term improvements. eHealth technologies provide a promising delivery s...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2020.0102
更新日期:2020-12-21 00:00:00
abstract:PURPOSE:Hodgkin lymphoma (HL) is the commonest cancer in adolescents and young adults (AYAs), aged 15-29 years. While the survival rate is high, many survivors experience adverse late effects of therapy. Yet, this age group in general makes limited use of health services. This study sought to determine whether the need...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2015.0039
更新日期:2016-06-01 00:00:00
abstract::Childhood cancer survivors (CCS) are at increased risk of subsequent malignant neoplasms (SMNs). However, the impact of SMNs on long-term psychosocial functioning is unknown. In a cohort of 322 young adult CCS, survivors who developed a SMN (n = 43, 13.4%) did not report a significantly higher burden of fatigue, insom...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2020.0046
更新日期:2020-08-14 00:00:00
abstract::Following a presentation with abdominal pain, a 22-year-old female was diagnosed with a massive primary liver immature teratoma with evidence of omental and pelvic metastases. Despite chemotherapy, the teratoma continued to rapidly increase in size. Significant treatment-associated myelosuppression was challenging as ...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2019.0081
更新日期:2020-02-01 00:00:00
abstract:PURPOSE:Young adult oncology has gained momentum in recognizing the unique medical and psychosocial needs of the population of adolescents and young adults with cancer (AYAC). However, many of their psychosocial needs remain unmet and we are yet to identify how clinical or research programs can be tailored to meet thes...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章,随机对照试验
doi:10.1089/jayao.2017.0101
更新日期:2019-04-01 00:00:00
abstract:PURPOSE:As many as two-thirds of male childhood cancer survivors are at risk for fertility impairment as a consequence of treatment. Despite this, survivorship guidelines lack concrete recommendations as to when fertility status conversations should happen between patients and providers and what should be discussed. Th...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2018.0094
更新日期:2019-02-01 00:00:00
abstract:PURPOSE:Adolescents with cancer have unique developmental considerations. These include brain development, particularly in the frontal lobe, and a focus on completing education and entering the workforce. Cancer and treatment at this stage may prove to uniquely affect survivors' experience of cognitive and occupational...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2017.0043
更新日期:2018-02-01 00:00:00
abstract::Infertility is often an expected side effect of cancer treatment, although the idea of fertility and sterility may be difficult for the child or adolescent patient to comprehend. Several established fertility preservation options exist for males and females, such as cryopreservation of sperm or embryos. Experimental t...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2010.0003
更新日期:2011-04-01 00:00:00
abstract::Delayed diagnosis due to lack of education may contribute to lack of improvement in adolescent and young adult (AYA) cancer survival. This program sought to educate trainees and AYAs in the community. The "Learning, Education, Awareness, Prevention (L.E.A.P) Young Adult Cancer" outreach program was developed to teach ...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2017.0060
更新日期:2018-02-01 00:00:00
abstract:PURPOSE:Orthotopic liver transplantation (OLT) is curative for hepatocellular carcinoma (HCC). HCC is typically a disease of older adults (OAs); therefore, characteristics and outcomes of OLT for young adults (YAs) (ages 18-40) are not described. The objective of this study was to assess the characteristics and outcome...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2016.0048
更新日期:2017-06-01 00:00:00
abstract::Many adolescent female cancer patients will survive into their reproductive years. Pediatric oncologists are advised to discuss oncofertility during treatment planning. In this pilot study, 19 adolescent females completed a retrospective survey assessing recall of a fertility discussion, satisfaction with fertility kn...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2017.0079
更新日期:2018-04-01 00:00:00
abstract::Radiation-induced phantosmia has been reported both in children and adults. A fraction of these patients have nausea and vomiting triggered by phantosmia. Radiation-induced phantosmia, although transient, can be distressing enough to prevent a patient from staying still during radiation therapy. To date, specific inte...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2019.0103
更新日期:2020-04-01 00:00:00
abstract::This review explores the literature on experiences of young people (15-39 years) living with cancer from nonmetropolitan areas, given most available research has focused on those living in major metropolitan areas. The purpose of the review was to inform (a) clinical practice and (b) future research on young people li...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2019.0053
更新日期:2020-04-01 00:00:00
abstract::Based on an increased appreciation of the unique challenges facing adolescents and young adults with cancer, there has been a coordinated national effort in Australia in recent years to address this issue. In 2007, CanTeen, a consumer support organization for young people with cancer, partnered with the Australian fed...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2012.0032
更新日期:2013-09-01 00:00:00
abstract::Little is known about young adults with cancer at the end-of-life, but life review and legacy making may be important modalities to process the emotions associated with anticipatory grief. The study analyzed the illness blogs of five young women (aged 25-39 years) at the end-of-life using a narrative approach. Key ele...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2015.0003
更新日期:2015-12-01 00:00:00
abstract:PURPOSE:This study describes the prevalence of religious and/or spiritual (R/S) struggle in long-term young adult (YA) survivors following hematopoietic cell transplantation (HCT) as well as existential concerns (EC), social support, and demographic, medical, and emotional correlates of R/S struggle. METHODS:Data were...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2017.0069
更新日期:2018-04-01 00:00:00
abstract:PURPOSE:There is a growing interest in fertility preservation as emerging research is highlighting the prevalence of infertility among young cancer survivors and its negative impact on quality of life. Previous qualitative research has identified barriers of fertility preservation care among professionals. The aim of t...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2016.0087
更新日期:2017-09-01 00:00:00
abstract:PURPOSE:To examine key factors related to adolescent cancer survivors' return to school after cancer treatment completion, which can be a time of complex transition. PATIENTS AND METHODS:Seventy semi-structured interviews were conducted with 19 adolescent cancer survivors (mean age 16.1 years), 21 mothers, 15 fathers,...
journal_title:Journal of adolescent and young adult oncology
pub_type: 杂志文章
doi:10.1089/jayao.2011.0006
更新日期:2011-06-01 00:00:00