Abstract：
BACKGROUND:Women who carry an FMR1 premutation (PM) allele and are mothers of children with fragile X syndrome (FXS) experience elevated maternal stress. In-person mindfulness sessions have been shown to be effective in alleviating maternal stress-related outcomes among mothers of children with intellectual and developmental disabilities. Our prior studies indicate women with a PM are at risk of social anxiety, a potential barrier to in-person mindfulness sessions. AIM:The main goals of this pilot study were to assess feasibility and adherence of an app-based mindfulness training program among mothers of children with FXS and to explore stress, social outcomes, and potential barriers to social support. METHODS:Participants (n = 18) completed questionnaires to assess stress and social anxiety, an app-based mindfulness program, and a semi-structured follow-up interview. RESULTS:Thirteen out of 18 (72%) participants completed the mindfulness program; of those, 10 (77%) found it helpful. Eight out of 18 (44%) participants met criteria for social anxiety and 11 (61%) reported having difficulties reaching out for help when needed. Women with social anxiety and those experiencing barriers to social support were more likely to find the program helpful. CONCLUSIONS:This study provides guidance for future mindfulness-based interventions to alleviate maternal stress in mothers of children with FXS.
journal_name
Res Dev Disabiljournal_title
Research in developmental disabilitiesauthors
Hunter JE,Jenkins CL,Grim V,Leung S,Charen KH,Hamilton DR,Allen EG,Sherman SLdoi
10.1016/j.ridd.2019.03.008subject
Has Abstractpub_date
2019-06-01 00:00:00pages
76-82eissn
0891-4222issn
1873-3379pii
S0891-4222(19)30055-1journal_volume
89pub_type
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