Abstract:
:This study compares the family financial and employment impacts of having a child with fragile X syndrome (FXS), autism spectrum disorder (ASD), or intellectual disabilities (ID). Data from a 2011 national survey of families of children with FXS were matched with data from the National Survey of Children with Special Health Care Needs 2009-2010 to form four analytic groups: children with FXS (n=189), children with special health care needs with ASD only (n=185), ID only (n=177), or both ASD and ID (n=178). Comparable percentages of parents of children with FXS (60%) and parents of children with both ASD and ID (52%) reported that their families experienced a financial burden as a result of the condition, both of which were higher than the percentages of parents of children with ASD only (39%) or ID only (29%). Comparable percentages of parents of children with FXS (40%) and parents of children with both ASD and ID (46%) reported quitting employment because of the condition, both of which were higher than the percentages of parents of children with ID only (25%) or ASD only (25%). In multivariate analyses controlling for co-occurring conditions and functional difficulties and stratified by age, adjusted odds ratios for the FXS group aged 12-17 years were significantly elevated for financial burden (2.73, 95% CI 1.29-5.77), quitting employment (2.58, 95% CI 1.18-5.65) and reduced hours of work (4.34, 95% CI 2.08-9.06) relative to children with ASD only. Among children aged 5-11 years, the adjusted odds ratios for the FXS group were elevated but statistically insignificant for financial burden (1.63, 95% CI 0.85-3.14) and reducing hours of work (1.34, 95% CI 0.68-2.63) relative to children with ASD only. Regardless of condition, co-occurring anxiety or seizures, limits in thinking, reasoning, or learning ability, and more irritability were significantly associated with more caregiver financial and employment impacts. Proper management of anxiety or seizures and functional difficulties of children with FXS or other developmental disabilities may be important in alleviating adverse family caregiver impacts.
journal_name
Res Dev Disabiljournal_title
Research in developmental disabilitiesauthors
Ouyang L,Grosse SD,Riley C,Bolen J,Bishop E,Raspa M,Bailey DB Jrdoi
10.1016/j.ridd.2014.04.009subject
Has Abstractpub_date
2014-07-01 00:00:00pages
1518-27issue
7eissn
0891-4222issn
1873-3379pii
S0891-4222(14)00158-9journal_volume
35pub_type
杂志文章abstract::Williams-Beuren syndrome (WBS) is a genetically determined neurodevelopmental disorder caused by a heterozygous deletion of 26-28 genes on chromosome band 7q11.23. During the past few years, researchers and clinicians have significantly contributed to define the phenotype of the syndrome, including its cognitive and b...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2010.12.005
更新日期:2011-03-01 00:00:00
abstract::Children with intellectual disabilities show deficits in cognitive abilities and adaptive behavior which increase the risk of psychopathological disorders. This exploratory study aims at delineating profiles of children based on their cognitive functioning and adaptive behaviors, and to compare them on psychopathologi...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2009.07.016
更新日期:2010-01-01 00:00:00
abstract::The aim of this pilot study was to determine if exaggerated patellar tendon jerk affects knee joint position sense (JPS) in cerebral palsy (CP) patients, by comparing JPS of the knee between participants with normal and exaggerated reflexes. The thresholds for reflex classification were based upon the data from able-b...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2015.07.021
更新日期:2015-10-01 00:00:00
abstract::Toys help children in mastering developmental tasks. This study investigated toy effect on children with developmental disabilities as they engage in using ordinary and adaptive toys. A single-subject design was used to identify the effects on their toy play abilities. Differences in toy effects between playing ordina...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2007.08.004
更新日期:2008-09-01 00:00:00
abstract::Cochlear implants (CIs) provide children with profound hearing loss access to sounds and speech. Research on the effects of CI on speech and language development in mainland China is scarce due to the lack of standardized tests. This study aims at developing a vocabulary measure, the Mandarin Expressive and Receptive ...
journal_title:Research in developmental disabilities
pub_type: 临床试验,杂志文章
doi:10.1016/j.ridd.2013.07.010
更新日期:2013-10-01 00:00:00
abstract::Intellectual disability (ID) is not uncommon in children, but data at the national level are limited, especially those on geographic differences. On the basis of the Disabled Welfare Law, Taiwan began to certify disabled residents and provide various services in 1980. All the cases are registered, and the registry pro...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2012.07.001
更新日期:2012-11-01 00:00:00
abstract::The current study examined the use of an instrument designed to evaluate the intrusiveness of treatments for addressing problem behaviors. Participants read case vignettes with proposed treatments and then completed a checklist of factors that could influence the degree of treatment intrusiveness. Results indicated th...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2007.11.002
更新日期:2009-01-01 00:00:00
abstract::Children with autism spectrum disorder (ASD) often develop the word reading skills necessary to read text but struggle with reading comprehension. Comprehension skills are often under addressed in early elementary settings leaving children with ASD at a disadvantage once they are expected to read for meaning. This stu...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2019.103507
更新日期:2019-12-01 00:00:00
abstract:BACKGROUND:Neurodevelopmental learning and attentional disorders (NLAD) such as dyslexia, dyscalculia and attention deficit hyperactivity disorder (ADHD) affect at least 6% of the adult population or more. They are associated with atypical cognitive patterns in early and adult life. The cognitive patterns of affected i...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2018.03.009
更新日期:2018-06-01 00:00:00
abstract::This paper provides a brief overview of the most recent research (1999-2009) on restraint reduction and elimination efforts in the literature and also examines the characteristics of restraint along with the risks and benefits. Some earlier papers were included in this review because of their importance to the topic. ...
journal_title:Research in developmental disabilities
pub_type: 杂志文章,评审
doi:10.1016/j.ridd.2010.07.014
更新日期:2010-11-01 00:00:00
abstract::Preterm birth increases the risk for neurologic and developmental disabilities and therefore long-term follow-up is important. This prospective follow-up study aims to describe longitudinal motor performance in preterm infants from 6 to 24 months and to detect the influence of risk factors on motor performance traject...
journal_title:Research in developmental disabilities
pub_type: 临床试验,杂志文章
doi:10.1016/j.ridd.2011.03.026
更新日期:2011-09-01 00:00:00
abstract::The aim of the study was to prospectively assess the differences in participation and sensory modulation between late preterm infants (LPI) and term babies, and to predict it by LPI characteristics. The study population includes 124 late preterm infants at gestational age between 34 and 35 6/7 weeks who were born at t...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2011.05.037
更新日期:2011-11-01 00:00:00
abstract::Sensory processing difficulties (SPD) are prevalent among children with ADHD. Yet, the question whether different SPD characterize children with different types of ADHD has not received enough attention in the literature. The current study characterized sensory processing difficulties (SPD) of children with different ...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2011.01.008
更新日期:2011-05-01 00:00:00
abstract::Eight individuals with mental retardation and imposed mechanical restraints due to severe, life-threatening self-injurious behavior received electrical aversive treatment. Eight other individuals, who had been matched with the treatment group in terms of the degree of imposed mechanical restraint due to the above prob...
journal_title:Research in developmental disabilities
pub_type: 临床试验,杂志文章
doi:10.1016/s0891-4222(00)00039-1
更新日期:2000-07-01 00:00:00
abstract::Studies into the effects of ageing on language in adults with Down syndrome (DS) have tended to rely on measures that lack sensitivity to change because they fail to explore across linguistic domains or rely on proxy reports. The study aim was to use measures of receptive and expressive language from studies of younge...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2009.12.009
更新日期:2010-03-01 00:00:00
abstract::This study explored self concepts in matched groups of adolescents and adults with Williams syndrome (WS) and Prader-Willi syndrome (PWS), using Damon and Hart's semi-structured interview. The main findings were that the WS participants were more productive in their responses to the interview, providing more self char...
journal_title:Research in developmental disabilities
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1016/j.ridd.2003.05.003
更新日期:2004-03-01 00:00:00
abstract:BACKGROUND:The presence of child disabilities might affect the amount of caregiving attention the child receives, with potential ramifications on the development of the child and increasing the likelihood of developing a more severe condition. Little is known about the association between child disabilities and caregiv...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2020.103795
更新日期:2020-12-01 00:00:00
abstract::Previous studies on grammatical gender in French individuals with Williams syndrome (WS) have led to conflicting findings and interpretations regarding keys abilities--gender attribution and gender agreement. New production data from a larger WS sample (N=24) showed that gender attribution scores in WS participants ex...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2009.07.019
更新日期:2009-11-01 00:00:00
abstract::The aim of this study was to investigate feelings of stress among parents of mentally retarded children who demonstrate behavior disorders. The interrelations of the children's pathology and family climate variables with the levels of parental stress were studied. The sample consisted of 39 families with moderately me...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/0891-4222(89)90019-x
更新日期:1989-01-01 00:00:00
abstract::A function-based behavioral treatment package was developed for an 18-year-old male with mild mental retardation admitted to a specialized inpatient unit for treatment of severe destructive behaviors associated with school refusal behavior. Teacher and school attendance reports, parent interview, and unstructured obse...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/s0891-4222(99)00021-9
更新日期:1999-11-01 00:00:00
abstract::People with Williams syndrome (WS) are said to have sociable and extremely trusting personalities, approaching strangers without hesitation. This study investigated whether people with WS are less likely than controls to attribute negative intent to others when interpreting a series of ambiguous pictures. This may, at...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2013.01.019
更新日期:2013-05-01 00:00:00
abstract::The current study focuses on the characteristics of older people with intellectual disabilities with the lowest frailty levels. Frailty is an increased risk of adverse health outcomes and dependency. Older adults with intellectual disabilities (ID) show more signs of early frailty than the general population. Knowledg...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2013.10.016
更新日期:2014-01-01 00:00:00
abstract::Obesity is a worldwide health problem. Individuals with intellectual disabilities (ID) experience health disparities, including higher rates of obesity than their peers with typical development; however, there has been no tracking of the obesity rates of children and youth with ID over time. The objective of this stud...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2013.12.005
更新日期:2014-03-01 00:00:00
abstract::Research has shown that physical exercise enhances cognitive performance in individuals with intact cognition as well as in individuals diagnosed with intellectual and developmental disabilities. Although well identified in the field of health (for example, the transient hypofrontality theory), the underlying neurocog...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2013.05.037
更新日期:2013-09-01 00:00:00
abstract:BACKGROUND:Understanding how emotional faces are processed is important to help characterize the social deficits in Autism Spectrum Disorder (ASD). AIMS:We examined: (i) whether attention is modulated by emotional facial expression; (ii) the time course of the attentional preferences (short vs. long stimulus presentat...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2017.02.002
更新日期:2017-03-01 00:00:00
abstract::Shortcomings in the technology for training support staff in methods of teaching people with severe disabilities recently have resulted in calls to improve the technology. We evaluated a program for training basic teaching skills within one day. The program entailed classroom-based verbal and video instruction, practi...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/s0891-4222(96)00031-5
更新日期:1996-11-01 00:00:00
abstract::A morphing procedure has been designed to compare directly the perception of emotional expressions and of moving objects. Morphing tasks were presented to 12 low-functioning teenagers with Autism Spectrum Disorder (LF ASD) compared to 12 developmental age-matched typical children and a group presenting ceiling perform...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2015.09.025
更新日期:2015-12-01 00:00:00
abstract::Recent studies show varying results on whether motor imagery capacity is compromised in individuals with cerebral palsy (CP). Motor imagery studies in children predominantly used the implicit hand laterality task. In this task participants judge the laterality of displayed hand stimuli. A more explicit way of studying...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2013.08.044
更新日期:2013-11-01 00:00:00
abstract::For individuals with visual impairments, auditory spatial localization is one of the most important features to navigate in the environment. Many works suggest that blind adults show similar or even enhanced performance for localization of auditory cues compared to sighted adults (Collignon, Voss, Lassonde, & Lepore, ...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2016.02.019
更新日期:2016-06-01 00:00:00
abstract::Previous researches on elementary grade handwriting revealed that pupils employ certain strategy when writing or drawing. The relationship between this strategy and the use of graphic rules has been documented but very little research has been devoted to the connection between the use of graphic rules and handwriting ...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2010.04.005
更新日期:2010-11-01 00:00:00