Communicating cancer risk information: the challenges of uncertainty.

Abstract:

:Developments in predictive testing for inherited cancers have focused attention on the accurate and sensitive communication of risk information. Although sharing risk information is often equated with genetic testing, it is important to acknowledge that the need for risk information related to familial cancer is also relevant to those not eligible for, or interested in, testing. Communicating cancer risk information is germane to a number of health professions including physicians, geneticists, genetic counsellors, psychologists, nurses, health educators and social workers. Based on a literature review of 75 research reports, expert opinion papers and clinical protocols, we provide a synthesis of what is known about the communication of cancer risk information and make recommendations for the enhancement of knowledge and practice in the field.

journal_name

Patient Educ Couns

authors

Bottorff JL,Ratner PA,Johnson JL,Lovato CY,Joab SA

doi

10.1016/s0738-3991(97)00047-5

subject

Has Abstract

pub_date

1998-01-01 00:00:00

pages

67-81

issue

1

eissn

0738-3991

issn

1873-5134

pii

S0738-3991(97)00047-5

journal_volume

33

pub_type

杂志文章,评审
  • Patient knowledge and recall of health information following exposure to "facts and myths" message format variations.

    abstract:OBJECTIVE:To assess if exposure to varying "facts and myths" message formats affected participant knowledge and recall accuracy of information related to influenza vaccination. METHODS:Consenting patients (N=125) were randomized to receive one of four influenza related messages (Facts Only; Facts and Myths; Facts, Myt...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.pec.2013.06.017

    authors: Cameron KA,Roloff ME,Friesema EM,Brown T,Jovanovic BD,Hauber S,Baker DW

    更新日期:2013-09-01 00:00:00

  • The reliability of a modified Kalamazoo Consensus Statement Checklist for assessing the communication skills of multidisciplinary clinicians in the simulated environment.

    abstract:OBJECTIVE:With increased recognition of the importance of sound communication skills and communication skills education, reliable assessment tools are essential. This study reports on the psychometric properties of an assessment tool based on the Kalamazoo Consensus Statement Essential Elements Communication Checklist....

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2014.07.013

    authors: Peterson EB,Calhoun AW,Rider EA

    更新日期:2014-09-01 00:00:00

  • Association of age, health literacy, and medication management strategies with cardiovascular medication adherence.

    abstract:OBJECTIVE:To examine patients' use of medication management strategies (e.g., reminders, pill boxes), and to determine how their use influences the relationship between patient characteristics and medication adherence. METHODS:Retrospective and cross-sectional study of 434 patients with coronary heart disease, examini...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2010.04.030

    authors: Kripalani S,Gatti ME,Jacobson TA

    更新日期:2010-11-01 00:00:00

  • Evaluating the benefits of a patient information video during the informed consent process.

    abstract::The study objective was to evaluate the effect of a patient information video during the informed consent process of a perinatal trial. Ninety women, between 19 and 33 weeks gestation, were randomised to receive written information about this perinatal trial and watch an information video or to receive written informa...

    journal_title:Patient education and counseling

    pub_type: 临床试验,杂志文章,多中心研究,随机对照试验

    doi:10.1016/s0738-3991(96)00968-8

    authors: Weston J,Hannah M,Downes J

    更新日期:1997-03-01 00:00:00

  • Long-waiting outpatients: target audience for health education.

    abstract::The study examines the meaning of waiting time in an outpatient department. Attention is payed to the activities of the patients and companions during the waiting time, the potential for health education programmes during the waiting time and the form such a health education programme should take. The setting was the ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/s0738-3991(05)80021-7

    authors: Bamgboye EA,Jarallah JS

    更新日期:1994-04-01 00:00:00

  • A course for nurses to handle difficult communication situations. A randomized controlled trial of impact on self-efficacy and performance.

    abstract:OBJECTIVE:to evaluate the impact of a communication skills course for nurses on how to handle difficult communication situations in their daily work. METHODS:a 7-h course was developed using a construct of "Awareness, Feelings, Listen, Solve" (AFLS). A pedagogy of experiential, learner-centered learning was adopted. T...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.pec.2010.02.013

    authors: Doyle D,Copeland HL,Bush D,Stein L,Thompson S

    更新日期:2011-01-01 00:00:00

  • Provision of smoking cessation counseling by general practitioners assisted by training and screening procedure.

    abstract:OBJECTIVE:To examine which counseling behavior among GPs can be achieved after counseling training when organizational support is provided. METHODS:A random sample of 39 general practices was drawn, 34 took part. GPs received a pre-study assessment followed by a training session for smoking counseling. All patients sh...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2005.11.005

    authors: Ulbricht S,Meyer C,Schumann A,Rumpf HJ,Hapke U,John U

    更新日期:2006-10-01 00:00:00

  • The power of the patient question: A secret shopper study.

    abstract:OBJECTIVES:To examine the effect of one standardized patient question on the length, number and type of new topics pharmacists addressed. To explore how community pharmacists counsel secret shoppers on two types of over-the-counter (OTC) medications-ibuprofen (IB) and emergency contraceptives (EC). METHODS:25 pharmaci...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2016.07.012

    authors: Peters J,Desai K,Ricci D,Chen D,Singh M,Chewning B

    更新日期:2016-09-01 00:00:00

  • Level of agreement between patient self-report and observer ratings of health-related quality of life communication in oncology.

    abstract:OBJECTIVE:To determine the level of agreement between patients and observers regarding the frequency with which health-related quality of life topics are discussed during outpatient clinical oncology visits. METHODS:The sample (n=50) consisted of a consecutive series of cancer patients undergoing chemotherapy. Both th...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2006.06.002

    authors: Hilarius DL,Kloeg PH,Detmar SB,Muller MJ,Aaronson NK

    更新日期:2007-01-01 00:00:00

  • Patient knowledge of hysterectomy and pap screening after minimally invasive hysterectomy.

    abstract:OBJECTIVE:To determine whether women know their own cervical cancer screening recommendations after hysterectomy, and to evaluate patients' understanding of hysterectomy terminology and cervical cancer screening. METHODS:A 19-item questionnaire was developed and administered to 413 women who had undergone minimally in...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2016.08.017

    authors: Mattingly M,Juran R,Su I,Ebinger J,Daggy J,Tucker Edmonds B

    更新日期:2017-01-01 00:00:00

  • Implementation and evaluation of a therapeutic patient education programme during a clinical trial in Yaoundé, Cameroon - Trial ANRS-12286/MOBIDIP.

    abstract:OBJECTIVES:High adherence is needed to maintain antiretroviral therapy efficacy. Few attempts at therapeutic patient education (TPE) have been made in sub-Saharan Africa. We describe patients' achievements before intervention and identified needs, TPE programme implementation and evaluation, and patients' satisfaction....

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2018.01.021

    authors: Galy A,Ciaffi L,Mberyo GM,Mbouyap P,Abessolo H,Toby R,Essomba F,Lamarre G,Bikié A,Bell O,Koulla-Shiro S,Delaporte E

    更新日期:2018-07-01 00:00:00

  • Usefulness of the Threatening Medical Situations Inventory in individuals considering genetic testing for cancer risk.

    abstract:OBJECTIVE:To assess the psychometric properties of the Threatening Medical Situations Inventory (TMSI) in a community sample (Study 1), and to examine its usefulness in individuals with a strong family history of cancer (Study 2). METHODS:Study 1 participants (N=276) completed 2 online surveys, 14 days apart. Study 2 ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2007.07.001

    authors: Wakefield CE,Homewood J,Mahmut M,Taylor A,Meiser B

    更新日期:2007-12-01 00:00:00

  • Critical observations on and suggested ways forward for healthcare communication during COVID-19: pEACH position paper.

    abstract:OBJECTIVE:Communication in healthcare has influenced and been influenced by the COVID-19 pandemic. In this position paper, we share observations based on the latest available evidence and experiential knowledge that have emerged during the pandemic, with a specific focus on policy and practice. METHODS:This is a posit...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2020.12.025

    authors: White SJ,Barello S,Cao di San Marco E,Colombo C,Eeckman E,Gilligan C,Graffigna G,Jirasevijinda T,Mosconi P,Mullan J,Rehman SU,Rubinelli S,Vegni E,Krystallidou D

    更新日期:2021-02-01 00:00:00

  • Does cultural competency training matter? A national study of anti-gay bias among cancer care professionals.

    abstract:PURPOSE:This study examined whether higher levels of self-reported cultural competency training were associated with less anti-gay bias among a cancer healthcare provider sample (n = 404) recruited in January 2017. METHODS:A factorial analysis of variance (ANOVA) was performed to examine anti-gay bias across professio...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2020.12.022

    authors: Pratt-Chapman ML

    更新日期:2020-12-25 00:00:00

  • TTM-based motivational counselling does not increase physical activity of low back pain patients in a primary care setting--A cluster-randomized controlled trial.

    abstract:OBJECTIVE:To investigate the effectiveness of a TTM-based motivational counselling approach by trained practice nurses to promote physical activity of low back pain patients in a German primary care setting. METHODS:Data were collected in a cluster-randomized controlled trial with three study arms via questionnaires a...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,多中心研究,随机对照试验

    doi:10.1016/j.pec.2007.09.018

    authors: Leonhardt C,Keller S,Chenot JF,Luckmann J,Basler HD,Wegscheider K,Baum E,Donner-Banzhoff N,Pfingsten M,Hildebrandt J,Kochen MM,Becker A

    更新日期:2008-01-01 00:00:00

  • Social support, coping and subjective well-being in patients with rheumatic diseases.

    abstract::The purpose of this cross-sectional study is to examine the relationship between social support, coping, and subjective well-being by testing three hypotheses: (1) social support influences subjective well-being via coping; (2) coping influences subjective well-being via social support; (3) there is a reciprocal relat...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/s0738-3991(99)00033-6

    authors: Savelkoul M,Post MW,de Witte LP,van den Borne HB

    更新日期:2000-02-01 00:00:00

  • Effective training strategies for teaching communication skills to physicians: an overview of systematic reviews.

    abstract:OBJECTIVE:Physicians need good communication skills to communicate effectively with patients. The objective of this review was to identify effective training strategies for teaching communication skills to qualified physicians. METHODS:PubMED, PsycINFO, CINAHL, and COCHRANE were searched in October 2008 and in March 2...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审

    doi:10.1016/j.pec.2010.06.010

    authors: Berkhof M,van Rijssen HJ,Schellart AJ,Anema JR,van der Beek AJ

    更新日期:2011-08-01 00:00:00

  • Everyday couples' communication research: Overcoming methodological barriers with technology.

    abstract::Relationship behaviors contribute to compromised health or resilience. Everyday communication between intimate partners represents the vast majority of their interactions. When intimate partners take on new roles as patients and caregivers, everyday communication takes on a new and important role in managing both the ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2017.10.019

    authors: Reblin M,Heyman RE,Ellington L,Baucom BRW,Georgiou PG,Vadaparampil ST

    更新日期:2018-03-01 00:00:00

  • Physician communication to patients regarding medications.

    abstract::An analysis of 11 physicians' speech content regarding medications was conducted on 267 encounters with hypertensive patients. Scored were categories for questions, instructions, directions to take and justifications for taking medications. The median inter-auditor agreement was 83%. The results indicate that the phys...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/0738-3991(85)90003-5

    authors: Scherwitz L,Hennrikus D,Yusim S,Lester J,Vallbona C

    更新日期:1985-06-01 00:00:00

  • A community-based randomised controlled trial of three different educational resources for men about prostate cancer screening.

    abstract::Randomised evaluations of resources to facilitate informed decisions about prostate cancer screening are rarely conducted. In this study, 421 men recruited from the community were randomly allocated to receive a leaflet (n = 140) or one of two resources meeting criteria for a decision-aid: a video (n = 141) or an evid...

    journal_title:Patient education and counseling

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1016/j.pec.2004.05.011

    authors: Gattellari M,Ward JE

    更新日期:2005-05-01 00:00:00

  • Verbal behaviors and patterns exhibited by physicians during genetic counseling sessions.

    abstract::Research in interaction and interviewing behaviors usually has focused on the verbal behaviors exhibited by the interactants. These behaviors have been looked upon and analyzed in isolation, that is, as a single event. There is little or no information on physician-patient interactions that analyzes verbal behaviors a...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/0738-3991(84)90052-1

    authors: Mendez A,Shymansky JA

    更新日期:1984-01-01 00:00:00

  • A systematic review of the current interventions available to support children living with parental cancer.

    abstract:OBJECTIVE:Children living with parental cancer are vulnerable to distress and developmental disruption. This review aims to identify current interventions to support cancer patients' children and summarise how effective these are based on children's reports. METHODS:Between 25 May 2015 and 6 August 2018, a broad searc...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2019.05.001

    authors: Alexander E,O'Connor M,Rees C,Halkett G

    更新日期:2019-10-01 00:00:00

  • The influence of a question prompt list on patient-oncologist information exchange in an African-American population.

    abstract:OBJECTIVES:Question Prompt Lists (QPL) increase patient active participation in oncology interactions, but questions remain regarding how QPLs influence patient-oncologist information exchange. We examined how a QPL influenced information exchange during oncology interactions with African-American patients. METHODS:Da...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2019.09.020

    authors: Barton E,Moore TF,Hamel L,Penner L,Albrecht T,Eggly S

    更新日期:2020-03-01 00:00:00

  • Conceptualising health literacy from the patient perspective.

    abstract:OBJECTIVE:A person's health literacy, i.e., their ability to seek, understand and use health information, is a critical determinant of whether they are able to actively participate in their healthcare. The objective of this study was to conceptualise health literacy from the patient perspective. METHODS:Using comprehe...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2009.10.001

    authors: Jordan JE,Buchbinder R,Osborne RH

    更新日期:2010-04-01 00:00:00

  • Information to and communication with cancer patients: improvements and psychosocial correlates in a comprehensive care program for patients and their relatives.

    abstract::Between 1987 and 1989, 177 cancer patients who were to receive intensive chemotherapy with curative intention, participated in a comprehensive care project with the aim of improving their total situation, and that of their relatives (n = 120). A number of steps were taken to improve, among other things, the informatio...

    journal_title:Patient education and counseling

    pub_type: 临床试验,杂志文章

    doi:10.1016/0738-3991(94)00655-6

    authors: Glimelius B,Birgegård G,Hoffman K,Kvale G,Sjödén PO

    更新日期:1995-05-01 00:00:00

  • The influence of limited English proficiency on outcome in patients treated with radiotherapy for head and neck cancer.

    abstract:OBJECTIVE:To evaluate how limited English proficiency affects treatment outcome in head and neck cancer (HNC) patients treated with curative intent radiation therapy (RT). METHODS:From 2004 to 2010, 131 patients with HNC underwent RT. Patient's self-reported primary language and race/ethnicity were obtained at hospita...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2014.07.031

    authors: Qureshi MM,Romesser PB,Jalisi S,Zaner KS,Cooley TP,Grillone G,Kachnic LA,Truong MT

    更新日期:2014-11-01 00:00:00

  • The role of self-efficacy in dental patients' brushing and flossing: testing an extended Health Belief Model.

    abstract:OBJECTIVE:In an effort to examine the decreasing oral health trend of Australian dental patients, the Health Belief Model (HBM) was utilised to understand the beliefs underlying brushing and flossing self-care. The HBM states that perception of severity and susceptibility to inaction and an estimate of the barriers and...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2009.06.014

    authors: Buglar ME,White KM,Robinson NG

    更新日期:2010-02-01 00:00:00

  • Self-regulation and weight reduction in patients with type 2 diabetes: a pilot intervention study.

    abstract:OBJECTIVE:To evaluate the efficacy of a self-regulation (SR) weight reduction intervention on weight, body mass index (BMI), glycosylated hemoglobin (HbA1c) (primary outcomes), exercise, nutrition and quality of life (secondary outcomes). METHODS:A pilot intervention (n=53) based on SR-principles consisted of a motiva...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.pec.2008.09.027

    authors: Huisman S,de Gucht V,Maes S,Schroevers M,Chatrou M,Haak H

    更新日期:2009-04-01 00:00:00

  • Factors influencing patient education in shared medical appointments: Integrative literature review.

    abstract:OBJECTIVE:This integrative literature review investigates the factors influencing patient education in Shared Medical Appointments. METHODS:Following template analysis method, we used key concepts of the Social Cognitive Theory (SCT) and Social Constructivism as a priori themes. After detailed analysis of the included...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审

    doi:10.1016/j.pec.2020.03.006

    authors: Tsiamparlis-Wildeboer AHC,Feijen-De Jong EI,Scheele F

    更新日期:2020-09-01 00:00:00

  • Attitudes and anxiety levels of medical students towards the acquisition of competencies in communication skills.

    abstract:OBJECTIVE:Results of third year medical students' attitudes and stress levels towards the acquisition of communication skills before and after a Communication and Clinical Skills Course (CCSC) at the Faculty of Medicine of the University of Porto (FMUP), Portugal, are presented. METHODS:115 students attending third-ye...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2011.07.005

    authors: Loureiro EM,Severo M,Bettencourt P,Ferreira MA

    更新日期:2011-12-01 00:00:00