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Level of agreement between patient self-report and observer ratings of health-related quality of life communication in oncology.

Abstract：

OBJECTIVE:To determine the level of agreement between patients and observers regarding the frequency with which health-related quality of life topics are discussed during outpatient clinical oncology visits. METHODS:The sample (n=50) consisted of a consecutive series of cancer patients undergoing chemotherapy. Both the patients and observers used a checklist to report which HRQL topics had been discussed during the consultation. Percentage of agreement, kappa and adjust-kappa statistics were calculated. RESULTS:The percentage agreement between patients' and observers' ratings was generally high, ranging from 74% for fatigue to 96% for sleep problems and cognitive functioning. The average percentage of agreement over the 13 HRQL topics rated was 86%. Cohen's kappa varied between 0.41 (for pain) and 0.78 (for sleep problems). Prevalence-adjusted kappa's were generally higher, ranging from 0.48 (for fatigue) to 0.92 (for sleep problems and social functioning). The average Cohen's kappa and prevalence-adjusted kappa over the 13 HRQL topics were 0.56 and 0.71, respectively. Level of agreement was not found to vary significantly as a function of patients' background characteristics. CONCLUSION:Oncology patients' self-reports of the HRQL-related topics discussed during outpatient chemotherapy visits are in reasonably close agreement with those provided by observers. PRACTICE IMPLICATIONS:Our results indicate that the patient is a legitimate source of information about the HRQL-related content of medical encounters, and thus can be used in communication studies where the collection of observational data (e.g., via audio- or videotaping) is either too costly or logistically impractical.

journal_name

Patient Educ Couns

journal_title

Patient education and counseling

authors

Hilarius DL,Kloeg PH,Detmar SB,Muller MJ,Aaronson NK

doi

10.1016/j.pec.2006.06.002

subject

Has Abstract

pub_date

2007-01-01 00:00:00

pages

95-100

issue

1

eissn

0738-3991

issn

1873-5134

pii

S0738-3991(06)00184-4

journal_volume

65

pub_type

杂志文章

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