Abstract:
OBJECTIVE:Children living with parental cancer are vulnerable to distress and developmental disruption. This review aims to identify current interventions to support cancer patients' children and summarise how effective these are based on children's reports. METHODS:Between 25 May 2015 and 6 August 2018, a broad search strategy was used to identify relevant references. Seven databases were searched, and grey literature was also vetted. This review was informed by the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines and Cochrane guidelines. RESULTS:Eight studies evaluating six interventions were retained. Research designs and interventions were heterogenous, and study quality was low. A limited number of significant results were reported by studies. These evidenced improvement for PTSD symptoms, emotional regulation, and depression. However, overall current interventions do not appear effective among patients' children. CONCLUSION:Despite encouraging preliminary findings, interventions do not yet adequately support cancer patients' children. There is a need for more tailored and targeted interventions. A theoretical model conceptualising the impact of parental cancer may assist this. PRACTICE IMPLICATIONS:Findings will assist future intervention research by promoting standardised levels of care among cancer patients' children, that is empirically supported, effective, and meets principles of non-maleficence.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Alexander E,O'Connor M,Rees C,Halkett Gdoi
10.1016/j.pec.2019.05.001subject
Has Abstractpub_date
2019-10-01 00:00:00pages
1812-1821issue
10eissn
0738-3991issn
1873-5134pii
S0738-3991(18)30890-5journal_volume
102pub_type
杂志文章abstract:OBJECTIVE:To identify and compare patient and professional perspectives on what enables employees with diabetes mellitus (DM) to maintain their position in the workplace. To provide information on how professionals can help DM patients cope at work. METHODS:Qualitative study using concept-mapping sessions involving 23...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2005.12.015
更新日期:2006-12-01 00:00:00
abstract::A video was produced to inform men diagnosed with localised prostate cancer of the different management options for their disease. It was tested for increased knowledge and understanding on a healthy population of similar age (n=10), who were assessed before and after watching the video (20 interviews). The video was ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(02)00187-8
更新日期:2003-03-01 00:00:00
abstract::Patient delay is the interval between the day someone first becomes aware of an unexplained symptom and the day they seek medical consultation. This pre-diagnostic period is comprised of several stages which may involve delay on the part of the individual. This study investigated factors influencing the process of det...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(00)00104-x
更新日期:2001-02-01 00:00:00
abstract:OBJECTIVE:The use of the diabetes online community (DOC) is growing across all age groups. The aim of this exploratory study was to describe why older adults participated in the DOC, and how DOC users interacted with their healthcare providers. METHODS:Telephone interviews (N=20) were conducted with older adult DOC us...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2017.08.023
更新日期:2018-03-01 00:00:00
abstract:OBJECTIVE:To examine the influence of patient and physician communication factors on diagnostic delay (DD). METHODS:242 patients diagnosed with colorectal cancer (CRC) in the past 6 months who experienced symptoms prior to diagnosis were administered a 2-h semi-structured qualitative interview to assess communication ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2011.05.002
更新日期:2011-09-01 00:00:00
abstract:OBJECTIVE:The main aim of this study was to establish the contents of the lay illness models on depression, cancer, hypertension, schizophrenia and influenza in healthy and ill people suffering from these diseases who have/have not coexisted with people with these health alterations. METHODS:Dimensions of lay illness ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2007.03.016
更新日期:2007-07-01 00:00:00
abstract::In this study, the relationship between (a) doctor's and patients' communication and (b) doctors' patient-centredness during the oncological consultation and patients' quality of life and satisfaction was examined. Consultations of 96 consecutive cancer patients were recorded and content analysed by means of the Roter...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(99)00108-1
更新日期:2000-09-01 00:00:00
abstract:OBJECTIVES:To examine public perceptions of and preferences for colonoscopy vs. CT colonography (CTC) as technologies for colorectal cancer (CRC) screening. METHODS:Six discussion groups were carried out with 30 adults aged 49-60 years (60% female). Information about different aspects of the tests (e.g. sensitivity, p...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2012.05.007
更新日期:2012-10-01 00:00:00
abstract:OBJECTIVE:Communication between professionals is essential because it contributes to an optimal continuum of care. Whether patients experience adequate continuum of care is uncertain. To address this, a questionnaire was developed to elucidate this care process from a patients' perspective. In this study, the instrumen...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2010.04.035
更新日期:2011-05-01 00:00:00
abstract:OBJECTIVE:To assess if exposure to varying "facts and myths" message formats affected participant knowledge and recall accuracy of information related to influenza vaccination. METHODS:Consenting patients (N=125) were randomized to receive one of four influenza related messages (Facts Only; Facts and Myths; Facts, Myt...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2013.06.017
更新日期:2013-09-01 00:00:00
abstract::The effect of an intervention programme to improve health education leaflet uptake in community pharmacies was conducted with a small convenience sample of 12 community pharmacies in North Staffordshire, UK. The intervention consisted of four different modes of leaflet provision. Modes 1 and 2 (without and with overt ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(02)00034-4
更新日期:2003-01-01 00:00:00
abstract::Socioeconomically disadvantaged elderly are less likely to participate in fecal occult blood testing (FOBT). A quasi-experimental design was used in this operational replication study to determine predictors at baseline of subsequent participation in FOBT. Sixty-five percent of the 211 participants in the replication ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(97)00088-8
更新日期:1998-06-01 00:00:00
abstract::The overall aim was to gain insight into and understand how physicians and nurses view the implementation of empowerment group education (EGE) in diabetes. Prior to the study the physicians and nurses attended a 2-day empowerment workshop. Further, they had implemented the empowerment approach in two groups of patient...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2003.07.009
更新日期:2004-06-01 00:00:00
abstract::The purpose of this cross-sectional study is to examine the relationship between social support, coping, and subjective well-being by testing three hypotheses: (1) social support influences subjective well-being via coping; (2) coping influences subjective well-being via social support; (3) there is a reciprocal relat...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(99)00033-6
更新日期:2000-02-01 00:00:00
abstract::It is important that congestive heart failure (CHF) patients know how to monitor and manage disease-associated signs and symptoms. CHF patients were randomised to follow-up at a nurse-based outpatient clinic (intervention group (IG); n = 103), or to follow-up in primary healthcare (control group (CG); n = 105). Patien...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1016/j.pec.2004.08.005
更新日期:2005-08-01 00:00:00
abstract::Cooperation has emerged as a fundamental characteristic of human society, and many argue that this ability is the basis for the phenomenal development in our capability as a species. When we focus our attention to the interactions that occur in healthcare, we inevitably notice power asymmetry due to unequal knowledge,...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.11.032
更新日期:2020-12-01 00:00:00
abstract:UNLABELLED:Lifestyle modification programs tailored to experience, culture, psychosocial characteristics, and world-view can improve knowledge, self-care behaviors, and glucose control among Latinos with diabetes. Few data exist, however, on improving diabetes self-management among Latinos. In addition, views and pract...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2006.12.003
更新日期:2007-05-01 00:00:00
abstract:OBJECTIVES:The presentation of risks and benefits in clinical practice is common particularly in situations in which treatment recommendations involve trade-offs. The treatment of breast cancer risk with selective estrogen receptor modulators (SERMs) is such a decision. We investigated the influence of health care prov...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2017.06.033
更新日期:2017-12-01 00:00:00
abstract:OBJECTIVE:To critically appraise and discuss evidence from interventions designed to increase men's knowledge about cancer risk reduction. METHODS:A systematic review was conducted. Six electronic databases were searched for interventions published between January 1st 2006 and May 30th 2016 in English. Studies were in...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2018.03.002
更新日期:2018-08-01 00:00:00
abstract:OBJECTIVES:Shared decision making (SDM) requires an active role from patients, which might be difficult for some. We aimed to identify what patients need to be ready (i.e., well-equipped and enabled) to participate in SDM about treatment, and what patient- and decision-related characteristics may influence readiness. ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.08.031
更新日期:2020-09-13 00:00:00
abstract:OBJECTIVE:Perceptions of mastery and self-efficacy may be related to better outcomes in pulmonary rehabilitation in patients with chronic obstructive pulmonary disease (COPD). This study examined (1) whether patients with COPD improved during a rehabilitation programme with respect to quality of life (QoL) and percepti...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2005.02.015
更新日期:2006-04-01 00:00:00
abstract:OBJECTIVE:We describe and compare the perceptions of professional and family member interpreters concerning their roles and tasks as interpreters in primary care clinical encounters. METHODS:Encounters between physicians (19) and patients (24) accompanied by a professional (6) or a family (9) interpreter were videotap...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2007.09.015
更新日期:2008-01-01 00:00:00
abstract::This study aims to find out how hospital patients in Finland perceive and evaluate the education they receive. It represents the first part of a patient education project at one university hospital in which the ultimate goal is to support patients' decision-making and self-care and in this way to facilitate the indepe...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(02)00223-9
更新日期:2003-11-01 00:00:00
abstract:OBJECTIVE:To examine how physicians use information about a patient's background knowledge when both anticipating what a patient knows and producing actual answers in an email counseling setting. METHODS:A fictitious patient used a (high vs. low) level of technical jargon in an email inquiry about diabetes and provide...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2012.01.011
更新日期:2012-08-01 00:00:00
abstract::Heritable cancer risk assessment is an increasingly common method of deriving valuable information relevant to deciding on appropriate screening regimens and preventive treatments. Assessments of heritable risk typically include familial-genetic evaluation, where analyses relate family pedigree to cancer risk, and DNA...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(99)00082-8
更新日期:2000-05-01 00:00:00
abstract:OBJECTIVE:Researchers and clinicians acknowledge the complexity of planning for future medical treatment desired in the event of incapacitation. Unfortunately, many attempts to evaluate the quality of such difficult planning have been stymied by the lack of measures that can be shown to have validity. This study examin...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2005.05.003
更新日期:2006-06-01 00:00:00
abstract::Between 1987 and 1989, 177 cancer patients who were to receive intensive chemotherapy with curative intention, participated in a comprehensive care project with the aim of improving their total situation, and that of their relatives (n = 120). A number of steps were taken to improve, among other things, the informatio...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章
doi:10.1016/0738-3991(94)00655-6
更新日期:1995-05-01 00:00:00
abstract:OBJECTIVE:"Pick-Klop" is a game based on cognitive behavioral therapy. It aims to change smokers' attitudes towards tobacco addiction. This study tests the feasibility and the impact of one brief session of the intervention in a naturalistic setting within a psychiatric hospital. METHOD:Fifty-one smokers were recruite...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2007.10.006
更新日期:2008-02-01 00:00:00
abstract:OBJECTIVE:To evaluate how limited English proficiency affects treatment outcome in head and neck cancer (HNC) patients treated with curative intent radiation therapy (RT). METHODS:From 2004 to 2010, 131 patients with HNC underwent RT. Patient's self-reported primary language and race/ethnicity were obtained at hospita...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2014.07.031
更新日期:2014-11-01 00:00:00
abstract:OBJECTIVE:To synthesize current evidence about experiences and information needs of parents/caregivers managing pediatric fever. METHODS:We used systematic review methodology with an a priori protocol. We searched Medline, Embase, PsycINFO, CINAHL and ProQuest Dissertations and Theses Global, from 2000 to May 2018. R...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2019.10.004
更新日期:2020-04-01 00:00:00