An evaluation of the Decisional Conflict Scale for measuring the quality of end-of-life decision making.

Abstract:

OBJECTIVE:Researchers and clinicians acknowledge the complexity of planning for future medical treatment desired in the event of incapacitation. Unfortunately, many attempts to evaluate the quality of such difficult planning have been stymied by the lack of measures that can be shown to have validity. This study examines the psychometric characteristics of the Decisional Conflict Scale (DCS) when used as a measure of patients' evaluation of their end-of-life decision-making process. METHODS:This evaluation used the combined data from two independent samples in which 59 outpatients with a life-threatening illness and their surrogate decision makers were assigned to receive, a decision aid intervention, the patient-centered advance care planning (PcACP), or usual care only. RESULTS:Internal consistency for the DCS in the end-of-life decision-making context was high. The DCS demonstrated convergent, construct, and discriminant validity based on the total scale scores. CONCLUSION:The DCS appears to be a viable research instrument for measuring the quality of end-of-life decision making. However, the uncertainty subscale showed a weak discriminating ability and lack of association with the two other subscales, the modifiable factors contributing to uncertainty and the effectiveness of the decision making. PRACTICE IMPLICATIONS:The findings of the study can be useful for measuring decisional conflict in individuals with serious illness facing end-of-life decision making.

journal_name

Patient Educ Couns

authors

Song MK,Sereika SM

doi

10.1016/j.pec.2005.05.003

subject

Has Abstract

pub_date

2006-06-01 00:00:00

pages

397-404

issue

3

eissn

0738-3991

issn

1873-5134

pii

S0738-3991(05)00145-X

journal_volume

61

pub_type

杂志文章
  • Knowledge, attitudes, and beliefs related to hypertension and hyperlipidemia self-management among African-American men living in the southeastern United States.

    abstract:OBJECTIVE:Perceptions of illness affect cardiovascular disease (CVD) self-management. This study explores knowledge, attitudes, and beliefs regarding hypertension and hyperlipidemia management among 34 African-American men with hypertension and/or hyperlipidemia, age 40-65, living in the Southeastern United States. ME...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2016.12.011

    authors: Long E,Ponder M,Bernard S

    更新日期:2017-05-01 00:00:00

  • Attitudes and anxiety levels of medical students towards the acquisition of competencies in communication skills.

    abstract:OBJECTIVE:Results of third year medical students' attitudes and stress levels towards the acquisition of communication skills before and after a Communication and Clinical Skills Course (CCSC) at the Faculty of Medicine of the University of Porto (FMUP), Portugal, are presented. METHODS:115 students attending third-ye...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2011.07.005

    authors: Loureiro EM,Severo M,Bettencourt P,Ferreira MA

    更新日期:2011-12-01 00:00:00

  • Expectant parents' preferences for mode of delivery and trade-offs of outcomes for breech presentation.

    abstract:OBJECTIVE:To assess patients' preferences and trade-offs for mode of delivery in case of breech presentation at term. METHODS:Eighty women (40 with a foetus in breech presentation and 40 with a foetus in cephalic presentation) with a gestational age from 36 weeks onwards were offered scenarios of vaginal and caesarean...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2008.04.008

    authors: Kok M,Gravendeel L,Opmeer BC,van der Post JA,Mol BW

    更新日期:2008-08-01 00:00:00

  • A self-referral preventive intervention for burnout among Norwegian nurses: one-year follow-up study.

    abstract:OBJECTIVE:Burnout among nurses is an issue of concern, and preventive interventions are important to implement and evaluate. This study investigated levels and predictors of change in burnout dimensions after an intervention for help-seeking nurses. METHODS:Nurses participating in a self-referral, counseling intervent...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2009.07.008

    authors: Isaksson Rø KE,Gude T,Tyssen R,Aasland OG

    更新日期:2010-02-01 00:00:00

  • Predicting cancer patients' participation in support groups: a longitudinal study.

    abstract:OBJECTIVE:Few patients participate in cancer support groups despite their benefits. This study investigated the importance of Theory of Planned Behaviour variables in predicting group participation, relative to disease impact, existing support, coping and demographic variables. METHODS:Longitudinal study of patients w...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2014.05.003

    authors: Grande G,Arnott J,Brundle C,Pilling M

    更新日期:2014-08-01 00:00:00

  • Management of stable COPD.

    abstract::Chronic obstructive pulmonary disease (COPD) is a systemic disease with major impact worldwide. In the treatment of COPD a holistic approach should be taken. In order to reach this, an individual treatment plan should be made which includes at least elements of smoking cessation, optimisation of pulmonary status by ph...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审

    doi:10.1016/S0738-3991(03)00095-8

    authors: van der Valk P,Monninkhof E,van der Palen J,Zielhuis G,van Herwaarden C

    更新日期:2004-03-01 00:00:00

  • The influence of risk labeling on risk perception and willingness to seek help in an experimental simulation of preventive medical examinations.

    abstract:OBJECTIVE:To study the influence of the presentation of results of a preventive medical examination on risk perception and willingness to seek help for work-related fatigue or being overweight. METHODS:A factorial design experiment was conducted, presenting workers (n = 82) with vignettes including eight scenarios of ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2018.02.011

    authors: Nieuwenhuijsen K,Hulshof CT,Sluiter JK

    更新日期:2018-07-01 00:00:00

  • Does the achievement of medical identity limit the ability of primary care practitioners to be patient-centred? A qualitative study.

    abstract:OBJECTIVE:To explore primary care practitioners approach to and management of menstrual disorders using a sociological perspective. METHODS:Semi-structured interviews of primary care practitioners with an iterative approach to recruitment and analysis informed by grounded theory. RESULTS:Two broad approaches to patie...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2004.12.002

    authors: O'Flynn N,Britten N

    更新日期:2006-01-01 00:00:00

  • Perceptions of educational needs for patients after myocardial infarction.

    abstract::Twelve physicians, 33 nurses, and 30 patients completed questionnaires to elicit similarities and differences in perceptions of educational needs of post-myocardial infarction (MI) patients. Results, using chi-square analysis, indicated that the three groups generally agreed upon which areas should be included in educ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/0738-3991(84)90038-7

    authors: Casey E,O'Connell JK,Price JH

    更新日期:1984-01-01 00:00:00

  • The quality of informed consent in Croatia-a cross-sectional study and instrument development.

    abstract:OBJECTIVE:To examine the informed consent process implementation and quality in Croatia using a specially developed instrument. METHODS:A cross-sectional questionnaire study was conducted in 300 patients (response rate 73%) from six hospitals in Croatia, along with psychometric evaluation of the questionnaire. RESULT...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2015.08.033

    authors: Vučemilo L,Milošević M,Dodig D,Grabušić B,Đapić B,Borovečki A

    更新日期:2016-03-01 00:00:00

  • Let's talk about sex: Development and evaluation of a sexual history and counseling curriculum for internal medicine interns.

    abstract:OBJECTIVE:We developed a curriculum to increase internal medicine interns' proficiency in sexual history taking and sexually transmitted illness (STI) counseling. METHODS:The 4-h curriculum included didactics and interactive components, and was evaluated with matched pre- and post-surveys. RESULTS:Twenty-one interns ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2018.02.016

    authors: Shroff S,Spataro B,Jeong K,Rothenberger S,Rubio D,McNeil M

    更新日期:2018-07-01 00:00:00

  • The effects of infographics and several quantitative versus qualitative formats for cardiovascular disease risk, including heart age, on people's risk understanding.

    abstract:OBJECTIVE:To study how comprehension of cardiovascular disease (CVD) risk is influenced by: (1) infographics about qualitative risk information, with/without risk numbers; (2) which qualitative risk dimension is emphasized; (3) heart age vs. traditional risk format. METHODS:For aim 1, a 2 (infographics versus text) x ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2018.03.015

    authors: Damman OC,Vonk SI,van den Haak MJ,van Hooijdonk CMJ,Timmermans DRM

    更新日期:2018-08-01 00:00:00

  • An intervention programme using the ASE-model aimed at enhancing adherence in adolescents with asthma.

    abstract::A randomised controlled trial, involving 112 adolescents with asthma, and a 2-year follow-up was conducted to assess the impact of an intervention programme aimed at enhancing adherence to asthma medication. This programme had a duration of 1 year and consisted of an experimental group which received usual care from a...

    journal_title:Patient education and counseling

    pub_type: 临床试验,杂志文章,多中心研究,随机对照试验

    doi:10.1016/s0738-3991(00)00195-6

    authors: van Es SM,Nagelkerke AF,Colland VT,Scholten RJ,Bouter LM

    更新日期:2001-09-01 00:00:00

  • Autism genetic testing information needs among parents of affected children: A qualitative study.

    abstract:OBJECTIVE:Leading health agencies recommend physicians to provide information regarding genetic testing for autism spectrum disorders (ASD) to parents of affected children. How to effectively provide this information, however, is unclear for physicians. This qualitative study examined the information needs regarding AS...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2015.12.023

    authors: Li M,Amuta A,Xu L,Dhar SU,Talwar D,Jung E,Chen LS

    更新日期:2016-06-01 00:00:00

  • Changes in personal control as a predictor of quality of life after pulmonary rehabilitation.

    abstract:OBJECTIVE:Perceptions of mastery and self-efficacy may be related to better outcomes in pulmonary rehabilitation in patients with chronic obstructive pulmonary disease (COPD). This study examined (1) whether patients with COPD improved during a rehabilitation programme with respect to quality of life (QoL) and percepti...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2005.02.015

    authors: Arnold R,Ranchor AV,Koëter GH,de Jongste MJ,Wempe JB,ten Hacken NH,Otten V,Sanderman R

    更新日期:2006-04-01 00:00:00

  • The impact of descriptive norms on motivation to participate in cancer screening - Evidence from online experiments.

    abstract:OBJECTIVE:The current study tested in two online experiments whether manipulating normative beliefs about cancer screening uptake increases intention to attend colorectal screening among previously disinclined individuals. METHODS:2461 men and women from an Internet panel (Experiment 1 N = 1032; Experiment 2, N = 1423...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2019.04.001

    authors: von Wagner C,Hirst Y,Waller J,Ghanouni A,McGregor LM,Kerrison RS,Verstraete W,Vlaev I,Sieverding M,Stoffel ST

    更新日期:2019-09-01 00:00:00

  • Does cultural competency training matter? A national study of anti-gay bias among cancer care professionals.

    abstract:PURPOSE:This study examined whether higher levels of self-reported cultural competency training were associated with less anti-gay bias among a cancer healthcare provider sample (n = 404) recruited in January 2017. METHODS:A factorial analysis of variance (ANOVA) was performed to examine anti-gay bias across professio...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2020.12.022

    authors: Pratt-Chapman ML

    更新日期:2020-12-25 00:00:00

  • Future directions in research on consumer-provider communication and adherence to cancer prevention and treatment.

    abstract::The goal of this paper is to examine emerging issues in consumer-provider communication and patient adherence to cancer prevention, screening, diagnosis, treatment, and coping with survivorship. Many factors that have been shown to affect adherence can be supported or hindered by provider-patient communication, includ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审

    doi:10.1016/s0738-3991(03)00075-2

    authors: DiMatteo MR

    更新日期:2003-05-01 00:00:00

  • Readability comparison of pro- and anti-HPV-vaccination online messages in Japan.

    abstract:OBJECTIVE:In Japan, the HPV vaccination rate has sharply fallen to nearly 0% due to a series of sensational media reports of adverse events. Online anti-HPV-vaccination activists often warn readers of the vaccine's dangers. We aimed to examine distribution and readability of pro-and anti-vaccination online messages wit...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2017.04.013

    authors: Okuhara T,Ishikawa H,Okada M,Kato M,Kiuchi T

    更新日期:2017-10-01 00:00:00

  • A structural equation model of relationships of health literacy, illness and medication beliefs with medication adherence among patients with chronic obstructive pulmonary disease.

    abstract:OBJECTIVE:To determine the relative contributions of health literacy (HL) and illness and medication beliefs to medication adherence among older COPD patients and determine the pathways through which they operate. METHODS:The study was conducted using data from a prospective cohort of COPD patients in New York City an...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2020.11.024

    authors: Agarwal P,Lin J,Muellers K,O'Conor R,Wolf M,Federman AD,Wisnivesky JP

    更新日期:2020-11-25 00:00:00

  • The impact of a self-management patient education program for patients with chronic heart failure undergoing inpatient cardiac rehabilitation.

    abstract:OBJECTIVE:To evaluate a patient-centred self-management educational group program for patients with chronic systolic heart failure as compared to usual care education during inpatient cardiac rehabilitation. METHODS:A multicentre cluster randomized controlled trial of 475 patients was conducted. In the intervention co...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.pec.2016.02.010

    authors: Meng K,Musekamp G,Schuler M,Seekatz B,Glatz J,Karger G,Kiwus U,Knoglinger E,Schubmann R,Westphal R,Faller H

    更新日期:2016-07-01 00:00:00

  • Assessment of family history of colorectal cancer in primary care: perceptions of first degree relatives of people with colorectal cancer.

    abstract:OBJECTIVE:First degree relatives (FDRs) of someone with colorectal cancer (CRC) are at increased risk of the disease. In this study we examine the factors associated with discussing family history of CRC with a health professional. METHODS:People with CRC, recruited through the population-based Victorian Cancer Regist...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2013.11.014

    authors: Cameron E,Rose S,Carey M

    更新日期:2014-03-01 00:00:00

  • Development, pilot testing and psychometric validation of a short version of the coronary artery disease education questionnaire: The CADE-Q SV.

    abstract:OBJECTIVE:To develop, pilot test and psychometrically validate a shorter version of the coronary artery disease education questionnaire (CADE-Q), called CADE-Q SV. METHODS:Based on previous versions of the CADE-Q, cardiac rehabilitation (CR) experts developed 20 items divided into 5 knowledge domains to comprise the f...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2015.11.002

    authors: Ghisi GLM,Sandison N,Oh P

    更新日期:2016-03-01 00:00:00

  • Effectiveness of a communication skills training program for medical students to identify patients communicative clues.

    abstract:OBJECTIVE:This study explores whether an Experiential Training Programme (ETP) in communication skills (CS) improves students' ability to identify patients clues compared to those who follow a non-experiential training throughout their medical studies. METHOD:Intervention Group (IG): 85 4th-year medical students who r...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2020.05.018

    authors: Moral RR,Andrade-Rosa C,Martín JDM,Barba EC,de Torres LP,Martín DM

    更新日期:2020-11-01 00:00:00

  • Predictors of patient adherence to COPD self-management exacerbation action plans.

    abstract:OBJECTIVE:Identifying patient characteristics predicting categories of patient adherence to Chronic Obstructive Pulmonary Disease (COPD) exacerbation action plans. METHODS:Data were obtained from self-treatment intervention groups of two COPD self-management trials. Patients with ≥1 exacerbation and/or ≥1 self-initiat...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2020.06.015

    authors: Schrijver J,Effing TW,Brusse-Keizer M,van der Palen J,van der Valk P,Lenferink A

    更新日期:2021-01-01 00:00:00

  • Can patients tell when they are unwanted? "Turfing" in residency training.

    abstract:OBJECTIVES:When a physician believes that the troubles of caring for a patient outweigh the rewards, he or she can move--"turf", the unwanted patient from his or her own to another physician's territory. Physicians receiving such patients can feel burdened by, and resentful about, caring for those who are "turfed" to t...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2003.12.014

    authors: Caldicott CV,Dunn KA,Frankel RM

    更新日期:2005-01-01 00:00:00

  • A qualitative study on detecting cancer symptoms and seeking medical help; an application of Andersen's model of total patient delay.

    abstract::Patient delay is the interval between the day someone first becomes aware of an unexplained symptom and the day they seek medical consultation. This pre-diagnostic period is comprised of several stages which may involve delay on the part of the individual. This study investigated factors influencing the process of det...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/s0738-3991(00)00104-x

    authors: de Nooijer J,Lechner L,de Vries H

    更新日期:2001-02-01 00:00:00

  • Qualitative study investigating the process of giving anti-smoking advice in general practice.

    abstract::General practitioners' (GPs') anti-smoking advice promotes patients' smoking cessation but little is known about how GPs use their short consultations to give advice. We used semi-structured interviews with 27 UK GPs to investigate how GPs believe they should advise smokers to stop and the reasons underpinning these b...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/s0738-3991(03)00020-x

    authors: Coleman T,Cheater F,Murphy E

    更新日期:2004-02-01 00:00:00

  • Analysis of German nutrition brochures for pregnant women with evidence-based patient information criteria.

    abstract:OBJECTIVE:To evaluate nutrition brochures for pregnant women in Germany based on evidence-based patient information (EBPI) criteria. METHODS:Nutrition brochures for pregnant women in Germany were collected. Brochures addressing the risk of salmonellosis, toxoplasmosis or listeriosis were analyzed by two researchers in...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2014.10.015

    authors: Küllenberg de Gaudry D,Grede N,Motschall E,Lins S

    更新日期:2015-02-01 00:00:00

  • Evaluating existing measures of health numeracy using item response theory.

    abstract:OBJECTIVE:To evaluate existing measures of health numeracy using item response theory (IRT). METHODS:A cross-sectional study was conducted. Participants completed assessments of health numeracy measures including the Lipkus expanded health numeracy scale (Lipkus), and the Medical Data Interpretation Test (MDIT). The L...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2009.03.035

    authors: Schapira MM,Walker CM,Sedivy SK

    更新日期:2009-06-01 00:00:00