Direct to consumer genetic testing and the libertarian right to test.

Abstract:

:I sketch a libertarian argument for the right to test in the context of 'direct to consumer' (DTC) genetic testing. A libertarian right to genetic tests, as defined here, relies on the idea of a moral right to self-ownership. I show how a libertarian right to test can be inferred from this general libertarian premise, at least as a prima facie right, shifting the burden of justification on regulators. I distinguish this distinctively libertarian position from some arguments based on considerations of utility or autonomy, which are sometimes labelled 'libertarian' because they oppose a tight regulation of the direct to consumer genetic testing sector. If one takes the libertarian right to test as a starting point, the whole discussion concerning autonomy and personal utility may be sidestepped. Finally, I briefly consider some considerations that justify the regulation of the DTC genetic testing market, compatible with the recognition of a prima facie right to test.

journal_name

J Med Ethics

authors

Loi M

doi

10.1136/medethics-2015-102827

subject

Has Abstract

pub_date

2016-09-01 00:00:00

pages

574-7

issue

9

eissn

0306-6800

issn

1473-4257

pii

medethics-2015-102827

journal_volume

42

pub_type

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