From proband to provider: is there an obligation to inform genetic relatives of actionable risks discovered through direct-to-consumer genetic testing?

abstract：:The ethics of the Flexibility In duty hour Requirements for Surgical Trainees (FIRST) trial have been vehemently debated. Views on the ethics of the FIRST trial range from it being completely unethical to wholly unproblematic. The FIRST trial illustrates the complex ethical challenges posed by cluster randomised trial...

journal_title：Journal of medical ethics

authors： Horn AR,Weijer C,Hey SP,Brehaut J,Fergusson DA,Goldstein CE,Grimshaw J,Taljaard M

更新日期：2018-09-01 00:00:00

abstract：:Psychotropic and other drugs can alter brain mechanisms regulating the formation, storage, and retrieval of different types of memory. These include "off label" uses of existing drugs and new drugs designed specifically to target the neural bases of memory. This paper discusses the use of beta-adrenergic antagonists t...

journal_title：Journal of medical ethics

authors： Glannon W

更新日期：2006-02-01 00:00:00

abstract：:Recognising that offers of payment to research participants can serve various purposes-reimbursement, compensation and incentive-helps uncover differences between participants, which can justify differential payment of participants within the same study. Participants with different study-related expenses will need dif...

journal_title：Journal of medical ethics

authors： Persad G,Fernandez Lynch H,Largent E

更新日期：2019-05-01 00:00:00

abstract：:A successful feature of the 4th-year curriculum in the Medical Faculty of the Queen's University, Belfast has been the development of interdisciplinary teaching in a three-week joint course to which several clinical departments contribute...Co-ordinated teaching of topics of common interest in small groups included, u...

journal_title：Journal of medical ethics

authors： Irwin WG,McClelland RJ,Stout RW,Stchedroff M

更新日期：1988-09-01 00:00:00

abstract：:Discussions on the ethics and regulation of clinical research have a great deal to say about the responsibilities of investigators, sponsors, research institutions and institutional review boards, but very little about the responsibilities of research participants. In this article, we discuss the responsibilities of p...

journal_title：Journal of medical ethics

authors： Resnik DB,Ness E

更新日期：2012-12-01 00:00:00

abstract：:The urgency of the resuscitation and the impaired ability of the patient to make a reasonable autonomous decision both conspire against adequate consideration of the principles of medical ethics. Informed consent is usually not possible for these reasons and this leads many to consider that consent is not required for...

journal_title：Journal of medical ethics

authors： Ardagh M

更新日期：1999-10-01 00:00:00

abstract：:Technological advances in genetic testing have enabled prospective parents to learn about their risk of passing a genetic condition to their future children. One option for those who want to ensure that their biological children do not inherit a genetic condition is to create embryos through in vitro fertilisation (IV...

journal_title：Journal of medical ethics

authors： Kilbride MK

更新日期：2020-08-19 00:00:00

abstract：:Two protechnology arguments, the "hopeful principle" and the "automatic escalator", often used in bioethics, are identified and critically analysed in this paper. It is shown that the hopeful principle is closely related to the problematic precautionary principle, and the automatic escalator argument has close affinit...

journal_title：Journal of medical ethics

authors： Holm S,Takala T

更新日期：2007-01-01 00:00:00

abstract：:The revised Declaration of Helsinki allows placebo-controlled trials to be used even when there is an established therapy, provided there are adequate 'methodological' reasons for doing so. This seems to violate the principle of beneficence: where there is an established therapy, physicians treating patients with a pl...

journal_title：Journal of medical ethics

authors： Batra S,Howick J

更新日期：2017-08-09 00:00:00

abstract：:Sterilisation is the most desired method of contraception worldwide. In 1996, the Brazilian Congress approved a family planning law that legitimised female and male sterilisation, but forbade sterilisation during childbirth. As a result of this law, procedures currently occur in a clandestine nature upon payment. Desp...

journal_title：Journal of medical ethics

authors： Soares LC,Brollo JL

更新日期：2013-11-01 00:00:00

abstract：:The progress of the discussion about the 'indicators of humanhood' is reviewed, along with several associated problems. It is argued that a more serious problem is posed by social attitudes about mental handicap. The author concludes that an uncritical use of criteria of humanhood may simply reinforce a morally unjust...

journal_title：Journal of medical ethics

authors： Clinkenbeard WW

更新日期：1989-06-01 00:00:00

abstract：:Best interests decision-making and end-of-life care for patients in permanent vegetative or minimally conscious states (VS/MCS) is a complex area of clinical and legal practice, which is poorly understood by most clinicians, lawyers and members of the public. In recent weeks, the Oxford Shrieval lecture by Mr Justice ...

journal_title：Journal of medical ethics

authors： Turner-Stokes L

更新日期：2017-07-01 00:00:00

abstract：:Several distinct arguments conclude that terminally ill patients have a right to a medically assisted death; two are especially influential: the autonomy argument and the non-harm argument. Both have proven convincing to many, but not to those who view the duty not to kill as an (almost) absolute constraint. Some phil...

journal_title：Journal of medical ethics

authors： Rivera-López E

更新日期：2017-06-01 00:00:00

abstract：BACKGROUND:Despite the expansion of ethics consultation services, questions remain about the aims of clinical ethics consultation, its methods and the expertise of those who provide such services. OBJECTIVE:To describe physicians' expectations regarding the training and skills necessary for ethics consultants to contr...

journal_title：Journal of medical ethics

authors： Chwang E,Landy DC,Sharp RR

更新日期：2007-06-01 00:00:00

abstract：:Dr Wells, a general practitioner, looks at the problem of barbiturate dependence from the point of view of the prescribing doctor who has to choose for his patients - of all ages - the drug, usually a hypnotic, which is sought for insomnia or states of anxiety and stress. He argues that it is wise to prescribe non-bar...

journal_title：Journal of medical ethics

authors： Wells F

更新日期：1976-06-01 00:00:00

abstract：:Albertsen, in his recent article, offers an assessment of the recently introduced opt-out system for organ donation in Wales. However, he focuses on whether concerns raised prior to the enactment of the new system have been realised, rather than any positive impact on the number of actual donors. This side-lining of t...

journal_title：Journal of medical ethics

authors： Parsons JA

更新日期：2019-03-01 00:00:00

abstract：:In an influential essay entitled Why abortion is wrong, Donald Marquis argues that killing actual persons is wrong because it unjustly deprives victims of their future; that the fetus has a future similar in morally relevant respects to the future lost by competent adult homicide victims, and that, as consequence, abo...

journal_title：Journal of medical ethics

authors： Brown MT

更新日期：2000-04-01 00:00:00

abstract：:In this paper, we argue that there are important ethical questions about healthcare improvement which are underexplored. We start by drawing on two existing literatures: first, the prevailing, primarily governance-oriented, application of ethics to healthcare 'quality improvement' (QI), and second, the application of ...

journal_title：Journal of medical ethics

authors： Cribb A,Entwistle V,Mitchell P

更新日期：2020-02-01 00:00:00

abstract：:In recent years, it has become almost axiomatic that biomedical research and clinical practice should be 'innovative'-that is, that they should be always evolving and directed towards the production, translation and implementation of new technologies and practices. While this drive towards innovation in biomedicine mi...

journal_title：Journal of medical ethics

authors： Lipworth W,Axler R

更新日期：2016-07-01 00:00:00

abstract：:Currently, any dentist in the UK who is HIV-seropositive must stop treating patients. This is despite the fact that hepatitis B-infected dentists with a low viral load can continue to practise, and the fact that HIV is 100 times less infectious than hepatitis B. Dentists are obliged to treat HIV-positive patients, but...

journal_title：Journal of medical ethics

authors： Shaw D

更新日期：2008-03-01 00:00:00

abstract：:There are various ways in which medicine and literature interact, but this paper concentrates on the contribution which literature can make to 'whole person understanding'. Scientific understanding is concerned with seeing events and actions in terms of patterns or similarities. But 'whole person understanding' is con...

journal_title：Journal of medical ethics

authors： Downie RS

更新日期：1991-06-01 00:00:00

abstract：:Reproductive autonomy is central to women's welfare both because childbearing takes place in women's bodies and because they are generally expected to take primary responsibility for child rearing. In 2005, the factors that influence their autonomy most strongly are poverty and belief systems that devalue such autonom...

journal_title：Journal of medical ethics

authors： Purdy L

更新日期：2006-05-01 00:00:00

abstract：:Many patients believe that cardiopulmonary resuscitation (CPR) is more likely to be successful than it really is in clinical practice. Even when working with accurate information, some nevertheless remain resolute in demanding maximal treatment. They maintain that even if survival after cardiac arrest with CPR is extr...

journal_title：Journal of medical ethics

authors： Harari DY,Macauley RC

更新日期：2020-02-01 00:00:00

abstract：:It is now widely accepted that a patient's ability to engage in autonomous decision-making can be seriously threatened when she denies significant aspects of her medical condition. In this paper I use a true case to reveal the harmful effects of physician denial upon patient autonomy and well-being. I suggest further ...

journal_title：Journal of medical ethics

authors： Meyers C

更新日期：1992-09-01 00:00:00

abstract：:Towers reviews Joan Robinson: One Woman's Story, an American documentary film about a terminal cancer patient that was first broadcast by the Public Broadcasting Service on 21 January 1980. The film was made at the instigation of Robinson, a writer and editor, and covers the last twenty-two months of her life from th...

journal_title：Journal of medical ethics

authors： Towers B

更新日期：1980-06-01 00:00:00

abstract：:Robertson comments on a case presented by Gafner in the same issue of the Journal of Medical Ethics. A proposal to crush a laryngeal nerve to halt the incessant yelling of an elderly demented patient is disapproved by a medical center's surgery department for risk and ethical reasons. Robertson, an anesthesiologist,...

journal_title：Journal of medical ethics

authors： Robertson GS

更新日期：1987-12-01 00:00:00

abstract：OBJECTIVE:Little has been written in the medical literature concerning the ethics of treatment of the elderly demented patient with bowel obstruction. It is one example of the issues with which we are becoming increasingly involved. We conducted a survey of our colleagues' opinions to determine current practice. DESIG...

journal_title：Journal of medical ethics

authors： Gallagher P,Clark K

更新日期：2002-04-01 00:00:00

abstract：:Most moral dilemmas in medicine are analysed using the four principles with some consideration of consequentialism but these frameworks have limitations. It is not always clear how to judge which consequences are best. When principles conflict it is not always easy to decide which should dominate. They also do not tak...

journal_title：Journal of medical ethics

authors： Gardiner P

更新日期：2003-10-01 00:00:00

abstract：:The most publicly justifiable application of human cloning, if there is one at all, is to provide self-compatible cells or tissues for medical use, especially transplantation. Some have argued that this raises no new ethical issues above those raised by any form of embryo experimentation. I argue that this research is...

journal_title：Journal of medical ethics

authors： Savulescu J

更新日期：1999-04-01 00:00:00

abstract：OBJECTIVES:A statute enacted in 2005 modified the legislative framework of the rights of terminally ill persons in France. Ten years after the EURONIC study, which described the self-reported practices of neonatal caregivers towards ethical decision-making, a new study was conducted to assess the impact of the new law ...

journal_title：Journal of medical ethics

authors： Garel M,Caeymaex L,Goffinet F,Cuttini M,Kaminski M

更新日期：2011-04-01 00:00:00