Abstract:
OBJECTIVE:Poor prognosis is difficult to impart, particularly across a cultural divide. This study compared prognostic communication with immigrants (with and without interpreters) versus native-born patients in audio-taped oncology consultations. METHODS:Ten oncologists, 78 patients (31 Australian-born, 47 immigrants) and 115 family members participated. The first two consultations after diagnosis of incurable disease were audiotaped, transcribed and coded. 142 consultations were included in the analysis. RESULTS:Fifty percent of doctor and 59% of patient prognostic speech units were not interpreted or interpreted non-equivalently when an interpreter was present. Immigrant status predicted few prognostic facts, and oncologist characteristics no prognostic facts, disclosed. Oncologists were significantly less likely to convey hope to immigrants (p=0.0004), and more likely to use medical jargon (p=0.009) than with Australian-born patients. Incurable disease status and a limited life span were commonly acknowledged, generally with no timeframe provided. Physical issues were discussed more commonly than emotional aspects. CONCLUSIONS:While culture did not appear to influence doctor speech, interpreters filtered or blocked much prognostic communication. PRACTICE IMPLICATIONS:Initiatives to empower all patients to attain needed information, optimise communication when an interpreter is present and train cancer health professionals in culturally appropriate care, are urgently required.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Butow PN,Sze M,Eisenbruch M,Bell ML,Aldridge LJ,Abdo S,Tanious M,Dong S,Iedema R,Vardy J,Hui R,Boyle F,Liauw W,Goldstein Ddoi
10.1016/j.pec.2013.03.006subject
Has Abstractpub_date
2013-08-01 00:00:00pages
246-52issue
2eissn
0738-3991issn
1873-5134pii
S0738-3991(13)00115-8journal_volume
92pub_type
杂志文章abstract:OBJECTIVE:Contraceptive decision support tools (DSTs) have been suggested as a way to provide patient-centered contraceptive care, but little is known about the role they play in women's decision-making. The aim of this study is to understand patients' perceptions of the value of a contraceptive DST. METHODS:We conduc...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2016.08.022
更新日期:2017-02-01 00:00:00
abstract:OBJECTIVE:This study presents ongoing research aimed at understanding the suitability and impact of various decision aids (DAs) on patients with different chronic conditions in the Spanish National Health System. METHODS:A three-phase process was employed to develop and evaluate DAs for patients with hip or knee osteo...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2010.06.001
更新日期:2010-09-01 00:00:00
abstract:OBJECTIVE:Develop a system of practice tools and procedures to prompt shared decision making in primary care. SDM-GRIP (Shared Decision Making Guidance Reminders in Practice) was developed for suspected stable coronary artery disease (CAD), prior to the percutaneous coronary intervention (PCI) decision. METHODS:Progra...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2010.12.028
更新日期:2011-11-01 00:00:00
abstract:OBJECTIVE:Patient involvement focused the growth of Shared Decision Making (SDM) in contemporary healthcare practice, research, and education. Whilst important, securing appropriate patient involvement or equipping patients to choose is not necessarily the principal purpose of SDM. The purpose of SDM like all medical d...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2019.07.020
更新日期:2019-10-01 00:00:00
abstract:OBJECTIVE:To explore how effectively information presentation formats used in a patient decision aid communicated the ability of a disease modifying anti-rheumatic drug to slow the rate of progression of rheumatoid arthritis related structural joint damage (SJD). METHODS:91 first year psychology students and 91 RA pat...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2011.06.001
更新日期:2012-03-01 00:00:00
abstract:OBJECTIVE:To identify, appraise and synthesise the results of systematic reviews of the literature (SRLs) that examines the effectiveness of interventions to increase advance directive (AD) completion rate. METHODS:Narrative review of the literature-an overview of SRLs focused on interventions to improve patients' AD ...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2009.09.027
更新日期:2010-07-01 00:00:00
abstract::Widespread access to the Internet has the potential to improve the health care and quality of life of people with chronic illnesses, including people living with HIV-AIDS. However, the Internet is not equally accessible to all persons. We surveyed 96 men and 51 women living with HIV-AIDS regarding their experiences us...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(01)00134-3
更新日期:2002-02-01 00:00:00
abstract:OBJECTIVE:To assess current, desired and best body image in the opposite sex and examine correlates of body image dissatisfaction. METHODS:We conducted a cross-sectional analysis at baseline of 185 (141 women, 44 men) African Americans with type 2 diabetes in Project Sugar 1, a randomized controlled trial of primary c...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2005.01.004
更新日期:2006-02-01 00:00:00
abstract:OBJECTIVES:(i) To develop a prototype measure of co-production of health (CPH) in consultations for people with long-term conditions (LTCs); and (ii) to undertake initial validation of it, using a measure of patient-centred care, as defined by the Roter interaction analysis system (RIAS). METHODS:Mixed methods were ap...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2015.07.005
更新日期:2015-07-08 00:00:00
abstract:OBJECTIVE:To investigate whether the Verona Coding Definitions of Emotional Sequences to code health providers' responses (VR-CoDES-P) can be used for assessment of medical students' responses to patients' cues and concerns provided in written case vignettes. METHODS:Student responses in direct speech to patient cues ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2016.08.026
更新日期:2017-02-01 00:00:00
abstract::The effect of a pre-coronary angioplasty education and counselling program on knowledge and psychological status of patients and on knowledge and quality of life/coping status of their spouses was evaluated. Forty patients and their spouses participated in a pre-coronary angioplasty education and counselling program a...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(97)00040-2
更新日期:1997-11-01 00:00:00
abstract:OBJECTIVE:Poor oral contraceptive (OC) knowledge may contribute to premature OC discontinuation and unintended pregnancy. Yet, to understand relationships between OC knowledge and contraceptive behavior, knowledge must be adequately measured. This review evaluates the findings and methodological limitations of research...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2010.10.016
更新日期:2010-12-01 00:00:00
abstract::Determinants of compliance with a 6-month diet and exercise program were studied among 118 healthy middle-aged men with risk factors for coronary heart disease (CHD). Data were gathered via medical examinations, interviews and questionnaires. Smoking, high levels of hostility, perception of barriers to diet change and...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1016/s0738-3991(96)00917-2
更新日期:1996-12-01 00:00:00
abstract:OBJECTIVE:To identify and compare patient and professional perspectives on what enables employees with diabetes mellitus (DM) to maintain their position in the workplace. To provide information on how professionals can help DM patients cope at work. METHODS:Qualitative study using concept-mapping sessions involving 23...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2005.12.015
更新日期:2006-12-01 00:00:00
abstract:OBJECTIVE:To support families with a chronically ill child, a modular curriculum and new healthcare structures (trainer education, quality management) for a group self-management program (ModuS) were developed. ModuS focuses on common psychosocial aspects of chronic conditions and comprises generic and disease-specific...
journal_title:Patient education and counseling
pub_type: 杂志文章,多中心研究
doi:10.1016/j.pec.2017.01.001
更新日期:2017-06-01 00:00:00
abstract:OBJECTIVE:To examine when and why women disbelieve tailored information about their risk of developing breast cancer. METHODS:690 women participated in an online program to learn about medications that can reduce the risk of breast cancer. The program presented tailored information about each woman's personal breast c...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2013.03.016
更新日期:2013-08-01 00:00:00
abstract:OBJECTIVE:A comprehensive review was conducted of the theoretical and empirical work that addresses the preference-match strategy in physician-patient communication. METHODS:Searches were conducted on Medline, PsychINFO, InFoTrac One File Plus, Sociological Abstracts, and Dissertation Abstracts through 2004. The follo...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2005.08.002
更新日期:2006-06-01 00:00:00
abstract:OBJECTIVES:Internet-based information has potential to impact physician-patient relationships. This study examined medical students' interpretation and response to such information presented during an objective clinical examination. METHOD:Ninety-three medical students who had received training for a patient centered ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2008.12.014
更新日期:2009-07-01 00:00:00
abstract:BACKGROUND:Chronic disease patients are affected by low computer and health literacy, which negatively affects their ability to benefit from access to online health information. OBJECTIVE:To estimate reliability and confirm model specifications for eHealth Literacy Scale (eHEALS) scores among chronic disease patients ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2016.09.008
更新日期:2017-02-01 00:00:00
abstract:OBJECTIVE:With increased recognition of the importance of sound communication skills and communication skills education, reliable assessment tools are essential. This study reports on the psychometric properties of an assessment tool based on the Kalamazoo Consensus Statement Essential Elements Communication Checklist....
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2014.07.013
更新日期:2014-09-01 00:00:00
abstract:OBJECTIVES:Dialysis patients report a low health-related quality of life (HRQOL) due to high disease burden and far-reaching consequences of dialysis treatment. This study examined several cognitive-behavioral and social factors, with a focus on negative outcome expectancies, that might be relevant for HRQOL in end-sta...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.11.019
更新日期:2020-11-25 00:00:00
abstract:OBJECTIVES:To assess the supportive care needs and interest in related services among brain tumour patients and their carers and to compare the level of unmet needs to other cancer populations. METHODS:A cross-sectional survey was posted to 363 households who were subscribed to the Queensland Cancer Fund Brain Tumour ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2008.01.020
更新日期:2008-05-01 00:00:00
abstract:OBJECTIVE:The present study aimed to contribute to the design of effective health education information. Based on cognitive-psychological theory, pictures were expected to improve understanding of two existing textual instructions for using asthma devices (inhaler chamber and peak flow meter). From an analysis of the a...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2005.12.003
更新日期:2006-12-01 00:00:00
abstract:OBJECTIVE:Next generation sequencing (NGS) may aid in tumor classification and treatment. Barriers to shared decision-making may influence use of NGS. We examined, from oncologists' perspectives, whether barriers to involving patients/families in decision-making were associated with NGS use. METHODS:Using data from th...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.03.001
更新日期:2021-01-01 00:00:00
abstract:OBJECTIVE:Patient engagement has been credited with contributing to improved outcomes and experiences of care. Patient engagement has become a widely used term, but remains a poorly understood concept in healthcare. Citations for the term have increased throughout the healthcare-related disciplines without a common def...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2016.09.002
更新日期:2017-01-01 00:00:00
abstract:OBJECTIVE:This study examines the preferences of patients with metastatic cancer regarding notification of imaging results, as well as distress surrounding the process. METHODS:On imaging day, preferences for notification, expectations of results, health literacy, and social support were measured. After receiving resu...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2019.08.032
更新日期:2020-02-01 00:00:00
abstract:OBJECTIVE:This paper explores factors that influence the formulation of risk perception among men with a family history of prostate cancer who are currently attending a prostate cancer screening clinic. METHODS:Semi-structured interviews were conducted with fifteen participants. Interview transcripts were analyzed usi...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2010.11.020
更新日期:2011-11-01 00:00:00
abstract::The purpose of this cross-sectional study is to examine the relationship between social support, coping, and subjective well-being by testing three hypotheses: (1) social support influences subjective well-being via coping; (2) coping influences subjective well-being via social support; (3) there is a reciprocal relat...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(99)00033-6
更新日期:2000-02-01 00:00:00
abstract:OBJECTIVE:To understand if narratives can be effective tools for diabetes empowerment, from the perspective of African-American participants in a program that improved diabetes self-efficacy and self-management. METHODS:In-depth interviews and focus groups were conducted with program graduates. Participants were asked...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2015.03.022
更新日期:2015-08-01 00:00:00
abstract::The Russian Federation's recently adopted family medicine as a specialty, but with little or no training in psychosocial and behavioral issues, unlike many training programs in other countries. The purpose of this qualitative study was to explore the perceptions and experiences of Russian primary care physicians regar...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2004.11.006
更新日期:2005-11-01 00:00:00