Abstract：
OBJECTIVE:To support families with a chronically ill child, a modular curriculum and new healthcare structures (trainer education, quality management) for a group self-management program (ModuS) were developed. ModuS focuses on common psychosocial aspects of chronic conditions and comprises generic and disease-specific modules. A pilot test was conducted for asthma by comparing ModuS with an established asthma-specific education program (CAE). METHODS:Under routine care conditions, 491 children (6-17 years) with asthma and their parents participated in a multi-center prospective study (265 ModuS; 226 CAE). Families' program satisfaction, disease-specific knowledge, health-related quality of life (HRQoL), life satisfaction, and burden of disease were assessed before, directly following and six weeks after participation. RESULTS:The families were highly satisfied with the program. CAE and ModuS were associated with improved disease-specific knowledge, childreńs HRQoL and life satisfaction and decreased the families' burden. This demonstrates comparability of existing care with the modular approach. CONCLUSION:The ModuS approach offers a structure for effective patient education programs aiming to improve self-management. As it focused on the similarities of chronic conditions, it provides the opportunity to establish education programs for a wide range of chronic childhood diseases. PRACTICE IMPLICATIONS:ModuS facilitates the development of new patient education programs.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Ernst G,Menrath I,Lange K,Eisemann N,Staab D,Thyen U,Szczepanski R,ModuS Study Group.doi
10.1016/j.pec.2017.01.001subject
Has Abstractpub_date
2017-06-01 00:00:00pages
1153-1160issue
6eissn
0738-3991issn
1873-5134pii
S0738-3991(17)30001-0journal_volume
100pub_type
杂志文章,多中心研究abstract：:General practitioners' (GPs') anti-smoking advice promotes patients' smoking cessation but little is known about how GPs use their short consultations to give advice. We used semi-structured interviews with 27 UK GPs to investigate how GPs believe they should advise smokers to stop and the reasons underpinning these b...
journal_title：Patient education and counseling
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journal_title：Patient education and counseling
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journal_title：Patient education and counseling
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journal_title：Patient education and counseling
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journal_title：Patient education and counseling
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journal_title：Patient education and counseling
pub_type： 临床试验,杂志文章,随机对照试验
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journal_title：Patient education and counseling
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journal_title：Patient education and counseling
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journal_title：Patient education and counseling
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更新日期：1999-10-01 00:00:00
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journal_title：Patient education and counseling
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更新日期：1990-04-01 00:00:00
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journal_title：Patient education and counseling
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journal_title：Patient education and counseling
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journal_title：Patient education and counseling
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journal_title：Patient education and counseling
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journal_title：Patient education and counseling
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journal_title：Patient education and counseling
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journal_title：Patient education and counseling
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journal_title：Patient education and counseling
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journal_title：Patient education and counseling
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更新日期：2011-11-01 00:00:00
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journal_title：Patient education and counseling
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更新日期：2008-08-01 00:00:00
