Abstract：
:Although significant others (spouses, relatives and friends) of cancer patients play an important role in providing support and assistance to the patient, their need for information regarding the disease is frequently overlooked by the health care system. This analysis examines information needs of (1) diagnosed cancer patients, (2) significant others of diagnosed cancer patients and (3) the general public, as reflected in their calls to the Cancer Information Service (CIS), a national toll-free telephone inquiry service. Major focus is on the types of cancer-related subjects significant others inquire about, as well as how they first found out about the CIS. Results indicate that significant others are similar to diagnosed cancer patients in their need for additional information on specific cancer sites, treatment, and referrals for second opinions, but differ in their request for information on counseling services and clinical trials. Additionally, significant others and cancer patients are similar in how they find out about the CIS. In contrast, significant others differ from the general public in their information requirements, as well as in their source of referral to the CIS. While the CIS appears to be a channel of communication capable of addressing the dynamic information needs of significant others, further research concerning the effectiveness of the CIS and other channels of cancer information in satisfying the information requirements of significant others is recommended.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Meissner HI,Anderson DM,Odenkirchen JCdoi
10.1016/0738-3991(90)90060-xsubject
Has Abstractpub_date
1990-04-01 00:00:00pages
171-9issue
2eissn
0738-3991issn
1873-5134pii
0738-3991(90)90060-Xjournal_volume
15pub_type
杂志文章abstract：OBJECTIVE:A 2006 national survey of pediatric clerkship directors revealed that only 25% taught cultural competence, but 81% expressed interest in a validated cultural competence curriculum. The authors designed and evaluated a multi-modality cultural competence curriculum for pediatric clerkships including a validated...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2009.07.029
更新日期：2010-04-01 00:00:00
abstract：OBJECTIVES:The ecological validity of video-vignettes design investigating patient-provider communication hinges on the engagement of analogue patients (APs) with the vignette. The present study aimed to compare engagement in two commonly utilized groups of APs, patients and disease-naïve individuals. Engagement was as...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2016.04.012
更新日期：2016-10-01 00:00:00
abstract：OBJECTIVE:Female breast cancer patients carrying a BRCA1/2-mutation have an increased risk of second primary breast and ovarian tumors. Little is known about the psychological impact and treatment consequences of rapid genetic counseling and testing offered between breast cancer diagnosis and surgery. METHODS:Female b...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2012.03.019
更新日期：2012-10-01 00:00:00
abstract：OBJECTIVE:Culture and ethnicity have often been cited as barriers in establishing an effective and satisfying doctor-patient relationship. The aim of this paper is to gain more insight in intercultural medical communication difficulties by reviewing observational studies on intercultural doctor-patient communication. I...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/j.pec.2005.11.014
更新日期：2006-12-01 00:00:00
abstract：OBJECTIVE:To assess the factors associated with the persistence of clinician-led style in the therapeutic relationship in cases of serious mental illness, and the conditioning factors that the patients identify as determinants of their health. METHOD:Assessment of preferences in the decision-making process and health-...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2020.10.019
更新日期：2020-10-17 00:00:00
abstract：OBJECTIVE:This study attempts to identify a structure among patient-related factors that could predict treatment adherence in statin patients, especially with regards to the necessity-concern framework. METHODS:414 Swedish patients using statins completed a questionnaire about their health, treatment, locus of control...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2012.11.001
更新日期：2013-04-01 00:00:00
abstract：OBJECTIVE:Patient education in children with rare chronic diseases like children's interstitial lung disease (chILD) remains a challenge. AIMS:To develop and evaluate a component-based educational program for individual counselling and to improve patients' and caregivers' self-efficacy and treatment satisfaction. Furt...
journal_title：Patient education and counseling
pub_type： 杂志文章,多中心研究
doi：10.1016/j.pec.2019.01.016
更新日期：2019-06-01 00:00:00
abstract：:Patient autonomy is a guiding principle in medical decision-making in America. This is challenging when patients become mentally incapacitated and cannot express their preferences. Advance care planning (ACP) addresses this challenge. ACP is a deliberative and communicative process that helps people formulate and comm...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/0738-3991(95)00739-m
更新日期：1995-09-01 00:00:00
abstract：OBJECTIVE:To investigate the applied and conceptual relationship between two measures of shared decision making using the OPTION instrument developed in Wales and the Informed Decision Making instrument developed in Seattle, USA using audio-taped consultation data from a UK general practice population. METHODS:Twelve ...
journal_title：Patient education and counseling
pub_type： 杂志文章,多中心研究
doi：10.1016/j.pec.2007.09.001
更新日期：2008-01-01 00:00:00
abstract：OBJECTIVE:This study explores whether an Experiential Training Programme (ETP) in communication skills (CS) improves students' ability to identify patients clues compared to those who follow a non-experiential training throughout their medical studies. METHOD:Intervention Group (IG): 85 4th-year medical students who r...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2020.05.018
更新日期：2020-11-01 00:00:00
abstract：OBJECTIVE:To develop a feasibility study of a theory-driven telephone counseling program to enhance psychosocial and physical well-being for cancer survivors after treatment. METHODS:Participants (n=66) were recruited from two Colorado hospitals with self-administered questionnaires at baseline and two weeks post-inte...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2013.04.002
更新日期：2013-08-01 00:00:00
abstract：OBJECTIVE:This study presents ongoing research aimed at understanding the suitability and impact of various decision aids (DAs) on patients with different chronic conditions in the Spanish National Health System. METHODS:A three-phase process was employed to develop and evaluate DAs for patients with hip or knee osteo...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/j.pec.2010.06.001
更新日期：2010-09-01 00:00:00
abstract：OBJECTIVE:Recent studies have recognised that the communication skills learned in the training environment are not always transferred back into the clinical setting. This paper reports a study which investigated the potential of clinical supervision in enhancing the transfer process. METHODS:A randomised controlled tr...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2005.08.008
更新日期：2006-03-01 00:00:00
abstract：OBJECTIVE:This study introduces the concept of epistemic brokering in interpreter-mediated medical visits and illustrates how it can be used to effectively convey information between providers and patients/parents. METHODS:Conversation analysis is used to analyze 24 pediatric genetics consultations (=17.75 h) involvin...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2014.05.020
更新日期：2014-10-01 00:00:00
abstract：OBJECTIVE:To describe the importance of teaching clinicians when and how to overcome language barriers in clinical practice, provide an example of a curriculum for teaching on this topic, and outline the critical issues that must be addressed in this type of teaching. METHODS:We describe a 1.5h educational program for...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2009.12.001
更新日期：2010-02-01 00:00:00
abstract：OBJECTIVE:This study investigates HIV positive adolescents' health literacy and whether factors associated with health literacy in HIV-positive adults are associated with health literacy among HIV-positive adolescents. METHODS:Adolescents in this study were behaviorally and perinatally HIV-infected youth (n=186) from ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2009.07.014
更新日期：2010-04-01 00:00:00
abstract：:The study objective was to investigate physicians' perceptions of three patient decision aids (DA). Semi-structured telephone interviews were conducted with 20 family physicians and 12 gynecologists about a DA for women considering long-term hormone replacement therapy; with 16 respirologists about a DA for the use of...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(03)00050-8
更新日期：2003-07-01 00:00:00
abstract：OBJECTIVE:To ascertain whether physicians have favorite patients, their experiences with such patients, and how such relationships may influence patients and physicians. METHODS:Semi-structured key informant interviews with 25 primary care internists practicing in several clinic settings at a large academic medical ce...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2016.06.023
更新日期：2016-11-01 00:00:00
abstract：OBJECTIVE:Although peer coaching can help patients manage chronic conditions, few studies have evaluated the effects of peer coaching on coaches, and no studies have systematically examined these effects in the context of chronic pain coaching. METHODS:Peer coach outcomes were assessed as part of a randomized trial of...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2020.02.007
更新日期：2020-07-01 00:00:00
abstract：:Although 'patient-centred' consulting skills are increasingly seen as crucial for the delivery of effective primary care, there is significant lack of clarity over the precise definition of the term, optimal methods of measurement, and the relationship between patient-centred care and patient outcomes. The present stu...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/s0738-3991(02)00099-x
更新日期：2002-09-01 00:00:00
abstract：OBJECTIVE:Clinicians worldwide seek to educate and support heart failure patients to engage in self-care. We aimed to describe self-care behaviors of patients from 15 countries across three continents. METHODS:Data on self-care were pooled from 5964 heart failure patients from the United States, Europe, Australasia an...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2013.02.017
更新日期：2013-07-01 00:00:00
abstract：OBJECTIVE:To test repeatability and relative validity of a computerized and interviewer administered assessment. METHODS:Using a context-based case-control trial, 41 adults with type 2 diabetes mellitus were randomized into four groups to complete dietary assessments (computerized or interviewer administered) at 0, 2 ...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2008.01.019
更新日期：2008-07-01 00:00:00
abstract：OBJECTIVE:To review the literature to identify external influences on information exchange and shared decision-making in healthcare consultations and conceptualise how information is used both outside and within a consultation. METHODS:A 'meta-study' approach (meta-data-analysis, meta-theory, meta-method, and meta-syn...
journal_title：Patient education and counseling
pub_type： 杂志文章,meta分析,评审
doi：10.1016/j.pec.2008.09.025
更新日期：2009-04-01 00:00:00
abstract：OBJECTIVES:When a physician believes that the troubles of caring for a patient outweigh the rewards, he or she can move--"turf", the unwanted patient from his or her own to another physician's territory. Physicians receiving such patients can feel burdened by, and resentful about, caring for those who are "turfed" to t...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2003.12.014
更新日期：2005-01-01 00:00:00
abstract：OBJECTIVE:To meet the need for an interactive product on exercise during pregnancy and postpartum, we developed and evaluated a personally tailored multimedia CD-ROM. METHODS:Pregnant and postpartum women, who were randomly assigned to either the experimental group (PregXercise CD-ROM) or the control group (CD-ROM wit...
journal_title：Patient education and counseling
pub_type： 杂志文章,多中心研究,随机对照试验
doi：10.1016/j.pec.2007.10.017
更新日期：2008-02-01 00:00:00
abstract：OBJECTIVE:(1) To investigate the impact of education on patients' knowledge; (2) to determine if educational interventions are related to health behavior change in cardiac patients; and (3) to describe the nature of educational interventions. METHODS:A literature search of several electronic databases was conducted fo...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/j.pec.2014.01.012
更新日期：2014-05-01 00:00:00
abstract：OBJECTIVE:To explore contexts of experiences of physical activity perceived as beneficial or harmful for CFS patients. METHODS:A qualitative study with empirical data from two focus groups with purposive sampling. Mean age was 50, two of ten participants were male, and social demographics varied. Participants were inv...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2010.05.027
更新日期：2011-05-01 00:00:00
abstract：OBJECTIVE:There is some evidence for biomarker feedback when combined with cessation counseling for reducing smoking in pregnancy. This randomized controlled pilot study evaluated feasibility and potential efficacy of a social-cognitive theory (SCT)-based biomarker feedback intervention among pregnant Alaska Native (AN...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2018.10.009
更新日期：2019-03-01 00:00:00
abstract：OBJECTIVE:Assess psychometric characteristics of an instrument to measure patient ratings of treating physicians' compassionate care in a recent hospitalization. METHODS:We used Cronbach's alpha to examine scale reliability, exploratory and confirmatory factor analysis to examine scale structure of two sets of items o...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2015.03.019
更新日期：2015-08-01 00:00:00
abstract：:Primary care consultations about the menopause and hormone replacement therapy (HRT) involve decision making in the face of clinical uncertainty. This qualitative study used focus groups and semi-structured interviews with primary care patients to explore patients' perspectives of optimal risk communication and decisi...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2003.11.001
更新日期：2004-05-01 00:00:00
